Why am I falling apart NOW, two months after surgery?
Perhaps it is because the initial period is so full of decisions, appointments, etc. and the emotional stuff takes a back seat to the physical.
My situation was compounded by leaving an abusive relationship, moving in with my son and daughter-in-law in another state, now preparing to move yet again, missing the heck out of my husband (he died 4 years ago) could be part of it, and ongoing problems with depresssion.
The fills were done (may have set a record; I started with 250 cc's, got 100 added per fill, and I'm finished). The pain was not intolerable. Exchange surgery is scheduled.
I'm crying a lot, feel unable to make decisions, my memory is shot, want to just curl up in bed and stay there (I'm not doing that, most days, but I WANT to). Nightmares, anxiety attacks, mostly feel like they are connected with that awful relationship I was in.
It took six weeks to get an appointment to see a therapist. I saw her on Friday, May 18th. Her next available appointment is June 27th. I don't feel like that's soon enough, at this point. Finding a psychiatrist in this area is proving even more difficult. The therapist was going to try to get something set up after I have searched in vain, but she must have run into problems too, as she had said she would call back Friday and did not.
I'm concerned, because I have been through some terrible episodes of depression in the past, and feel as though I am sliding back into one of those fairly quickly here...
One would think I'd be happy. My cancer was an easy one and is gone. I'm out of that relationship. I found a nice little place to lease. I found a dog I'm in the process of adopting, and he's great. My kids and friends have been so supportive. So what in the world is WRONG with me??!!!
Comments
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Well, IF they gave you a pill to block hormones, sometimes that will make people feel sad for a while, until they get used to it. If you are taking that pill, talk to your cancer doc about the situation. As for seeing a counselor, usually most towns will have a county health department, and either as a satellite or within the building will be psychiatrists, psychologists, and social workers. If it's in the health department, you can go as a walk-in, bring a W-2 if you have one, and normally you can be seen the same day! Plus they charge according to how much you make, which is unbelievably inexpensive.
Generally speaking, cancer wrecks all of us big-time. It's a lot to deal with, fears of death, fears of illness, a particular loneliness, not to mention surgery and any other treatment just wears you slam out. Throw into the mix you were with someone who disrespected you when you SO needed someone to be kind and compassionate, and then moving, well, you are the poster girl for misery. Getting that dog will be a HUGE help. During my year of cancer treatments and recovery, husband and I lost both our older dogs. Talk about misery. So, we had to wait a few months before we could get us another one. I thought I would go crazy without someone in the house with me (nevermind husband! ha!).
One thing that always helps, usually within a couple three weeks it takes effect, is to get up and go for a walk, which when you get your dog, you'll want to go out in the yard with him and walk around. This kind of walk is different from having to get somewhere; this is a walk to just look at the trees and scenery, listen to the sound of the birds and wind, watch the dog, it grounds you, and it helps those screwed-up muscles and scars ease up tension. Also, you need something to get the anger out, for sadness is often anger turned inward. I used to punch the heck out of a pillow and then I'd scream into it. Digging in a garden is just about perfect, you can really tear into a shovel and dirt (it's VERY hard to dig a hole), turn over a garden, rake, hammer some stakes in, kick the side of the house, throw the house! Ha! GG
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It's common to have a delayed reaction after Tx is over. It happened to me, even after I was warned. (It felt like the second shoe dropped. One professional said that, realistically, we can only process so much at one time, so it's common to deal with certain things during surgery and treatment, and then other emotions get pushed out, hence our delayed reaction when they surface again)
BTW, I remember someone asked a similar question before, so while you're waiting for other posts here, you might be able to scroll down or use the Search feature and find other good advice.
Sorry to hear it's taking so long to see your counselor again. Do you have other options, like support groups or any cancer support center? My MO has a social worker on staff. Our support center can set patients up with a "buddy" so you have someone to talk to. I was afraid to go to a full-on support group (didn't want to hear other scary stories) but the support center has other classes and groups, like meditation, so you're getting help and meeting other cancer patients (so you can connect and ask questions if you want but at your pace, and not get overwhelmed). You got some good advice above. My counselor also suggested writing in a journal, and that helped me. It's a tough period but remember it won't last forever. Really. Good luck!
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This is a very normal reaction, so try not to be too hard on yourself. You're probably right in that you were too busy with appointments and decision-making to take stock of your emotional state and, now, that all of that is behind you, your emotions are front- and centre. Be kind to yourself. You've been through a lot. You need time to mourn and get used to your changed situation.
I sailed through biopsy, surgery and chemotherapy (yes! Let's get it DONE!) and was - almost - finished radiation when it caught up with me. I was completely blindsided by my reaction. I thought that I would be celebrating (like I did when I finished chemo) and, instead, I was a wreck. Writing helped; exercise helped more; creative visualization was, also, invaluable and calming.
Try to do the things you liked to do before this happened to you. And like peggy i said above, see if your MO has a social worker on staff. The extra support while waiting to see your therapist may help. -
Maybe your BS or ONC can get you in sooner. I know when I needed to get in for an appointment to see a dermatologist my onc recommended they first told me 3 months. But I had a rash! My NP called and got them to schedule an appointment much sooner.
BTW you are not crazy. You've had a hell of a lot to deal with but never had time to deal with the emotional part. Living alone in itself can be challenging. I highly recommend checking out some programs in your area. Check out Gilda's club. Not sure where the calendar of events is but they do have phone numbers for you to call.
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I am also two months out of a bilateral masectomy with reconstruction started. I, too, am falling apart emotionally. I think the trouble is that on the outside I look and act healthy...back to my old self. The family and support systems have gone home. The friends helped set me back on my feet, but their "job" seems to be finished. So here I am, alone. This is the lonesome part of this journey. The realities are starting to become really real. I am struggling with how to say all of that, and make it understood, to the rest of my world.
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Hi, Liztish81 and all others on this thread-
L, I don't know if you will see my note as it's been a month since you posted, but I hear you loud and clear! I am only 5 weeks out of a unilateral mastectomy with DIEP reconstruction and I feel like I've hit an emotional wall. I made a concerted effort two months before my surgery to line up a support team of friends and colleagues and they all came through while I was in the hospital and for a week or two afterward. But I feel like my ship has left the safety of the shore and is slowly drifting out to sea as I am largely left alone to deal with my recovery and the every day ramifications of living with my right arm and entire abdomen out of commission.
I also look and act like my normal self and I realize that my team feels I'm able to take care of myself. Problem is, when I'm out in the world I feel vulnerable and am constantly protecting my new boobie baby from the massive crowds daily clogging the streets. The reality has set in for me that my recovery will take 3+ months and my issues must largely be handled by me. It's damned scary.
What I'm trying to do is take advantage of the support groups in my area. I live in NYC so we have many - actually went to a breast cancer meeting tonight and the members helped me change my mindset on some issues bothering me. I also get myself out for walks to my local park where I read, listen to my player, and people watch - even went to an outdoor jazz concert by myself.
Doing stuff on my own actually has made me feel more empowered and less lost. And then when the friends do come around I'm not harboring anger at them. I plan to get out there as best I can so I don't dwell on my own condition.
If you are reading this, Liztish, or anyone else going through this post surgery emotional turmoil, all I can suggest is to make every day count with or without a companion. Have a goal - mine is to get back to work and to the gym - and engage in the activities that make you happy. Make lists of things to do if necessary. The more you do for yourself by yourself, the better you will feel and that aloneness will diminuish. Easier said than done but it has started to work for me.
Good luck.
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Why am I falling apart after 4 years? I must read previous posts. I truly feel lost.
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I know how you feel youlooklikeyouneedabeergirl! When does this feeling go away? Ever?
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youlooklikeyouneedseveralbeersgirl I just sent you a PM
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I need to explain what happened - it wasn't just cancer. I
suspect it never is. Within 8 weeks, this is what happened:Our oldest son, handicapped since birth, was diagnosed with
chronic kidney disease, end of November, 2007.Next day, he fell and broke his ankle.
4 days later surgeon repaired the ankle with a metal plate.
Next morning my husband was dead.
I did what had to be done with funeral arrangements, getting
family here, etc.Weeks that followed were hectic - writing thank you's and
getting our son to many different medical appointments.We were also caring for my husband's mother (alzheimer's) in
our home for the past 3 years.Skip ahead 8 weeks. I was diagnosed with breast cancer. The
surgeon actually smiled at me when she told me. She referred me to the head of the breast
cancer clinic. He did not want to even listen to any input from me.My daughter, worked in outpatient surgery at a different
hospital, found another surgeon for me. This one listened to me.My MIL's only living child refused to help in any way with
caring for his mother.Had bi-lateral mastectomy March 26, 2008.
Except for the first chemo, I just sailed through.
I have been taking Femara 4 years now with little or no side
effects.After finishing chemo a good friend was diagnosed with bc.
She got through surgery and chemo too. Then, shortly after, she was diagnosed
with lung cancer. She died August, 2010. Another friend was diagnosed with lung cancer. She died June
2011.It seems to me that I postponed grieving for my husband for
4 years. Now that grief has hit. I think I just need to work through it. My
oncologist and surgeon think I need to see a psychiatrist and want me on
anti-depressants. I have always been the one to "take charge" when the going
got tough. I think I can get through this too - without anti-depressants. -
You may very well be able to get through this without anti-depressants. Go see a psychiatrist and find out. Your onc and BS are not shrinks. Let the specialist tell you. Also let the psychiatrist know you don't want meds. Your body has had enough.
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Thank you, Lago.
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Beergirl, You have been through so much in the past four years. I just wanted to send hugs to you.
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Thank you Elizabeth 1889. I just got good news from my MIL's nursing home. For more than a year they have been saying I owed almost $2,000.00. She has Medicare, Medicaid, and a supplemental Medicare policy. I have all her bank records from the date she moved to the nursing home in 2009. I have taken these to the nursing home many, many times. At last, the owners have decided to write off the amount they said I owed. Owners and accountants have changed several times since she became a resident there.
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Beergirl, was just scanning the threads and read your story. Wow. what a reminder that life keeps happening even while we are trying to cope with cancer and all its "stuff." You have had a boatload of challenges, across the generations in your family!! Sure glad that the nursing home info was good today. I'm sending you hugs.
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