Needle Biopsy.....Now another surgery?

lisag46
lisag46 Member Posts: 23
edited June 2014 in High Risk for Breast Cancer

I had a needle biopsy done on the second got the results on the third. B9, but papillomatosis, and ADH. Now they want to go in and remove more tissue to make sure they get it all. I have had so many biopsies on both breasts and I don't understand why I have to keep going through this. I'm waiting on the genetic testing to come back. My mom had BC, Grandmothers on both sides Aunts cousins etc. I want the rollercoaster ride to end. Am I crazy to want to have a double mastectomy? I have been on this ride for 6 years now, and my mental health is suffering. Anyone else? How did you cope?

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  • Pointvalue
    Pointvalue Member Posts: 146
    edited July 2012

    Dear Lisa,



    I truly understand your anxiety. I have been closely monitored for the last 6 years. Next Monday I am having an MRI. I requested it prior to my pbmx. Your family history sounds like mine. I am exhausted by all the tests that come with 'high' risk. The doctor prescribed Ativan to help with my nerves. The waiting is the hard part. Please know you are not alone.

    I am so lucky to have found this forum. The ladies on this board are so supportive, loving and caring.

    XO

    Elise

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  • SimplyAudrey
    SimplyAudrey Member Posts: 242
    edited July 2012

    Lisa,

    If I were you enough is enough.  Me personally, I have had one excision and now another lump is in my opposite breast.  My odds are worse than a coin flip, and mentally it isn't worth it to me to stress myself out every 6 months.  I am not emotionally attached to my breasts and am working on finding the right pairing of doctors to do a bilateral mastectomy and reconstruction.  That's my choice.

    Find a doctor you can work with........consider your options.  YOU are NOT ALONE with your feelings and frustrations.  Just do what you can to do what you feel in your heart is right for you.

    When it comes to doctors, we're making the Volvo payments or paying for their kids' tuition........ and every one of them may have a differing opinion.  There are other doc's out there if you're feeling trapped by the system now.....ask for a second opinion.  You are in my thoughts!

    Audrey

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  • Pinkie66
    Pinkie66 Member Posts: 3
    edited July 2012

    Dear Lisa,

         I can truly relate to your story. I do not think you are crazy to want a double mastecetomy. I have been on the biopsy roller coaster for 4 years. I have FEA/ADH/DCIS. My last biopsy results took over 3 weeks. There is no family history of BC. My surgeon and oncologist both agreed that I should have a preventative double mastectomy. And neither would be surprised if there is cancer. In August, I will be having surgery with immediate reconstruction. I have questioned my drastic decision over and over, but I also know that I do not want to deal with any more biopsies and the excruciating waiting!

    I wish you the best!

    Lisa

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  • lisag46
    lisag46 Member Posts: 23
    edited July 2012

    Thanks guys! I have already met with one Breast surgeon did not like her at all. My DR. is setting me up to meet with another. I am leaning towards double mastectomy without reconstruction. I am sick of having pieces of me taking out! I just want to get back to life and off this roller coaster ride.

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  • MoodyMoo
    MoodyMoo Member Posts: 30
    edited July 2012

    Lisa and Lisa (Pinkie)...

    I'm marveled at the strength you both have to have been riding this roller coaster for 4+ years.  My anxiety builds daily and I haven't even made the first six months!  While nothing cancerous has been found, the variety of things they "have" found make me think long and hard about the "right" course of action for me...which may be quite different than for someone else.  To add to the mix, I did have some inconsistent findings from the two core biopsies to the excisional biopsy.  My BS better be prepared for a pretty frank follow up discussion in a couple of months~I'm leaning towards getting a second pathology opinion.

    Like Audrey, I'm not overly attached to the girls, but am attached to my sanity.

    My thoughts are with you...Moody

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  • LISAMG
    LISAMG Member Posts: 639
    edited July 2012

    Hi Lisa! I rode the exact same rollercoaster surveillance highway to hell like you. After 5 years of multiple biopsies, having dense breasts and a significant family history, I had bilateral risk reducing NSM. I refused to become another potential victim. NO regrets, NO complications and amazing results. Very tough personal decision, but priceless when you have no more fears & move on with your life. Good luck with your genetic testing & keep us posted. U are never alone :)

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  • lisag46
    lisag46 Member Posts: 23
    edited July 2012

    Hello....I received my path report yesterday, and now I see why they want me to meet with Breast Oncologist. Needle Biopsy done last week came back calcification's were B9, but they found ADH, Radial Scar, Sclerrosing adenosis, papillary lesion in cross dilated ducts, and acropine metaplasia. Graded B4. My appointment is on the 18th, and I will have pap smear/uterine biopsy on the 17th. For the last 3 months I have been losing weight, but my belly keeps getting bigger. My Family Doctor is worried about Uterine or ovarian cancer since my mom had uterine cancer at 27 (radical hysterectomy) and paternal grandmother died of Ovarian cancer at 49. Is it possible to have both breast, and female cancer at the same time? I am thinking of just having it all removed. My BRCA testing results should be in Friday or Monday. I know I am rambling just scared I guess. Anyone else in the same boat?

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  • Pinkie66
    Pinkie66 Member Posts: 3
    edited July 2012

    Lisa,

    Glad your results were B9. However, you do have pre-cursors for breast cancer. I don't know if it is possible but, from my experience I think it is possible to have breast cancer and female cancer. I also have ovarian and uterine cysts and am wanting to have a hysterectomy after my BMX. I hope you get good news on your BRCA results.

    Please keep us posted!

    Lisa

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