Stage 3 with breast implants...Egads!!!
Hi ladies...I'm brand new to this site and just finished by 6 of 8 rounds of chemo. I had found a strange "bandaid" shaped mass on my right breast and went immediately to get a Mammo and US. This was on Nov 15, 2011...the chief radiologist reviewed the films and although they could ALL feel the mass, they said it was probably just "scar tissue" from my implants and to come back in 6 mos! I finally had saved enough money to get the implants and "scar tissue" removed in April (less then 6 mos from last visit) and have been diagnosed with Stage 3a IDC!! Total shocker!!! I am frustrated with myself that I listened and believed the doctors that it was only scar tissue..even when it was growing and pushing my breast upwards! Anyhoo..just wanted to jump on here and say "holla" to all you lovelies!! Looking forward to getting to know you and supporting each other.
Hugs, Christine
Comments
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Welcome Christie. You will meet a great bunch of supportive women here. I'm sorry to hear that your doctors didn't listen to you! Have you started treatment?
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Hi Christine! SCAR TISSUE...those words strike terror in my soul...I too was the victim of complacent doctors who blamed my breast changes on "scar tissue" for years (the result of a benign biopsy in 2002). Finally in 2006 after I had developed what I referred to as my "second nipple", I insisted on another biopsy (after I was draped, sedated and lying on the table, the doctor said "you know, we don't HAVE to do this....it's probably just that SCAR TISSUE") - and lo & behold - STAGE IIIC with 10 positive nodes, extranodal extension & skin involvement!!! I know you can understand my mistrust of medical professionals. Luckily, I immediately switched doctors and ended up with a "dream team" that have bought me six more years of life (so far!)
I hope that same lucky star will also shine on you as you move through your journey...
Julie
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I had three docs tell me it was fibrocystic. The surgeon even said it was "...so benign he wouldn't biopsy it!!" Seven months later and 5 myofascial treatments on it and surprise. IDC 4.5 cm, 7+ nodes. I kick myself for listening to all three of them. You could tell I was leary -- I kept going to another doc. for reassurance. Also, my mammogram (six days before the lump was found) was clean. It's done a number on my trust issues!! I can totally relate to what you said Julie.
You're in my thoughts.
Rachel
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Christine, Dealing with BC is without doubt the pits. We welcome you here where you will find people who care and give support. It saddens me so much to read about doctors and the medical system failing the patient. I'm a California girl, too. You will be in our thoughts. Let us know how we can help. Hugs, G.
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Hang in there on the chemo! Two more to go -- that's good news.
It seems to happen quite often that dx's get missed when they could have been found. And it seems to really shape the way we work with our docs. Before, I would listen and take their advice. Now it's more of getting their opinion and then I'm making the decision. I went to pre-register for surgery to get my port out last week. The lady across the counter said it was a great day when she got her's out and she quickly showed the scar and how minimal it was. She said as soon as she finished chemo she asked the doc about getting it removed and he suggested that she keep it a little longer. Her response was no, get it out now. Then she looked at me and said "isn't it great the way cancer teaches us to take control"?
It's not the best way to learn that lesson but I understood what she was saying. The treatment of cancer re-shapes us and how we deal with relationships. For me, most of the changes have been good. Whatever happens, you will be stronger!
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Thanks ladies for your responses!!
Maxine: I have done 6 out of 8 chemos so far. Because my tumor was so large (9.5 X 11 cm!) we are doing chemo first to shrink it to make the removal easier.
Sugarplum (Julie): Wow..I can't believe what you had to go thru. I'm so happy that you found your "dream team" .... Good for you!! I will have surgery probably in September. The surgeon gave me 2 choices..either implants (again) of something called a DIEP flap (heard of this?)
Rachel1: So sorry...ugh..my breast cancer was undetectable on the Mammo and the US they thought it was a cyst.
Gitane: I'm originally from So Cal and now live in the Bay Area..where abouts are you?
Anacortes: I know what you mean..I should have demanded a biopsy..but...it is what it is and I'm going to fight it!! One good thing is that I had a SUPER stressful job and now I can at least relax and be out of disability. I can't remember the last time I read a book cover to cover..lol
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Mine was missed also got reassured that it was a cyst, surgeon and Gyn thought it was a cyst and mammo and US neg. then I felt a lump in the other breast 6 months later also told it was normal and would be gone in a week. It wasn't, got a bx---cancer. Turns out I have bilateral stage IIIC ! I also kicked myself that I didn't insist on a bx with the first lump.
In the middle of chemo and then will have bilateral radiation to chest wall. Not sure my skin will allow a reconstruction down the road, but, I hope so. -
Same story here .
Had follow up mammo with us in 09 . Dr. had that uwand in same damn area where the cancer grew .
He said its nothing . No bx untill 2011 when I felt it.
Tried to sue but case wasnt strong enough -
Damn it Christine,
I had the feeling something wasn't right for years and no one could find anything or give me any answers. Finally found "it" on my own, and by that time the primary tumor was over 6.5cm. Definitely goes back to that old saying to trust your instincts.
Hang in there through the rest of your chemo, you're almost done! Will be happy to answer any questions you may have.
Take care,
Sharon
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Hey Christine...thanks for the response! I am not an expert on DIEP reconstruction as I had silicone implants, but it involves using tissue from another part of your body to form a new breast. I have been VERY happy with my implants (which I will have had for 6 years come this November) but every person is different. In the meantime, you already have plenty on your plate, right?!
Best of luck to you!
Julie
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Thanks ladies...just checking in....I have a horrible head cold and just did my 7th round of Taxol. I only have one left a week from today..praying that my WBC are high enough to finish this chemo process.
Nkb..I'm in the Bay Area as well! I'm almost done with chemo..then I'm having reconstruction with saline implants which will allow me to have the radiation. I'm being told that I can't have the DIEP Flap, should I decide to do that later, for at least 6 months. Phewww..what a journey this is!!
I too had a super stressful job but because I was in sales and 100% commission, it was just too much for me, so I am currently on disability. Never read so many books in a long time!
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