March 2012 chemo

Options
1111112114116117132

Comments

  • onvacation
    onvacation Member Posts: 1,344
    edited July 2012

    Happy Friday!  It has been raining all week here and predicted to rain through the weekend. There was some flooding, but mostly just makes it dreary and me lazy!  I am pretty lazy any way, so no idea if I will get a lot done this weekend or not!  I really need to though, so hope I am at least somewhat productive!

    Hope everyone is feeling good today and has a lovely evening! 

  • IndigoMont11
    IndigoMont11 Member Posts: 1,095
    edited July 2012

    Temps are back up in the 90s here and dry again.  If I hadn't just sprayed some Roundup on my weeds, I'd welcome some more rain!!  Hugs1

  • shera
    shera Member Posts: 184
    edited July 2012

    For those of you growing your hair back.... I thought I'd share a couple of photos...  the first one was taken around 6 weeks after final treatment, and 2nd one taken at 10 weeks.   

    6weeks

     

    This picture was taken yesterday but I've been hatless for a few weeks now. So it took about 2 months before I could go "topless" and have people think it was intentional. I've had two strangers tell me that they love my "hair style".  I get a lot of stares and looks -- sometimes I don't care and sometimes I want to hide. At least I live in an artsy college-town, so it's sort-of normal to look different here. Still... one more inch will make a huge difference.

    P A T I E N C E 

    More gray than before -- but not too bad. My collick is still there -- above right eye -- its sticking straight UP and its mostly gray/white. So that outa look interesting in another half-inch or so. 

    My eyebrows stayed with me through treatments and then they went about 70% bye-bye around week 7-8. But they are already growing back in. Hope they stay!

    Hot as heck in New York (Southern/Central).... so at least the "hair style" suits the season.

    Many hugs to all -- especially those of you finishing up your treatments. 

  • TrailGirl
    TrailGirl Member Posts: 46
    edited July 2012

    Shera...thanks for posting the pics, you look great! I am only 2.5 weeks out of chemo and have random hairs growing. I look more like a cancer patient now that the hair is coming in than when I was completely bald!

  • shera
    shera Member Posts: 184
    edited July 2012

    TrailGirl, Congrats on being DONE with chemo. Yes... I know what what you mean... I signed up for yoga around week 4 and had to take class without a hat... and it was just so obvious. But now... just a few weeks later, its not obvious.  Weeks 4-5 were difficult for me... because it started out so slow. But...once it starts growing, it seems to pick up speed!

  • Januaryice
    Januaryice Member Posts: 120
    edited July 2012

    Yes, Shera, thanks so much for sharing those photos! It gives hope to us bald headed woman. One week out from my last tx and I use a magnifying mirror to see if any hair is growing!!! How sad is that..... So tired of wearing a scarf and getting tide weird stares.

    Now I have some idea on timing. At leat I'll have one kind of hairdo for the holidays.

  • onvacation
    onvacation Member Posts: 1,344
    edited July 2012

    Thanks Shera - I'm one week out of chemo and ready for some scalp coverage!  Hope I have as much as you - you look great!

  • QuinnCat
    QuinnCat Member Posts: 3,456
    edited July 2012

    Shera - short short hair suits you and your eyebrows look normal!  I never had that many pre-chemo lol.  If I looked that good with short hair, I would consider keeping it permanently...so easy, so cool in the hot temps.  It really does suit you.

  • MichelleMassey
    MichelleMassey Member Posts: 213
    edited July 2012

    Hi all! Haven't been on here since we've had DH kids. They left this morning and I'm so sad. They were so good and understanding of my illness.



    Congrats to all who have finished chemo! I'm so happy and jealous of you! :)



    My BRCA came back negative so that was some good news. I see the RO and PS on the 24th. And I'm down to 5 more weekly Taxols.



    Shera-you look great! I have a thin layer of hair all over my head but it's coming in white so I still look bald unless I have lights shining on it. Lol! Well I'm off to take a nap. Had to get up real early to get the kids off. Have a blessed day all!

  • shera
    shera Member Posts: 184
    edited July 2012

    Thanks for all the nice comments!

     

    It's definitely a new reality for us. I wore my hair past my shoulders in wavy/semi-curly style most of my life so people who know me, have been walking right by me. Or when I say hello, they look at me wondering why I'm talking to them... then after a few seconds they say "Oh it's YOU!!!".  It's entertaining. 

     

    My head is small though... so I joking ask my boyfriend... does my small head make my butt look bigger? He is smart enough not to answer directly ;p

     

    Januaryice and Kim -- glad to give you some sense of timing. I had a hard time finding anything about it when I was looking. I remember peering closely at my skull in the mirror several times a day during the 4-6 weeks after last tx. It was scary not seeing it grow much at first! So... hang in there. Approx 2 months until you can burn the hats and scarves!!!!  One thing I did when still bald to baldish.... was sit in the sun with nothing on my head, tried to do it 15 minutes a day. Hair grows faster in the summer.. so I'm taking advantage of the season.  

     

    Triplem67 -- Yes, lighter hair is harder to see! I'd been lightening mine for years... and I'm thinking of leaving it dark for a while because I like seeing hair on my head!  Plus I'm afraid to do anything that might make it fall out...!!!  Probably not a logical fear... but after all the crap we've been through, with experiencing our hair fall out, and waiting so long for it to grow back.... hell, I'll take the dark with some salt in there for a while. In no hurry to lighten up.  Hope your final treatments go quickly and as painless as possible!

     

    Those of you still completing chemo -- it is hell -- I thought it would never end, I thought my body would never feel good again... and the fact is, I feel better than I have in the past few years. Body isn't fighting the "c" anymore.   Hang in there -- you will feel great again!

     

  • IndigoMont11
    IndigoMont11 Member Posts: 1,095
    edited July 2012

    Thanks for the encouragement, Shera! Still sold on the Marrow Plus, owe you for that. No shots yet after five rounds!

  • kltb04
    kltb04 Member Posts: 1,051
    edited July 2012

    Kim - hoping we will get some of that rain here today - it rains everywhere in the state and skips us it seems.  BTW, how is Dad?

    Indigo - boo on the high temps.  My parents didn't take their annual road trip to CO this year with all the heat and the fires...they went east instead.

    Shera - thanks for the pics - looks GREAT.  I worked with a lady for several years that wore her hair not much longer than yours is now and she always got the best compliments on it - it just suited her so well.  Looks like short suits you too.

    RE: Hair - mine is coming in so light you can't really see it - i have read that Herceptin slows down growth too so I don't have much hope for mine coming in quickly.

    Michelle - glad the kids' visit went well and congrats on the BRCA negative!

    Just sitting here watching House Hunters and messing around on the computer...trying to decide where to go for my mini vacay in August.

  • onvacation
    onvacation Member Posts: 1,344
    edited July 2012

    kltb - thanks for asking - my dad is doing better, though is still very tired a week, will take some time.

    I will send all our rain your way, I am done with it!  LOL

    I look everytime I go by a mirror to see if there is growth!  There is some hair which is good, but no where close to covering the scalp.  hope radiation doesn't slow down the growth.  Also ready to get my eyelashes back, though saving tons of money on mascara!  My eyebrows are very spotty, hope they don't all go away!  Fingers crossed.  Still have numbness in my toes and fingers, it has been over a month now and it is such a weird feeling ready for that to go away!  Other than that I am great!  

    Hope everyone has a peachy day! 

  • Alicethecat
    Alicethecat Member Posts: 535
    edited July 2012

    Hi KAM170

    Yes, I've often thought myself what a strange clinical profile I have - ER negative but weakly PR positive - and there's more too - my DCIS and IDC have micropapillary features. Apparently only 6% of breast cancer has this feature.

    In addition, my tumour was an apocrine tumour (sweat glands). Only 4% of breast cancer patients have this type, according to http://www.breast-cancer.ca/type/apocrine-breast-carcinoma.htm

    My tumour was well-circumscribed (I think that means encapsulated), which may have helped as there is no lymph or vascular invasion and I'm HER2+.

    I go to a hospital in the UK that is excellent but it is not a teaching or research hospital. It gives standard treatment approved by NICE and does not give experimental treatment.

    If any researchers are interested in this clinical profile, please send me a PM.

    Best wishes

     Alice

  • Alicethecat
    Alicethecat Member Posts: 535
    edited July 2012

    Ladyfighter

    I'll be joining you on the Herceptin - until July 2013!

    I am due to start it on Thursday...but the Taxotere looks as if it has leaked out of my veins after an infusion and I may have to have the dreaded PICC line after all!

    Have to phone the chemo nurses on Monday to find out if they can fit one for me in time.

    Not what I had in mind but I am sensible. At the moment, I have one and a half-inch red blotches down my writs and half-inch red blotches where I had two infusions of Taxotere.

    Not a pretty sight so I guess it could be the PICC line for me!

    Shame, I was all ready to wave the flag to say I'd completed eight rounds of chemo without a line or port. Sigh...

    Thank you for asking.

    Alice 

  • kltb04
    kltb04 Member Posts: 1,051
    edited July 2012

    Alice - sorry to hear about the leakage of the Taxotere...just out of curiosity, why the PICC line rather than a port?  Less invasive, I guess? and will they only use the PICC til you are done with chemo?  Then just regular IV for the remainder of your Herceptin?  I just assume my port will remain in for Herceptin.

  • lostinmo
    lostinmo Member Posts: 922
    edited July 2012

    Good morning all!

    I hope everyone has had a good weekend.

    Shera-loved the pictures, showed my DH and he laughingly said since mine is coming in gray it will take more than that to be able to really tell. He did say he could tell it was growing though.

    Alice- sorry you had leakage sounds a little scary. I hope everything will be ok.

    I think things have calmed down somewhat. I still have to stock the deep freeze with easy stuff DH and DS can cook for us. I'm using the surgery to get out of cooking for a week Laughing

    I think I'm as prepared as I'm going to get. I went to the ACS on Friday and she gave me a pamplet on a really good fitter for bras and foobs. I'm choosing to not reconstruct, I'm just sick of hospitals and everything involved with them. Maybe down the road we will see.

    I didn't get to share my last chemo with you guys. It was so sweet, when I was unhooked for the last time the nurse brought me a bag and inside was a certificate stating I completed "crappy chemo" (their words). and a tee shirt. The tee shirt has chemoathalon on it with a pic of the push needle, the iv drip, and being done. I'll put it on and take a pic of it to share with you all. I thought it was sweet and they are signed by all the nurses and techs.  My DH and brother both recorded me ringing the bell. 

    Tues I did my preop testing so now I just have to show up Thurs at 7:30. I think DH and I are going up the night before and meeting our pastor and his wife for dinner out and staying so that we don't have to get up at 4am to get to the hospital on time.

    Well guess I better go get some more work done. I still wish I could find my lost house elf. 

  • IndigoMont11
    IndigoMont11 Member Posts: 1,095
    edited July 2012

    Hi lostinmo! Love the last chemo scenario.



  • IndigoMont11
    IndigoMont11 Member Posts: 1,095
    edited July 2012

    Hi everyone! Well, taxotere#1 hasn't been much fun at all. Since yesterday afternoon, I have felt like I have had the flu, joint and muscle aches. Had some chills yesterday but no temp, at least, not according to my thermometer. (I'm wondering if it works). I have still been finishing antibiotics from last week and I don't want to visit the ER. The bitter taste in my mouth is worse than ever. I had heard that nadir for taxotere comes earlier than with A/C, but when I asked the NP about it, she didn't seem to know. Anyway, it is not worse this morning, at least, so I'm getting through today.

  • kltb04
    kltb04 Member Posts: 1,051
    edited July 2012

    Indigo - nooooooo....it was supposed to be better than A/C - I thought you got the memo :(  Feel better.

    lost - sounds like you are getting everything lined out.  Yay for the last chemo :)  Good plan for going the night before and staying.  And your house elf isn't here ;)

  • KCB
    KCB Member Posts: 365
    edited July 2012

    Indigo: so sorry to hear taxotere is being difficult; I am on my last round of it, and yes, it does feel flu-like, achey, mouth feels gross, taste nothing. But it has passed the other two times, by about day 10 or so for me. Wishing you strength til you get there...and some of your beautiful purple energy

    Alice: crap about the leaking of taxotere in your vein, this sucks! Hang in there!

  • IndigoMont11
    IndigoMont11 Member Posts: 1,095
    edited July 2012

    Thanks ladies! Well, crossing fingers, I spent most of today in bed but by this evening, have been feeling better. I have a message to the MO - thinking maybe I will have to come off the steroids a little more slowly next time. Hugs and a restful evening to you both, and thanks so much for your support; best medicine there is!



    :-( We are being invaded by pincher bugs, probably thanks to our recent rains. EEEEEwww! Even after I cleaned the bathroom top to bottom the other day, DH found a bug in the tub, and today I found another one inside the case to my thermometer, which was inside the top of the medicine chest! I have suspected the thermometer doesn't really work because it says 97.7 almost every time I use it, but I am definitely replacing it now. At least that incident didn't further upset my stomach. Hate pincher bugs, zap with the taser gun!

  • Myleftboob
    Myleftboob Member Posts: 1,469
    edited July 2012

    Hi Ladies

    I hope everyone surviving this hot weather.  This heat and humidity is making me wish for fall.

    Indigo

    Are pincher bugs the same as earwigs?  Sorry to hear that Taxotere is givng you a rough time.  Have to considered trying Clariton?  I found it made the world of difference on the bone pain that I suffered by first TX.

    Lostinmo

    Congratulations on being done with chemo!!

    Alicethecat

    You should seriously ask about getting a port vs a picc.  I was annoyed that I had to have one but now an totally happy I did since I will too be having Herceptin through January 2013. 

    Klt

    I think Herceptin is slowing the hair growth for sure.  I notice that the gals on the Hair Thread like Shera that aren't receiving this and that finished TX around the same time as I did are well ahead (no pun intented) of me.  I was speaking to my chemo nurse while I was getting herceptin last Friday and she said it did slow growth but not to worry I will catch up eventually. 

    I even died my hair with a semi perm colour on Friday.  There was alot of gray so I figured it would make the coverage look a little better with some colour.  It turned out redder than I thought but it'll wash out in 28 washes so no big deal.  I've updated my avatar with it dyed.

    My family spent the weekend moving my Mom into an assisted living residence.  Hard thing to do but she's 84 and starting to really decline physically and needs the 24/7 hour care it provides so the peice of mind it provides is priceless really.

  • IndigoMont11
    IndigoMont11 Member Posts: 1,095
    edited July 2012

    Yes, I think pincher bugs are the same as earwigs.  I thought about claritin but since I'm not on Neulasta or Neupogen, wasn't sure if it would help.  I guess it is worth a try, if it's not too late this time around. 

  • kltb04
    kltb04 Member Posts: 1,051
    edited July 2012

    Indigo - Ewww - pincher bugs sound nasty.  That reminds me of the episode of New Adventures of Old Christine where Julia Louis Dreyfus character swallows an earwig - I laugh just thinking about it.  I think the claritin would be worth a shot next time?  I actually forgot to take it this time for my Nuelasta.  As far as thermometers, I have one of the last real mercury thermometers in existence!  It's my mom's.  Remind me to tell ya'll the story about breaking mine a couple years ago and the freakout that ensued.

    MLB - yay for hair - Coloring will definitely be in my future - I have had grays since I was 18 and I am sure it will come back in more gray than any other color.    I was thinking the other day how I always hated my hair SO much and would always say "I should just shave it and start over" - little did I know that one day I wouldn't have an option.  Undecided  Glad you got your Mom settled into her new home.

    I need to go get my lazy kids out of bed.  Have to take them over to bro/sil (my usual babysitters - my parents- went on vacation - how rude! JK) so I can go get my week #3 labs done and then back to pick up SIL and go to dinner tonight and see Magic Mike.  Today is the day of the great fake eyelash experiment as well so I need time to get ready.

  • QuinnCat
    QuinnCat Member Posts: 3,456
    edited July 2012

    Indigo - I didn't have Taxatere, but had Taxol and just got excrutiating pain from it, day 3-6.  I ended up taking a Hydrocodone every 4 hours.  Ofcourse, it doesn't come without it's own SE's.  I couldn't have done it without painkillers.  I thought the Claritan was only for the Neulasta.  I did that too.  I hope you feel better. I know it isn't fun.

  • IndigoMont11
    IndigoMont11 Member Posts: 1,095
    edited July 2012
    I need a girls' night so bad!  I love several of the Magic Mike actors - Matthew McConaghey, Joe Manganiello, Matt Bomer!  I think I'm going to talk a couple of my friends into going maybe next weekend.  Earwigs/pincher bugs will definitely cure your kids of wanting to take a drink from the garden hose, that's for sure.  Wink
  • kltb04
    kltb04 Member Posts: 1,051
    edited July 2012

    http://www.youtube.com/watch?v=DLtOWGm9OlU

    I don't know if that link will work but it is the earwig clip!

    Can you imagine the awesome girls night we could have if we all lived close!? 

  • IndigoMont11
    IndigoMont11 Member Posts: 1,095
    edited July 2012

    OMG, lololol!  Thanks for sharing!! And you're right, it would be so great to have a girls' night with all of us.  

  • lostinmo
    lostinmo Member Posts: 922
    edited July 2012

    I'm with you all on needing a girls night out. I'm just holding out for my taste buds to get on board. No need to waste good food or drink.

Categories