My Truth About Radiation
I completed 33 radiation treatments today. I purposely waited until I was done to post about my experience. I fully realize every person's situation is unique and different...but I wanted to share mine so people wouldn't look on this message board for guidance and be afraid, but instead be hopeful.
My official diagnosis is: IDC, right breast, 1.5 cm, no lymphovascular invasion, Er+ Pr+ HER2-, 50 years of age, still menstruating, lumpectomy, 33 radiation treatments (25+8 boosts), I refused the oncotype test. I didn't want a number hanging over my head for the rest of my life. Both my medical and radiation oncologists looked at my diagnosis and "guessed" the number would be a 10 or 11...that's good enough for me. I still haven't decided if I will take Tamoxifen or not. It is my personal belief not to use prescription drugs. I am praying about it and I know I will be led to make the right decision.
I can honestly say the radiation treatments were uneventful. I was there, start to finish, for @ 30 minutes each day. Immediately after each treatment I would apply 100% PURE aloe vera gel to the entire breast...then 2 more times daily. I didn't burn at all. In fact, if anything, my breast got tanned. The only thing I can say I've noticed is a mild itching or tingling once in a while due to the tissues healing. As for the fatigue I was warned about...I didn't experience that either. I kept waiting but it never happened. I have made sure I get a good night's sleep, eat well, drink adequate water and walk daily.
So that's my story. I just felt it was important to let people know how it was for me.
Blessings to you all in your journey........Rebecca
Comments
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Thanks. Ours stats are similar. I am trying not to be anxious about this. Are you fair skinned or darker skinned? I am very fair and wondering how my skin will hold up. I am praying I start rads next week. Were you highly hormone receptive?
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Thanks, Rebecca. So often people post when they've had a tough time (with any tx) and that is understandable because they are looking for support. However, it makes forums a bit skewed and certainly scares the heck out of people. It is nice to hear of someone who got through tx with little to no difficulty. I suspect there are many more out there. Caryn
PS: my dx and tx are very different than yours but I have gone through all with very few se's . -
I had minimal, and tolerable SE's. I had skin issues starting at about treatment 15 or so, and they were uncomfortable ... red rash with some "oozing". Lotions did not really help ... however, these went away within about 10 days after finishing radiation. You could see the radiation field - it was pink/red - but I am 3 weeks out and now you can barely see it at all.
I don't think that skin coloring has anything to do with the possible SEs from radiation -- since radiation SEs are from the "inside-out" versus the sun which is from the "outside-in". I am medium complexion - I burn moderately easily in the sun. I have "heard" that breast size has a lot more to do with SEs ... smaller faring easier than larger; that said, many women in our "May group" who had mastectomies had a more difficult time as well -- that could have been because their dose was greater (as they, in general, had more advanced disease).
I hope you continue feeling well! Thank you for starting this thread, it is good to let women know that not all side effects are horrific.
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Hello everyone
I finished my 33 rads [27 reg 6 boosts] on July 9. I have only had a few SE. I had a few places in the middle of my chest that itched and felt like bug bites. My RO gave me prescription cortisone cream which took care of the problem fast. My skin is red but getting tanner each day. My skin held up really well. I am fair skinned with many many spots and freckles. I have had many many sunburns in my life. I used aloe after treatment and a couple of other times during the day. My RO did not want me to use anything else until I needed it which I didn't.I found the aloe with no alcohol at GNC, Vitamin World and vitamin Shoppe. I am still using it and cashmere shay butter from bath and body works. I suppose I could still have a reaction but I hope not. I did have a breast reduction along with my lumpectomy. I think this made things easier since I had big breast before. My next big worry is starting Femera. I have a MO appointment tomorrow. I did get tired easy and took a nap from time to time but I stayed very busy and did all my usual stuff. Good Luck to everyone starting rads. It is another step to being done.
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Hi Ladies,
I am exactly 1 year out from 33 Rads and boosts. The worst part about it was the getting there everyday! I had the first appt of the day and walked across Central Park to get there and sometimes I just wanted to sleep in! My RO said fair skin tends to bounce back a bit better than darker skin even though we are more proned to more redness. That's exactly what happend. Now, a year out, My breast gets red pretty easily after a hot shower or a work out and occasionally I'l have some minor itching but other than that, all is good. I now use only an organic lotion on my breast as I am freaked out by all the chemicals in so called natural lotions. (aloe vera though is excellent!).
I remember the first day crying like a baby and by the last appt we were cracking jokes and gossiping about the other techs. It's amazing how time really does heal. I have been on Tamoxifen for 10 months and other than some hot flashes and leg cramps here and there, all is well.
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Thank you ladies so much for this post. I get my tatoo wed. July 18 th and start first of 25 treatments next week. Everything you have said makes me feel so much better....Do not expect it to be a piece of cake but at least there is hope.
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Good luck Isabelle. It will be fine. Have you joined up with a radiation group (July or August)? I found that daily contact with others going through the same thing to be immensely helpful. I got tired near the end, but I worked full-time through radiation (and even ran 50 miles/week!), in retrospect, it was very tolerable.
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Good evening ladies. May I hang out here?? I just had my first apt with R.O today oh what an experience.hahaha) Anyways targeting to start rad begining of Aug. Just had my 2nd lump on july3 had one may 15 also. Anyways Ive been put off starting rads due to swelling of breast ( also have some redness,rash) and back with limited R.O.M to arm. Have any of you girls have this problem??? Just wondering.Thanx for any info. I guess it will be a long "hot" summer
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Hello ladies
new to this thread, just found out today i have appt with RO aug 15, so dont know yet if i will have rads or not. Was supposed to find out today whether im going to have chemo but her2 test results arent back :-( so more waiting...but glad to be reading these and hoping it continues to go well for all of you -
Belinda: Yes, I am ER 97% and PR 93%...also forgot to post that I am Stage 1b Grade 2. I would say my skin tone is medium. I burn minimally and tan very easily...I've never avoided the sun!
I will honestly say: every day while I laid on that table, I would pray "please don't burn!"...I believe it worked!
At first it may have been a bit uncomfortable to stretch my arm above my head (from scar tissue) but it actually helped to loosen me up.
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Ro-berta, I had some arm problems. I did these exercises for a while, and I think they helped "loosen up" the area: http://www.cancer.org/Cancer/BreastCancer/MoreInformation/exercises-after-breast-surgery
I also have pretty severe rash issues - but I was lucky and healed pretty well from the surgery.
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Blinthedesert thanx for the info girl! I will check out the sight. I tried doing some arm stretches yada yada yada, course that is working real well (not) hahaha. I wasn,t sure if the swelling is from the heat. I see you have done your rads. Are you feeling better, or more relieved and is all your treatment done??? I am hopefully starting mine soon not looking forward to it like everyone else but am looking forward to getting it over with. thanx again for the info hon.
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Radiation is SO over for me ... it is like it never even happened, seriously, my skin barely shows the radiation field (it was quite red by the end of my treatment -- but that was 3 weeks ago now), I have NO residual problems at all. The fatigue is gone, and I feel better than I have for months. I do have to say that although I did some exercises, my arm was the last thing to "get better" and I went to see my running "fixit guy" he does ART (www.activereleasetechniques) and it hurt like the dickens, but I have full range of motion now and everything feels GREAT. This is a little bump ro -- you will get through it!!
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Blinthedesert -Oh I am so happy for you, Did you have a major celebration for yourself? That is what I look forward to, to be done that part. I wasn,t going to do rads but the Dr. said i had a very high risk of it coming back, so I rethought everything through again , it only took a minute (hahaha). I am getting whole breast radiation? so now all I can picture is a glowing cup fitting over my poor old boob hahaha. I know i,ll get through that is the only thing we don,t have to make a choice about hahaha. I did check out the site you gave me, very helpful.
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BLinthedesert. Interested to hear about your running. Makes melte hopeful.
Had UMX and immediate reconstruction in Jan.
Cleared by PS to run 6 weeks post-op.
Chemo began in Feb and completed last week.
Ran throughout chemotherapy.
Rads to begin in August.
My runs are so important to my health: physically, mentally, emotionally, and spiritually.
I welcome info on what type bras and other wear you wore while going through rads. And anything else you did to combat friction, etc.
Thanks in advance! -
Ro-berta what a lovely visual image LOL waiting to find out what treatments drs will reccommend for me but my boob is cringing at that thought:-)
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Hi Isabelle2.......just thought I would jump in and wish you luck tomorrow.
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Hi dltnhm! I was prepared to taper off my running significantly towards the end, but I did not have to. I usually run about 70 mpw, so I back off the miles just ran slowly from the start, and was able to keep it all the way! It is 3 weeks out and I am back to my usual running again (miles-wise, I haven't done any workouts yet).
I wore Coobie bras mainly: http://shopcoobie.com/ - I am pretty small breasted, so near the end I was wearing a lot of dresses with built in shelf bras. I think, for you, the part of your body which will "feel it" the most will be your chest and maybe under your arm. I took an old (and very soft) t-shirt and cut out a large square and used it to keep my jog bra's from rubbing under my arm (put it between my skin and the bra) -- I did not really have any major problems there ... my chest was pretty bad so I kept it covered, to make sure it did not get worse by being in the sun.
Good luck to you ... feel free to ask me any questions you have. And, if your chest gets really bad, pm me and I will give you some other things you can try. Keeping sane is the biggest thing ;-).
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Thanks BLinthedesert. I will keep that all in mind and your 'name' handy - just in case :0)
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please do ... seriously. I would post more "tips" but then I sound like an advertisement ;-)
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Yeah! I have six more Radiation treatments left and five of them being "Boosts" . My skin did not become red and itcy and painfull until last week .... OUCH. My Dr gave me cream (Aquaphor), it's very greasy and also a script for the pain. I found that Cornstarch powder works wonders and it's the only thing you can have on when you go for treatments. Oh, and the pain pills are a Huge help for relief! Happy it's almost over!
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