Summer 2012 RADS HANG OUT

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  • Stacie
    Stacie Member Posts: 607
    edited July 2012

    Oh well one face easy on the eyes during this shit would be sweet.

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  • onvacation
    onvacation Member Posts: 1,344
    edited July 2012

    Stacie - totaly agree!  My MO isn't cute but nice!

    Last chemo today - WOOHOO!  Started in March, seems like so long ago, but looking back it has passed fairly quickly.  Hope to find out more about rads today - don't even have a RO yet - I will have to go to a different center since mine only does chemo.

    Hope everyone had a lovely 4th! 

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  • Melrosemelrose
    Melrosemelrose Member Posts: 3,018
    edited July 2012
    Onvacation-I'm doing the happy dance for you today!!!!  Wishing an easy time in the Big Girl Chair today and of course, minimal side effects !Laughing  Thanks for making my time in the chemo chair a little easier .  Your words of support and encouragement let me know I could do chemoland!!! HUGS to you Kim!!!!
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  • Stacie
    Stacie Member Posts: 607
    edited July 2012

    Onvacation YAY!!!!"

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  • jpmomof3
    jpmomof3 Member Posts: 643
    edited July 2012

    Onvacation, Yay! last chemo!  That is a big milestone!  Things will all be better from here.

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  • onvacation
    onvacation Member Posts: 1,344
    edited July 2012

    Thanks you guys!  So happy today, ready for my tired weekend, but I don't think it will be as bad since it is my LAST ONE!  I just can't stop smiling!  It is a good day!

    6 weeks of radiation are next, not looking forward to it, but I will get through it!

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  • onvacation
    onvacation Member Posts: 1,344
    edited July 2012

    Melrose - I am glad I helped you in a small way!  You made my day!

     Hugs back! 

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  • Januaryice
    Januaryice Member Posts: 120
    edited July 2012

    Happy to report that yesterday was my last chemo day !!!!!!!! You could tell it was me as I was the only one in the chair with a big Smile on my face. As Onvacation stated (we were mostly on the same schedule) it is amazing how fast that time has gone by. Needless to say it was a rough couple of months. My OC decided to give me a reduced dose of Taxol this last time as I still had numbness in my feet. She was afraid of a long lasting problem and did not feel the reduction in dose would change reoccur rate. Just hope I made the right decision. Still on steriod high as you can see I'm up since three this morning but will crush later to day. Dreading the bad days 3 to ......... guess.

    BUT IT'S THE LAST ONE!!!!!!!!!!



    When did you ll get your ports out and did the RO want to wait for that to heal. I have my apt with him on the 17th and have lots of questions. Before then I'll do research and you all are my go to group. I must quote something I read on these boards at least once a day.



    Best wishes to all and hope each and everyone is having a great day!!

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  • onvacation
    onvacation Member Posts: 1,344
    edited July 2012

    I want my port out after radiation, but my MO won't do it!  I told him the only reason to keep it in is if you think the cancer is coming back and it isn't!  He said we will talk about it!  I want it out by the end of the year!  I can be VERY persuasive!  LOL

    Off to get my last shot this morning - woohoo - then off to work.

    I have everyone has a wonderful day with minimal SE! 

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  • jpmomof3
    jpmomof3 Member Posts: 643
    edited July 2012

    January congrats on your last chemo! You will get through day three and it will be all up from there.



    I am 10 days out from my last taxol dose and am really starting to feel more normal already. I asked my MO about getting the port out and I was a little surprised about her reluctant reaction to my desire to get it out ASAP. I have my lumpectomy on july 23 and am going to get it out then. My MO didn't say why she was reluctant but didn't force the issue to keep it in longer. I have excellent veins so that isn't the issue. I don't plan on getting cancer again. If I do they can put another one in. Maybe they are reluctant until they see that nothing is recurring that first year or so I don't know. I guess in my case it might be nice to see how well the surgery goes but I am willing to take the chance to get this thing out.

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  • onvacation
    onvacation Member Posts: 1,344
    edited July 2012

    JP - I want my port out and my MO is hesitiant - says he is conservative - i am going to ask everytime i see him because i want it out!  I found out yesterday I have to have it flushed every 6 weeks - seems to me a good reason to get it ou!

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  • slak
    slak Member Posts: 179
    edited July 2012

    No postings in a few days so I think I'll post some progress.  I am at the half-way point today (15 treatments) of my total 30.  It feels good to get to that point.  I have just started to show a little bit of pinkness.  For my skin type, the tech said that's in the normal range.  I have been using aloe twice a day during treatment.  I had the experience of seeing two pregnant women come in for treatment today.  It made me feel really lucky to not have to deal with those issues.  I really empathize with those women.  I hope everyone is having a great day!

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  • jpmomof3
    jpmomof3 Member Posts: 643
    edited July 2012

    Yeah, We have it bad but I guess it sometimes helps to remember that there is (almost) always someone who has it worse.  Congrats on being half way through!

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  • Stacie
    Stacie Member Posts: 607
    edited July 2012

    That sound doable slak.  And I hope I only need 30.  Haven't seen the RO yet, one more chemo to go.

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  • kjiberty
    kjiberty Member Posts: 1,385
    edited July 2012

    Slak:  Good to know you only have pinkness.  I have 34 I need to do but will find out on Thursday what the plan is.  We DO have to things in proper perspective when it comes to our dx.  I have had two friends who have been diagnosed with pancreatic cancer and bone/colon/liver cancer in February and March after my dx.  Kinda scary.

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  • onvacation
    onvacation Member Posts: 1,344
    edited July 2012

    Met today with my RO - he was an older gentleman but very thorough and kind - he liked my hair - even asked if it was mine! Of course it was my big texas hair wig, but still liked his comment!  I go back monday to get mapped and simulation.  I told him I was ready to get going and no need to give me any more rest than necessary to get it going!

     Hope everyone had a lovely day! 

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  • Melrosemelrose
    Melrosemelrose Member Posts: 3,018
    edited July 2012
    onvacation- Sounds like you are moving forward with the rads.  Where are you having the rads at?  Love that big Texas hair wig!!!! Hope you are doing well after your last chemo.
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  • onvacation
    onvacation Member Posts: 1,344
    edited July 2012

    melrose!  Just thinking of you - hope you are doing well!  You know us Texas gals have to have our big hair somedays!  LOL  I am going to park plaza on Hermann - an older hospital but my MO says that everyone does well with their treatment there, so I will go with it!

    I am doing good after last treatment, looking forward to getting all those toxins out of me! 

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  • Melrosemelrose
    Melrosemelrose Member Posts: 3,018
    edited July 2012
    onvacation- I'm doing pretty well since this is the week before treatment.  Believe it or not, my hair is trying really hard to return.  I have stubs growing and so I'm hoping the last two rounds don't mess with those little hair follicles!!!  My eye brows are thinning and lost a few lower eyelashes.  I still have some hair that never fell out.  Go figure.......  Still don't know about the rads yet.  I have an echocardiogram on Monday because of the Herceptin clinical trial.  Hope that goes okay.  Keep recovering from the chemo.  One of these days, we'll meet up and chat!!!
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  • onvacation
    onvacation Member Posts: 1,344
    edited July 2012

    Yes I hope we will meet up!  We are so close after all, we should at least have coffee!  I hope you don't have to do radiation! Fingers crossed for you!

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  • Hiker61
    Hiker61 Member Posts: 65
    edited July 2012

    Got mapped today and my tats--ready to start on July 30, IF I am completely over my hives by then. Had a hellacious reaction to my last chemo that left me covered in hives from knee to head. The itching is finally better (although there were a few days when I was thinking hospitalized sedation sounded great), but I still look a fright. I guess they don't want to do any more skin assault until I'm completely clear. I hope I can start because I'm ready to get it over with!

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  • Melrosemelrose
    Melrosemelrose Member Posts: 3,018
    edited July 2012
    Hiker61- Oh my.... enough with the hives!!!  It may a take a while for that chemo to get out of your body!!!!  Glad to hear you are doing better.  Have my 5th chemo next Tuesday.  Hoping it goes well and no surprise side effects.  Feel better soon!!!!
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  • Hiker61
    Hiker61 Member Posts: 65
    edited July 2012
    Melrose--thanks. It was really unexpected and pretty scary. I'm 1000% better now, and besides the hives misery, have had light SEs just like my other rounds. Hoping the same for you as you get toward the end!
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  • kjiberty
    kjiberty Member Posts: 1,385
    edited July 2012

    Hiker:  I had those d.... hives as well.  I think they are FINALLY gone.  Thank God.  

    onvacation:  Onward ho for you!  Congrats on your next step.  I wonder if I will get my mapping on Monday too.  I go tomorrow to the RO.  

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  • Summer51
    Summer51 Member Posts: 51
    edited July 2012

    I'm still haging out waiting for rads to start.  They were originally scheduled for early June (last TC was 5/24).  However my white cells still have not recovered and my MO will not let me start rads until they stabilize.

    I had my mapping and tats done, but have now been told my mapping will have to be redone since so much time has elapsed.  I'm currently scheduled to start 33 treatments 8/13 "as long as my counts are good".

    I really want to get this started.

    Anyone else having problems with low white cell counts?  My red counts are really low too.  Last visit my MO said she "hopes" my bone marrow will recover and it "should" recover.  What the heck does that mean?  Then she left for vacation.  Guess we'll have an in depth discussion next week.

    Hope you all have a good weekend.  Rest up, heal, enjoy life!

    Diane

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  • kjiberty
    kjiberty Member Posts: 1,385
    edited July 2012

    Summer51:  Ugh!  That's all I have to say.  It's weird that I am starting rads before my CBC on Friday. (Rads start on Thursday).  I asked my RO if I needed my bloodwork done and he said no. I think I am going to call my MO on Monday to see what she has to say.  For some reason, I trust her more than the RO.

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  • Summer51
    Summer51 Member Posts: 51
    edited July 2012

    Karen,

    You should check with your MO.  My RO tried to push ahead with rads.  When my MO found out about the schedule she was quite concerned.  She explained that I couldn't start rads if my white cells were low because once you start rads you cannot get a shot of Neutrogen to raise your counts and regardless of what the RO says, rads can lower your white counts even more.  Especially when you have breast cancer.  There is always the possibility that the beams will hit your sternum which is a major producer of white cells because of the amount  of bone marrow in this location amd your counts will drop.

    It seems like the MO and RO are on different pages.  Or perhaps they're having a power struggle.  In any event, I have faith in my MO.  Perhaps its because of our 'journey' together through chemo.

    Good luck.  Please let me know how you make out.

    Diane 

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  • kjiberty
    kjiberty Member Posts: 1,385
    edited July 2012

    Diane,

    I totally agree.  I should have called today.  Thanks for your input.  I will call on Monday and let you know. 

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  • tina_jason
    tina_jason Member Posts: 147
    edited July 2012

    I am new to the discussion groups and am searching for a place to "fit in"!!! Looks like I may have found it.  I have a consult with my radiation oncologist on July 17 and will have 6 weeks of radiation.  Just wondering what I can expect at the consult?  I did my chemo first (neoadjuvant chemotherapy) and don't come across too many people that did it that way.  After chemo I had a lumpectomy and re-excision and have been allowing my surgical site to heal so I can start radiation.  I'm hoping that the worst of my treatments is over and that the radiation will be a breeze compared to the chemo and surgeries.  Can anyone back me up on this that has already started radiation? 

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  • onvacation
    onvacation Member Posts: 1,344
    edited July 2012

    Hi Tina - I had my consult Tuesday, I filled out paper work, talked to the nurse, talked to the doctor, he asked questions and went over my treatment plan.  I go back Monday for mapping and simulation and a CT scan.  Hope to start the following week.  Not sure all consults are like this, but that was mine!  Good luck to you - come back and tell us what your's was like!

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