Calling all ladies in their 20's

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Comments

  • luckykitkat09
    luckykitkat09 Member Posts: 190
    edited July 2012

    @SlodgerCreations

    I can totally relate to you! I was 19 when I noticed a lump in my breast, I was 20 when I had my lumpectomy to remove a Phyllodes tumor and I'm 21 and just had my double mast. No chemo or radiation for me.

  • Rosaa
    Rosaa Member Posts: 54
    edited July 2012

    hey all

    I finished chemo had a mastectomy and now on my way to radiotherapy My cancer turned to be a mixed type pf IDC and IBC wow big shock but am doing well miss u a lot girl am back :) 

  • Rosaa
    Rosaa Member Posts: 54
    edited July 2012

    hey all

    I finished chemo had a mastectomy and now on my way to radiotherapy My cancer turned to be a mixed type pf IDC and IBC wow big shock but am doing well miss u a lot girl am back :) 

  • Rosaa
    Rosaa Member Posts: 54
    edited July 2012

    For the new members welcome :)

  • kk11
    kk11 Member Posts: 210
    edited July 2012

    Glad you're doing well Rosaa!

    kathyhong - I thought I was too young at 28, but 21 and a double mastectomy? That's WAY too young! I just had a follow-up with the cancer fertility specialist and he said his youngest patient was 17 when she was diagnosed. It's a reminder that this horrible disease can hit as early as the teens.

  • luckykitkat09
    luckykitkat09 Member Posts: 190
    edited July 2012

    @kk11 wow..I wouldn't be surprised though. Girls are starting to get their menstrual younger and younger. Ao hormones are kicking in and it's scary. I did mine as a preventative. I was high risk.

  • amandabiv
    amandabiv Member Posts: 67
    edited July 2012

    I've heard on the news of a girl that is 10 years old and has bc that was a real wake yup call since I have a 10 year old little girl and I could not imagine her having to go through this ever but especially right now!! I hate this disease with everything I have but I just keep reminding myself that Ive already beat it and God is with me all the way!!!

    Rosaa glad to hear all is going so well with you!!

    Welcome all new members!!

  • luckykitkat09
    luckykitkat09 Member Posts: 190
    edited July 2012

    @amandabiv

    That's scary. I cant even imagine a 10 yr old going through this either...and I thought I was too young and I'm only 21 now. :(

  • amandabiv
    amandabiv Member Posts: 67
    edited July 2012

    kathyhong: I was in totoal shock when I seen it on facebook then to see her on the news just made it all to real.....at 21 I had just had my 2nd child and that was scary enough for me, I hate to hear that you are dealing with this at such a young age but Im sure you are a strong young woman and will get through this with no problems, just keep your head up never give up and always try to keep a smile on your face its what helped me. You are in my prayers just as everyone here is!!

  • luckykitkat09
    luckykitkat09 Member Posts: 190
    edited July 2012

    @amandabiv

    Thanks! I think I read somewhere there was a girl even younger than 10 that had BC. Scary. I think I'll be scared to have kids honestly. I know I'm young but having a double mast to find out I was a high risk was an eye opener already. I also deal with a hair auto immune disorder, 2 skin autoimmune disorders, and a thyroid disorder. My hair disorder may not be passed down but I don't think I ever want to traumatize my child if I ever have one.

  • amandabiv
    amandabiv Member Posts: 67
    edited July 2012

    kathyhong

    I can totally understand why you are thinking that way I probably would be to!! I think people should think about those things before they start having kids and then pray about it, if its meant to be then God will allow it you know!! Well best of luck with it all!!

  • luckykitkat09
    luckykitkat09 Member Posts: 190
    edited July 2012

    Amandabiv

    You're right. If its meant to be then that's the way it is.

  • amandabiv
    amandabiv Member Posts: 67
    edited July 2012

    Hey ladies hope everyone is doing good!!! I will be finishing my rads up this friday and I cant wait!!! :)

    I do have a question for anyone who has or had expanders put in while waiting to be able to do the reconstruction surgery!! Did they ever start hurting your ribs?? For the past week I feel like I am bruised right up under my "boob" where I believe the expander is sitting on my rib. Its driving me nuts and I have to wait 2 months after my rads is done to be able to do the surgery!! OK just wanted to rant....hope everyone is good!!

  • luckykitkat09
    luckykitkat09 Member Posts: 190
    edited August 2012

    I have expanders in now. They didn't bother my ribs unless I slept on my right side. I'm in the process of my fills and its getting uncomfortable. Just came home from having 90cc's put in. Its starting to hurt down the center of my chest and my back. I think I should go down to 60cc instead.

  • amandabiv
    amandabiv Member Posts: 67
    edited August 2012

    I had 60cc put in and it wasnt that bad, I have had my expanders since Jan. and I have gained same weight since then so thats why I thought it may be the source of my pain. The wierd part is that I sleep on my left side but its my right side that will hurt right up under the boob who knows as long as its not major pain I can deal!!! Hope all is well!

  • luckykitkat09
    luckykitkat09 Member Posts: 190
    edited August 2012

    Amanda

    Yeah 60cc wasn't bad but for some reason 90cc might have been too much? Idk.. For my it hurt the most in between my boobs. I'm laying down but it somewhat hurts to get up. I'm laying on my back tonight. By tomorrow I hope all is well. Do you still have the TE in??

  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2012

    Hi ladies,

    I have been on this forum for the past several days (dx 5 days ago) and am so happy to have found this! I am 23, diagnosed with DCIS, grade 3, comedo-type. I have decided to have a BMX with immediate recon on 8-8-12. I have been reading some of the postings and it is great to hear that you all feel the same as I do. You know the "we are too young for this", haven't had kids, haven't gotten married, etc. etc. It sucks, and I know I am going to get through this...but it sucks.  

  • Sayomm
    Sayomm Member Posts: 6
    edited August 2012

    Hi NannaBaby!

    Sucks to be going through all this, but I was dx when I was 28 and had a lumpectomy, rads, chemo. Then 2 years later had a healthy baby. Now I have 2 kids and was recently dx again with a new cancer in that same breast. I had 9 years in between dx's. This time opted for bilateral mx. I am so grateful to have my kids! Good luck with you! Anything is possible!

  • Toastiecat
    Toastiecat Member Posts: 132
    edited August 2012

    Hi there,



    I'm 28, and was diagnosed with bc on 7/23. Had the bilateral mastectomy with expanders on Thursday. The weekend was pretty rough, but I'm doing a lot better now. I have a few appointments on Friday, and I think the pathology will be back, letting me know how much of this is invasive/dcis, staging, and hopefully the brca results.



    Sending everyone good energy...

  • SKD
    SKD Member Posts: 140
    edited August 2012

    I also did 60cc each time. They first 2 fills we're fine but the last 4 hurt more each time. If I took Motrin before it seemed to help with the pain.

    Sayomm- good to hear you had babies after brear cancer. Those stories are always encouraging to hear! Did you have to do chemo the second time? How did they find your second breast cancer?

    I'm going for an ultrasound soon to see if there is a lump by by ribs next to my implant on my reconstructed breast, the onc. Felt something at my check up. Fingers crossed its nothing but has anyone else experiences this?

  • amandabiv
    amandabiv Member Posts: 67
    edited August 2012

    SKD my prayers are with you!! I finished my radation Friday and I noticed today that where my scar is on 1 of my breast is trying to heal but it had green stuff coming off and then it started bleeding, giving I have no feeling there Idk if it would hurt but I pray that it is nothing serious I will be having it checked out soon. Other then that every thing is good just ready to get my reconstructive surgery going so I can say that I am all done with all of this, I know you all have been there!!

    Toastiecat: If you have any questions or just support from those that understand you will truly find it here, all of these women are great and very helpful, I pray that every thing goes well with you!!

    +

  • luckykitkat09
    luckykitkat09 Member Posts: 190
    edited August 2012

    Amanda-

    I hope it goes well! I completely have no feeling either. When is your reconstruction?

  • amandabiv
    amandabiv Member Posts: 67
    edited August 2012

    kathyhong: thank you everything turned out to be fine and it has completely healed up. I still dont know when I'll be able to have my reconstruction due to the fact that my medicaid got cut off so now I'm having to fill out more forms to try and get back on medicaid, its all very frustrating!!

  • luckykitkat09
    luckykitkat09 Member Posts: 190
    edited August 2012

    Medicaid covers it??? Now that's a first I've heard of this. Medicaid cut me off when I turned 18 but then I reapplied and they cut me off at 19. It's unusual for people in their 20s and still have Medicaid (unless they're on social security like my brother or had kids etc).

    Hope you get that settled soon. I'm more nervous right now about how many cc's I wanna go. I'm at 360ccs and I'm not quite sure how much I want now.

  • taraceta28
    taraceta28 Member Posts: 36
    edited August 2012

    Hello,

    Im Theresa, 28. Mother of 3. diagnosed april 16/2012 with IDC and DCIS in my left breast. Had a bilateral mastectomy on May 9th. during my diagnosive testing they found a teratoma on my ovary. They had to take my ovary out and urged me to take both. So I did, the week before my MX. Thankfully I already had kids but it also made it harder because I was afraid to die and leave them. It is such a scary time when you first find out and have no idea how bad it is. I had tissue expanders put it, the first couple days were rough, mostly because i couldnt use my arms or abs at the same time. I had 2 drains. they were more annoying than anything. It took the drs awhile to figure out my plan of care. In the mean time i was going weekly to the plastic surgeon for saline fills. my right side was always numb but after the second time the left one wasnt but it looks worse than it feels. i did fine until the last few fills. I had to sleep slouched over annd felt like my ribs were going to crack. My back hurt terrible, but after a couple days I would be fine again. I was sent to Sloan Kettering in NYC and they determined I did not need chemo but had to have radiation because my margins were not clear.I went for my consult and I had to wait a couple weeks before starting. so I finished up with my plastic surgeon. I got my last fill the day before radiation just to find out they had to take half of it out. I was beyond pissed to go through that pain for nothing. I was however instantly relieved of my chest pain. I am now on radiation treatment 18/28, very fatigued but skin is holding up well. 3 months after I finish rads i go back to plastic surgeon to start reconstructive process again. I was supposed to just get the saline swapped out ffor silicone but now that they had to take out half I have to have the radiated skin replaced with skin from my bra line. Hoping to go back to work soon. Thank you for listening :)

  • taraceta28
    taraceta28 Member Posts: 36
    edited August 2012

    @ amandabiv, there is special circumstances where u can get medicaid. they passed a law that requires women regardless of payment, reconstruction after mastectomys. i hope it works out for you. medicaid is paying for mine.

  • MiniMacsMom
    MiniMacsMom Member Posts: 595
    edited August 2012

    So I am done and home and settling in on this tamoxifen.  So far none of the joint stuff, just all the semi menopausal symptoms.  Crankiness, sleeplessness, weepiness, ect.  I dont like it.  I was soo happy and full of energy when I first got home and was tamox free.  My best gf from back home, whose daughter is 10 weeks older than my son told me she was preggers a few days ago.  It put me in a huge funk.  I don't like it, I was never like this during traetment.  I am having a hard time adjusting to everything the cancer and treatment has take from us.  I know we are very blessed in a lot of ways, but it still sucks.  Sorry to vent.  Anyone else having trouble with emotionalness on tamox.   I am really happy for my gf, but its hard to watch people continue to go through milestones that I should have and don't.  We have hit so many milestones together, the two of us.  I think thats the hardest part, not as much the baby, which hurts too.  My other gf is preggers with triplets but they are her first and it doesn't bother me.  Sorry for whining.

  • taraceta28
    taraceta28 Member Posts: 36
    edited August 2012

    Minimacsmom: You don't have nothing to be sorry about. Im emotional on tamox also. I teared up reading your post. I understand how you are feeling. I put off my wedding because of my diagnosis and surgeries. I want to be free from pain and expanders on my big day but I am invited to a friends wedding and already said i would go. now i feel resentment that its not my wedding. Im happy for her but Im worried it will be to hard to go. i hate feeling jealous. Thank you for your post. It helps to know other people have similar feelings (((((((((HUGS)))))))))))

  • Moonflower83
    Moonflower83 Member Posts: 92
    edited August 2012

    I know this feelings and it´s a mix between being jealous and sadness. I don´t have kids and I don´t know, if I ever will,because of the cancer, chemo and so on....and everyone around me seems to marry or to get pregnant :-(  It may sound stupid, but I avoid meeting pregnant friends, I just can´t stand it.

  • amandabiv
    amandabiv Member Posts: 67
    edited August 2012

    tara: yes they sent me a form a few days ago that I have to finish getting filled out for special medicaid for people with bc I pray I can get it all fixed it and I can get back to getting all of this done and over with!! For those that are having diffculties with emotions and things..dont apolgize for it you have that right your body has been through just as much may be even more then a pregnant womans, the best thing for you to do is vent get all your emotions out when ever you can!! My prayers are with you all...((hugs))!!

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