Calling all TNs

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  • fishinurse
    fishinurse Member Posts: 50
    edited July 2012

    Isn't that something how they can do that? Funny thing is,he is a boob man,my first reaction to the diagnosis was to get a mastectomy,wow,he just about lost it! I have already moved on,i find myself thankful for everything and everyone and focus on the positive. I was joking with my mom the other day, i have had so much radioactive subsytances injected in me that i could put a cape on and be a superhero and promised to use my powers for good! We were laughing so hard! Thats the sense of humor i am taking into this !! Life is good,he didnt end my world,he merely disappointed me,if he can't take it,it's good that he moved on!!

  • fishinurse
    fishinurse Member Posts: 50
    edited July 2012

    Thanks ladies! Going in with a positive attitude,one of my friends double dog dared me to try chemo planking,omg,will have to do it

  • mags20487
    mags20487 Member Posts: 1,591
    edited July 2012

    you can do it fishinurse!!  Take your meds before you feel queasy..had two and rotated every 4 hours.  Check in later to let us  know how you are doing

    Maggie

  • TifJ
    TifJ Member Posts: 1,568
    edited July 2012

    Sending good thoughts to Fish and Browerl! The anticipation really is worse than the actual treatment!

    Inmate- CRAP!! Those dang skin mets just need to go away! Hope your MO gets them under control.

    Beccad- thinking of you!

    There are so many of us here now, I can't keep up! Happy Monday to you all!

  • browerl
    browerl Member Posts: 126
    edited July 2012

    Tifj I hope that the anticipation is really worse than treatment because I am freeking out today, I am amazed how much shaking I am doing.

  • fishinurse
    fishinurse Member Posts: 50
    edited July 2012

    Sending hugs and strength,we can do this. Focus on good things in your life,I will keep you in my thoughts

  • Tazzy
    Tazzy Member Posts: 2,546
    edited July 2012

    Wishing you all positive healing thoughts.  The anticipation of going for the first tx is way worse and it does get better as time goes on.   We're here for you.  Keep us posted.

    To all you lovely ladies, hope you have a great day/evening.

  • CatWhispurrer
    CatWhispurrer Member Posts: 263
    edited July 2012

    brower1 and fishinurse - we are here for you.    I had 4 DD A/C every other week, then 4 DD taxol every other week for a total of 8 weeks.   I had a worse time with taxol than A/C.   Just hydrate and take the med's even if you don't think you need them and rest a lot.   The anticipation is worse than the treatments.  You will be a pro and through it in no time.  You will find which days after treatment you need the most rest and listen to your body.  I had a lot more "up time" with A/C than taxol.

     Haven't heard from Minxie or Hope.   Sending healing ((hugs)).

  • Tookybum
    Tookybum Member Posts: 38
    edited July 2012

    Catwhispurrer - that is the exact treatment I am getting I start July 31.  Did you work?  Everybody looks at me like I am insane that I want to work through it.  Really doubting my sanity right now.

  • BernieEllen
    BernieEllen Member Posts: 2,445
    edited July 2012
  • JAN69
    JAN69 Member Posts: 947
    edited July 2012

    Tazzy--I just heard about all the rain and then landslides and flooding.  Hoping you are OK, and your neighbors are, too.  It's too bad that your excessive rain can't be sent to Kansas where things are desperate.

    My former co-teacher and friend for more than 10 years died of brain cancer Friday.  For her it was just a 12 week journey and she was conscious to the end.  I worry so for her husband who is nearly 80.  Family lives hundreds of miles from here.  Hugging my DH more than usual lately.

    We're off to see the grandkids.  Life is good.  Jan

  • Lady_Miz
    Lady_Miz Member Posts: 62
    edited July 2012

    CatWhispurrer & Tookybum - I was also on the DD A/C x 4 followed by the DD Taxol x 4 and I worked all through tx.  Don't get me wrong, it was not easy some days but I am the type that would rather be at work doing something productive as opposed to laying around at home feeling sorry for myself.  I am blessed with a wonderful support group in my co-workers and management and that made it a lot easier, as did the fact that I was able to work primarily at my desk with people helping me with the other things that required a lot of up-and-down activity on the bad days.

    Whatever your decision, make sure it is the right one for you and not what someone else says you "should" do.  Everyone is affected differently and need to make their decision accordingly.

    I wish you luck and health through tx and will keep both of you in my prayers.

    Blessings...

  • Tazzy
    Tazzy Member Posts: 2,546
    edited July 2012

    Bernie... ha ha ha ha !!

    Jan69 - The landslide is approx 5 hours from me (same province) - thanks so much for asking.  Such a tragedy.   They have recovered one body and now trying to recover 3 others... so sad.  Then there was a 2nd mudslide in the same area and has closed the highway.   I wish some of the rain would go your way.  We haven't had rain here for a week, which reminds me, must go out and water the plants.
    So sad about your co-workers wife - she is in a better place now.

  • Gemmy1
    Gemmy1 Member Posts: 46
    edited July 2012

    To work or not to work?

    My aunt worked all through tx, she had mx on Friday and went back to work on Tuesday! She is made of tougher stuff than I am. I did not work for six months! Just started back to work the week before last. My aunt did tell me that if you don't feel well don't push yourself, you won't heal as quickly. Listen to your body.



    Bernie, love your goats! My daughter has been begging for goats for years. I keep telling her we are not zoned for them! We have a wonderful, rescue dog. A bichon frise who thinks he is a mastif. He had a battle with a Pekingese on out walk this morning. Now he thinks he's really hot stuff. He has been a huge comfort to me throughout this journey.

    T

  • inmate4232010
    inmate4232010 Member Posts: 310
    edited July 2012

    Good afternoon ladies

    Oh Mitty....so good to hear from you.

    Karen.....ditto.  

    The picture of Kathy and Luv is just fabulous.  What beautiful ladies you are.  Good job on keeping the secret.  I so wish that I could meet you all.  

    Fishin and brower......May I suggest taking a project or coloring book with you.  Coloring is such fun and is a great way to occupy your time, both mind and body.  Also, remember to eat several times a day.  I found that protein helped my nausea.  It doesn't take much, but sure helps.  Good luck to both of you today and tomorrow.  It will be a lot easier than your mind is telling you.

    All the jokes on here got both my husband and I laughing this morning.  It was a great way to keep our minds off my appointment this afternoon.  If I can figure out how to do it I will post some pics of my kitties later.  I also owe some pictures of the tulips from spring and the beautiful flowers I planted in honor of Laurajane.

    Off to hit the showers and make that drive to the hospital.  Have a wonderful day!

    Love to you all! 

  • wishn4one
    wishn4one Member Posts: 14
    edited July 2012

    Hi There Ladies,

     I don't post often, but I have a concern and am looking for some guidance.  I had a right breast lumpectomy (12/2/11) and 0 node involvement.  Did 8 dense dose chemo and 6 weeks of Rads which I just finished end of May.  I am experiencing some intense pain in a rib that is a couple of inches below the node incision.  If I sleep on it it is too much to bear and forget touching it.  I just saw my surgeon for a follow up to having my port out 3 weeks ago.  He checked it out and he wants me to have a chest xray done.  I am going tomorrow morning at 7:30am.  He also advised me to call my chemo doc and advise him of the issue in case he wants to do any tests.  Has anyone else gone through something similar?  I am a little beside myself here.  Thank you in advance.

  • Lady_Miz
    Lady_Miz Member Posts: 62
    edited July 2012

    wishn4one...

    I am going through the EXACT same thing as we speak!  I am waiting on radiology to call me and set up appointments for both a brain MRI and nuclear bone scan since my x-rays were inconclusive.  I understand completely about the rib pain and she is also checking out some right hip and femur issues.  I am haviing some incredible and sporadic dizziness with shooting pains in my head, hence the MRI.  The fun never ends!!!

    I am not a hypocondriac by nature so it takes me a bit for me to buckle and to call my doctor about issues to begin with.  My lumpectomy was September of '11 with 4 x DD A/C and 4 x DD Taxol, which ended January 27th.  That was followed by 35 rads w/5 boosts so it sounds like our tx plans were similar.

    I understand the feeling "beside yourself" and if you ever need to, just PM me and we can chat.  Never, ever feel like you have to face this alone!

    Blessings...

  • TifJ
    TifJ Member Posts: 1,568
    edited July 2012

    Jan- are you in Kansas by chance? I live in Missouri about 15 miles from the Kansas border. It is pretty bleak here as well with no rain in over a month in my little town.

  • JAN69
    JAN69 Member Posts: 947
    edited July 2012

    TifJ  No, I live in the mountains of central califoria. We don't get rain here from April to November.  The Kansas bit was that I keep seeing how dry and desperate things are in Kansas.  Sorry for the confusion.  We'd love rain, but that would be totally out of norm.  My daughter lived near Lake of the Ozarks for a while.  She's now in dry California, near me, thank goodness.  While she was in Missouri, I had to fly to see her every month, I couldn't stand not seeing their baby girl.  That baby girl enters 7th grade this year.  Oh my.  It would be great to meet up with you and anyone else we could arrange.  I keep telling Annie I'm heading her way, but my passprt has expired.  Ahh.

    Wishn4one  I have that bone pain under my mastectomy, too.  I'm about 8 months post rads and it is still there.  I've talked to my MO about it, but response is something like, "Don't worry about it."  Fat chance I'll not worry!  But I've had enough scans, xrays, and just plain radiation, that I think I glow in the dark.  So I'll wait and watch for what your doctors tell you.  I'll sit beside you while you are beside yourself.

    Inmate  Thinking of you.  This stuff has to end---the sooner the better.

    And thinking of you who are starting chemo this week.  You'll soon see the anticipation is the worst part.

    Jan

  • JazzyJ
    JazzyJ Member Posts: 126
    edited July 2012

    Oh Catwhispurrer..... Now you scared me. I am doing 4x A/C every Two weeks followed by 12x Taxol every week. I planned on having the Taxol treatment on Friday's and traveling every other week M-Thurs for work. My Onc felt this was doable, but your post leads me to believe that Taxol is worse the A/C. I thought I was almost done with the worst of if, but that's not the case?

  • JazzyJ
    JazzyJ Member Posts: 126
    edited July 2012

    Bernie - Love the lazy dog and the goats! Love all gods creatures actually :-)



    Tookybum - Working is different for everyone and highly dependent on the person and the working environment. I am fortunate to be able to work from home for the 8 weeks while going through DD A/C and planned on traveling for work again during Taxol, but I guess we will have to wait and see how my body and mind and body respond.



    Last DD A/C is July 31 and. Then on to weekly Taxol for 12 weeks. Praying Taxol treats me better than some of the posts I've read recently....

  • Kayak2
    Kayak2 Member Posts: 8,561
    edited July 2012

    JazzyJ - everyone responds differently.  I had virtually NO side effects during my 12 weeks on Taxol.  The 4 AC treatments, however, that I had on Tuesdays, would affect me on Thurs & Fri and made me feel like lying on the couch for most of those 2 days.  By Sat I was feeling fine again.  Good luck to you.

  • JazzyJ
    JazzyJ Member Posts: 126
    edited July 2012

    Kayak2 - I hope I follow your pattern... I too get DD A/C every other Tuesday and my 3rd one is tomorrow. Like you, I feel like crap Thursday and Friday, but mostly from the Neulasta I think. Anyway, sounds a lot like you, so hopefully I will breeze through Taxol like you did! Thanks for the hope.... I picked myself up off the floor again :-).

  • fishinurse
    fishinurse Member Posts: 50
    edited July 2012

    Ok-got 1st chemo under my belt-or should I say above the belt.The nurse was awesome-hooked the iv to my port/gave the decadron and antinausea medication-ran the fluid through and then injected the adriamycin into my port/couldn't believe how red it was. It also turned my urine pinkish red.then I was given the cytocin/with just a splash of ativan-good thing I had my daughter aalong as a DD! So-Bower 1/ I am home and feel tired from the ativan/other than that I feel ok,waiting to see what happens next.You will be ok/ I will be thinking of you and I hope you let me know how you are.,Thanks! Dawn

  • JazzyJ
    JazzyJ Member Posts: 126
    edited July 2012

    Yea Fishinurse!! Not as bad as the wait..... Right? Time to rest!

  • Tazzy
    Tazzy Member Posts: 2,546
    edited July 2012

    Happy for your fishinurse - make sure you hydrate plenty - flushes the red out, and generally makes you feel better.  listen to what your body say and obey.

  • CatWhispurrer
    CatWhispurrer Member Posts: 263
    edited July 2012

    Tooky - I worked part-time.   I have a very physical job and full of needles, sharp objects, on my feet and wrangling big dogs (vet tech)!   I had infusions on Mon and found working Tue/Wed and Thurs morning was doable because of the steriods, but by Thursday night, I crashed.  Friday and Saturday were the worst, especially with Taxol.  The second week I would work toward the end of the week which was my best time.   You will find what works for you after the first few infusions.

    Jazzy - I'm sorry I scared you.  I think I am in the minority that taxol was worse (me and Annie!)  Plus, I had dose-dense taxol every other week which seemed harder than the weekly taxol gals.  I had asked my MO for weekly but he said DD was the standard he used.  The taxol would hit me by Thurs when I would start running a high fever, chills, and bone pain like a bad flu. It was the only time I vomited so started taking nausea med's all the time after that. It started where I would be better by the following week (non taxol wk), but by the last taxol infusion, I didn't have any good days between infusions and my feet hurt like h**ll.  I had to take pain pills to stand on my feet so long which comes with my job.   I still have neuropathy even though it has been 2.5 months since my last taxol.  Hopefully, you will be in the majority that had an easier time with taxol.  

  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,204
    edited July 2012

    Look at this beautiful big scared baby. Isn't he bloody gorgeous

      

  • Kayak2
    Kayak2 Member Posts: 8,561
    edited July 2012

    JazzyJ - Didn't your site recommend taking Claritin to help with the Neulasta bone pain?  They don't know why it works, but it does.  Take it before you go and then later in the day if you need to, and continue for another day or two if needed.

  • CatWhispurrer
    CatWhispurrer Member Posts: 263
    edited July 2012
    Fishinurse - glad you got one done.  Good for you!  I found that the steriods kept me up the first night and was an energizer bunny on Tues, so be prepared.

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