The Living Life Hang Out
Comments
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Lezza, My MO ran a blood test to see where I'm at hormone wise for menopause. She swears that you should be in menopause by 55! LOL, my 55th birthday was last Monday. I'll find out what the results are when I go see her next week. Glad you are getting along with the exchange! I'm patiently waiting for mine the end of Aug.
I need to ask about a bone density scan. I've already been told to go to the eye Dr. & get a baseline since Tamoxifen can cause cataracts.
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Husker123- Here is something interesting--- A year ago when I went to have an eye exam, my opthomologist told me I had "baby" cataracts already. I had a prechemo exam with my retina specialist( very very near sighted and had a posterior vitreous detachment aka a PVD in my left eye which is an old age eye probem). I got told the same thing "baby" cataracts and when it becomes time to have the cataracts fixed, I should have both eyes done at the same time. Oh yeah, did I tell you that I'm going to be 57 this year in the fall and had my last period right after my first chemo treatment this past April. Those ovaries just weren't ready to shut down. I still feel them tweaking every once in a while. Yep, old age just bites and add in chemo and Tamox and Herceptin and I am really have fun now!!!
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Hi ladies I know from other threads! I saw PS today (exchange set for Aug 7 unless I panic and set it for later after school year is rolling) and see MO tomorrow. I know we will talk about the hormone thing. I had oopharectomy in Nov, definitely menopausal ( ya think?) and I don't know what he will suggest, or the timing of it. Like others, still dealing with nails and watery eyes, chemo SEs, but I think they are getting better.Praying that I DON"T have SEs from Arimidex- sister didn't. Oh, please let us share that gene as well as the funky one we share@!!
Lezza, how's your energy post-exchange?
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Lezza13- I'm doing pretty well. I have #5 of 6 chemo rounds tomorrow. Hard to believe that my time in the chemo lounger will be over in early August. I've been extremely fortunate in that my side effects have been minimal. I had an echocardiogram this morning for the Herceptin B-47 clinical trial. I am one of the ones in that trial receiving the Herceptin. I already have the test results back which is a surprise since the results weren't supposed to be ready until tomorrow afternoon. Good news-- my heart is doing fine. I hope it stays that way with the rest of my treatments. Still don't know about the rads but my case will be presented to the Tumor Board soon so I should know where I'm heading next after chemoland. Thanks for checking up on me. You have always been a great help to me during my chemo. Every little bit of support I've received from everyone has made my life better.
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Melrose - you will be done in no time! the last 2 went much faster for me than the first 4 - no idea why!
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Dance: Glad to hear your tests are coming back normal! Good for you!
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dancertrancer glad all of your tests were fine. Letme know what you think of Tamox which I started today and we can fuss and compare about no SE"s!!
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Hi there mellrose: I will be thinking about you in the big girl chair tomorrow. After that then only one more to go!! Each treatment seemed easier than the one before. Glad you heart is doing fine and hope it keeps beating stong for you, Keep in touch and and I will keep behind with ya all the way! Sending hugs and minimal SEs with your number 5!
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lisa2012. The energy has come back more after Day 5. I went to the store with my DH.. I am at Day 6 and need a nap but much more higher energy level than my BMX. I am wearing a 24/7 bra I hate but has to be done. I go back to my PS the 24. I teach too and the only restriction is lifting no more than a gallon of milk for awhile. So if you can get help with lifting you should be fine with summer start. I bought a compression sleeve to help with lifting on my lymph node side. Just FYI and best of luck
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onvacation- Thanks for the kind words and encouragement. I'm pretty jazzed about getting these last 2 rounds done and over with and not because of the Decadron steroids I'm on right now!!!!! Hope you are doing well and the rads go easy on you.
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Melrose: I wil be thinking of you tomorrow....
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kjliberty- Thanks!!!! I am definitely rtg (ready to go) for tomorrow and looking forward to the day I am PFC like you!!!!
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Hi Apple welcome!
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Melrosr, rock on! You are getting my hugs and support through the airwaves. You give us all so much!!
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mel - good luck in the bgc today!
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Melrose--hair buddy--thinking of you today and hoping the minimal SEs continue. I'm STILL an itching mess from allergic reaction round 4, but otherwise continued my similar record of minimal SEs. STILL HAVE MY BROWS! Yippee!
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Good luck Melrose!
For those who need some laughs, I found a really entertaining thread. I read a few lines everyday just to perk me up. Some of the ladies on that thread are really, really funny, and can see the humor in some otherwise dark places. It happens to be in the stage III section, but it could have ended up anywhere. It's title is 'You know you're a cancer patient when...' its here: http://community.breastcancer.org/forum/67/topic/755825?page=1 . I started reading on page 1 and have a long way to go (its a very long thread).
Here's hoping today's a good one for everyone!
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Lisa2012, Hiker61, Dancetrancer & Slak - Home from #5 and feeling fine for now. It went really easy with no problems. Met with my onco to talk about the rads and other general side effects I've had throughout the chemo. My case goes before the tumor board next Tuesday to talk about possible rads. There are some good things for not having rads and probaby some good reasons to have rads. I told her I was most concerned ahout the rads hitting my heart and lung. Just don't want more damage from treatment if I can avoid it. My echocardiogram results say I have a very strong ticker. I was relieved to get that good news.
Hiker61- Can't believe that you are still hiving but I know it takes a while for chemo to leave the body. Hope you are getting some relief from the itching!!! I used to use that benedryl extra strenth cream and put it on hives. It helped but I was told I should do that and take oral benedryl at the same time. oh welll. As for hair, still have some very scant hair especially along my hair line... I have some very thing wispy bangs and hair at the nape of neck. It got stubbies coming out and peach fuzz that comes and goes after each one of these treatments. At least I know those little hair follicles are trying to recover from the chemo. I've lost a few bottom lashes, top lashes look okay. Eye brows have thinned but the ones that left look like they are trying to come back. Have minimal hair down south. I just think this hair is crazy and kind of interesting to follow. I cnose not to fret about it and just look at what is happening is the scientific results of an experiment. I haven't started my Latisse yet and may get this new Mary Kay cosmetic Eyelash and Brow Serum. It is cheaper than the Latisse. I never have been a makeup girl so doing something for the lashes and brows is a step out for me. Hope you feel better soon!!!!! HUGS!!!
t
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woohoo Melrose for getting through #5 - wishing you minimal side effects!
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onvacation- Thanks!!! Feeling a little tired but I know it's from all of the anti-nausea drugs. So an early evening is coming my way. My case is up before the Tumor Board next Tuesday so i will know a week from today which way I'm going. My onco knows that rads for me is up in the air because of my particular case. I also let her know my concerns for getting the rads and having possible heart and lung damage is the aim isn't just right. She tried to reassure me that that likelihood of that happening was minimal but it is still on my mind. If I have to, I have to and I will do my best to get through it. She said I'm doing pretty well--- my echocardiogram results came back great, nails look good and she didn't feel anything when doing a breast exam on me. Yes, I am hoping for minimal side effects this go around. Neulasta shot tomorrow. Wow in another 3 weeks, I'll be sitting for the last chemo!!!!
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Melrose, great how organized you are and direct with doctors. Glad you have just one chemo left!!! Hope your night goes well.
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lisa2012- Thanks. I'm having an early night. I'm going to take some benedryl so i can sleep my way through the Decadron and Zofran tonight. My onco and her research coordinator are very easy people to talk to you and have been responsive to my questions. My onco is a very vibrant and positive person which makes talking to her easier and open to letting me try things. She readily agreed to supplements which i have and don't take and to prescribe the Latisse for my eyelashes. She is a researcher also so she is open minded to things. Hope you are doing well!!!!
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Melrose - are you using the latisse now? I started about 3 weeks ago and so far I don't see any growth. I lost all but a couple on the left eye and have about 15 left on the right eye. Really hoping the latisse helps!
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onvacation- I haven't started the Latisse yet. In fact, I haven't filled even filled the prescription yet. I may try somethine else first before I do the Latisse. Some other women on a thread suggested Mary Kay cosmetic Eyelash and Eyebrow Growth Serum which is about $38. No matter we use, once we stop using it, the extra lash growth stops. My eyebrows have thinned but there is new growth trying to come out. Some of the bottom eyelashes are gone on both sides. The top eyelashes have hung in there. I think you have to hang in there with the Latisse because it takes a few months to see growth. Love these little science experiments we do on ourselves.... lol
Hope you have a great day!!!
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melrosemelrose: glad #5 is finished! Can't wait to do that happy dance in August. Glad you are on top of your doctors with everything and and you have a strong ticker! Rest welll with minimal SE's
hiker61 So sorry to hear about all that itching. Hope you find some relief with Benedry or an Aveno oatmeal bath.
Six weeks post last TX I have fuzz all over my hear. Heard I could lose some during Tamox by shedding. Just when I thought life was better here comes the shedding and the hot flashes.
slak- forgot to say: I loved the thread. Thx for posting it.
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Melrose--glad you came through #5 ok, and #6 will be here before you know it. My fuzz is coming in everywhere EXCEPT around my face and the middle of my head. I think I'll keep shaving it until I can tell it's coming in uniformly. I'd rather be smooth than patchy and wispy. My brows are thin, but I don't think I've lost one lash. Hard to believe! Also time for my monthly leg shave! Have you had any nail effects? I have 4 brown toenails and sore fingernails (just in the last week), but I don't think they'll fall off and it's not that big of a deal.
Yeah, the hives have been pretty awful. The worst thing was nothing worked--not IV steroids or IV benadryl or oral prednisone or other antihistimines. Onc even had me take a double dose of benadryl and double dose of atarax (Rx) at the same time--didn't kill me OR help! After trying everything suggested by friends, the only thing that helped a bit was "icy hot" spray that had 16% menthol. It was super intense and I couldn't spray it everywhere (I had them everywhere except my feet), but it took the edge off for a couple of hours (and cleared my sinuses!). I still look like something out of a dermatological journal and it's been 3 weeks (now there's weeping and scabbing--attractive!), but the itching is better, which is ALL I care about. I can say that the itching made the hot flashes less noticeable! Ha! Headed to Lake Tahoe and Lassen tomorrow to hike, so hope the mountain air is healing!
Slak--I loved the thread, too.
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Hiker61- Have a wonderful time at Lake Tahoe and be safe!!!! So far, my nails have been doing good. Bummer to hear yours are a little funky. Still icing and putting on that clear nail polish and trying not to use my fingernails as tools like i used to!!! Geez..... those hives of yours are something else!!!! I read on the internet about hives when I was getting them repeatedly when I was taking a bunch of different antibotics before my UMX and after I got home from the hospital with crazy hives from surgical scrub. I didn't like what I read since the info said it could come in waves and keep hanging around for several months. It just made me want to boo hoo. Oh well, it just means you have to be extra careful because you don't know what will set the hives off at any time. I now carry a list of every drug, food, airborne allergen that I'm can't tolerate so everyone will know what I can't be treated with in case of an emergency.
My rads decision/recommendation will be next Tuesday after the Tumor Board meets. Not overly thrilled about the rads possibility but I will do whatever I have to do get healthy and make sure the nasty is gone. I let my onco know that I was concerned about getting zapped near my heart and lungs. She tried to reassure me that the radiation treatments are pretty precise these days. That's a little comforting. I'll let everyone know what happens once I find out.
That thread that Slak mentioned is pretty funny . Love to read what others think....
Hope everyone is well and just getting on with the healing and getting back to normal.
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Slam- thanks so much for finding that thread. It really made my day! I loved the quote from one lady that said "laughter is really the best medicine". With all that we have been though, it was great to have a good laugh.
Hope everyone is having a great day!! I'm two weeks PFC and starting to feel better each day. -
Slak: Loved the post as well. It's all so true.
January: I am three weeks PFC and it's wonderful, isn't it?
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melrose- I will be thinking positive thoughts for you next Tuesday. I hope all goes well and best for you and your health! Keep being your own advocate!
hiker61 I do hope you enjoy your trip and that mountain air does you good!
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