Between the Devil ( the red one) and the deep blue sea

Wow, this is my lucky day....I actually succeeded in getting on the internet at the oncologist's office. They do have WiFi here and they have the password and network name posted in the waiting room, but never have I been able to get on before.  BUT the best news is, I AM GETTING MY ADRIAMYCIN!!!   The PA, and the nurses were all happy that my tumor markers are 325.8, but I think they are most excited that I brought cookies.  lst I passed them out to patients and then I told them they could have the rest....they asked is this because you got good news? and I said you got that right, keep on giving me good news and I will keep on baking.  I bake when I am happy.  

I wonder if one or both of these new meds can mess up sleep patterns?....this is my 2nd night up....of course I went to bed early...10:00.   My right leg has not gone down even though I had it elevated in bed...good thing I wear long pants at work so my ankles can hang over my shoe in private.   Left leg and foot look normal which is odd since that is my ankle where I had the compound dislocation and it is has always been a little larger.

My leg is normal right now, Barbe.  I think I have some bigtime problems however.  Yesterday at work, I felt like little chills were coming out of the top of my head and also it felt like my skin was crawling....not necessarily an itch, but like little ants were crawling all over my face....Odd how it was just my face, mostly forhead.   Also I was very red, face and neck, BUT this could have been the red man syndrome for the Adriamycin which I used to always get, but stopped a month or so ago.  However since we skipped a treatment, maybe it is back.  Who knows.   Anyway, back to new symptoms....my throat felt sort of sore and I had difficulty swallowing and kept clearing my throat all day.   We took my BP off and on all day....once it was pretty normal 117/ 74 ( I have never had high BP), but then it was 101/54.. another time 102/64.   Both of these meds are for BP, but she told me in my case it was for my heart.  The rt leg stayed swollen even though I was wearing my support hose, but as I said that is looking OK, right now at least....after sitting at this desk for awhile, it will probably swell again.   I went to bed really early because I was just super tired so am up now, but think I will go back to bed until the alarm goes off to get up for real.

Cardiologist is out of offce til next week, but I spoke with her nurse and she told me not to take the coreg last night...take that one twice a day.  We are going to determine by process of elimination which med I am having a reaction to or if it might be both.  I will just take lisinopril tomorrow, but am thinking maybe I will take it at lunch since we only work 1/2 day on Friday. 

I read about cardiomyopathy yesterday which is what the paper said my diagnosis is.....one treatment is a pacemaker and we know that isn't going to happen....they don't like to do surgery on me with my blood clot history.  I am not to the stage where I need that, but just reading about the condition makes me scared and even though I wanted to continue with the adriamycin, I am afraid the damage is already done so maybe it is best to quit while I am ahead.  I was reading SEs of the new meds and of course the petty ones always jump out at me and I was exclaiming out loud in the lunch room....Hair Loss!! ( I forget which one can cause that, but I thought Yikes, it is just now coming back!!), Weight Gain!!, although it also said you could lose your appetite.   It said hives was one where you should call your physician immediately....I did not have hives, but that crawly skin feeling was not pleasant.   I read perpherial edema is a sign of cardiomyopathy so why didn't they jump on this when it started I am wondering.   Also when my potassium dropped I think that should have been a tip off.  But would I have wanted them to stop the chemo since it was working?.....am not sure, just am not sure.

What's the saying, Life's a beach and then you die. 

I am in need of some hugs and a pep talk right now.  Dear old Dad is coming for the weekend so that should keep me busy.