Lesbians Supporting A Partner Who Has BC

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Comments

  • JanNJ
    JanNJ Member Posts: 1
    edited January 2006

    Post deleted by JanNJ

  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2006
    Jan: well i dont know if I fit into this picture. I have been married for 29 years to a wonderful man. He is my partner. My heart goes out to you. Sounds like you have been through alot. I think you should keep coming to the chat and the discussion boards. We help each other every day. Cancer is cancer. Glad you found us.

    Nicki
  • mpetago
    mpetago Member Posts: 92
    edited February 2006
    Hi All!!

    Just popping in to let you know I'm out here "lurking" if anyone wants to talk. No pressure, if not. Sometimes you just need a break - as for me, I'm pretty well addicted; so if the need or desire arises, just know that I'll be around.

    Monday I get the results from genetic testing - wasn't planning to do it but new onc wanted to - so I figured, why not? Since I haven't had reconstruction yet, at least then I could decide whether to keep "old faithful" or go for a bilateral DIEP when the time comes. If I'm negative for both, then I've decided I'm keeping the ovaries and right boob until further notice!

    Hope everyone is well!!

    Melanie
  • elainedbar
    elainedbar Member Posts: 3
    edited February 2006
    Greetings All,
    Wow! I've been soaking up all the great information and wonderful, compassionate support from all these, well, wonderful women on this message board for awhile, and then, I finally find this thread. I'm the 'partner who has BC' I have ILC Stage IIIa, R mast., and have my 4th A/C next Tues., then 4 Taxatere, then radiation. I was diagnosed 11-04-05, surgery 11-23-05, chemo 12-20-05. Needless to say, it was an enormous shock, yet I am trying to have some equanimity about it. And it is just so reassuring to discover lesbians here. I mean everyone here seem so thoughtful and generous with their concern. And thank you, thank you for a lesbian thread also. My sense of self as a woman, a lesbian, my feminity, sexuality all feel, umm, under assault by breast cancer.
    Then there is my mortality of course. What can I say? What can I ask? Someone else, wiser than I... I will type a quote here from Pema Chodron, from "When Things Fall Apart"
    "...anyone who stands on the edge of the unknown, fully in the present without reference point, experiences groundlessness. That's when our understanding goes deeper, when we find that the present moment is a pretty vulnerable place and that this can be completely unnerving and completely tender at the same time."
    Trying to get comfortable with uncertainty,
    -E
  • SpanArtist
    SpanArtist Member Posts: 75
    edited February 2006
    Hi Elaine,

    Welcome to this thread (although sorry you...or any of us...have to be here)! I was dx 10/04, so I'm a yr ahead of you. I'm appreciating the quote you shared with us...

    Hugs, Liza
  • mpetago
    mpetago Member Posts: 92
    edited March 2006
  • Anonymous
    Anonymous Member Posts: 1,376
    edited April 2006

    This is a great string! I haven't been diagnosed yet (will know results of biopsy on Apr 20th) but this is a great place I will send my partner to if the need arises. Stay strong!

  • NoH8
    NoH8 Member Posts: 2,726
    edited April 2006

    Are there any lesbian breast cancer survivors posting here? I've had some discrimination from some bc survivors who don't approve of my "lesbian" life style (even though I'm single and not having much of a life style these days LOL) and it's not like I walk around saying, "I'm a prochoice, athiest lesbian, nice to meet you." Breast Cancer events are about survival and awareness, not politics and religion. Last I checked breast cancer didn't discriminate by color, race or religion.

  • jgrjunque
    jgrjunque Member Posts: 47
    edited April 2006
    Quote:

    I've had some discrimination from some bc survivors who don't approve of my "lesbian" life style



    I'm so sorry to hear this. Frankly, I don't care if someone is green with purple polka dots -- we're all in this thing together.

    (And no, I'm not a lesbian, but my dearly beloved niece and her partner are, and they have been 100% supportive of me throughout my BC -- how can I be anything less to them in anything they face in their lives?)
  • SpanArtist
    SpanArtist Member Posts: 75
    edited April 2006
    Hi Amy,

    I'm a lesbian BC survivor...I've posted on this thread before but it hasn't been too active lately. I post on other threads too.

    I'm sorry you've had some seemingly unpleasant experiences here. I'm very "out" and haven't run into that yet. In fact, one of the threads I'm most active on is about sexual issues after treatment and the women there have accepted me very much. I'm also an atheist and have expressed that about myself, and again, no negative repercussions yet.

    I was dx in 10/04 at age 53 and just completed treatment 2/06 (except I'm still on Arimidex). I was stage 1, but my cancer was very aggressive. I'm just starting to get my energy back (thankfully) but am struggling to get my life in order at this point. What with chemo brain, seems like I just can't get caught up with things!

    Sounds like you and I have some things in common! I'm an artist and a cat lover! My partner Cindy and I have 2 cats and 2 dogs, but my 22 lb cat Sydney is my "baby girl" (she was 25 lbs but she's been on a diet...lol). I didn't get her until she was about 6 yrs old and she's the sweetest creature on earth!!

    I did look at your web site and I hand it to you for having such a social conscience to take the time and energy to do that...and it's a really nice web site. I also took a peek at Marianne's movies on her web site, which I really enjoyed! Eventually, I'd like to have a web site for my art as well!

    I'm certainly open to a "cyber-friendship" w/ a fellow sister (on TWO counts!) so if you'd like to respond or PM me, that would be great! I'm in Florida around Tampa (we would like to eventually move up to the very eastern border of PA to be close to Manhattan...I lived in NJ before coming down here, and miss it terribly). Where are you?

    Take care!
    Hugs, Liza
  • straykat
    straykat Member Posts: 95
    edited April 2006
    Hey, Amy, hell with 'em!

    I think you'll find this a suppportive board no matter what your orientation. We're here to help and support you no matter what!

    Hugs to you and your partner.
  • NoH8
    NoH8 Member Posts: 2,726
    edited April 2006

    Thanks for the warm welcome and support. Maybe I'm naive, but I just never expected to have my sexuality be an issue in breast cancer support and survival. Glad to know I'm not alone here.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited April 2006

    I'm a lesbian and I have just been newly diagnosed...I would love to see this string continue for my dw

  • SpanArtist
    SpanArtist Member Posts: 75
    edited April 2006
    Hi Sige,

    Just thought I'd say "hi" to you! I was dx 10/04 w/ stage 1 IDC and just finished treatment 2/6/06. I'd like to hear more about you, including the particulars of your cancer, or where you are with things, if you care to share them. This thread has provided support for survivors AND their partners, so feel free to talk about yourself too!

    Hugs, Liza
  • Anonymous
    Anonymous Member Posts: 1,376
    edited April 2006
    Liza - Thanks for the hugs. I am still processing the shock but will fill you in more when I am able. Haven't had the courage to look at path report just yet.
  • SpanArtist
    SpanArtist Member Posts: 75
    edited April 2006
    Sige, I understand completely. Let me know if there's anything I can do to offer you support.

    Hugs, Liza
  • ramonajane
    ramonajane Member Posts: 54
    edited April 2006
    Hi Sige (and her partner) and all of the rest of you!



    Been so long since I've been here, but I try to pop in from time-to-time. I'm glad I checked tonight.



    Sige's partner - we are here for you. I will check in more regularly, to look for a post from you.



    My story is earlier in this thread, but to recap:



    My partner was dx in June 2005. She had a mastectomy in July 2005. She was just below the mark for chemo, and the tumor board recommended against it. She is taking Arimidex now - started in October 2005. She'll take it for 5 years.



    Being a caregiver is challenging, stressful, adventuresome, frightening, lonely, and empowering all at one time.



    Please feel free to share as much or as little as you would like. If you want to talk, we are here. This message board was a huge part of the experience for me. It helped me normalize things, and made me feel not quite so alone.



    I plan to stick around and be here for partners just starting this journey. We had plenty of people "reach back" to us, and though its hard to believe enough time has passed for me to be in a place to "reach back", it has! And so I will.



    I hope to hear from you (and anyone else who has just found us or hasn't posted in awhile) and we'll offer you our support, ideas, listening ears, and friendship.



    best,

    ramonajane
  • NoH8
    NoH8 Member Posts: 2,726
    edited April 2006
    Sorry to hear about your diagnosis Sige.
    Quote:

    I'm a lesbian and I have just been newly diagnosed...I would love to see this string continue for my dw




    I PMed Melissa and she said if there was enough of an interest, they could start up the lesbian survivor board again. I told her I'd be really active on the board if they did.
  • ramonajane
    ramonajane Member Posts: 54
    edited April 2006
    I see that the Lesbians section of the message board is up now. How great!

    I posted a note there, letting partners know they were welcome to join us here if they'd like to.

    Sige - how are you? Sige's partner - how are you? I check each day to be sure I didn't miss a message from you, but take your time. Post when/if it feels right. We are here for you. You are not alone, and you can do this.

    Love,
    rj
  • NoH8
    NoH8 Member Posts: 2,726
    edited April 2006
    Thanks Ramona! I hope that partners will also feel comfortable posting on the lesbian survivors forum as well .
  • cowgirl
    cowgirl Member Posts: 777
    edited April 2006

    Warms my heart this thread is active again!

  • sigesrock
    sigesrock Member Posts: 1
    edited May 2006

    Just a quick note to say HI to everyone. My name is Helene and I am Sige's partner. So glad you are all here for each other. I know she loves this site and it has been very supportive and helpful for her. I look forward to having someone to read and write to in the coming days.

  • ramonajane
    ramonajane Member Posts: 54
    edited May 2006
    Helene! Welcome! I love your username.

    I'm sorry you have to be here with us, but glad you found us. Please let us know how we might be supportive of you.

    Thinking of you, and wishing you much strength and love for the journey ahead.
  • ariesmaiden
    ariesmaiden Member Posts: 5
    edited May 2006
    Hey all.
    I've been sitting here reading posts while my wife is asleep, and I can't hold the tears back anymore. (At least she's asleep and can't see this). My wife (we're in MA thankfully) was diagnosed with DCIS four days before her 46th birthday. I know I should be grateful it's so early, and I am, I just can't get past the thought that I could lose her. We're still very early in the process, and I know it is going to be a long road. I just wish I could do it for her.
    As much as it's killing me to see her tears and confusion,
  • ariesmaiden
    ariesmaiden Member Posts: 5
    edited May 2006
    Sorry. Still figuring this out.
    To continue...
    As much as it's killing me to see her tears and confusion she's doing better with this than I am. I just don't let her see me cry because it wouldn't help anything. But surgery is in ten days and I'm terrified.
  • KariLynn
    KariLynn Member Posts: 1,079
    edited May 2006

    DH used to cry in his office at work. It was such a relief when we talked about the what ifs and cried together. I know our spouses try to spare us - think if they don't bring it up we won't think it but that's not true. It's always on our mind and being able to share our fears with our loved ones helps. Don't be afraid to talk about your fears and cry together - you can't get past what you don't acknowledge.

  • susan_02143
    susan_02143 Member Posts: 7,209
    edited May 2006
    Aries,

    Your hurt and love of your wife come through your posting so clearly, and I wish the two of you all the best. I was diagnosed at 46 too, but with IDC. If I can be of any help, please let me know... depending on where you are in the State, maybe I could at least share what helped me and my husband get through the past 11 months.

    Take care,

    *susan*
  • ariesmaiden
    ariesmaiden Member Posts: 5
    edited May 2006
    Thanks. Any suggestions, ideas, anything like that would be really appreciated. It's strange. I have so many women in my life that have guided me through so many things, but none of them have been through this. I feel like I've been thrown to the wolves to fend for myself on this one.

    "Aries"
  • ramonajane
    ramonajane Member Posts: 54
    edited May 2006
    oh aries - you are NOT alone. We are here for you - all of us, gay and straight. Pop on over to the Lesbian Forum, too, if you like.

    I can tell you from our experience that what helped was honest, real communication. Its not easy to share really hard emotions, but it helped when we figured out pretty quickly that we were both feeling similar things. And that we were both scared. And that was OK.

    You can do this. A lesbian couple we know, ahead of just 10 months in the breast cancer journey, "reached back" to us graciously and that was one of the most important things they told us. Some days, it was all we could hang on to. But it is true. You CAN do it. And we are here for you.

    with a hug,
    rj
  • ariesmaiden
    ariesmaiden Member Posts: 5
    edited May 2006
    Thanks rj.
    My mind knows that I'm not alone, but my heart is having an issue figuring that out. I guess i'm just feeling how young I am (29). And unfortunately, all the older women that have been my mentors throughout everything have no idea when it comes to this. Luckily the communication in our relationship is amazing. I don't know what I did to deserve this woman or our relationship, but I am truly blessed to have her in my life. Which is why I'm so afraid to lose her.
    "Aries"

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