May 2012 radiation

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  • BLinthedesert
    BLinthedesert Member Posts: 678
    edited July 2012

    Me too -- lifting a huge toast!

    Thank you mckenna, for being our base, our hub, etc. 

  • Goodie
    Goodie Member Posts: 244
    edited July 2012

    DH and I are lifting a toast to US right now!  I'm so happy for all of us!  WE DID IT!  and I love having everyone have their sunglasses on too!

  • Spokanellie
    Spokanellie Member Posts: 46
    edited July 2012

    Yay to all! I'm be raising a glass when I get home. :-)

  • mckenna
    mckenna Member Posts: 413
    edited July 2012

    what's that i hear????  the sound of no zaps!!!!!  now i hope everyone heals up quickly. 

    sb, will you get to find out if you are having a granddaughter or grandson before the the birth?  if so when?

  • Goodie
    Goodie Member Posts: 244
    edited July 2012

    What a great day and a great feeling!  It's been a long journey friends!  So glad we could help each other through it.  I too hope everyone heals quickly.  My skin is looking really, really good 16 days past last zap.  I am still putting my cream on at least once a day.

    Are any of you changing your eating/diet? i.e. adding more broccoli, apples, blueberries, green tea, etc.?  Not eating beef or dairy products? eliminating sugars?

  • BLinthedesert
    BLinthedesert Member Posts: 678
    edited July 2012

    Hi Goodie,  I am glad both righty and lefty are doing well. On one of the other threads someone was talking about when she could start swimming again, her doctor (who, apparently has a strong accent) said, "not for 4 weeks, if you do your 'neeple' will be very sore"  -  I laughed a lot and have been talking about my 'neeple' for the past 24 hours ...  this made me think of you guys as, I thought of you all, as we certainly had our laughs (along with the tears) over the past couple months.

    I pretty much ate well before all this stuff (I have been a vegetarian for 20 years, and pretty much gluten-free for about 6 months now) - I took some vitamen B-12 and calcium while going through radiation, and then started taking ginsing after seeing this article on the BCO website: http://www.breastcancer.org/tips/new_research/20120611.jsp

    But, I feel so good now, that I am not taking anything anymore.  I am teaching two classes this Fall, so once I get overworked again I might go back to trying the ginsing ;-).

  • schatzi14
    schatzi14 Member Posts: 1,647
    edited July 2012

    Congrats and love to you all  :D

  • sbelizabeth
    sbelizabeth Member Posts: 2,889
    edited July 2012

    Hi, girlfriends!  I took the day off to celebrate and see my med onc this morning.  She was pretty impressed with the still-healing radiation wounds and wanted me to take some time off work to rest and heal up.  I have a big conference on Friday but I believe I'll take tomorrow to sleep in and lurk around the house sans shirt. 

    We went for a lovely bike ride after the onc appointment on a trail we haven't ridden since right before the chemo started.  It felt very special to ride it again, the day after radiation finished.  Kane's chemo started this morning and we dedicated the ride to her healing and recovery.

    Mckenna, I don't know if my son and his wife will want to know if a daughter or son is on the way, but if I had to guess, I would guess they would.  Hopefully they'll share the news!  It's going to be Thomas (a traditional family name) or Aubrey, and I love both names.

    BL, I've been laughing with you about the "neeple."  When I worked labor & delivery a million years ago, we had an Indian nurse with the same accent.  She told a patient she'd bring her a "peri kit," a collection of stuff to keep her episiotomy clean.  The patient thought the nurse was bringing a "parakeet"!  We all laughed over that one for weeks.

    Happy Wednesday and don't the radiation stations look great in the rear view mirror!

  • SusannahW
    SusannahW Member Posts: 470
    edited July 2012

    Sb, I loved your description of your day and bike ride, felt I was there with you in spirit.

    Btw, thomas is a family name for us too.



    Susannah

  • BLinthedesert
    BLinthedesert Member Posts: 678
    edited July 2012
    ha ha ha ... close-by, a while ago one of my classmates and I had a friend in common from a different school.  My friend, a woman, was from Australia, and our common friend (also in a phd program in statistics) was a male.  Well, apparently Brad was a dancer -- I had no idea!  Sue said, "yes, he is a belly dancer".  Wow, I thought, not many male belly dancers - especially that are pretty "buff" and a statistician (read: geek) as well!!  But, I would get frequent updates on how Brads belly dancing was going.  So, about a year later, near Christmas, Sue tells me, "Brad is actually dancing the Nutcracker!" -- WOW - I had a difficult time understanding how the Nutcracker would fit into a belly dance -- so I said, "I just can't imagine how belly dancing could be done to the Nutcracker!!".  Sue just looks at me for a moment and says "b- a - l - l - e -t dancer" Smile
  • sbelizabeth
    sbelizabeth Member Posts: 2,889
    edited July 2012

    Ha ha ha...laughing my socks off here.  Thanks for the guffaw.  Isn't the world a great place?  What makes that especially great is that for a whole year, you thought Brad was a belly dancer.  I can't imagine what you must have pictured.

    Here's anothor one.  I'm originally from Colorado, but once, in college, I went to a baseball game in Arkansas with friends.  I heard people yelling, "Goodah!  Goodah!"  So I figured that's what people yelled at baseball games. 

    I started yelling "Goodah!" too, and my friend looked at me like I was nuts.  It's "good eye," she explained. 

  • BLinthedesert
    BLinthedesert Member Posts: 678
    edited July 2012

    Can you imagine what the routine would be for a belly dance to the Nutcracker??  

    We lived in Nashville and heard a man tutor his son how to say pitchers mound (the little boy had asked what it was that the pitcher was standing on).  The man says, "that is the pitchers mooooooand" --the little boy says, "mound?" and the father says, "no, moooooand" ... I love the south ;)

    Gouda Gouda - I think I will start yelling that at baseball games

    (wow an entire post and no boobs or neeples mentioned once ;-)) 

  • jittersmom
    jittersmom Member Posts: 165
    edited July 2012

    congratulations Neeners...sorry havn;t been on had to have my appendix out! OMG like chemo and radiation wsn't enough!

    congrats to anyone else I missed the end of radiation for me was very freeing! Hope everyone is well

  • mckenna
    mckenna Member Posts: 413
    edited July 2012

    jitters how aweful.  i hope you heal quickly.  did the chemo cause the appendix issue or was that just an unhappy coincidence?

    haha, i keep imagining the nutcracker done entriely by belly dancers :)

    after diagnosis, i ate alot healthier than before diagnosis, then i was drained and in pain from rads and slipped back into old habits.  i am stil 25 lbs down from where i was at surgery but have a lot more to go, i am going to make a shopping list and meal plan better.  if anyone has some tasty healthy recipes, please share :)

     sb, i love the name thomas, i have a brother named thomas but he will always be tommy to us :)

    have a nice day all!!!

  • Neeners815
    Neeners815 Member Posts: 358
    edited July 2012

    Jitters - thanks and YIKES!  I hope you're feeling better?

    BL - laughing about the belly dancer!  Hahaha.  Nice!

    I need to start exercising, and I'm having trouble getting going.  Anyone else need to?  Also, I got my tamox prescription and now I'm afraid to take it.  After I read 'May be fatal' I felt like I wanted to pee my pants.  (Yes, I have a way with words.)  Can I get a pep talk from any of you currently on tamox?   On the plus side I just read that one of the possible SE is weight loss.  

  • STLmom
    STLmom Member Posts: 21
    edited July 2012

    Good morning ladies

    congratulations to everyone that has finished rads

    I was laughing at the belly dancer. I am from the south . I went to Outback one day and ordered a ice tea with lemon. S

    he looked at me funny. When she brought my drink I had a flute of asti with a wedge of lemon perched on top. LOL. This happened again recently. 

    Mckeena  I like to walk as exercise but this heat and humidity has made me feel like I am in prison. The  MO told me exercise was important to help with joint pain from the generic Femera. I have taken them for two days now. Does the Tam SE page actually say it may be fatal. Yikes

  • Neeners815
    Neeners815 Member Posts: 358
    edited July 2012

    I'm dying laughing about the flute of asti!  You must have one strong accent, STLmom ;)

    The exact wording is "WARNING: Tamoxifen rarely may cause serioius (possibly fatal) side effects."  Then it lists out the various SE.  I'm sure I'm just being paranoid. 

  • BLinthedesert
    BLinthedesert Member Posts: 678
    edited July 2012

    Oh Jitters ... that is horrible. I hope you are feeling better.

    ha ha -- you didn't say "sa-weet tea" Asti and a wedge of lemon, they were really talking about all your "Northern airs" in the kitchen Wink 

     At the levels that Tamoxefen is use as a chemoprevention I think it is very very rare to be fatal.  That said, some people may tolerate it better than others -- which is why you have a MO monitoring you.   I don't know what I would do if it was recommended that I take it ... just like with most treatments - it depends on your risk tolerance.  Good luck with your decision ... and try not to pee your pants - that is the last thing you need Smile

  • mckenna
    mckenna Member Posts: 413
    edited July 2012

    NEENERS, HER IS YOUR PEP TALK!!! i filled my script mid june so i could start taking it july one.  put the bottle down and start august 1! or july 29 depending if you want to start on a sunday or on the first of the month.  i needed that visual and it happened that july one was a sunday.  i had the constipation issue which has been non existant since i take the (can't remember name now) med daily.  i take low dose asprin every other day and lots of vitamin D (my level was 7 and should be 50+).  hair shedding and a few warmer moments are the worst of it for me at this point.  i am 19 days in.  i dreaded this part of treatment but now that i am settled in and done with rad side effects, it makes me feel like i am doing something to keep the cancer away.  you will be proactive too.  surgery can be fatal too but you did it because it was what was necessary to get rid of the cancer.  you can do this too!!! remember we are stronger than cancer and definatley stronger than tamoxifen ;)

    stl, i am cracking up about the asti.  do our st. louis accents sound funny to you.  we were on a cruise and my son was hanging out with a group of kids from the south and he told me one of thier names was Ron, i thought it was unusual then i heard him say his name he was saying Ryan with a very southern accent and my kid called him ron the whole week :)

    this heat is aweful for much of anything.  i am waiting for our YMCA's live strong program to start some time in august and hoping 3 months with gym and pool access will jump start my exercising habits.

  • Neeners815
    Neeners815 Member Posts: 358
    edited July 2012

    Thanks, mckenna.  I put my big girl panties on, and just took it with lunch and a glass of water. You're right - surgery could have been fatal, too, and that went off really well.  Thank you for the pep talk.  I like the idea of being active in fighting anything further.

  • schatzi14
    schatzi14 Member Posts: 1,647
    edited July 2012

    Neeners...just imagine how many gals are taking tamoxifen...how fatal can it be?

  • mckenna
    mckenna Member Posts: 413
    edited July 2012

    yeah neeners!!!  so proud of you.  :) now you have to join all of us pill nerds and get a days of the week pill holder.  all the cool kids have one.

  • STLmom
    STLmom Member Posts: 21
    edited July 2012

    Yea neeners that first pill is a hard pill to swallow. I am going to take my third femera now.

  • Goodie
    Goodie Member Posts: 244
    edited July 2012

    Neeners - glad you decided to take it!  I was eager to start.  I too want to be proactive with everything I can to prevent anything coming back!  I take a low dose aspirin and vitamin D too along with calcium and magnesium.  I also take melatonin before bedtime and my Senokot.  I'm full from all my pills!  LOL Maybe that's how to lose weight.  It's not working yet!  I've been taking it since June 18th and I have minimal side effects.  I do have warm moments but they aren't as bad as during chemo.  

    stlmom - I didn't know you can get a single glass of asti.  Hmm I love asti.   

  • sbelizabeth
    sbelizabeth Member Posts: 2,889
    edited July 2012

    I wish I knew what asti tastes like!  I need to broaden my experiences...

    I'll be taking my aromatase inhibitor pretty soon, and I'm not as worried about Femara's side effects as I am the side effects of the breast cancer! 

    Question...is there a best time of day to swallow this stuff?  Are the nasty effects minimized if you take it before bedtime, or in the morning with coffee?

  • mckenna
    mckenna Member Posts: 413
    edited July 2012

    Sb I think some prefer eve and some morning. I just had to take it first thing or I thought I would stare at it all day. I decided if side effects were great I would try pm. So far am with a bowl of rice krispies works for me. It makes me nauseous if I take it on an empty stomach. Speaking of tami I just picked up my second bottle and I did so with a smile on my face so it cant be that bad :)

  • sbelizabeth
    sbelizabeth Member Posts: 2,889
    edited July 2012

    Thanks, Mckenna, I'll give that a try!

    I'll bury it in some rice crispies with asti poured over. 

  • Goodie
    Goodie Member Posts: 244
    edited July 2012

    I also take my tami in the morning because I think it can cause insomnia and I don't need to deal with that too.  My melatonin helps too. 

    I wouldn't try rice crispies with asti.  Maybe rice crispies with an asti mimosa!  :)

  • Spokanellie
    Spokanellie Member Posts: 46
    edited July 2012

    I take my Femara at night because it caused nausea for me in the morning. But I didn't eat right away and I didn't think of taking it with Asti!



    BTW, a friend at work now knows all our funny accent stories because I laughed louder each time one of them arrived on my phone. Thanks for a fun couple of days. :-)

  • SusannahW
    SusannahW Member Posts: 470
    edited July 2012

    Did any of you find arimidex or other AI caused constipation, and if so what did you do for it?



    Thanks, susannah

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