help with vit D levels

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2011

    Aren't we supposed to take the Vit D3 with Calcium to help absorb it?  If we take it in to pee it out it may not raise our levels.  Just had my annual with PCP and forgot to ask her to test my D3 level.  Had Onc test it a couple months ago and it was only 42 but I also had stopped being regular with taking the D3.  Now back on it with 4000 iu's supplement and another 1000 in other supplements.  I was taking Nature Made chewables but will be trying the drops when they run out.  See the Onc again in February so will try and get it up by then.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2012

    Patoo

    VitaminD3 is not water soluble - that's why there's a danger of an overdose - if taken in extremem amounts ( seems most docs agree to stay under 10,000ius daily) -  if we ingest more than our bodies can use, it's stored in fat.  Most Vitamin D3 capsules are in oil - please everyone try to avoid them in SOY OIL - the best brands use rice bran oil.

     The B's are all water solube - we do pee out the extra our bodies don't use.

  • LuvRVing
    LuvRVing Member Posts: 4,516
    edited December 2011

    I have been taking D3 since my first BC instance in June 2010.  I take 600 mg Calcium with 500 iu's twice a day, and one D3 with 2000 ius in the morning.  My levels have gone from low 40's to 69.  And my bone density is also better than a 30 year old, which is a good thing because I'm 61.  Because I'm TN, I don't have to worry about the AIs' impact on bone health.   I get mine at the drugstore - soy is not an issue for me.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2012

    A LIGHT BULB went off in my little head Wink  I've been taking 4,000 ius a day for a long time, well over a year.

    BUT, and here's the light bulb - during that time I was eating a Monster Amount of Cheese, fat free frozen yogurt too.  I stopped eating ALL dairy much earlier this year - NONE. My allergies and sinus infections STOPPED - just a miracle.  No more sneezes, no more stuff nose, BUT, here's the kicker - there must've been a LOT of Vitamin D in those products.  SO, I'm upping the Vitamin D3 to about 6,000ius a day - and will have it retested in 6 months.....

    Going Dairy free was a big part of my taking my Cholesteral level DOWN 20 points - and my triglycerides were 35 ....good numbers.

  • Fearless_One
    Fearless_One Member Posts: 3,300
    edited December 2011

    My lab results show deficiency as below 30.   Docs may push for higher, but unless you are below 30, you are not clinically deficient in it.

  • ananda8
    ananda8 Member Posts: 2,755
    edited May 2012

    Clinically deficient means that you don't have rickets, yet.  One should try to have levels higher than 30.  Many doctors recommend a range of 40-60.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2012

    Fearless

    Many labs still use as "normal" a range for TSH ( thyroid stimulating hormone) up to 6.   Since 2003, the Americain Adademy of Endocrinologists have said TSH should be BELOW 2.5

    Notself is correct on this - CRUCIAL to get Vitamin D up to the level's she's posting.  CRUCIAL.  Esp. for older women, and those on any of the AI's - bone health, and relief of joint pain.

  • purple32
    purple32 Member Posts: 3,188
    edited June 2012

    Just got labs in for VIT  D .... 33.  Says normal is 30-70 ng/ml.

    I take 1000 IUs a day plus there is some in the CA I take as well.


    I will be doubling my dose- to start.  Dr says level is fine.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2012

    Purple

    I don't think most docs know beans about what our vitamind levels should be.  I learned more from the women posting on these threads than I ever did from docs about this.  My last reading ( local test labs) was a 26 - I was so frantic, that when I had my 6 month check up with oncologists, they retested  - it's 48.  Really - I am finding so many of the lab tests I'm having with local doctors, using local labs are SO WRONG!  

    Sadly, many of the Kirkland brand products have soy bean oil in them.  A good health food store should have it in rice bran oil, and not much more expensive. Supplements are one thing I'm willing to spend money for - and buying a good brand, IMHO, is relaly important.  Whole Foods has a good selection, reasonably priced, which surprised me.

  • purple32
    purple32 Member Posts: 3,188
    edited June 2012

    www.naturemade.com

    has some $1 off coupons  to print ( EZ sign up)

    The Vitamin D is on sale at RITE AID this week if you have 1 near you.  Buy and get 1 free on sale there.

    Check the website. I see the softgel DOES have soybean oil in it.

    However, it says the other does not , and listed review says it is a small pill.

    HTH someone.

  • Califgirl12
    Califgirl12 Member Posts: 92
    edited June 2012

    Hello Ladies

    I just wanted to add my 2 cents regarding my experience with Vitamin D levels.  Started at 21 in Feb, after taking about 6000 IU's daily (Kirkland 2K IU's 2x's a day), it improved to 38 in June-about 3.5 months.  I am happy but am still going to work on getting it even better.  My dosage will be the same but now I will be taking it with Calcium/Magnesium.  The brand I am now currently using is Garden of Life Vitamin Code Raw D3 5K IU's.  It is made from whole foods, and has pro-biotics.  The Calcium is Calcium Plus by Pure Essence Labs.  I read that taking the 2 together will help absorption...I did'nt try this before so maybe it will help.  The label says it is made in a facility that does process soy...so it says it may contain soy!  Gotta find another non-soy brand.

    The Calcium is only 250 mg but coupled with 1 mcg of Magnesium is supposed to have superior absorption.  ....we will see.  I get more lab work done in 6 weeks.   

      ..also wanted to add, living in Sunny So. Cal you would think that I would get enough Vit D from the sun?  Guess not.  I don't deliberately lay out in the sun but I do alot of outdoor activities and I do not wear sunscreen.  Like yesterday, we walked from 1:30pm to about 8pm all day at Disneyland.  Gosh I hope some of the D sticks!   

      

  • Califgirl12
    Califgirl12 Member Posts: 92
    edited June 2012
    This is the Vitamin D3 that I found that does not have soy.  vitamins, vitamin D and Calciumvitamins, vitamin D and Calcium
  • Thatgirl
    Thatgirl Member Posts: 276
    edited July 2012

    Califgirl12,

    I've found that when I take Vit D with some fat my levels increase the fastest. I normally add coconut oil to my smoothies so that's where I get my fat intake.  

  • ananda8
    ananda8 Member Posts: 2,755
    edited July 2012

    Thatgirl.

    Keep up the good work of taking vitamin D3.  I finally got my levels up to 54-57ng/ml last year from a previous level of 22ng/ml. This year my bone density scan showed improvement in all areas of my spine and hips.  I credit Vitamin D3.

  • truebff
    truebff Member Posts: 642
    edited July 2012

    My CHinese medicine guy put me on six drops of 1000 IUs daily. How often should I get tested? I've been getting diarhea lately and wondering if it's too much for my stomach.

  • ananda8
    ananda8 Member Posts: 2,755
    edited July 2012

    Try switching to capsules.  The suspension in the drops might be the trouble. 

    How much should you take?  What is your current Vitamin D3 level based on a blood test?  My level started out low.  I don't get much sun since I cover up with a hat and long sleeves when I garden because I get skin cancer.  If you have low levels and don't get much sun you could start with 4,000IU a day split between morning and evening.  Get retested in 6 months and check your level.  If it is in the 50's, great.  If it is higher than that you may want to take 2000IU a day. 

    Everyone's response to Vitamin D3 is different.  I took tests every six months until I found out what is right for me.  Now I check once a year as part of my standard physical. 

  • truebff
    truebff Member Posts: 642
    edited July 2012
  • Tatina123
    Tatina123 Member Posts: 480
    edited August 2012

    I've been researching vitamin D3 and have discovered that marine based supplements may be the way to go because the body recognizes the "whole super food supplement" versus a synthetic vitamin. So far, I'm seeing that a top Vitamin D3 supplement comes from wild Alaskan sockeye salmon oil (which has omegas too).



    Take care,

    T

  • Pouncy
    Pouncy Member Posts: 2
    edited September 2012

    I have spent seven years -- starting well before my BC diagnosis -- to raise my D levels from a starting point of 11, now at 83!  I am delighted, and feeling the benefits in many ways.  No night time leg cramps!  Super good bone density!  Overall (well, other than a bit of cancer) good health!  But my Dr. is having a hissy fit:  Wants me to stop taking supplement immediately, and try to "achieve" a level of 30-50, which NIH says is "inadequate".  And I am being treated at a major, well respected cancer institute.  So far, my discussion has been via e-mail with the nurse, but I am told the Dr. will call me soon to clarify and discuss.  My current plan is to ask her for any current research that supports the lower level.  I think it must be easy for docs to lose touch with the current research on what they might be considering 'minor' issues.  I hope to re-educate her. 

  • ananda8
    ananda8 Member Posts: 2,755
    edited September 2012

    Pouncy,

    Is your level 83 ng/ml or 83 nmol/L?  If you level is in ng/ml you are too high.  If your level is in nmol/L then you are Ok.  The ration is 1 nmol/L = 0.4 ng/ml.  Listen to what your doctor has to say. 

  • Pouncy
    Pouncy Member Posts: 2
    edited September 2012

    Notself

    Thanks -- that is a good point.  The email from the nurse did not specify if it was ng/ml or nmol/L, so I will get back to her and check on it.  Previous levels of under 83 from my pre-cancer doctor were nmol/L, so I was just assuming -- gotta learn not to do that!

  • Blundin2005
    Blundin2005 Member Posts: 1,167
    edited October 2012

    I don't know if this link will work but this is information from consumer lab newsletter...you might find it helpful. 

    https://www.consumerlab.com/reviews/vitamin-d-supplements-review/vitamin_d/ 

    I buy mine from Vinco's. They calcium is absorbed in the intestine instead of the stomach. I also take a magnesium pidolate suppliment. But I admit to fall behind on taking the pills, especially after a bout with kidney stones. We have much calcium in our water and the supplement was probably too much. I like Solgar for pharmacy grade vitamins...but they are expensive.

    Best wishes,

    Marilyn 

  • Mandy1313
    Mandy1313 Member Posts: 1,692
    edited October 2012

    Marilyn: I also like Solgar for vitamins.  I have to order them on line since our Whole Foods decided not to carry them (so they could promote their own brand, I am guessing). 

    Pouncy: what do you use to supplement your D?  I take 5000 units daily and it is all I can do to get a reading in the 40s.

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