Anyone else doing TAC neoadjuvant chemotherapy
Comments
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Even though you have the neoadjuvant chemo, is it required you have a masectomy or was that your choice?
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Yes I didn't have enough shrinkage and I have too many satellite tumors. It's patient choice, but in my case strongly recommended.
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I also did 6 x TAC and finished the final round on March 7th. The operation will be likely next week. I will talk with the doctor next Monday for the surgery plan. But since I didn't have node biopsy before chemo, she thinks the SNB during surgery is not sufficient indication for the other nodes' involvement. They will have to remove all the level 1 and level 2 lymph nodes. I am really shocked by that. Can I say that my doctor made a mistake by doing chemo without SNB? Did everyone here all have done SNB before chemo starting?
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I had 4 rounds DD A/C, then 4 rounds DD T every other week (June-Sept 2011). I couldn't feel the tumors after 2 of the DD A/C. I had tumors in both breasts, and they measured them at about 6 cm at the time of my PET a week before chemo. In that week, they estimated them have grown to about 8cm by the time I started chemo. The bone pain was the worst for me with chemo, the heaviness/neuropathy in my legs, and chemo brain, but it does subside. I still have numbness in my toes. I had my BMX a month (Oct 2011) after completing chemo, and the path report said no evidence in my right side at all, and 4mm with clean margins in my left, with 1/19 pos nodes. I'm soooo glad they did the neoadj!!! I started rads a month and a half (Dec. 2011) after my BMX, and had 55 total treatments (treating both sides). Rads was not a walk in the park for me, like they said it would be. I had a "good" skin reaction in their eyes, but a painful one in mine!! Plus, I had to travel 200 miles roundtrip daily, but stayed there usually 2 nights/week, so that helped some. I was exhausted!! I just finished a month ago, and skin is healing well, got my port out, and finally feeling somewhat "normal". Reconstruction can wait!! You will make it thru this...hard to see the end of the road, but it will come.
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susangermany, I didn't have a SNB before my neoadjuvant chemo, but then, the CT/PET scan before chemo I had showed activity in my axillary nodes and one was palpable. I guess it was moot at that point...obviously in my nodes.
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Hi all,
I am doing 4 rnds of TAC. 1 down 3 to go. My primary Dr. is optimistic that shrinkage will occur and wants to save as much of my breast as possible. Honestly I have already had shrinkage and I am about 10 days out from 1st chemo, and yes i can feel it-it is like someone is using my breast as a pin cushin. But that is still better than how it felt before! Okay, wandering, my OBGYN is telling me I should just have a BMX. That I have many years ahead of me and shouldn't have to worry about reoccurance. My primary doesn't like this attitude and they are kinda fighting about it. OBGYN tells me basically it is my choice. Any advice from those of you that have been through this? Oh, I did have a needle biopsy on lymph nodes and pt scan which show positive for at least 6 nodes.
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My journey was atypical. It began with a pink spot on my breast, about the size of a half-dollar. No lump. I saw the doctor IMMEDIATELY and had US and biopsy. The tumor was very close to the surface but very tiny-- 0.8 cm. My surgeon did a lumpectomy and sentinel node biopsy and was surprised to find malignancy in the nodes, so performed an axillary dissection. A month later, a skin biopsy of the pink spot showed dermal lymphatic invasion.
I just finished six rounds of TAC and will have a single mastectomy on 4/18, followed by radiation. Then we'll wait six months for the effects fo the radiation to settle down and then do a preventive mastectomy on the other side with a DIEP Flap reconsctruction.
Yes, it seems like everyone else has surgery, then chemo, then radiation. But every woman's cancer is her own unique journey. Breast cancer doesn't follow a script.
My own experience with TAC was that it was nowhere near as hard as I had expected it to be. I work full time managing a medical program--administrative, desk work. I had chemo every three weeks, on a Wednesday. Wednesday and Thursday were fine, then came "chemo Friday," when I felt like I had the flu without the sore throat, fever, and cough. Just fatigue and achy, and a cognitive fog that felt like someone had stuffed my head with wet cotton. On Saturday the fog rolled out, and by Monday, it was back to work, riding my bike, doing the dishes, washing the floor. So each round I took three days off. I really only needed Friday off, but Thursday was my "reward" day to sleep in, ride my bike, do my nails, stuff that's fun and lazy.
This is my first post. I've been lurking quite a while, a little irrationally scared that if I looked around this website it might mean I really have cancer, but now that I'm here, it's nice to know I'm not alone in this.
Thanks for being here, girls.
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Thanks, SherriG. Yes, I agree with you, I fervently wish I hadn't been invited along, or included in the sorority, or whatever euphemism we use to describe our process to wipe out the cancer and save our lives.
My doctor used one that I thought was appropriate, since my own "journey" will be about 18 months before (hopefully) the last stitch finishes my "addaracktomy" surgery--the reconstruction. She said, "This is a marathon. Not a sprint. But there is an end, and you will get there."
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Another neo chemo chick here - mine is just my drs protocol rather than tumor size or anything (3 cm) - A/Cx4 then I guess TaxolX4 (I am not sure, just dealing with my second round of A/C next week). So I am looking at chemo through about mid September and then a break and then surgery. Lumpectomy has been presented as an option but my personal decision is BMX with reconstruction and I doubt I will change my mind. I am 38.
Taking it a day at a time - been on these boards since right after I was dx in Feb and it has been a lifesaver.
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Hey guys-I am joining you all here, from NJ,USA.
My port will likely be put in next week(I have no veins to speak of,so my Onc thought it made more sense). A little nervous about them cutting my neck (just diagnosed 6/19, so I've been in the familiar whirlwind of tests,etc since then. A bit on the anxious side, so bear with me:) ).
My 1st TAC treatment is scheduled for 7/19. We are doing Neo in hopes of shrinking tumor. I am 36 and would like to conserve my left breast if possible (no signs of disease in right breast), but I am starting to make friends with idea of the Mastectomy in case it is not possible. I've come a long way, since thinking my 'lump' was scar tissue from being clocked in the boob while folding laundry one day. There were 2 other small areas on an MRI that my breast surgeon ordered, which were to be biopsied with Ultrasound guidance. However,they didn't manifest. Radiologist felt they were likely lobules, and or enlarged lymphones which were not necessarily a cause for worry. All was discussed with breast surgeon by him right after Utrasound, so we'll see if she wants to squeeze in more tests prior to Chemo. Previous Cat Scans-Pelvic, Abdomen, Chest, and Bone scan all clear, which was a relief. Muga=66.
So, now my actual road to recovery starts on 7/19. Like many, I've spent much time asking questions, learning, etc from my 2 fantastic doctors, and all of you, and at other sites. I am nervous about starting treatment, given side effects, but have been remaining very positive, with steady support system, including my partner of 13 years, behind me. I've dubbed myself 'Xena' for this journey, which fits my personality and spirit:)
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Different Drs do it differently. My surgeon made one small (about 1") incision. There was no neck incision. I started A/C the day after port was implanted.
I have great veins but there was never a question - port to protect them. I did 4 DD A/C, then rt. Mod. Rad. Mast, then 12 weekly Taxol. -
Thanks Kicks-ah ok-I guess that makes sense. When they originally described the procedure they said 1" incision, but I kept reading about a neck incision elsewhere, when trying to get more familiar. Thanks for the post!
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Just checking on you Neo ladies! I finished TAC #6 on 5/14, and had BMX last week (6/28). Turns out losing my hair before surgery was quite convenient! No struggling to wash, style or shave! My BS removed my port, as well, and - while I was glad to have it when I needed it - I am thrilled to have it gone (and no additional procedures and/or scars).
I didn't get a "complete response" path report after surgery, but because of the size & type of tumor, I didn't expect to. The tumor did shrink to about 1/3rd of its original size, though, so surgery wasn't complicated and recovery has been easy so far.
Best of luck to all of you!
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My mom is going through TAC neoadj right now, actually she just started. She's having problems with metallic taste, dry mouth and decreased appetite - well actually she says she'll be very hungry but when she eats she gets full very quickly. She describes a heavy, sinking feeling after eating. I suggested trying to use plastic utensils for the metallic taste, and I'm going to send her some BioTene - do you ladies have any other suggestions? Did you find that any particular foods were better for your stomach?
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I had TAC x 8. My MO added two extra cycles based on the release of a newer study that shows that 8 are more effective than 6. As one surgeon joked sarcastically, sure, if the extra two cycles don't kill you. It wasn't a bit fun, but I survived. In the beginning, I was eating normally. Toward the end, I could only tolerate mostly bland foods... Bagels, crackers, etc. A concerned friend sent me a protein shake that was really yummy and was loaded with vitamins and nutrients, so I felt a little less depressed about the lack of nutrition in what i was eating.
Neoadjuvant treatment was recommended to me because it gives the doctors the opportunity to see if the tumor is responding to the chemo, and if not, possibly change to another chemo. In my case, I had an excellent response to chemo -- all of the invasive cancer was destroyed by the TAC, leaving behind some DCIS, which isn't affected by chemo anyway. After chemo, I was also given the option of a lumpectomy & rads, but decided that I preferred a mastectomy anyway. Psychologically, you need to adjust your mindset a little with neoadjuvant chemo...in the beginning, I found myself wishing the tumor was gone from my body instead of still there... But I found myself very motivated by those ultrasounds that measured the shrinkage in between cycles. In restrospect, I'm REALLY glad that I did go with neoadjuvant... Having the knowledge that my tumor was so drastically affected by chemo will continue to provide me with long term psychological benefit. -
Nicole, I didn't find much that helped the metallic taste but for me, it was worse in the beginning and lessened as my treatments went forward. Hope the same is true for your mom. I couldn't stand the Biotene rinse but the gum worked really well for me. I also remember reading (in the January 2012 chemo thread) of someone using a good olive oil to rinse her mouth with and that helped with mouth sores and other issues. At the time, the thought of it made me gag, but it might be worth a shot.
Appetite was really tricky all through treatment. I'd go from feeling sick to starving, having odd cravings, and feeling over-full. It was a lot like morning sickness! I just learned to eat small amounts of whatever sounded good; that would keep the nausea at bay without causing that weighted-down feeling of a full meal. It's very hit or miss and makes for a long few months, but at least it's temporary.
Good luck to your mom!
On another note...my eyelashes started falling out last week - six weeks after my final infusion! Boo.
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