Extremely Overwhelmed - Help

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  • positivenergy
    positivenergy Member Posts: 73
    edited July 2012

    Hello All.  Just wanted to report what I know so far, which is good news I think.  Had my biopsy yesterday and the radiologist believes, with some certainty, that the thing in my right breast is a fibroadenoma.  He said he'd be shock if it came back as anything else.  AND THE JOURNEY CONTINUES.  Now, to decide what I can and/or cannot live with or without.

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2012

    Hello PositiveEnergy,

    Praying for B9 results for you! Healing Hugs!

    Denielle 

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  • Shayne
    Shayne Member Posts: 1,500
    edited July 2012

    Good news!!! Keep us posted when u get the results!  Praying for b9-ness for you!!

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  • Myna
    Myna Member Posts: 17
    edited July 2012

    So good to hear that good news!  All my best to you on the other breast issues.

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  • positivenergy
    positivenergy Member Posts: 73
    edited July 2012

    Yippeee, the lump in my right breast is a fibroadenoma, now we can move forward and start dealing with the problem one.  Thanks to all of you and have a fabulous weekend.

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  • LAstar
    LAstar Member Posts: 1,574
    edited July 2012

    Yay!  Congrats on your good news!

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  • Neeners815
    Neeners815 Member Posts: 358
    edited July 2012

    positivenergy - congrats on the b9 results!  What a relief.  When I had my MRI (after knowing I had DCIS in righty), it showed something in the left, too.  I had one biopsy which ended up being b9, but wasn't what they found in the MRI!  So I ended up having two more biopsies while I also had the lumpectomy.  Both biopsies came back b9, along with my clear margins.  I cried in relief.  It's so stressful until you know exactly what you are dealing with and have a treatment plan.  Once you make your decision, you really are going to feel better and can go from there.  Big hugs to you.

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  • Shayne
    Shayne Member Posts: 1,500
    edited July 2012

    Congrats!!!

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  • CMartin
    CMartin Member Posts: 316
    edited July 2012

    Brenda,

    So sorry for your trial.  It all comes so fast and you want enough information to make decisions without have so much informaton that you are paralyzed.  Take the information they give you and one step based upon that information.  Don't try to decide today where you will be six months from now.  My mammo was 3/7, second one 3/9 and I am six weeks post op for a bilateral mastecomy.  Your doctors will help you make the right choices.  Be sure they are doctors that you are comfortable with.  That is always an option but certainly may not be a necessity in your case.  Although I don't know how much you want to read I've posted my blog for you hear.  Maybe a similar journey will help?

    http://www.dcisiscancer.blogspot.com/

    Cindy

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  • namet
    namet Member Posts: 6
    edited July 2012

    my mother is at stage 2B Grade 3 nodes 6/12 Er + Pr + HER2 -.

    Can you please advise me by any informatio

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  • akinto
    akinto Member Posts: 97
    edited July 2012

    Namet,

     Welcome to the DCIS section of breastcancer.org.

    There are lots of people with more experience with cancer more like your mother's in the Invasive Ductal Carcinoma (IDC) or the Stage I and II boards.

    There are many people with family members with breast cancer on the "For Caregivers, Family, Friends and Supporters" boards.

    You might like to also look in those sections for allies and supporters.

    I am sure we are all sorry your mother has been diagnosed with BC.

    Best wishes to you both.

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  • positivenergy
    positivenergy Member Posts: 73
    edited July 2012
    Cindy, thank you so much for your blog, I read it word for word and lived through it with you - the hope and the pain.  I'm a bit relieved that there will be an end to this and it will be ok, but a bit overwhelmed that it is not a quick fix.  I see now, what I have begun to expect, this journey is just beginning and I need to turn to God for patiences and peace of mind (I guess).  I'm trying to not think too much, my appointment with the radiologist/oncologist is Monday and the surgeon on Wednesday this week.  I thought I'd be making my decision on Wednesday, the appointment would be made with in a couple of weeks and off I'd go.  But, reality is that it might not be quite that smooth.  Although, I must say that my team has  done an amazing job doing all the upfront work before anything.  Although this has been stressful waiting waiting waiting for results.  I am sure that there is nothing in my right breast and very unsure what is going on in my left except DCIS and something that is 5 cm.  We are sure the DCIS that they first spotted is only .8 mm, but the MRI showed a 5 cm mass, of what I dont' know, and guess won't know until they go in there to see???  How do I make a decision on these pieces of information, I just don't know.  First, I thing I will just do the lumpectomy then take it from there, but not sure how I feel about radiation; then I got right to double mastectomy and just end this nightmare, I hope that I will make the right decision for the right reasons.  I have done lots of research and still this is where I stand this moring.  I am praying and am so happy that you reached out.  Thank you and God Bless you and your continued recovery.  Hugs.
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  • Shayne
    Shayne Member Posts: 1,500
    edited July 2012

    Cindy......hang in there!  Its hard to take one step at a time.....but its all we can do.  Keep breathing and let us know how it goes  ((hugs))

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  • CMartin
    CMartin Member Posts: 316
    edited July 2012

    Brenda

    1openheart has some great advice in her 6//25 reply.  You have to take the current day and not try to invent the outcome.  Its' just too much.  Although it's hard to keep your mind off of it, if there is ANYTHING you can do for a little release it helps.  I kicked my workouts up a bit before surgery.   

    Myna is right too, don't try to diagnose yourself with the information that you do have.  It's just a stepping stone, one closer to having solid information that you can trust in making your final decison.  Also, have a surgeon and medical team that you are comfortable with. 

    So sorry about your boys and their father.  I do believe that my family struggled in some ways more than I, especially my mom.  Having my facts together and making solid decisions helped.  I do beleive that they made it through it because of my own strength, in part.   

    I 'm thankful that the blog helped in any way at all.  I promise there is an end.  The waiting is the worst part, although I did find that the unwanted time gave me the time to make decisions that weren't rash.  I always read that and wasn't sure I could believe that but found it to be true.  My husband read all he could get his hands on.  I couldn't really process it so he would feed me bits and pieces of information and the part that I needed for us to be able to make an informed decision.  Try not to determine the outcome in your mind.  Without the facts there is no way to know.  I was a bit behind in the entire thread when I first wrote to you.  I've caught up this morning but didn't quite get when your next appt is and what the next step is. 

    Thinking of you and my heart goes out.  Keep me posted.

    Cindy   

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  • positivenergy
    positivenergy Member Posts: 73
    edited July 2012

    Ok, so next steps.  Just came from the Rad/Oncology appointment and he says he thinks Mastectomy is my only choice.  Overwhelmed doesn't really say it anymore.  I'm extremely tired, but can't rest.  I will pull it together, but am kind of numb right now.  Surgeon appointment Wednesday.

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  • Mooleen
    Mooleen Member Posts: 185
    edited July 2012

    Get some tranquilizers for your anxiety and something to help you sleep. It will get better"

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  • LAstar
    LAstar Member Posts: 1,574
    edited July 2012

    When I got the same news, I spent two days in complete shock and then the tears came.  Give yourself the space to feel it all without judgment.  Then know that you have options and you will come out of this just fine!  I'm 3 weeks out of my BMX and, while tired, I'm still me!  I've even had a lot of laughs in the past 3 weeks.  You will get through this but it is really overwhelming.  Hugs!!!

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  • Shayne
    Shayne Member Posts: 1,500
    edited July 2012

    I second that......I dont know what i would have done without my Rx for Xanax!  Youll need plenty of sleep.  Itll be ok.....just know that.....no matter what, you will get thru this!!

    Plan A turns in to Plan B and even Plan C.....just roll with it..... 

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  • bdavis
    bdavis Member Posts: 6,201
    edited July 2012

    Positive... I know you must be shocked... but I CHOSE to have a BMX... and it wasn't nearly as daunting as I thought it would be... I am now one year past surgery, and when I see my body, my breasts, I don't even feel like I have had a MX.. I did have recon, and that was important to me... do some research on reconstruction, don't rush into anything, and meet with a few doctors... you have options and you need to feel comfortable with your decision... so if you want a particular surgery, and one doctor says he can't do that one, see another... But my point is: MX is not that bad.

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  • FilterLady
    FilterLady Member Posts: 407
    edited July 2012

    Positivenergy......get some drugs so you can get some sleep.  Sleep is something that you really need. 

    You mentioned your support system and it sounds like you've got a great one.

    When I was diagnosed, I told my family first then I posted it on my Facebook page.  I didn't realize how many former classmates (I graduated in 1974), friends, friends of friends, old family friends, etc would be praying for me and my DH during this journey.

    I felt so lifted up in prayer, I don't think my feet touched the ground!  They continue to pray for me and I know that those prayers continue to inspire me everyday.

    I think this breast cancer has been a blessing in disguise for me.  It made me realize what is and is not important in my life.  I don't sweat the small stuff anymore.  

    I know that my Momma is my special angel and that God is watching over me and carries me when I stumble.

    I'm praying for you and your family as you begin this journey.

    God bless you,

    LaDonna

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  • CMartin
    CMartin Member Posts: 316
    edited July 2012

    Positive - So sorry to hear this news.  I thought about you today.  I truly know that this doesn't help but am in total agreement with bdavis, everything in my mind was worse than the experience.  You read about my triails.  The first week and a half were tough but almost unrelated per se'. 

    filterlady is right, too.  Support, support, support will carry you through.  I too have to count the blessing that I am stronger as a result.

    I am praying for you and hope that you sleep tonight.  Not sure if you like it but a glass of red wine can work wonders.  Keep us posted.  Again, sorry for your pain and worry.  I won't say you'll be fine because I tired of hearing that.  But, you are going to surprise yourself.  Much love coming your way.

    Cindy

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  • Dooley45
    Dooley45 Member Posts: 17
    edited July 2012

    Positive - I opted for UMX although a simple lumpectomy and rads was an option. At this point I have no regrets - for me the hardest was finally making a decision. It sounds as if you are being told that the mastectomy is recommended. After your appointment tomorrow jut digest all the info - you don't have to make a decision Weds...you can always call back Thurs or later on to get things rolling. The diagnosis is scarey, the waiting is brutal but once you decide on your path it will be a relief.

    Positive thoughts and hugs are coming your way!

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