Bone Met in spine

Ok I know so many of you have great information. I just had a ct and bone scan. Both show my t11 has almost no bone left and it's hot. My MO is having me do an MRI and scheduling me with a neuro surgeon to get a tissue sample and see if there is a way to strenghten the bone. I'm mainly freaking out about keeping my back safe until they can come up with a plan. I was a little bummed to have to wait. I was mentally set to do a few rads and get a bone builder. Has any one been there?

Comments

  • Godspeed
    Godspeed Member Posts: 61
    edited June 2012

    My wife has been diagnosed with spine mets, T11 is the worst of 9 vertebrae with cancer. We are trusting our neuro surgeon with the decisions of if and when to operate. He is working very closly with the oncologist. The T11 is down to 40-50% of original height and is fractured. The neurosurgeon said he is not going to operate yet, but to call him 24-7 if a loss of leg function or severe pain below T11, or no bowel function set in. There is some numbness around th right side that goes around from the back to below the navel. The T11 is impinging on the spinal cord. I am guessing it is good news that the neuro surgeon does not want to operate because that is how he gets paid. The neuro surgeon says to avoid anything that is jarring (jogging etc), but walking moderately is good for it. Swimming will come in after the breast surgery healed. She has been through the radiation, but we were recently told it was radiation resistant and grew 10%. She was on arImadex for 3 weeks and was on XGEVA (bone builder) for one week to help the bone loss. Side effects were minimal, but we are waiting for th blood count to see if we go chemo from here. Note: we have only known about this since March 2012, let me know if you want more updates. Praying for that miracle!

  • fujiimama
    fujiimama Member Posts: 800
    edited June 2012

    Thanks Godspeed! I will be praying for you wife. I've already had my surgery in spetember and margins were clear. BC is such a sneaky thing. I don't have a ton of pain (feels like a back sprain) my siatic nerve gets a little caught now and then but advil seems to work the best. I'm hoping for answers soon. My provider has a neuro that specializes in spine mobility and gamma knife so I'm hoping to get into see him. Good luck and hope she heals quickly.

  • Godspeed
    Godspeed Member Posts: 61
    edited June 2012

    Just by the way you describe your pain, I think the neuro surgeon will find much less damage. By the time they took the MRI for my wife's spine, she was not able to lay in bed anymore. I have prayed for your condition as well!

  • warriorprincess1971
    warriorprincess1971 Member Posts: 27
    edited June 2012

    I began to have pain about 4 weeks ago, thought it was just a sprain. Last Tues June 20 pain was horrible. Had a clear PET in March but MRI on June 21 showed 2.5 cm tumor in L1. Review of PET showed 6mm lesion then that was missed. They don't see anything anywhere else but are worried about the bone. I had a CT guided needle biopsy of the bone today ( not as bad as I had feared...good drugs on board). Should get path report on Friday. I had a Zometa infusion in Feb and was to have another in Aug. I have been on Arimidex since Jan. I am scared and pissed off that this cancer has returned. I will pray for u and check back for updates. It is encouraging to see so many living for years with this stage. Take care.

  • Godspeed
    Godspeed Member Posts: 61
    edited July 2012

    Well, my wife is doing better with the XGEVA. The Brain scan came back clear, Thank God! She get's the third XGEVA treatment tomorrow and feels a little better with her spine each time. She is sleeping in bed again, Thank God! I hope that you can tell a similar story soon!

  • ductal
    ductal Member Posts: 65
    edited July 2012

    Just count on living for years, just plan on it.  Peace.

  • Mazy1959
    Mazy1959 Member Posts: 1,431
    edited July 2012

    Godspeed, Im glad she is feeling better. Spine mets are so disabling sometimes. I only sleep in a bed when theres no choice ( like if we go out of town). When I've had to sleep in a bed, I use alot of pillows to help support.  I slept in a recliner for over 5 yrs and now am sleeping in a sturdy, lumbar spine friendly lawn chair. I know thats weird but sitting in the recliner caused my backside to kinda have a pull on it and was causing pain. Your wife is so blessed to have you. I have a great hubby as well and dont know what I'd do without him. Hugs, Mazy

  • Heidihill
    Heidihill Member Posts: 5,476
    edited July 2012

    Great to hear that, Godspeed!  I slept on the sofa for 3 months. Yours must be a world record for non-bed sleeping, Mazy! Glad to hear you are comfortable on the lawn chair.

  • Mazy1959
    Mazy1959 Member Posts: 1,431
    edited July 2012
  • warriorprincess1971
    warriorprincess1971 Member Posts: 27
    edited July 2012

    My zero gravity lawn chair is my best friend! You are an inspiration and blessed with a wonderful husband as am I.

  • Mazy1959
    Mazy1959 Member Posts: 1,431
    edited July 2012

    Thx ladies LOL

  • Godspeed
    Godspeed Member Posts: 61
    edited September 2012

    Hang in there ladies. Thans for the tip, I am going to find out what a Zero gravity lawn chair is.

  • warriorprincess1971
    warriorprincess1971 Member Posts: 27
    edited September 2012

    Well it has been a while. My bone bx came back pos for breast cancer but receptors had changed. It wa ER/PR+ Her2- last time. Now it is ER+ PR- Her2+. I had 17 Rad txs to my spine. Got better pain wise during tx but within 2 weeks pain began to return. Saw my onco at MD Anderson along with a neurosurgeon . He said it was too soon to tell if radiation was going to do its job scheduled for repeat MRI two or three weeks later. About a week and a half later L1 collapsed, I ended up in the ER and am flying to MD Anderson for sugery to remove L1 on Sept 14. In the meantime I also started a chemo regemin that was just FDA approved 6 weeks ago or so. It kicked my but for 2 solid weeks but then if my back was ok I would have been doing pretty well. Had to give up my zero gravity lawn chair. Became to hard to sleep on. Back in recliner but still in bed at night. Hang in there every one, it seems to be a bumpy ride but o have three kids 12, 11, 8 that I intend to stick around and see them grow up!

  • warriorprincess1971
    warriorprincess1971 Member Posts: 27
    edited September 2012

    Well it has been a while. My bone bx came back pos for breast cancer but receptors had changed. It wa ER/PR+ Her2- last time. Now it is ER+ PR- Her2+. I had 17 Rad txs to my spine. Got better pain wise during tx but within 2 weeks pain began to return. Saw my onco at MD Anderson along with a neurosurgeon . He said it was too soon to tell if radiation was going to do its job scheduled for repeat MRI two or three weeks later. About a week and a half later L1 collapsed, I ended up in the ER and am flying to MD Anderson for sugery to remove L1 on Sept 14. In the meantime I also started a chemo regemin that was just FDA approved 6 weeks ago or so. It kicked my but for 2 solid weeks but then if my back was ok I would have been doing pretty well. Had to give up my zero gravity lawn chair. Became to hard to sleep on. Back in recliner but still in bed at night. Hang in there every one, it seems to be a bumpy ride but o have three kids 12, 11, 8 that I intend to stick around and see them grow up!

  • fujiimama
    fujiimama Member Posts: 800
    edited September 2012

    Hey everybody doing a very belated check in. T11 was very much a loss. Now I have a cage and rod. Did 25 rounds of rads. That always kicks my butt. My ox came back er-/pr-/her+. We know which one was driving that train. I am now starting a whole new round of taxoter/herceptin plus the new kid on the block perjeta. We'll see how it goes. I get neulasta this time too. Thinking Dr. Is hitting things a little harder. I never even got low last time. We'll thanks for all the tips. I'll try to better at checking in. Life is a whirlwind, and that's good.

  • Godspeed
    Godspeed Member Posts: 61
    edited November 2012

    Fujimama, how did the surgery go? Did you recover well or quick? How are you now?

  • fujiimama
    fujiimama Member Posts: 800
    edited January 2013

    Godspeed sorry for a late reply. Surgery went well. I'm still in recovery mode. I had to do a few more rounds of chemo so my hair was gone again. I'm now on herceptin and perjeta indefinitely. I have good days and bad ones, but the good out weight the bad. I have a strong faith in Jesus and he's been my rock. My husband and kids are gracious helpers and bring me joy. Hope the new year is a cancer free year!

  • Mazy1959
    Mazy1959 Member Posts: 1,431
    edited January 2013

    Fuji, Glad all is well. Hugs, Mazy

  • KeepingFaith69
    KeepingFaith69 Member Posts: 508
    edited January 2013

    Fuji, I am glad that the good outweighs the bad.



    May your faith in Jesus continue to lift you and light your path.

  • fujiimama
    fujiimama Member Posts: 800
    edited January 2013

    Thanks. This is scan week. Praying this is it.

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