Calling all TNs

Sorry, been busy the last couple days and SO much to catch up on.



Jazzy - I know you didn't have a PET (either did I) but did you have a chest and abdominal CAT, along with a bone scan? Loved the story of the swimming grill. Hubby is going to love you no matter what.



Gemmy - your attitude is perfect, you're not lettin CA rob you of the daily joy in your life.



Beccad - hope you're feeling better.



Hope60 - still praying and waiting for an update.



Jan69 - woooohooooo to stable hubby and no hysterectomy. I have a tip for ants if you need it. (can't have cats, dogs it can be hidden safely from). Hot, dry weather drives ants inside because they're looking for moisture.



McCrimmon - talk to your doc about something to help sleep. I still have that same problem, wake up worrying about things that need doing. Doctor put me on Ativan for sleep, and it has been wonderful. (I don't use it every night, just so I don't develop a tolerance to it's effect)



Borntosurvive - Owie! Hope hubby is ok and if he whines to much, use Luv's "bigger boo boo " line.



Spica - thanks for the tip on that cream.



Tookybum - love the story of your name. Did you have your MO visit?



Tazzy - thrilled to hear you're out having.....FUN!!!!



Onvacation - I only took a picture to my barber once. She promptly

pulled out her Magic Wand and I got the hint. I did though by a wigas my hair was growing in, so she could head toward that as a style. (no magic wand, so I guess it was doable)



Riley - congrats on your new apt.



Mags - thanks for that info on the bloodwork. I'll see if I can cajole my PCP into it.



Titan - hope you won big!



Inmate - great to see you, but can I just say....f**king skin mets!!!! When you've had enough time under the rock, get up and kick their a**! ((HUG))



Painting - great to see an update from you! Your artwork is beautiful. I second the vote for pre-natal vitamins.



Fishinurse - sorry you have to be here but welcome. Sorry too, about your boyfriend, but there are many wonderful guys out there who won't be put off by a few scars. Please also check with a Social Worker, I seem to remember several of the women on here mentioning they qualified for short-term SS disability (I'm sure someone else on here will have info).



Cocker - I'm so glad I got to make you laugh. I baited that hook to suck you in with very carefully, and Luv was just as guilty. I knew if I did it just right......you'd jump to back-door-man, lol. Wish you could have been there too. Before I forget, how about some Benadryl for the itching. They give it along with taxol, so there shouldn't be any problem taking it.



And last (but not least). Great job with the picture, (and the prank) Luv. Gotta tell you all Luv's nickname should be TNT, she's dynamite in a small package! It wasn't like meeting someone, it was like catching up with an

old friend. (pssssst, Painting

is on the way to the casino if your interested). Thank you again Luv, the company was truely divine! Woohooo on your son's placing. Have a blast with your family and friends this weekend!



Well it's time for me to try and waddle off to a family get together. (both neice's are in town). I'm waddling because I spent all day yesterday blue shell crabbing, so I could bring some to the party. My hips and legs are not happy with me!!



((HUGS)) to anyone I missed. Have a great weekend everyone!

Hello Dear Ones,

Just reading through all the post. Loved the jokes. So glad Inmate checked in.

Hugs to the newbies.

Annie- send us a photo of the new cafe!



I've been crazy busing here. My 17 year old's girlfriend is here from LA. I just packed them up for two days at the beach house. 12 year old son, goes off to camp in VA tomorrow for a week.

Making plans to go to Salem, MA and to visit MIL at her summer home in East Boothbay, ME in August.



Live goes on... And I am so glad I'm feeling up to it!



Group Hug!

Browerl - best of luck on your first chemo!  Everyone reacts differently, I was very lucky and had minimal side effects, the anticipation of what the first one was like was worse for me than the actual treatment!  My 2 cents - drinks TONS of water, rest, eat well and realize YOU can do it!

It's been a very busy week, but I've got some sit-down time this afternoon.

Fishinurse--  When your pain and shock of BF taking off, you'll realize how lucky to find out what he's made of.   Now you can focus on your health and not him.  You'll get back to nursing soon.  My son-in-law is a pediatric emergency room RN, and he's 45 years old, and only about 6 years into nursing.  You will find your skills and compassion will serve you well now and in the future.  Best wishes and hugs from someone who has been around this block.

Browel--  My advice would be to be prepared for constipation.  Start today.  You know, lots of fruit and vegetables. My chemo was last summer so I had lots of fresh fruit available.   Cherries, watermelon, peaches, mangoes.  So when friends and family want to know what to do for you, tell them to bring cut up fruit in bite sizes.  I think I'm the oldest on this site so my SEs aren't so typical.  My life during chemo was bed, recliner, bathroom. Period.  That was a year ago and just today I canned 14 jars of pickles.  I made it and today I'm NED (no evidence of disease).  From what I can tell from my TN sisters, most of them worked during chemo.  I was retired and didn't have to worry about a job.

Kathy-- I'd would appreciate your ant tip.  

Inmate-- Just tie that knot in the rope a little tighter and hang on.  Thinking of you.

Painting-- Absolutely love your art!  And in watercolor, too. Thinking of you.

OBXK-- Whew!  What a busy summer.

Tookybum--Thinking of you

Annie-- "haven't heard a dickie bird from her"  I've got to remember to use this.  Thinking of you and your hands.

BernieEllen-- Beautiful dogs, wonderful jokes

Luv & Kathy-- I'm jealous of your lunch meeting

Gemmy1  How do you freeze your peaches?  Quail take off when the perceive danger.  No photos.  Sorry.

Jan

1in watercolor

Thanks for the advice and private messages.  I have saw a lot of post about Neulasta, what is that?  My doctor has not mentioned that at all.  They did say that I would be getting anti nausea meds and benadryl along with cytoxan and taxotere and I would get this Tuesday then have two Tuesdays off and then do it again until I get 6 treatments.

Thanks,

Loretta 

Hello all. Smokes this is a busy place. Hope everyone is having a wonderful weekend. The pictures posted are great. I love the painting of the bird and the marshmellows are adorable.

I did have my MO meeting on Friday. We were there for almost 3 hours. A lot of waiting. And then a tonne of info. So here goes. First thing my husband says is he has socks older than my MO. And we are only 41 and 42. I guess he is sort of an Asian Dougee Howser (problem is he probably wouldn't even understand the reference) Anyway very nice guy named Brian (yep thats how he introduced himself - not Dr Lee) Anyway he could tell I was very informaed so cut right to the chase. I get dose dense AC/T, 8 rounds every 2 weeks. I get my picc line Monday July 30 and start my first round July 31. Planning to sjave my head July 29th. Kinda make a party of it. Scared to death but moving forward. Planning on trying to explain to my 7 year old son tomorrow.

HUgs to all the beautiful women here. Thanks for all the encouragement. You have and will continue to be a souce of strength and corage for me.

Browerl--It's me again.  I had chemo every 3 weeks x 6.  I had the ACT, so maybe CT will be easier than all three.  As for stool softners, since my bowels are usually sluggish, I would take them before hand.  Those pre-chemo anti-nausea drugs are constipating, but might not bother you as much as they did me (I was 69 at the time).  It is such a crime that we don't know before hand how all these drugs are going to affect us.  I'm holding your hand.  Jan

I am always happy to see people who have beaten TNBC come back on this site and post their updates so those of us who are just dealing with it see that there are survivors (and many of them). It must not be too easy for those who have gotten on with their lives to think about coming back to these forums as I'm sure they just want to put the experience behind them. But we need them - to hear their success stories. I just stumbled across one tonight that I thought might be worth mentioning. For anyone who needs to know that there are many long term survivors of TNBC, check out this chat room 26 YEAR SURVIVOR HERE (in forum Triple Negative). And don't forget to get out there and live each and every day!

Doreen 

Annie, that is hysterical, about your cats.



Jan, I peel the peaches and quarter them, put into gallon ziplock freezer bag, label and freeze. When I defrost ( in fridge) they break down, further breakdown when cooking so no need to chop up! It's easier and they always have beautiful color in the jar. Drove by farmers market today and the peaches are coming in! Early this year.



Ladies starting chemo,

constipation is miserable. I took and still take a probiotic capsule. I also drank kefir and ate yogurt. Sounds a bit over board but I had issues w/ chemo. Lost nine lbs. the first week! I trained for my first triathlon for none months and lost only five lbs. so chemo did a number on me. I don't think most people react that badly. When i went in the next day for my Nuelasta shot, The chemo nurse asked me if I had taken anything before treatment... I said "do you mean like CRACK? Sign me up"

If you do feel poorly, go in for I'VE fluids. I had them with every Nuelasta shot. I went in three times/ week sometimes for I'V fluids. It helped a lot.

Nuelasta has a program that offers financial assistance. Somehow pays part of your insurance deductible. Ask about it, it's not a need based program.

Nuelasta did cause me a lot of pain and I have heard that from many ladies who have had it. Some take Vicodin for the pain. I found that doing gentle yoga, stretching and forward bend yoga poses helped me to keep that pain away. If you want additional info on that I can recommend a great yoga DVD.

One other crack pot idea for chemo: when I had Taxotere, I iced my hands and feet to prevent neuropathy. The chemo nurses rolled their eyes at me but it worked!

I also saw an acupuncturist after every chemo and it helped Tremendously!

Now you all think I'm some kind of tree hugging Boulder hippy, but I'm really a very high maintenance kind of girl. I even shave my legs daily. Lol

My prayers are with you all,

T

Gemmy1   Thanks for peach tip.  I've always wanted to freeze the peaches, but worried they would brown and not be that lovely peach color.  I'm out of town most of next week, but I'll get to it when I get a chance. Jan

Annie  Love that kitten picture!  Those other animals that live in your house, not so much.

Browerl  I got Neulasta shot in tummy.  I had no pain afterwards, but it seems most people do.

It's a beautiful cool morning here, sitting on front porch sipping coffee.  Cheers!  Jan

Kathy  Thanks for the ant tip.  I'll get right on it.  We're going to be away most of the week, and by the time we get back, they could have carried away the kitchen.  For many years my secret reciepe worked, but not this year.  It is boric acid mixed with green mint jelly.  They'd crawl over each other to get at it.  You might have to sign for boric acid in the pharmacy and I've never had any luck with red jelly.  I especially like your bottle cap idea.  Here's to a wonderful Sunday afternoon.  Jan

Fishinurse - go to the main menu, select Search option, then type Social Security Questions and Answers. There seems to be some good info there.

Wow thats a lot of water.  Does anyone on here drink that much?

Am I the only one who didn't have constipation, but diarrhea? It always hit me about day 5 after TX. Immodium was my best friend. I had to cancel my first appt. with the genetics doctor because I was afraid to leave the house! My best wishes to all those starting or having another treatment.

Inmate,  Keep on working that new normal. Sounds like you are putting energy into each day, and that is so healthy. I'm sorry about the damn skin mets. I'm thinking about you.