December 2009 Rads Group
Comments
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Oh Valerie I can remember the days of sleeping a lot. Wish I could sleep all day now jus to get caught up on my sleep. Working nights I stay so tired all the time I just really want to sleep all day and all night. It's hard to function. Feel better soon.
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I'm waiting for the surgeon to call with the pathology report. I'm too tired to worry.
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Hope he calls you soon Valerie. I'm waiting with you
P.S. My daughter is getting married tomorrow night and I will be getting a son-in-law and a granddaughter added to my family. Pray for no rain here at least till after the ceremony is over and that they have a safe trip to Florida and back home. Much love to you all ... Bonnie, Jewly and Valerie.
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I had three lumps. They were at the 12,3 and 6 o'clock position around the nipple. The biggest one was 2.25 inches. The right breat was fine, no cancer. right now I am dealing with the pain from the TE's.
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Oh my gosh those were big lumps Valerie!!! Geesh!! The TE's will get better I promise I've had friends that had them and did well after the initial stretching. It just takes a bit.
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And if Iwould have listened to the oncologist and breast surgeon who said the pain I had was common - who knows where I would be know. Listen to your body not the doctors and keep bugging them until they do what you want them to do.
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I had my BMX 4 weeks ago. I still have 2 drains in. They are annoying!!! I have some energy but these stupid drains keep me from doing what I would like to do.
My youngest son (19) wanted to learn how to make my meatloaf. I stood there and told him what to do and he did it. he likes to cook.
Gentle hugs!
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Yeah Valerie I like your new Avatar... nice to actually see YOU!!! Hope you are continuing to do well. What did they decide your txt plan would be this time? Can't believe it's been 2 wks since I've been on here I have just worked so much and been so tired. I usually get on FB and that is all . Take care of yourself.
Renee
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To all......Been a while since being on this site, have not forgot anyone and hope all is well....I can't even begin to discuss some of the stuff I have been dealing with but wanted to let you know that about 3 weeks ago, I had a sudden bad leg pain and could hardly walk the dog, a day later I was admitted to the ER with Extensive Acute Deep Vein Thrombosis of lower extremity....Now on warfarin (blood thinner) have to be extremely careful, already fell once and am bruised like I was in a auto wreck....Will have new ultrasound in 3 months to see if my body has dissolved this....DR took my off Arimidex, since this could be a side effect....While in the hospital I was given CT to make sure it was not cancer caused and also Bone Scan and luckily those tests were negative...I am a little afraid of being off arimidex and am taking tumeric and trying to eat estrogen inhibiting foods...I can't even talk about my personal life at this time, but the shock of the century..Just found out my husband Alan has been having affair, shock of my life>>>with a co-worker at Pratt Whitney Rocketdyne in Jupiter, he has been hiding this since Jan 2012, coming home and trying to act normal when I knew something had changed, but he just kept lying to me over and over like I was so stupid to think such a thing, but I found the evidence of unbelievable so he could deny no more, seems he had been having affair with co-worker about half his age, a Chere. Somehow within his at least 10 calls to me each day, he fit in this affair that has changed out future forever, there while I thought he was being faithful the 4 days he had to go down and continue his job, he would come back to Merritt Island on Thurs eves like nothing was going on..I could tell something and tried to question everything that didn't make since he just turned it around on me, like how dare I think such a thing.....This girl has no idea of what I have gone through since 2009, what a also married adulterating human being, I guess they will deserve each other, about half his age (his step daughter is ten years older, what is wrong with these men?, so stupid, they put there whole lives and everyone in it on the line and gamble that htey won't get caught, they always get caught, now he can be someone else's liar, my husband's ego has changed form a once respected man into such a liar, cheater, I just have been overwhelmed...sorry guys, I needed to vent.....Jewly -
Where and how is everyone, I need you.....Come back....Jewly
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I'm here. I PM-ed you!!
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Oh, Jewly, So sorry you're going through all that! I somehow missed your message from Sept 25, so I had no idea what you've been going through until now. Thanks for posting your message today. How are you? WHat is happening now? How is your leg? This is a side effect of arimidex? Yikes. Very scary stuff.
And Valerie, how are you doing? Are you still doing the TEs? I understand that is hard.
Renee, it sounds like you have a job, so that's good, right??? Need some good news around here.
I'm doing okay. Been having some trouble with frozen shoulder/shoulder impingement. When I googled it, I found out that it's sometimes due to radiation. I'm starting PT for this next week.
Bonnie
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I'm having a bit of trouble with the left breast expander. That's the side that was radiated. It kept opening up along the scar so yesterday I had surgery. The PS took some saline out and redid the scar. I'm taking the meds and I'm just tired.
I found out last week that I may be stage four. They found a spot on my sternum, hip, tonsil, and possibly the liver. I had a spot on the liver three years ago. I'm hoping its the same one. If it is then its just a birthmark. I go for a bone scan next.
That's about all for now. I"'m getting tired.
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Wow, Valerie, that sounds tough. You have certainly had a rough time of it. Hope the surgery fixes the scar and you can scratch that off your list of stuff to deal with. Did a PET scan discover the "spots"? Oh, I hope that they are nothing and that your bone scan is clean. I'll bet you're tired. Thanks for keeping us updated.
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Yeah, the PET scan found the spots. Last time it showed my thyroid to be cancerous and it wasn't. I'm just taking one thing at a time. Trying not to worry. Can't waste my energy on worrying plus it doesn't do any good.
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Yes, worrying doesn't do any good, that's for sure. Good luck with the bone scan and everything else. Hang in there. Sounds like you're keeping things in perspective. That's got to help.
Bonnie
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Hey ladies I've been missing all of ya'll!! Sorry I haven't been around Jewly. If ya'll ever need me put my personal email in your computer I will pm it to you. I check that email daily usually or at least every other day. Veggy I hope your scans are o.k. Jewly as for your clot the warfarin should dissolve it and your personal life... I'm sorry. My daughter as you know got married in July well as it turns out her husband is quite immature and being as ass! His latest is that his step dad is going to start him a business and he now wants her to sign papers to say if they get a divorce at some point she won't touch it. If she doesn't he told her they can't be together that they have no future... REALLY!!!! I'm just freaking pissed off!! I want to call him and tell him what I think but I'm biting my tongue. Opinions ladies?
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Hi Valerie, any news? This must be hell for you.
Jewly, how are you? What's going on?
Renee, can't believe this crap with you new SIL. One way to look at it is she's lucky she's finding this out earlier instead of later. Tough stuff!
Thinking of you lovely ladies,
Bonnie -
I'm just letting myelf heal before the bone scan. I'm going to call today and make the appointment. I don't know how to feel. I want to be in denial but it keeps nagging at me.
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Oh WOW, I am so glad so many of you are still.....here.......Got another scare on Mon Oct 15.....Mammo/US showed possible 3mm suspiciouse area....I am so lucky to always request my appt with a wonderful Radiologist and he suggested (after being there over 3 hrs of waiting, so busy in OCT, PINK MONTH) that I get a biopsy so I pushed all my Docs to get appt as soon as possible and after about 20 phone calls trying to set this up between, Onco, Surgeon and Same wonderful Radiologist, I had it done last Tue 23rd Oct.....I have had horrible sleep since August....way too much to go into....Then in ER for DVT, then fell, back to ER..Then BC scare other breast but same area as the left lump.....
But things are finally changing, I feel like I won the lottery when my Surgeon's nurse called my 8Am Thursday Morn....said she had to give me good news.........No BC in right, just weird fibroid area......I just about fainted anyway with the good news with all that has hit me lately.....I am getting stronger everyday and watch out world...don't get in my way.....
Will private message you sometime soon Renee...Valerie, I just really feel for you, if you can handle all you've been dealt lately, I can do what I am doing (nothing comapared to what you are handling ) and you are my hero...Be strong.....We are all here for you..
Bonnie, how are you and thanks for coming back....We all need each other and are here for each other, that makes me happy....I need HAPPY in my life and wish HAPPY for all of yours....My friends tell me that I am the strongest woman they've ever known dealing with personal and medical issues.....Jewly
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Jewly- I'm doing the happy dance for you!
A little spot on my scar has been bleeding and I mean bleeding. Called the plastic surgeon and we think its because he deflated the expander and a seroma formed. It finally broke and has been oozing. So as funny as it sounds... I am keeping a sanitary napkin over the scar.
Hugs to everyone! -
Sanitary napkin not funny at all Valerie... I used panty liners when I had my reconstruction for the oozing over my nipples... LOL
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Well that's what the plastic surgeon told me to use after the BMX. I thought he was joking.They work better then gauze. Seriously!
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Val, Although I hate that your scar is bleeding you haven't lost your humor (that always helps us through the lives we now are living) that is a funny visual image, are you using them on both sides so your boobs look bigger, maybe I should try that....That is funny......If I were to bleed, it would be quite the mess since I am on coumadin and fragmin, they had to take me off 24hrs before biopsy, since then they have almost double my doses, now I go every week day to get blood checked until they get my blood numbers between 2 and 3.....I found out yesterday that coumadin (warfarin) was originally invented as a rat poison.....Great!!!...
So glad we are back, been over 3 years now.....I'm back to checking almost everyday, as I know we are still here for each other......I have my first therapist appt today, hope she's not a quack!! I have a lot for her to help me balance out these days........You guys are the best therapists so she better be good......thanks to all, Jewly
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Thinking of getting a tattoo on my wrist to commemorate my 3rd cancerversary... what say ya'll? My daughter thinks because I'm a nurse I shouldn't put it on my wrist and that it should be somewhere less seen... like the ankle or foot? opinions? gonna get a breast cancer ribbon.
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I agree with your daughter. I am not a fan of the pink ribbon. If I was to get a tatoo, it would be a monarch butterfly. They change from a caterpillar to a beautiful butterfly - for me meaning the changes we go through with this diease. They face many obstacles on their journey and so do we.
That's my two cents.
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thanks Valerie
guess each to their own... she's also gonna get one as well just gotta decide where I want mine. -
Well I got my tattoo today... it's a little bigger than what I really wanted but I so love it!!! Hope it's not a problem for anyone at work. I did get it on my wrist and it really represents Breast Cancer well... just what I wanted it to do. I would post a pic of it but I can never get one to do on here
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Here's hoping all my Rad's buddies have the best Thanksgiving ever... love you all
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Happy Thanksgiving Comrades!
Hope you all have a great holiday. Hope you are well. Renee, lets see a photo of your new tattoo. Valerie, what's happening??? Jewly, how are you doing???
I'm doing well; just some pain in knee and shoulder. Got steroid injections which helped a lot. Was hoping it wasn't frozen shoulder which can happen after radiation.
Best wishes for a wonderful holiday to you and your families,
Bonnie
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