Calling all TNs

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  • riley702
    riley702 Member Posts: 1,600
    edited July 2012

    Inmate, I'm so sorry. God, cancer sucks so hard.

    One more Neulasta tip: have it injected somewhere fatty, like your belly or your butt, and the injection will hurt less. I always got it in my stomach. 

  • JazzyJ
    JazzyJ Member Posts: 126
    edited July 2012

    Carolyn- If that's the case, I can have it injected everywhere but my eyelids :-). They have been going into back of my arm, but tomorrow I am going to suggest the belly, or butt, or thigh........ Gotta laugh so we don't cry :-)

  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,204
    edited July 2012

    CANCER FUCKING SUX

  • fishinurse
    fishinurse Member Posts: 50
    edited July 2012

    You got it cocker spaniel! Had AC for. 1ST TIME YESTERDAY /NEULASTA TODAY-can say I expected to feel crappy-took claritin this morning-took nausea mess as directed.Still al. Nauseated and aching. Took vicodin.Helps

  • JazzyJ
    JazzyJ Member Posts: 126
    edited July 2012

    Cocker - Spot on!



    Fishinurse - Sorry the Claritin didn't do the trick today..... May be better tomorrow. Fingers crossed.

  • JazzyJ
    JazzyJ Member Posts: 126
    edited July 2012

    The steroids for today's treatment have me wired! Should be cleaning closets, but to lazy to do that.....

  • kathyrnn
    kathyrnn Member Posts: 393
    edited July 2012

    Inmate - Cancer fuckin sucks!!! So unfair girlfriend, you are truely a warrior.



    Can I ask a question before I forget. What do skin mets look like? Good luck tomorrow. Crossing my fingers that they put you on the vaccine list.

  • inmate4232010
    inmate4232010 Member Posts: 310
    edited July 2012

    Kathrynn......my skin mets look like a bumpy red rash or this time a few little red bumps.  The first time I had them they looked a lot like shingles.  If I can get my husband to send me the pic I will post one of the first rash I had.  As long as it won't offend anyone.

  • BernieEllen
    BernieEllen Member Posts: 2,445
    edited July 2012
  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,204
    edited July 2012

    Inmate - certainly won't offend me.  You rock girl.   

  • BernieEllen
    BernieEllen Member Posts: 2,445
    edited July 2012
  • inmate4232010
    inmate4232010 Member Posts: 310
    edited July 2012

    skin mets

    Kathrynn........Here's a pic of my skin mets that i had removed in April.  The pen marks represent the skin that was removed.  the small cut in the middle of the mets is where I had my biopsy.   The other scars, well that's history. 

  • inmate4232010
    inmate4232010 Member Posts: 310
    edited July 2012

    Thanks all for the support.  Just don't know how I could do this without your love and support!

  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,204
    edited July 2012

    Inmate - they do look so much like shingles.  And its amazing how much skin they take.  You will always have our support.  A thoroughly courageous and brave person needs all the support and help we can give and you've got it all wrapped up with our love.  Annie      

  • MagicOne
    MagicOne Member Posts: 1
    edited July 2012
  • beccad
    beccad Member Posts: 326
    edited July 2012

    MagicOne
    the first thing that I would do is FIND A NEW GROUP OF DOCTORS ( YES I MEANT TO YELL )

    If you have any clubs or groups that you are let,one or two in that group know just a little of what is going on in your life and you will probably find that you have lots of friend willing to help. I know these things worked for me.

    Hugs,cfs
    beccad
  • beccad
    beccad Member Posts: 326
    edited July 2012

    MbagicOne,the first thing that I would do is FIND A NEW GROUP OF DOCTORS ( YES I MEANT TO YELL ). If you have any clubs or groups that you are in, let one or two in that group know just a little of what is going on in your life and you will probably find that you have lots of friends willing to help. I know these things worked for me.



    Hugs,cfs

    beccad

  • beccad
    beccad Member Posts: 326
    edited July 2012

    MagicOne
    the first thing that I would do is FIND A NEW GROUP OF DOCTORS ( YES I MEANT TO YELL )

  • fishinurse
    fishinurse Member Posts: 50
    edited July 2012

    Wow inmate, i really would have looked at that and thought of it as a rash,if i could hug ya, iwould, can't imagine what you are going through!

  • fishinurse
    fishinurse Member Posts: 50
    edited July 2012

    Magicone,what a situation! If it's vascular,that's probably why they don't operate. Have you considered going to differrent dr,? Are you eligible for some program that can have someone come to your home and assist with care?I am a hospice nurse for an organization in ohio,we have a palliative care program for people Who Are Not Terminal,want to emphazise the not terminally ill, they have a diagnosis that makes them appropriate for palliative care for pain relief,comfort,perhaps offer assisstance with home care,assistance with medication,treatments. I am not saying you are appropriate for hospice,just throwing that out there, wish i could be there to help you. I think you get to the point where you wonder about going on,its a personal decision,rest,get pain relief, see a diifferent dr. ,that could help with your decision. You are so much in my thoughts!

  • LuvRVing
    LuvRVing Member Posts: 4,516
    edited July 2012

    (((MagicOne))) - you poor thing, you need some support!  And quickly! 

    First, make your way over to the Stage IV/Metastatic Breast Cancer discussion forum and introduce yourself.  You may find someone who has somewhat similar circumstances. 

    http://community.breastcancer.org/forum/8

    Second, find the nearest nationally certified cancer center, make an appointment and get a second opinion.  If you are able to travel, you might think about getting to Dana Farber, MD Anderson, Mayo or any of the other "biggies".  You don't have to be referred - most of these big cancer centers have websites where you can request an appointment.  And they are very responsive, you won't likely be ignored.

    (((Inmate))) - sending some luv your way!

    The best thing that's happening today - I am unofficially a great-grandma (now that makes me feel old...lol).  My son's SO's daughter and SIL just had a healthy baby boy about an hour ago.  It will be nice to have a baby in the family again.

  • christina1961
    christina1961 Member Posts: 736
    edited July 2012

    (((Inmate)))

    MagicOne, I'm sending you a private message.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2012

    ((((Inmate))))) so, so sorry that you have to deal with this!



    Phyllis

  • borntosurvive
    borntosurvive Member Posts: 213
    edited July 2012
    Inmate: Thank you for posting that picture.  I too would just think of it as a rash and with this heat it's no doubt that people may think it's just a heat rash.  You're amazing, you're an inspiration, you're a warrior and you WILL win xo
  • Tazzy
    Tazzy Member Posts: 2,546
    edited July 2012

    Inmate: more hugs and love being sent your way.  

    MagicOne: no words... that is awful what you are going through.   Sending hugs and love your way too.

    To all you wonderful ladies - here's to another day kicking cancers butt.  Thinking of you all with love and lots of hugs.

  • Tazzy
    Tazzy Member Posts: 2,546
    edited July 2012

    Oh! and forgot to say to the new great grandma Michelle - congratulations to you all.  Wonderful news.

  • BernieEllen
    BernieEllen Member Posts: 2,445
    edited July 2012
  • LM50
    LM50 Member Posts: 18
    edited July 2012

    Inmate:  You truly are a warrior!  Continue the fight!

    MagicOne:  Great advice from LuvRving. Don't be shy about asking for help..people will respond in ways you've never imagined.  As far as our father is concerned, now is the time to speak to him and mend your relationship.  If he lives close I'm sure he will be more than happy to help.  My mother passed away from ovarian cancer in 1984...really affected my dad and I secretely blamed him for not being as attentive as I thought he should have been. But that is my problem...he did the best he could.  Put negative feelings aside and tell him what's goiing on.  He will run the gambit of emotions at first  but I have a feeling he will jump at the chance to help his daughter.  Best of luck.

    Has anyone heard from Hope60?  I haven't seen a post since July 10...she was due to have an MRI.

  • borntosurvive
    borntosurvive Member Posts: 213
    edited July 2012

    I was just thinking about Hope60 and have not heard anything from her. 

    Off to meet up with my work team and rest of the agency to share memories of our friend and co-worker who died on July 9th.  49 years young.....undetected cancer.  Very sad and it's hard for me to not stop and think that all this could have been happening for me if my family doc had not sent me for that initial ultrasound.  Big girl panties are on and my purse is full of kleenex.  

  • Titan
    Titan Member Posts: 2,956
    edited July 2012

    Dang skin mets Inmate..I hope you beat those suckers back again....but I do want to thank you for posting the pic...its hard to know what to look for when you don't know what you are looking for...does that make sense? 

    I'm worried about Hope also...hope she comes back here soon...

    Born to survive...I hear you about going the the memorial service today.....I'm proud of you...its very hard to go to these service and not think about what if..

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