April/May 2012 Chemo hang out
Comments
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Babysammy, sweet dreams!! Hope all is going better with your family - remembering how they all got chicken pox, ack.
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chapter4- I didn't think the steroids were still in my boday 2 weeks after infusion. I guess I coldn't blame them for not sleeping until last night. I had my third AC yesterday and hardlyy slept all night. Are you getting Nuelasta after the Taxol? My MO is waiting to see if I'll need it. I hope you feel better soon.
FightingLikeaGirl -YAY!
sherryh16- I had numerous scans before chemo and all came back negative, but my MO said that the scans are not perfect and can miss some cancer cells. My understanding is that this course of chemo will kill any BC cells that have traveled to other parts of my body, but it doesn't mean that I will never get a different type of cancer in the future. Not very reassuring, but at least I can be pretty sure that I've done everything I could to prevent a recurrence of BC. I take one day at a time and try not to worry about the future too much, because worrying will not change anything, it'll just make me feel bad.
Dance - I just read your post. I love those mantras!
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Marcia111. Did I say two weeks? I meant two days...that's how long I feel the steroids effect after treatment. Then it wanes....I don't get the nulesta shot after taxol...I had it each time after AC but they said I didn't need it after taxol.
Nofear....I'm staying home from work today the pain was so bad yesterday and last night....so disappointed ...I thought I was sailing through. I'm trying a walk this morning...they say moving helps....I will let you know.
Enjoy the weekend ladies....with each day is another step beyond this bullshit we are going through....stay strong! -
chapter4 - no, you said 2 days. I meant that I was 2 weeks from my last steroids (almost) and I still wasn't sleeping, so I can't blame my lack of sleep on them. I hope you feel better.
Marcia
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I just reread my post to you. I am going to blame cemo brain and lack of sleep on all those typos!
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Okay, over 5 pages since I last checked in! Too much to respond to, but I will say this:
sandik, got the pm and I am in.
If I missed something important, I will read all the posts today while I'm in the BGC. I am hoping everything has been going well while I've been away.
Loosing my hair now and HATING how it is just going in fits and spurts. Wish it would just ALL fall out and be done with it.
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I still don't know how to do the Facebook thingy.
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Roula - go back to my July 4th post on page 141 where I provided instructions and links. Hopefully that will explain it clearly enough!
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Thank you Dance! Ok - I think I sent a request.
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Hi all,
It's been 10 days and I'm still alive. Work has been insane and then just trying to keep up with house/critters. Sending this from the BGC for TCH#3 - 1/2 way done after today (at least for the TCH), but still a long way to go until May 2013. Will try an catch up on some of the pages I have missed, but hope everyone is doing well and any SE's are mild.
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Thanks to all who replied and offered their personal story and encouragement. I feel having removed the breast with tumors and the other breast as precaution, I have eliminated the initial "source" of cancer. And hopefully with chemo, any cells that may have traveled via lymph nodes, are being removed from the body. Following final completion of chemo treatment on 9/6, I anticipate a 5 year followup with tamoxifen. But having not undergone oncotype DX test as Doc stated it is not done with Stage II or lower cancer, I just can't help wonder if I am doing ALL I can to protect myself from reoccurence in the future. No PET scan, no blood work other than labs to determine white/red cell counts following chemo treatments--nothing. I am just not really comfortable with this. I intend on undergoing DEIP flap reconstruction this fall at UW. As I understand it, this will be a rougher surgery than the double mastectomy was and will require a longer healing time as well as followup to create nipples and tattooing. If I endure all this to just have cancer return, I will be beyond myself. Can anyone provide their personal story similar to mine that might offer the confort and reassurance I so desparately need. Thanks everyone.
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rgina - glad to hear all is well! Yeah for being 1/2 way after today! Best wishes for today's infusion. :-)
sherry - I hear the desperation in your voice, similar to what I had before I had my PET scan. Is your onc absolutely refusing to do the PET? It seems to me this is what you really want to give you some reassurance that there are no other signs of cancer in your body after chemo.
BTW, you ARE doing all you can to prevent recurrence. Surgery, chemo and Tamoxifen. Those tests (PET, tumor markers) will not prevent recurrence. They detect it, but don't prevent it.
Now if quicker detection gives you peace of mind, and your onc refuses to do those tests and you think they would help, you may want to consider finding another onc that has the same views as you. I wouldn't blame you if you did. I changed onc's b/c my first one was very rigid and "fatherly" and had the "doc knows best, don't question me" attitude. My new onc works with me in a partnership. You need to find someone you feel comfortable with.
The only other thing in terms of treatment that I can think of is to consider rads, but I'll let the gals who have had positive nodes talk about whether that is indicated or not. I've heard new research that says rads is not needed for < 3 nodes..I think? Gals, chime in.
I had rads, but it was for close margins in my breast after BMX, not for any nodal involvement.
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I'm going to have rads after chemo. I had 2/17 nodes. It has been described to me by my RO in layman's terms that the cancer was "bursting" out of my nodes.
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Interesting comment, Marcia. My RO has not determined whether I will be having rads. I had 3 positive of 7 nodes, in a recurrence from tumor in breast 2.5 years ago. That time i only had lumpectomy and rads, this time surgery and chemo. I rather suspect he will want me to do rads cause he said the walls around the active nodes were broken through. To me that sounds kind of like yours, "bursting out". Although it would be nice to skip the rads part, I think it might make me nervous to not do them. Then again, isn't that what the chemo is for? To go find those little sucker cells and kill them off anyway? It can all get pretty confusing, can't it? With 3 nodes
positive, I think I'm right on the border between stage 2b and 3a and that makes all the difference. -
#3 went as smoothly as 1 & 2. Had labs, saw the onc and TCH = 4 hours flat from in the door to out the door. My WBC is back up to 8.2, last week was 4.0 (still no shots) my platelet count went back up again too, almost doubled from last week, but I am slightly anemic. Even my always high blood pressure was better than usual
Just hope that the SE's stay in check too, steriod crash should be Sunday but should be back to work on Monday if the pattern holds and Monday the old taste buds will once again go South for 9 days or so, although it could be longer this time, I'm told. Weight has been maintained no gain/loss since the beginning - so feeling pretty darn good considering. Still have fuzzy hair on my head too, which really surprises me.
Speaking of rads, I too will have 6 weeks of rads this fall - had a positive sentinel node but the other 2 were negative. They didn't go back and take other nodes, because of a new study which is actually posted on this sight "Routinely Removing Axillary Lymph Nodes May Not Make Sense For Many Women". But still have to have chemo/rads/hormonal treatment.
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Chaptr 4 - not too much pain for me but I spent all day in bed sleeping. Have zero energy & felt really shaky. Any numbness for u? One more & we are done, we can do this!
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Stacie, what is it with the weak legs? Even though I am 2weeks PFC, today my legs were so tired I could hardly walk to the car.
I had no baseline testing after my breast MRI, and I don't think my MO has any planned. His assistant said it was because I had clean nodes and the tumor was small. I'll find ou more when I see him in two weeks. I kind of dint want any more info, I want to assume I am on the right track..but like sherry (healthy and 56 too!) I resist the idea at this is now a fact in m life.
Well, off to eat pizza that DH brought for my b- day! -
Happy Birthday LISA2012!!! Enjoy your evening with your DH!!!
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Second chemo went well; just really tired right now.
rgina, I am waiting for all the hair to go; just keeps fallling out, but I must have a lot because I still have hair. LIke you, I am hoping my SE's are minimal like the first time. I go for my Neulasta on Sunday and this time I will have some tramadol and ativan; hoping that will help with the SE from neulasta.
nofear, I am wiped out; will be for the weekend if I hold to the 1st time.
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Happy birthday Lisa!
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Happy Birthday Lisa!
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Happy Birthday Lisa.
My MO states that she only does another mammo a year after surgery. Unless there is symptoms.
Once I was diagnosed, I had a lymph node biopsy too which was positive, so we already knew there was lymph involved. From there I had chest xray, abd/liver US and bone scan, all of which didnt show anything concerning. Then an echo prior to chemo.
Minimal SE for everyone, including me..lol...have a great weekend.
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Happy birthday Lisa!!
Sherry, I am doing rads. I had no sentinal nodes infected. But somehow they escaped to other nodes, one near my lump and one behind my chest wall. That was caught with a pet scan. Pet scan was only done because surgeon found another stray node while he was taking my lump out and pushed for the pet. I would have done rads either way since I am triple negative. They already told me that they would do a follow up pet scan when I finish up chemo. I feel the same way you do every time I have an ache in that area. How do I know the chemo got it. Shouldn't I feel worse if the chemo is doing it's job? What if the chemo doesn't work? then what do I do? What if they do the pet scan and it spread? But, I could drive myself crazy thinking about the what ifs. I can't think about it. So, I just try not to think about it.
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Doc said doing any rads would only increase survival rate by 1% and that by doing chemo any cancer cells would be killed off, so not doing raditation. With all breast tissue removed to clean margins, rads would do more harm than good. Note to all, if reoccurrence does appear elsewhere in body whether bones, lungs, brain, it is still considered breast cancer as that is where you were intitially diagnosed. Cells travelled from breast to other body parts, so it is still breast cancer.
Do any of you find it odd that with similar diagnosis, we can have such different courses of treatment. Is there no standard set treatment for each stage. node involvement, etc. Treatment seems very hit and miss and that is what frightens me the most. How can we be sure course of treatment we choose/receive is what is needed to end the nightmare?
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Nofear2012. Yes I have numbness...tingling in my feet and on my face...chin and lips...it comes and goes.
Just slight muscle pain tonight....taking ambien to sleep.
You are right...one more and we are done....yippee! -
Happy Birthday Lisa.
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Happy Birthday Lisa! :-)
Today I got a huge splinter in my finger. DH has a special tweezers with a magnifier and dug part of it out but my finger swelled up and long story short, I ended up at the doctor because I didn't want to take a chance on infection. The doc was a nice man - but oh, he hurt me digging out the stupid splinter more than my DH did! I He kept apologizing and I was mad at myself for getting the splinter in the place (note: rubber gloves do not make good yard gloves....) After three surgical procedures in six months, and chemo, I told myself this was nothing, but it was so hard not to cuss, or yell, or bawl.
Got a tetanus shot, antibiotics and went home to finish tidying up the house for my mom and niece's arrival this evening. All good now. :-) -
Thanks for the birthday wishes! It is weird, first b-day on this path.
Indigo, hope your fingers OK. Splinters are horrid. -
Lisa I am told the weak legs are cumulative fatigue. It is not dull like bone pain which would be neulasta. It is muscular and feels like a slow burning that is worse when standing still.
happy birthday. -
Happy birthday, Lisa2012!
sherryh16 - I totally agree with you. The treatment seems so hit or miss, with the doctors all quoting different statistics.
stacie and indigo - I hope you both feel better soon.
I am on day 3 of my third AC and so far I don't feel too bad.
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