March 2012 chemo
Comments
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Good morning everyone! Feeling almost human again here. It's been 8 days since my final chemo. I'm so ready for my celebration weekend now. Didn't do it last weekend because I knew I would feel crappy. Starting rads in a few weeks. Guess I need to head over to the summer rads thread, but I'm definitely gonna hang around here too and keep up with everybody.
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Hi all, so pleased to be joining all who are finishing big chemo cycles. This afternoon I go in for my 6th and last taxotere and carboplatin. Still have months to go on the Herceptin, but grateful that it is available. Next week I turn 72 and will celebrate 50 years of marriage. Life is good.
I had a lumpectomy and re-excision in March. They could not get clear margins, so a mastectomy was recommended. My oncologist was anxious to get me started on Herceptin, so the MX was postponed. Looks like I will have that in August. I was planning to have an implant, but heard about problems with those. So, will have another consult w/PS about possible DIEP. I know that is harder recovery and who knows, I may not even be eligible for that at my age. This chemo has run my blood pressure up. I had an echo right after my 5th TCH, but I don't know the results. I have gained about 10 lbs. No problem finding a donor site if PS decides I'm up for using my own tissue.
I mostly keep up with everyone's progress, but don't comment much. Of course I conjure up all kinds of things to worry about in the future. I have to concentrate on the present time. I'm grateful there will be some time between now and the MX where I can sort of reorganize my life a bit. Things can really get away from you. I've never had a serious illness before so this has been a huge learning curve.
So I'm celebrating this milestone on this journey along with all of you. ((((HUGs)))) -
Lanagraves - were you on DD taxol? That's fantastic...I swear it took me 4 weeks to recover from that last taxol.
I'm still dealing with neuropathy 5 weeks out (hands and feet), BUT curiously, and I thought this was a coincidence, the day after my first and second Carboplatin, my neuropathy greatly improved. Are steroids suppose to help with neuropathy or is this just a coincidence? So far, this 3rd chemo is mitigation for that evil Taxol!!! (Except I do get a great amount of fatigue with the Carbo.)
Hope all the chemo'ers this week are holding up.
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Alice - I worry too, especially with this frikkin 39 oncoscore and living through my mother's BC when I was 14 (her's was aggressive too). It was getting to the point I couldn't separate her fate with my own projected fate which was becoming debilitating. Since my out-of-pocket has been reached, and Obamacare elimnated the silly limitations on mental health counseling, I've been seeing a therapist for this. I'm very excited as she is using a psychotherapy technique called EMDR. It basically reframes events on our lives via bi-lateral brain stimulation. My gf went through this and totally dealt with her father's death in a way that removed her guilt feelings and sorrow that she couldn't shake after 8 months (and she had zero reason to feel guilt for not being with him when he died of a massive heart attack). It only took her one session! I think BC is a little more complicated, including losing my mother at a young age, and it may take me more.
I was really getting sick of people telling me "life's too short," "gotta live your life," "go take a walk in the sunshine"...."don't waste your time worrying." These are so much easier to say than to put in practice.
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Just want to say congratulations to those folks that have finished chemo! Personally, I think it was one of the happiest days of my life.
My leg pain is finally subsiding!! Starting to feel human again, but still get pretty fatigued. I didn't get to the aqua fitness class this week because my neighbor (a nurse) reminded me that I didn't get the last Neulasta shot and needed to wait 2 weeks from tx before exposing myself (and my healing PICC wound) to the public pool. Darn it! Next week for sure...gotta start building my stamina and getting my muscles moving from months of sitting on the couch.
Alice71...Happy Birthday!! And Congratulations on your 50th anniversary!!
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Happy birthday and anniversary Alice! And congrats on finishing chemo TG!
Kam: Yes I was on DD Taxol. Still have a little neuropathy in feet, very mild; also some achiness but bouncing back pretty quickly.
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Happy birthday and anniversary Alice!
Went up for my last chemo yesterday. It was a very emotional day and not at all like I had planned. Started out at 4am to get ready to leave, arrived at 7:30, they had a little trouble drawing blood from my port and I had to play the look up and left game to get the tube to move. Then met with my MO who said what I've been fearing..the tumor is actually getting larger. He sent me down to have an ultrasound done because they didn't have a copy of my original. Back up to see the DR. He said that while it's a little larger the ultrasound showed quite a few pockets of dead cells inside so he wanted to go ahead with number 4. I'm trying to be positive and thinking that since it's attached to the skin and being pulled down that it is being squished like a water balloon and that's what makes it appear larger. I have an appointment with the BS on Monday to move forward with that part of things.
We had visitors in the chemo pods that was truly inspirational to me at least.
This gentle man is part of a group of disabled vets who are bicycling across the US. He is a stage IV throat cancer survivor who happen to have his treatment at the center where I'm going. http://www.s2ssbikeride.org/ to read all about the trip and participants.
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lostinmo -sorry to hear about the tumor getting larger, hope that last chemo does the trick! Big HUG!
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Lostinmo, thinking about you!!! I am looking forward with you to getting that nasty taken out. Hugs and purple energy to you!!!!
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Lostinmo... Well, shit! I hope you're right and it's just a shift in position. They have a lot of trouble measuring mine because of its irregular shape. Thinking about you...
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Hello Lostinmo
Fingers crossed that you will feel a burst of energy and hope after your tumour's gone!
Have you considered asking your oncologist for a referral to a nutritionist during or after treatment?
As a high-risk lady (I'm HER2+++), I'm always looking for ways to cut recurrence and follow the diet and exercise threads on this site as well as looking for others such as Food for Breast Cancer.com.
I see my body as a host. If I can make this host as unhospitable an environment for cancer as I can, I will be doing the best I can to stop it coming back.
Everyone is different, of course. Just my two penny's worth but food for thought?
Worth discussing with your oncologist?
Best wishes
Alice
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Hello On Vacation and March 2012 Chemo Marchers
Great to see a post to see that it is not inevitable that we will put on weight while on chemo.
I'm the same as you, On Vacation, a few pounds here or there but nothing much - and I weigh a lot more than 110 pounds - about 158 pounds in fact and I'm 5ft six inches.
Whenever I've discussed losing weight on chemo, all the nurses and friends have discouraged it so I guess it's on with being pleasantly plump!
Best wishes
Alice
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Wow I have slept all day today! Usually don't sleep this much till tomorrow! Guess you never know how it will hit you. Trying to stay awake the rest of the evening so I can sleep tonight.
Oh and I woke up this morning and half of my right eyebrow is gone - JOY! Chemo, the gift that keeps on giving!
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Lostinmo - thinking of you and praying that ultrasound was not a true picture!! Mine was actually smaller when they did the surgery. Sorry you had such an emotional day. That the scariest part as we never know what to expect day by day.
Day four after final Taxol and the usual SE. But knowing that this was the last one somehow it doesn't seem so bad. Of course day five is usually the start of the really intense pain.
Hope all are having a great weekend!!!!! -
Hello all...been reading the last few days but have been too lazy to drag the laptop out.
Lost -
sorry to read about the growth...I think with all of us, they won't know a true picture until they get in there. Great story about the disabled vets group.
Kim - sorry for the loss of your eyebrow! Mine are thinning and my lashes are getting really down to nothing.
January - hope the SEs aren't treating you too badly.
lana - glad you are bouncing back from chemo. Thanks for sharing about your youngest. Mine both actually slept with me until my dx - we had been working on getting them out for the longest time and then when I had to have the SNB and recovery, there was no choice. My youngest is def my baby too and she doesn't like talking about things when they are bothering her. I ended up with my oldest with me last night because she was crying with a headache. (Sigh)
Indigo - sorry to hear about your car - what a pain. How is the visit going?
Alice71 - Happy Birthday and Anniversary - what a milestone!
Kam - good for you on the therapy...I agree, this isn't one of those things you can "positive think" away - for me at least.
TG - glad you are feeling better. Speaking of swimming - and this is a general question for anyone - as long as our counts are ok, are public pools alright? And I may have asked this before...we just are thinking of going somewhere for a few days later this summer and I was thinking of one of those indoor waterpark hotels...not that I would probably do much.
Nothing new going on here - just more of the same. I had a day or so of mild Nuelasta pain but no major SE from the Taxotere and I am a week out. Been lucky so far on this one. Reading, watching TV, playing the occasional Wii game, some housework. Labs tomorrow for my blood count. I am not even asking them about the calcium thing until my next visit when I actually see my MO. If it has gone up, I don't want to be left trying to interpret what that means.
It is cloudy and thundering here but the radar looks like we actually won't get any rain
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Ugh. Finally got a little rain and then we lost power! And it isn't projected to be back on til midnight. It will get really hot and humid in the house by then. I am taking the kids to my parents due to my early labs tomorrow but I don't really want to spend the night over there becase I don't sleep well as it is. Guess we'll just wait it out.
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Oh that sucks! Hopefully they will get that on pronto!
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Gonna be awhile. We were driving back from dropping the kids off and saw a tree down and wires down and there isn't even a crew there yet. Since it stayed cloudy (and is now getting dark) its not as hot as it could be.
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Kltb04, sure hope your power is back on!!!!
Visit has been nice. My guys have enjoyed spending time with my niece. We have had monsoon rains off and on the whole time they have been here but fortunately my niece was still able to enjoy the Renaissance Festival on Saturday, last night she and my youngest went to a movie, and today my oldest took her hiking. They didn't get to ride the alpine slide, but I think she's had a good trip. I've really enjoyed visiting my mom; don't get to see her much. -
Good morning! In the big girl chair this morning for Taxol #8! 4 more to go after this.....nails hanging in, only one is separating a bit from the bed, but not bad.....just fatigue and some bloody nose episodes, but otherwise doing well! Sooooo tired of not having brows, though! My head hair is coming back, but not ready to go topless yet. Soooo sick of the wig.....can't stand to wear it in the heat.......scarves are so much more comfortable, but they elicit stares and the "poor thing" look! Aaack, I just want to look normal again!
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Morning everyone
Off to meet with the BS, hopefully will get my surgery date soon and get it overwith before I have a nervous breakdown over it.
Hope everyone has a good day!
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Hi All:
Sissy, I hear you about the eyebrows. Mine are mostly gone now, as are my lashes, and I am going through a low time where I just don't care enough to put makeup on. I feel like why should I try so hard to hide what I'm living hrough ("living" being the operative word), I have nothing to be ashamed of. Me in my bald bug-eyed glory.
On the other hand I feel sad these days about exactly that: who the hell am I? I feel freakish with my lopsidedness and my colostomy, and my pasty hairless state. It's a good time to think about the fact that we are NOT our external appearance, blah blah blah, but it's just... Harder some days than others.
Just finished my radiationplanning CT, and now have four little tiny blue tattoos around my left boob. So tired of being poked and pricked and prodded like a piece of meat. Trying to keep my eye on the ball. -
KCB - I don't worry about my lack of brows (I never had many to start with!) and lashes. I wear glasses, so I doubt many notice. I did buy a brow pencil when I started chemo, at Macy's, then proceeded to lose it. Darn if I'm going to buy another one!
It feels like so many have moved on from this thread....Sissy - looks like we both will be finishing chemo around the same time.'
Lost - I found chemo much tougher than surgery. Easy to say that now, but looking back, surgery wasn't as bad as I expected. Chemo is just so much longer with so many ups and downs.
I now know the difference between DD and weekly - a WORLD of difference!! On the weekly carbo, I won't be missing work, except the day of infusion. What a huge difference...barely a symptom other than fatigue.
To those finishing Taxol...I know you are still in it's grips. The worst is about to be over!
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Power came back on at 11:40 last night! So it never got too hot in here and it cooled back down quickly.
Indigo - glad the visit is going well!
Sissy - I can't do the scarves by themselves but can deal with them with a hat/cap - I just wish I had more, I rotate between two - a black embellised ball cap type and a tan/khaki newsboy style.
lost - let us know what BS says.
KCB - sorry you are having a bad time - I can only imagine, you have been through so much.
Kam - glad the weekly is treating you better.
Guess the Nuelasta did it's job - my WBC was at 14.7 one week post TX. I was good and didn't ask about my calcium level, I promised myself I wouldn't until the week I see the dr again.
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Good evening ladies! Hope everyone had a decent weekend! I was on the couch all weekend and could have stayed there today, but went to work. Numbness is pretty bad this time, but I am hoping it will decrease as the chemo drugs leave my body.
kltb - woohoo on the power being back on!
Meeting the radiologist first time tomorrow, no idea what to expect, but ready to get on with it!
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Good afternoon everybody! First time I've had a chance to log on. Crazy day at work.
Lost - So sorry to hear about the growth. Hopefully the US is wrong.
sissy - My eyebrows are going too, even though I'm finished with chemo. They're still falling out. I've totally given up on scarves, caps and wigs, and have decided to just go bald. Mississippi summers and head coverings do NOT mix.
onvacay - Good luck on the RO visit. My first one is next week.
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Lana: I wish I had your nerve! I would love to go out bald... I just can't quite get over myself enough. In fact it is so comfy to be bald in this hot weather... I've been doing just scarves, which are ok.
Lost: I hope you're doing ok.
You ladies who are working, I am in awe of you. I work freelance, and frankly the phone has just stopped ringing, there was so much of me saying no to work offers... I'll have to get busy building my business back up when this is all over.. Can't imagine it right now. -
KCB, I don't blame you. As kltb04 says, you certainly have been through so much. I will send positive thoughts that the hardest part is in your rear-view mirror now! As for looks, well... I tell myself, and those who love me tell me, that the appearance part is less important than my life. OF course that's right, but still, I understand when you say it feels strange and that some days are harder than others. Big hugs to you!!!
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Onvacation - good luck tomorrow and please let us know how you make out. Did you have a port and if so when are they taking it out? My visit with RO is not until next week and I have lots of questions.
KCB - it's been a rough road but try to remember we have much of the worst behind us. I think we all have our moments when we are down and that's alright. Its part of this whole darn journey. We wouldn't be normal if we didn't get sick and tired of this at certain moments. Hang in there!!!
Kltb04- glad you got your power back. Nothing like not feeling the best nd having to put up with no electric.
Recovering from my LAST Taxol on Thursday. Even with the reduced dose I have been having the usual aches and pain. The one thing I notice that is different is that I am soooo much more tired. Seems like I've been sleeping around the clock. I have to agree, I don't know how some of you are able to work during this time. I only go in when I'm up to it.
Hope everyone else is having a great day!!!! -
Good morning all
I head back to do my pre-op testing this morning. My surgery is scheduled for the 19th. Mastectomy, AND, & port removal. The BS told me the ultasound showed a lot of necrosis inside the tumor! That is why it softer and squishy, even though it's bigger it might be swelling from the dead cells.
Jaunuaryice I feel your pain. Just keep thinking this is the last of it.
onvacation-good luck today, let us know how that goes. I get to look forward to rads still. One thing at a time.
Kam- thanks for the encouraging words about surgery.
kltb- wish we would have gotten rain here. We did get clouds but watched it rain all around us.
Sorry if I missed anyone. Time to pack and go again.
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