Bc found at pbmx without any previous findings in either breast

Hello Elise,

I have a very strong family history of Breast as well as Ovarian cancer on both sides. I met with  a breast surgeon today, and will meet with a Plastic surgeon Friday. I will be having a PBMX as well as reconstruction and hysterectomy in two weeks. I have had three surgical biopsies over the last 5 years each time finding ADH etc. I am tired of having pieces of me taking out as well as the fear and anxiety every time I have a mammogram. So I took matters in my own hands.

Hope this helps,

Lisa

I chose to have PBMX because of ALH - precancerous.  I was tired of the worry, testing, biopsies.  I have been very happy with the whole process.  Let me know if you have any questions.  There aren't too many ladies that have masectomies without having more than ALH or ADH, unless they test positive for BRCA.

Hugs, Valerie

In December of 2008, I had stereo-tactical in 5 spots for microcalcifications in both breasts, in the process,  I was diagnosed with ALH in the right.  I had that surgically removed.  I have had diagnostic mammograms in one or the other breast every six months since Feb. 2009. ( I just remembered the biopsy I had when I was 18.)

Last week I had the tomo 3d mammogram, and as a result discovered two complex cysts.  They were aspirated today.  One was clear, the other bloody.  I will have the results on Tuesday.  I have a small palpable lump right now.  I actually thought that was one of the ones they were aspirating today, but I guess not because it's still there.  I feel too stupid to mention it now.

Needless to say, I am also thinking about a PBMX.  Not only is it emotionally draiing, its a huge financial burden.  In 2009, I spent $6000. out of pocket...and I have good insurance.  I am a single mom with a wonderful daughter in nursing school. 

I collected all of my radiology reports today which basically tells me that regular mammograms are close to useless for me,  due to the density of my breast. (Another high risk factor.)   One report says "physical examination is of primary importance to this patient."  In between mammograms, I have to have clinical exams.  Besides the risk, its like looking for a polar bear in a snow storm.  My sister was diagnosed 2 years ago. (Another high risk factor.)  She discovered a lump 3 months after a mammo.  It was never revealed on mammo, even after confirmed diagnosis. She had a BMX, and is suffering through menopause and arimidex.

 I am a little confused as to why they have not suggested MRI for me.  I don't want to soundpessemistic, but I feel its not a matter of if with me, but when. 

Forgive my rambling, and writing.  My eyes are tired and the display on my laptop is small.

Any and all opinions are welcome.  I am totally exhausted from all of it. 

I am afraid they will find BC when I have the PBMX. All I know is for the first time in a long time I feel relieved that this will soon be over and I can get back to my life again.

I am proud of you ladies for making such a tough decision regarding the PBMX! If my every 6 month visits continue to be mysteries, biopsies, we don't know ,and we think nothing is wrong, then I am wanting to move in the same direction with surgery. I am sick of the psychological angst.  I am lucky to be in the military medical system, so the cost for my ductal excision, et al was not out of pocket - I know you are all saddled with the financials bills with this stuff, as well. Anyhow, just wanted to high five you! I wish they had a thumbs up ability on these posts!!

I have Starmark Insutance through work. Working on a appeal. I have had three DRs recommend a PBMX.

 lisag46 

That is good you have an appeal going.  It is so hard to be aggressive when you already feel like crawling into a hole.  Insurance companies like to hit them when they are down.

Perhaps you have someone who can help fight on your behalf.  Best wishes for a successful outcome.  Let us know how this progresses.