Calling all TNs

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  • mags20487
    mags20487 Member Posts: 1,591
    edited July 2012

    wishn4one....You may be experiencing trunkal LE from the rads.  Is it the same side as rads???  I had terrible pain in my side after finishing 7 weeks of rads. It took a few months for that pain to subside.  I could not even sleep on that side cuz it hurt so bad.  Can you see an LE therapist for an assessment?  Try not to get yourself too worked up til you have some answers.  My Rad ONC and MO both said the pain was normal from radiation induced swelling.  I pray that this is all it is for you and mmizerak as well!!

    Maggie

  • JazzyJ
    JazzyJ Member Posts: 126
    edited July 2012

    Kayak2 - The first time around I had a lot of pain in my shoulder and neck area. The ladies on this site suggested Claritin so the second time around was easy peasy with very little pain! When I told the nurses they said "yea, whatever works"! I would MUCH rather take Claritin then Vicodin!. All good in that area now. Thanks for the thought though.

  • Titan
    Titan Member Posts: 2,956
    edited July 2012

    Taxol is just different than AC...everyone told me that Taxol would be a walk in the park..and yes it wasn't quite like Ac...I can't really say which is worse...they have different se's...I guess that AC made me feel brain wise..just weird...but no body pains whereas the taxol gave me body aches but my brain was clearer...weird stuff..had a little tingling in my hands and feet but not much..took awhile to straighten up after sitting for awhile...plus taxol took longer to infuse than ac which I didn't like either.

    And yes..I worked during all the 8 chemos and the rads...not sure how much work I got done but i was there...ha ha..had a very understanding boss...

    Chemo brain is real ladies...and not to scare anyone but it does take awhile to get back to "normal"....I don't know how many times I left the house only to turn around and make sure I turned off the coffee pot, closed the garage door..that kind of thing..I also washed my son's tie, forgot to put ingredients in food that I made.....but I made it through w/o burning down the house and everybody still ate...called it creative cooking..

    Gah..I just wore a new bra to work today..that was for fuller figures but gently uplifting...man but my breasts hurt like hell..Ithink I'm just gonna let them sag..

  • LuvRVing
    LuvRVing Member Posts: 4,516
    edited July 2012

    Hi ladies!  We just got back from a long weekend in Vermont at a B&B visiting our good friends from Kansas City.  It was fun, the guys played golf and the girls walked around Woodstock and explored Queechee Gorge.  And this was after The Prouty cancer fund raiser event on Saturday.  I'm glad to be home, and I see you all have been busy chatting away! 

    Inmate - good to hear from you, so sorry about the skin mets...damn cancer!  I hope your doc comes up with a new winning approach!

    Congrats to you gals who survived round one of chemo.  Keep drinking those fluids!  And another tip for the Neulasta shot along with taking the claritin - make sure whoever is giving you the shot lets it come to room temp before injecting it.  And then they should inject it slowly.  I would call my chemo center and they'd take it out of the fridge once I told them I was on my way.  It made a huge difference.

    Hi Kathy!

    OK, I'm pooped so that's all I got! 

  • dgcote
    dgcote Member Posts: 28
    edited July 2012

    Only one RELAX. I had my first chemo July 6th my next one will be the 27th, the chemo isn't the worst thing, Doing nothing is far worse. The only problem I had was it upset my stomach but they give you meds which will help with that. Just do what you know is right. Wishing you the best and please just relax it will help a lot.

  • BernieEllen
    BernieEllen Member Posts: 2,445
    edited July 2012
  • christina1961
    christina1961 Member Posts: 736
    edited July 2012

    Wishing4one,

    I have had rib pain off and on since chemo - my cancer was on the left side and the first time it was on my left side.  I had physical therapy, and a very slight positioning movement from the therapist caused pain in my ribs that took about 4 weeks to go away. That time it was so bad that I used pain meds.  The last time  has been on the right side - it hurt to cough, sneeze, or move around - and I had a follow up xray that showed nothing abnormal.  I think it is chondritis and somehow the chemo may have caused it.  The pain on my right side is almost gone now and it has been about 3-4 weeks again.  If it didn't resolve, I would have pursued a bone scan.

  • NavyMom
    NavyMom Member Posts: 1,099
    edited July 2012

    Good Morning everyone.  Thinking of you all.

    Anyone heard from Lovelyface???  Been awhile.

  • borntosurvive
    borntosurvive Member Posts: 213
    edited July 2012

    Fishinurse: Congrats on getting that first chemo out of the way - one step closer to the end.  Rest and hydrate!!

    I was talking to a friend of mine who is also a cancer survivor.  She saw her genetisist for her results and was told that they're working on a BC vaccine!!!  It should be ready and public in 10 years.  Apparently it's in trials in the US.  Has anyone else heard of this?!  They'll look at giving in to TN women to prevent recurrance rates.  It essentially would eliminate BC?!  Sounds a bit to good to be true or is this what we've all been waiting for?  I live in Canada and we seem to get things after the States.  So just wondering if anyone has heard of this too?

  • kathyrnn
    kathyrnn Member Posts: 393
    edited July 2012

    Finally caught up on the posts (that will teach me to not take off for a few days!



    Fishinurse - glad everything went well and hope Brow did as well.



    Bernie - you posted that picture in honor of Cocker's wee little sh*t, didn't you, lol



    Luv - glad you had fun. How did your son make out?



    NavyMom - also looking for Clowngirl, Hope and we haven't heard from tnbcRuth since she thought she was having a bout of pancreatitis.



    Had a lovely weekend. Spent all day Friday in the sun blue shell crabbing. Saturday was a family get together, both my neices were home and we had a great time. Sunday as housework and poker at night, and yesterday I went and spent the day with my neice.



    Hope everyone is doing well.

  • Tazzy
    Tazzy Member Posts: 2,546
    edited July 2012

    CS - that dogs face is just priceless.

    Titan... the amount of times I have left the house, driven half way up the road and thought to myself `did I shut the garage, did I turn this or that off` and turned round to check... I have heard it can take up to 5 years to return to `normal`.... Whatever normal is these days. There are times though when I use it to my advantage Wink

    LuvRving... glad you had a good weekend... you are one busy lady eh?

    Bornto... heard nothing about a vaccine but wow can you imagine. I mean they have one against cervical cancer so why not....

    Thinking of all you ladies - hoping you are having a truly wonderful happy day with minimal SE`s.

  • kathyrnn
    kathyrnn Member Posts: 393
    edited July 2012

    Oh.....I forgot.....I'm BRACA negative!

  • BernieEllen
    BernieEllen Member Posts: 2,445
    edited July 2012
    This woman has her bridge club every Thursday night and after a peaceful game or two with the ladies, she goes home to fix her husband dinner when he gets home from work. Well, one Thursday, she's playing a great game and she has an incredible hand when she notices the time.
    "Oh, no! I have to go fix my husband his dinner! He's going to be so angry if it's not ready on time." And she dashes out of her friend's house, her great hand forgotten on the table.

    When she gets home, she realizes she has very little time, not enough time to go to the supermarket, and all she has in the cupboard is a wilted lettuce leaf, an egg, and a can of cat food. In a panic, she opens the can of cat food, stirs in the egg, and garnishes it with the lettuce leaf just as her husband is pulling up.
    She watches in horror as he sits down to his dinner, and then she realises he is loving it! "Mmmm, darling, this is the best dinner you have made for me in forty years of marriage. You can make this for me any old day, mmmmm!" And that night they had sex for the first time in months and it was great!

    Needless to say, every Thursday from then on, she made this dinner for her husband. She tells her bridge cronies about it and they are all horrified.
    "You're going to kill him," they say, or "He's just yanking your chain," but she continued to make him his cat food dinner and then, afterwards, they would bonk like fiends.

    Two months later, her husband died and all the bridge women the Thursday after the funeral attacked our new widow for being so callous. "You killed him! We told you that feeding him that cat food every week would do him in! How can you just sit there so calmly and play bridge knowing you murdered your husband?"

    The wife stoically replied, "I didn't kill him. He fell off the mantel when he was licking his ass."

  • NavyMom
    NavyMom Member Posts: 1,099
    edited July 2012

    Oh Geez, Bernie.....Thats a good one.  LMAO!

  • fishinurse
    fishinurse Member Posts: 50
    edited July 2012

    OMG Bernie.Hilarious!

  • browerl
    browerl Member Posts: 126
    edited July 2012

    I am home and resting from my first round.  My stomach did start to get a llittle upset but I took my meds doing better now just a headace.  I have drank sooooooo much water that I am spending most of my time running to the bathroom!  GET IT OUT!

  • JazzyJ
    JazzyJ Member Posts: 126
    edited July 2012

    Yea Brower!! First one down!



    I am currently hooked up getting my Third treatment. No problems with the port today... Yipee!!!

  • inmate4232010
    inmate4232010 Member Posts: 310
    edited July 2012

    born. yes there is a trial for a vaccine. in fact i may have a chance to partucipate. the 1st phase went so well that they will now be giving everyone the vaccine. i"ll keep you posted



    good one Bernie!



    so it is official. diagnosis #5. this time it is on the right side. tomorrow a small biopsy. then more chemo and rads. this will be my 11th chemo. don"t know which one yet. i guess it doesn"t really matter.



    lets all say it together. cancer fucking sucks!



    love to you all!

  • TifJ
    TifJ Member Posts: 1,568
    edited July 2012

    Damn it, Inmate!!! I sure hope you get to participate in the vaccine trial. Cancer fucking sucks!!!

    Way to go Browerl!! Hope your SEs are minimal

    Fish- how are you today?

    Jazzy- yea!! to no port problems!! I can't remember- how many more?

  • JazzyJ
    JazzyJ Member Posts: 126
    edited July 2012

    Oh Inmate........ Cancer really freakin' sucks!!! Errrrr!!!



    TifJ - The best part of no port problems is they didnt keep poking me! After today, One more DD A/C followed by 12 weekly Taxol and then rads. I plan on really celebrating this X-Mas!

  • fishinurse
    fishinurse Member Posts: 50
    edited July 2012

    Inmate-so sorry -cancer ducks!!!!!! Thinking of you

  • Tazzy
    Tazzy Member Posts: 2,546
    edited July 2012

    Inmate.... I will yell it with you.....CANCER FUCKING SUCKS.  Thinking of you and every other sista out there with this crappy disease.

  • mags20487
    mags20487 Member Posts: 1,591
    edited July 2012

    {{{INMATE}}}  I only wish I could offer more than a hug and my support.  We will all be fighting this crap with you.  You are so strong and beautiful--yes I remember your gorgeous pix. 

    Maggie

  • mitymuffin
    mitymuffin Member Posts: 337
    edited July 2012

    Inmate, I'm with you honey. C.F.S. !!!

  • LuvRVing
    LuvRVing Member Posts: 4,516
    edited July 2012

    Inmate - I agree with everyone, CFS!  Eleven chemos, OMG.  Surely the magic bullet is right around the corner.  Are you taking metformin with your chemo?  If not, ask your doctor to let you try it.  Clinical trials have shown that many people respond well to chemo + metformin.

    Kathy - DS finished 6th, won just over $50k!  Not bad at all!

    Brower - congrats on making it through #1, keep drinking and don't let up.  Your bladder will adjust, really it will.

    We had a great weekend with our friends despite the hand/foot syndrome I've developed from the Xeloda, got home last night, and today the grandkids were here all day.  We had taco Tuesday here, then we all went out for ice cream home.  The best thing that happened today is the great memories that we are making.

  • dgcote
    dgcote Member Posts: 28
    edited July 2012

    The first one is the hardest not knowing what to exspect. I had a headache the nurse said it was from the steroids, the tiredness was from the benadryle and the pain in my stomach was a result of the meds for nausia they cause cramping. I read all the side effects and after 3 days stoped the meds felt much better, had an ok from the doc.

  • NavyMom
    NavyMom Member Posts: 1,099
    edited July 2012

    CFS  screaming it loud, Inmate.

  • ksmatthews
    ksmatthews Member Posts: 812
    edited July 2012

    Inmate  I am with you CFS!!! 

    I am so sorry you are dealing with this again.  I really hope chemo kicks ass this time and you never have to take chemo again!

  • onvacation
    onvacation Member Posts: 1,344
    edited July 2012

    CANCER FUCKING SUCKS!  

  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2012

    HI all, Had my first 4 month followup with my oncologist today, as well as my 1 month post rads  followup. All went well, am being scheduled for my first mammo since diagnosis Oct 11- in Oct!!

    Primary doc I am convinced has lost his mind- I am going to be doing a CT of the liver, despite his wanting to wait 3-6 months-then maybe on to a biopsy. I am praying that fatty liver is all it is! Oncologist told me to not take the actos that was prescribed by primary doc, and to just keep doing what I am doing with the low carb, healthy eating and exercise.

    shit Inmate- another one?? CFS

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