Starting chemo Thursday, May 31 - June Group?
Comments
-
Wow, I just realized it has now been 6 months since I found my lump. It seems like yesterday sometimes, and it seems like a lifetime ago at other times. Congrats to all that are finishing up their AC rounds. Since I have only 2 of them in and am just starting to see the light after #2, it makes me feel better to see how many of you have now completed all 4! I'll be interested to see how Taxol and the cocktail works for everyone since I'll be following close behind on that as well! Everyone have a great week!
-
It sounds like a lot of us are finishing up AC this week . . . I'm in the same boat, last ac is wednesday. I am not looking forward to it as last round was not good. But as I was reading your comments about drining it made me get up and have another glass of water . .. hopefully that will make next round better. Fingers crossesd.
Pamela - interesting how your doctor only approved b6 . . . my doc is pretty conservative so it will be interesting to see what she says.
Taxol and Taxotere are different drugs, but they are like cousins. I believe that taxol is the older cousin and taxotere is the newer similar cousin. They each have se, and there are pros and cons to either.
oh man, I was going to say something else but my hubby started talking to me and I forgot. grrrhh.
-
"oh man, I was going to say something else but my hubby started talking to me and I forgot. grrrhh."
LOL..so i'm not the only one huh?
almost lost it emotionally yesterday..have not had the blues or depression or mood swing..(older lady and thru menapause)..
Went out to eat for the first time after starting tx..sat in cafe with menu in hand..phone rang..twas my youngest gal..I had loaned her a car..belonged to my Mom..she drove back to Tn..no problem..her husband was driving car to work..it caught on fire!!!..car is a french fry now..Had to keep telling meself..it is only a car..no one was hurt..coulda been worse..coulda happened while she was driving..half way home..He coulda wrecked and killed himself and others..
it is only a car..My Mom passed away 6 yrs. ago..and guess car was a "link" to her..
so I bucked it up..ordered dinner..and enjoyed it...did some shopping..had a good day..
It is only a car..right? think we can look at all the let downs in life with that motto..
-
Doris Mae: Yes, it is only a car. But it's is also ONE MORE THING to worry about. I find myself feeling sensitive about stressors right now. I had been driving the same car for 10 years. I have not always been good to it as far as maintenance goes. Well, the engine threw a rod and seized when driving home from work on my anniversary. Romantic anniversary plans thwarted. This came the same week that I had to put my cat down, and my hair started falling out in earnest. And although it was "just a car"...I felt overwhelmed. Really life? What next? I didn't lose it either, but the anxiety of it bothered me for days. Good job bucking up and enjoying your dinner/shopping anyway! I am so glad your family was not hurt!
Radioactive girl: You can do this. Two down, two to go! Keep up the good work!
Pam: Only b6? I have to admit I started Special K's cocktail before I even spoke with my onc. Yesterday was #6 of taxol. I told him I am taking "amino acids and B6" to reduce or prevent neuropathy. He just nodded his head like he's heard it before and didn't even ask which ones. Of course, they were already in my chart at that point. He didn't seem to care at all. Did your doc give a reason for it?
As far as my appt. with my onc goes, it went great! He said I have MORE SHRINKAGE! The tumor that I found inititally is barely palpable. Unless you were looking for it, you would never find it. And the others seem smaller as well, but more difficult to say since they are sort of 5 tumors all clustered together. I told him about the shooting pains in my breast radiating from the tumors, and he said he has heard that before. That sometimes women will feel that in the chemo chair as well. He said he has always believed that to be a good sign. That cancer is dying. Overall he said I am doing great, and was impressed that I have not missed any work. Don't get me wrong, I am tired, and I would love to sleep and sleep and sleep. But I am not giving in to this that easily. Especially knowing that AC is an entirely different ballgame. I am trying to live as much as I can in these 12 weeks of taxol and really enjoy my summer!
Much love to you other ladies!!! Going to try to catch more zzz's before the kiddos wake up.
-
Ellebee, I am so scared of taxol and meanwhile you are taking it all along! I am doing it every other week. My MO did not give me a reason but he is conservative. Another doctor in the same practice said yes to someone else. I will be conservative with it. Your tumor shrinkage sounds like mine. I am happy, plus you didn't even get to the big guns yet!!!
Doris, I am sorry about your car. I am so happy no one was hurt. We are all handling this as good as one can expect, it is probably taking more out of us then we realize. You really handled the car situation well. When you are all better, you can pick out another car, that your Mom would have liked and it could be your new link. My mom died four years ago. I don't think she would have handled my illness well. I picture her face a lot as happy. Not sure if I created the image or it is real. Makes me feel better though.
Radioactive, does your husband also start talking to you and chime in on the conversation when you are on the phone, LOL. Not sure if they all do the same thing! Glad you are almost at your last A/c. It is going fast!
Pam -
Doris-Sorry to hear about your car. Glad everyone is ok.
More later, heading out the door early to see the dr.
Have a great day!
-
Doris - you will always have a "link" to your mother, even if you dont have the car since she will always live in your memories. Plus you are the link yourself . . . I lost my Mom 5 years ago to cancer and I have lots of "little" things to remember her. I also think I didnt understand what she was going through with her battle either. I would have done things different had I really understood. And the big picture is that everyone is safe. My hubby always says things like "it is only money [or some material item], not like it is anything that cant be replaced" He has a way of putting things in perspective for me.
ElleBee - Yippee for tumor shrinkage!!! You prompted me to feel mine and it does feel a little smaller :-) I also have pain - and usually like a day or two after treatment I feel like it gets bigger and is a little painful. I also feel a little pain when I sleep on that side, so I'm glad your doc thinks it is a good sign. And sorry about lifes stressors . . . I find I have far less patience than I used to.
Pamela - My hubby is pretty good about not talking to me on the phone, but he does find the most inopportune times to talk to me. And he does not understand chemo brain . . . or just that my brain is not at full capacity right now. oh and I dont think my Mom would have handled my illness well either . . . she was always a worry-wart and stressed about everything. Glad you have happy, positive thoughts about your Mom . . . that is the side of her that I try and remember too.
-
radioactivegirl: Yay!!! Smaller is great news! It's working!!! I too find I have less patience, particularly when my kids are bickering or being obstinate. I have had to leave the room more than once to avoid losing my sh*$ entirely. I did hollar at them in the parking lot the other day for being disobedient. Ugh. I was that crazy mom there for a minute.
Well ladies going on taxol: I was in the BGC yesterday. Today I have done 4 loads of laundry, sat outside while the kids swam, cleaned the kitchen, sewed a new hat, and am about to make a couple of dishes for a potluck picnic. My hope is that you all experience a reprieve and more energy soon!
XOXOXO- hoping you are feeling well today!
ElleBee
-
Congrats to all of you who are almost done with your a/c treatments! There seem to be a lot of you. Just had my 3rd tch on Friday and I know what everyone means about cumulative effects! This has kicked my butt this time. The worst part is the achy, tired feeling. Last night I was running a low grade temp, about 99.5, and I felt like I was getting the flu. And the diareaha is pretty bad. I guess like some of you I am feeling a little down. Hope it passes soon. Take care all!!
-
Saw the MO today, she said she finds that the people that work all throughout the chemo, pay for it in the end. Just thought I'd pass that on. So, I'm taking a couple of days off my next chemo week. She said rest is important while on AC. Your doctors could think differently.
She also said she doesn't do scans, because they don't do any good. But, it would help me know if I even wanted to go through all of this chemo. She said I'm doing the right thing and don't ditch chemo.
Steelersluver, thanks for the taxol/taxetere info.
Good luck to anyone in the BGC tomorrow!
-
I had my 2nd AC last Monday and I am just now coming around. Does anyone find themselves sweating more than usual? My hair fell out last week and I was excited that it would be so much cooler lol without hair! Sometimes it looks like I have been sprayed with the water hose
-
Kimmie, I am sweating more than usual. Chemopause or chemo. I love splashing water on my bald head!!!! LOL.
With chemo who wants hair!!!
Pam -
havingfaith - Good luck tomoroow and happy birthday to your son.
-
ElleBee - YAY for shrinkage!
-
Marcie-Thanks, and good luck to you on Thursday. I get very nervous the night before. I hope I can sleep tonight..
Ellebee- I cant wait to get back half the energy you have. I'v also have had a few of those crazy mom moments.
Talk with you all later. Cant seem to stay focused tonight.
-
I sweat a lot period . . . I have been sweating a lot for years and I dont know why. I remember a few years ago that I looked up what could cause it . .. and of course I had none of the things that causes it. But the last item on the list was cancer . . . so now I wonder how long I had this?? Was that my first warning sign that I didnt catch??
Oh, and I'm not working right now and think it is helpful, but I do miss it sometimes.
BGC for me tomorrow :-( Waaa, I dont want to go *kicks and screams*
-
Radioactive, Good luck in the bgc. You are almost there. I too, wonder about the early warning signs that I missed. I perspired a lot even in my twenties.
Havingfaith, Think you said you go to the chair today too.
Are you both at number 3?
Keepmoving, I am glad you are taking some time off work. Everyone is different, but there is no way I could have worked. I would be lying on the floor! I find when I push myself too hard, and fight the side effects, I get upset by my limitations.
Ellebee, you sound good.
Marcia, How are you?
Mom24boys, Hope you feel better soon.
Pam -
I am having a tired, cranky day today! I am really struggling to keep up a modified work schedule, so I'd encourage anyone who is able to take the time off to do it. While the distraction of going to work is nice sometimes, the rest has to help too. I carry our health benefits, so if I go on Leave W/O Pay, I not only have to deal with the missing income, but also find a way to pay the insurance premiums....stinks! At least I have insurance though, there are certainly people in much worse situations, and my employer has been good when it is possible.
-
Steelersluver- I worry about work too. Not so much the insurance part, that is through my husband, but whether or not I will be able to handle working. I am off right now because I teach preschool and we are on same schedule as community schools here. I also worry about all those snotty noses. The good thing is my last chemo will be just about a month into school starting and hopefully the Herceptin treatments won't be as taxing as the chemo plus Herceptin. One can hope, right? Hopefully you start to feel better!
Pamelahope- don't worry about those limitations. Embrace them! This might be the only time in your life when you actually get to use the excuse that you can't clean ect.. Because you are too tired! Relish it, enjoy it ;-). That is the one thing I have had trouble with too because I'm always the one in control and giving that up to someone else is hard. Hang in there!
I'm feeling better today, as the worst of the se are over. Yeah me!! :-) -
I'm in the BGC getting my last a/c. So glad this day is here. Half way done. I'll move on to 4 rounds of taxol every other week. Everyone have a great day!
-
Tammie, I am sorry. I hope you feel better soon.
I meant to tell you earlier that I love your kayaking picture too.
There is hope...I am day 7 past my last a/c. I just was able to walk with a friend. It started raining and I ran half a block. I was surprised I was able to do it. I am in bed now, resting before the grocery store, but it gave me hope. Especially, since I was not a runner before. Sometimes, I forget, the worst feelings pass...
Pam -
Havingfaith, Wahoo!!!! So happy. Yah! I found round 4 better than round 3. Drink lots of fluids. It made a difference. I mixed Gatorade with water.
Pam -
Wow mom24boyzs, I hadn't even thought about germs working at a preschool. That's a tough one for sure. I was worried about what my kids would bring home, but that's nothing compared to what's in a preschool! I guess you'll use hand sanitizer by the gallon. Fortunately I work a very early shift, so I am nearly done for the day and I get to work from home tomorrow...can't complain!
Thanks Pam...and look at you out running already!! OK, so it wasn't planned, but it still counts! I like the idea of mixing gatorade with water. The full strength gatorade is stronger than I like, and the G2 version is a bit better, but your idea is even better.
-
Pamelahope, "I find when I push myself, and fight the side effects, I get upset by my limitations." That's it EXACTLY.
Steelersluver, I hope that you can get more rest even though you're working. My time is saved vacation days. I had no idea I'd be using them for this, but I'm not complaining. I know I'm lucky that I have them to take.
havingfaith, Yay!!! Your last AC. Hope yours is easy. Seems the 4th is better than then 3rd for some.
Pamelahope, I'm LOL at how excited that I got that someone could actually run! You're bouncing back fast!
Mom24boysz, glad you're feeling better.
Ok, I hate to beat a dead horse......stop groaning everybody....but, am I the only one that hasn't gotten any scans? I promise I won't bring the subject up again. Just wondering.
-
Keepmoving,
I am envious you didn't get scans. I think I exceeded my lifetime medical imaging allowance. I worry about the PET/CT causing a secondary cancer. However, if it bothers you I am sure you can ask for one. The radioactive dyes are also hard on the kidneys. However, I do understand the peace of mind...it sounds like you need to talk further with your doctor. Unless, they do the scan after chemo to see how it worked.
I do know they were going to rescan me after 8 weeks of chemo and I asked if it was truly necessary.
However, I am BRACA2 positive and due to a faulty gene cant repair DNA damage I.e. caused by radiation.
I am a saver. The philosophy of saving ones vacation days for a rainy day really held true for you.
I don't care if you bring up the scan subject again. I am curious as to his reasoning. It sounds like he is doing what is best for the patient. It is a fine balance.
On another note, one time I had a dvt while pregnant, my gyn wanted a CT scan. That could of caused cancer to me or my future unborn child. I know I got anyway...however, the wise hematologist/oncologist at the time said treatment is the same whether I have a PE or not. I did not scan and was so grateful for that wise doctor.
So I am wondering if treatment is the same irregardless of scan results.
Pam -
Keep moving- I haven't had any scans since chemo began and don't think I will be getting any. I meet with the breast dr on Monday, so I will be able to ask him then. I guess I'm not too worried about it. I am having only 6 chemo treatments and I guess my thinking is that it is working because I really am not stressing about it. Are you worried that your chemo isn't working and that's why you want the scans? I can understand why you would want the reassurance. In our world where everything has been turned upside down we just want some assurance that things are going as planned. Hang in there!
-
I have not had any scans since starting chemo, or even since my surgery for that matter. I have been curious about scans also. I have also noticed that I seem to be the only one who had surgery- then chemo. Wonder why? My dr didn't even give me a choice...just mastectomy or lumpectomy an then chemo.
-
Kimmie, I also had surgery then chemo and next radiation. I had the choice of a lumpectomy or masectomy, my surgeon encouraged me to go for the lumpectomy as my "lump" only showed to be about 1.1 cm on all imaging (size of pencil eraser). However my type of cancer does not show up well on imaging and it turned out to be 5 cm..... shocker, then had to go back for second surgery to clear the margins. Surgeon said if she had any idea it was this large she would have encouraged me to have a mastectomy. Also, before anyone panics about showing up on imaging the type of cancer I have is almost always in women over 60 years.
I also did not have any scans, radiologist and oncologist both said, surgery got it, chemo and radiation are clearing up any thing that slipped through. I had 4 of 14 lymph nodes positive. Honestly, I am so sick right now with my #3, I am not sure I could handle any more bad news. Every time the phone rang it was worse!! Very blue the last few days, as some of you mentioned. Think it has just begun to wear on us. i go for #4 next Tues. and then Taxol. I've heard mixed reports on whether taxol is worse or easier!!
I know we will all get through this....... Stephanie
-
Stephanie, My cancer was IDC 5cm and did not show up on the mammogram either! Crazy...I was lucky I was persistent... Pam
-
Stephanie,
Drink lots of Gatorade mixed with water. I do remember #3 being worse than #4 and think the difference was the increase in fluids. Hang in there. You are almost there.
Pam
Categories
- All Categories
- 679 Advocacy and Fund-Raising
- 289 Advocacy
- 68 I've Donated to Breastcancer.org in honor of....
- Test
- 322 Walks, Runs and Fundraising Events for Breastcancer.org
- 5.6K Community Connections
- 282 Middle Age 40-60(ish) Years Old With Breast Cancer
- 53 Australians and New Zealanders Affected by Breast Cancer
- 208 Black Women or Men With Breast Cancer
- 684 Canadians Affected by Breast Cancer
- 1.5K Caring for Someone with Breast cancer
- 455 Caring for Someone with Stage IV or Mets
- 260 High Risk of Recurrence or Second Breast Cancer
- 22 International, Non-English Speakers With Breast Cancer
- 16 Latinas/Hispanics With Breast Cancer
- 189 LGBTQA+ With Breast Cancer
- 152 May Their Memory Live On
- 85 Member Matchup & Virtual Support Meetups
- 375 Members by Location
- 291 Older Than 60 Years Old With Breast Cancer
- 177 Singles With Breast Cancer
- 869 Young With Breast Cancer
- 50.4K Connecting With Others Who Have a Similar Diagnosis
- 204 Breast Cancer with Another Diagnosis or Comorbidity
- 4K DCIS (Ductal Carcinoma In Situ)
- 79 DCIS plus HER2-positive Microinvasion
- 529 Genetic Testing
- 2.2K HER2+ (Positive) Breast Cancer
- 1.5K IBC (Inflammatory Breast Cancer)
- 3.4K IDC (Invasive Ductal Carcinoma)
- 1.5K ILC (Invasive Lobular Carcinoma)
- 999 Just Diagnosed With a Recurrence or Metastasis
- 652 LCIS (Lobular Carcinoma In Situ)
- 193 Less Common Types of Breast Cancer
- 252 Male Breast Cancer
- 86 Mixed Type Breast Cancer
- 3.1K Not Diagnosed With a Recurrence or Metastases but Concerned
- 189 Palliative Therapy/Hospice Care
- 488 Second or Third Breast Cancer
- 1.2K Stage I Breast Cancer
- 313 Stage II Breast Cancer
- 3.8K Stage III Breast Cancer
- 2.5K Triple-Negative Breast Cancer
- 13.1K Day-to-Day Matters
- 132 All things COVID-19 or coronavirus
- 87 BCO Free-Cycle: Give or Trade Items Related to Breast Cancer
- 5.9K Clinical Trials, Research News, Podcasts, and Study Results
- 86 Coping with Holidays, Special Days and Anniversaries
- 828 Employment, Insurance, and Other Financial Issues
- 101 Family and Family Planning Matters
- Family Issues for Those Who Have Breast Cancer
- 26 Furry friends
- 1.8K Humor and Games
- 1.6K Mental Health: Because Cancer Doesn't Just Affect Your Breasts
- 706 Recipe Swap for Healthy Living
- 704 Recommend Your Resources
- 171 Sex & Relationship Matters
- 9 The Political Corner
- 874 Working on Your Fitness
- 4.5K Moving On & Finding Inspiration After Breast Cancer
- 394 Bonded by Breast Cancer
- 3.1K Life After Breast Cancer
- 806 Prayers and Spiritual Support
- 285 Who or What Inspires You?
- 28.7K Not Diagnosed But Concerned
- 1K Benign Breast Conditions
- 2.3K High Risk for Breast Cancer
- 18K Not Diagnosed But Worried
- 7.4K Waiting for Test Results
- 603 Site News and Announcements
- 560 Comments, Suggestions, Feature Requests
- 39 Mod Announcements, Breastcancer.org News, Blog Entries, Podcasts
- 4 Survey, Interview and Participant Requests: Need your Help!
- 61.9K Tests, Treatments & Side Effects
- 586 Alternative Medicine
- 255 Bone Health and Bone Loss
- 11.4K Breast Reconstruction
- 7.9K Chemotherapy - Before, During, and After
- 2.7K Complementary and Holistic Medicine and Treatment
- 775 Diagnosed and Waiting for Test Results
- 7.8K Hormonal Therapy - Before, During, and After
- 50 Immunotherapy - Before, During, and After
- 7.4K Just Diagnosed
- 1.4K Living Without Reconstruction After a Mastectomy
- 5.2K Lymphedema
- 3.6K Managing Side Effects of Breast Cancer and Its Treatment
- 591 Pain
- 3.9K Radiation Therapy - Before, During, and After
- 8.4K Surgery - Before, During, and After
- 109 Welcome to Breastcancer.org
- 98 Acknowledging and honoring our Community
- 11 Info & Resources for New Patients & Members From the Team