Anyone from Mississauga???

schatzi14 · July 2012

jjl...welcome to the forum. I used to live in Mississauga but now I live in Oakville. I go to the Carlo Fidani Cancer Clinic at the Credit Valley Hospital. Is that where you are being treated?

I am all done my treatments (I hope) because it has been a year for me now since my first diagnosis. I had a left lumpectomy too and had chemo and radiation as well. The waiting is the worst part by far!

I am sorry you didn't get clear margins but perhaps they will do chemo to make sure they get it all. I am sure being a single Mother is hard as well but it sounds like your son is a great kid. Congrats to him making the team

Try not to worry yourself sick....there are many many treatments to take care of this BC and they will find the best one for you. It isn't all doom and gloom as you will find from these forums. We are at all stages of treatment and you will always find someone to talk to when you have questions or are just plain scared as we all were.

I am here off and on every day so if you have any more questions, just come and ask and I will try to help you. Everyone will...they are all great gals!

jjl · July 2012

Thanks shatzi14... Yes, I treat in CVH. Its already 5 months pass by, Since I got first ultra sound and mammogram, my mammo was normal, ultral sound showed lump. I asked myself, after 5 month, today where am I? I feel worse after sec surgery, I feel so weak... I'm getting so tired about this BC. I was thinking about to call my BS tomorrow, to say I want mastectomy both side. I just want clear mind, no more worry.

schatzi14 · July 2012

Hi again....I can see your concern but a double mastectomy that seems a bit drastic. Did they recommend any chemo or radiation?

Who is your surgeon? Mine was Dr. Woolfson and my Oncologist is Dr. J Myers. Have you seen an Oncologist or Radiology Oncologist at all? You have a diagnosis of BC, so there must be some follow up treatment for you. What did they tell you?

jjl · July 2012

My Bs is dr.Tin. I didn't meet my oncology yet, I'm waiting they call me to set an appointment to me. Yes, I need see both radiology and med oncology. So far I had 2 surgeries. Lumpectomy and sentinel node biopsy. Then redo wide excision. Dr. Tin told me, I have an option to do rads to get rid of all cancer cell, he said if he redo the surgery, I won't have same shape breast anymore, I was googling the words which i dont understand on my second path report, high grade dcis with comedonecrosis. That scare me again. I originally diagnosed idc, then idc with dcis on first path report, was saying single focus. Now look likes more and more, after the dig more tissues out, I realized I might have cancer cell in whole breast.

schatzi14 · July 2012

We have very similar DXs and perhaps the treatments will be the same. I had a left lumpectomy and a sentinel node biopsy as well. You are lucky that none of your nodes were affected. They found a small cancer cell in my SN, that is why I am stage 11. My margins were OK but they gave me a choice of chemo or just radiation. I chose to take all they had as a preventative. I had about 5 months of chemo and 3 weeks of radiation. Because I am also ER+ I am Arimidex for 5 years (that is an estrogen inhibitor). MY DX is also IDC and DCIS.

You will feel better about your outcome after you see your MO...I can't understand why they aren't calling you with an appt yet. Must be summer holiday time and they work at their own speed.

I will be honest and tell you that the very worst part of BC is the constant waiting! Waiting for appts...waiting to see the doctors and waiting to get the treatments.

Are you working now? That makes things even more difficult but most employers are pretty good about time off for treatments.

Sugar77 · July 2012

Hi jjl - mine also had similar characteristics. High grade (3) with comedonecrosis, poorly differentiated with invasive tumour. My invasive was triple negative (yikes!): Estrogen negative, progesterone negative and Her2 negative; therefore, limited treatment options other than chemo as it's not believed to be fuelled by hormones. Hang in there...

jjl · July 2012

Nope, I'm not working now. I think your situation is better than me lot now. Yes, u have one node involved, but they got that already. My biggest concert is these positive margins. I have no idea how far these cancer cell went in my breast. I know it's aggressive. Can spread very fast, Also I have strong family history, my mom diagnosed 2Years ago. She had mastectomy, and no chem and rads only hormone therapy. Well she is 65.. I called Dr. Tin's office this morning, the assistant already knew me well, I told her I want talk to dr.tin about mastectomy, she said this is not first time she heard in samilar situation. most patient like me who can't get clear margin, they all happy to do rads to solve the problem. Why I don't want even give a try. That make me think again. She also booked me in last patient to see dr. Because in this case doc can sit down to explain me more.

schatzi14 · July 2012

Well hopefully you will finally have some answers and treatment options. I wonder who your MO will be. He/She will be the one to make decisions as to the best treatment. There are so many meds these days. I wish you well with your appt with Dr. Tin...he did a biopsy on me a few years ago and the left breast was "no cancer in the milk ducts"...ha ha...well I got/had it 3 years later! There is no clear answer to any of this! Please let us know what he says. GOOD LUCK!

jjl · July 2012

Thanks schatzi14, I really need that luck now. I asked my FP referral me to PMH, before I see dr.Tin, I guess she never did. After 3month's today, I didn't get any call or any info from PMH. fine, I'm already here, looking forward to see dr.Tin again. Even I know he won't give me any suggestion in this moment. I wonder anyone treat in CVH, did mastectomy with reconstruction at same time? Or they don't have any PS in CVH. Just curious.

rachel5738 · July 2012

Hi jjl--I am also in Mississauga. Was diagnosed with Stage 2 bc in 2010--had lumpectomy--1 node involved. Surgeon was able to get clear margins. I did 6 rounds of chemo and then 35 rads. I was a mess of worry before I could meet up with oncologist and get the treatment plan---once you have that plan--then things fall into place and things make a little more sense. I had my surgery and chemo at Trillium (by Sherway Gardens) and rads at CVH. I also had gone through cervical cancer surgery in 2010 at PMH. I had a good group of doctors for both cancers. I am 2 years out from my diagnosis and although the worry comes back every 6 months for each checkup--it feels like a lifetime ago. You are at the beginning of the journey and without all the treatment sorted out--it is so difficult to see how you are going to get to the end. Ask lots of questions and hopefully you get more information.

Congrats to your son--I have two boys--both play hockey--my oldest was AAA goalie for 3 years but the year of my dual diagnosis was very hard and he chose last year to leave rep hockey and is now playing defense in house league. My youngest plays rep hockey also. The hockey "family" that you get will be amazing--we had people picking up my boys and dropping them at practice--coordinating tournaments--making sure they got to everything--while I was going through chemo.

jjl · July 2012

Rachel: sorry to hear you need go thru 2 different cancer treatment, good thing is you won all the battles, like my son said. Mom need win that battle. He is a goalie too, but only started play last year with school team, he was a back up goalie. He got select to this AAA team from more than 75 kids who all applied. He decide to put a big BC pink ribbon on his goalie mask, to support all of us ...My son played 2 years as player in house league, I made lots friends over there. They give me lots of supports and loves. They are just like my own family. I agree what you said, hockey family is amazing!

Also I appreciate all gals from this cancer community who helps me,Schatzi14, Sugar77 and Rachel.....

jjl · July 2012

I got my MO and RO's appointment set up at July16. My MO is DR. Enright, my RO is DR. Finley.

schatzi14 · July 2012

jjl...hey that's GREAT! I know both those names from seeing them on the sign on the desks at CV. I never personally had any dealing with them. The clinic is fantastic and I am sure once you see them and treatments are set up, you will feel so much better. I will be curious to see what they recommend. Please keep us informed! Best of Luck!!!!

jjl · July 2012

Thanks, I'm looking forward to ask their opinion.

jjl · July 2012

I feel great after talk to my MO,Dr. Enright. She is a mazing lady. Like You gals said, you feel better after you see MO.First she explained to me my path report very detailly. Which my BS never did to me, he just told me don't worry, it's fine. But how can I not worry about, after 2 surgery still didn't get clear margin? Dr enright leaning toward to do the chemo on my case and sending me to do oncotype DX and CT scan right the way. Specially because my age. I got my CT appointment next tuesday. Even nurse was saying that is fast. She explained chemo to me very clear, I'm not scare about to do chemo anymore. Also Dr. Finley is very nice too, I like her, she has no maybe over there, she told me, I need another surgery, lumpectomy with radiation or mastectomy without radiation, she wants me get a second opinion from another surgeon. These two mazing doctors referral me to PMH.

schatzi14 · July 2012

jjl...sounds like you are in good hands...they don't take chances....great that you are getting all the necessary tests and opinions. Good luck and please keep us informed

rachel5738 · July 2012

Jjl....glad that you have your treatment plan in place. Things will become clearer and --dare I say--a little easier to handle now. Take care of yourself.

jjl · July 2012

Thanks gals. I'm going to do the CT tomorrow. I already start to worry about result. God bless...

jjl · July 2012

I got my CT result back today, lung clean. Also oncotype DX score 24. 10 years distance recurrence: 15%. Right on the edge, chemo will give me 2-3%'s benefit, My MO recomment mild chemo, 1 round 4 treatment, I have no idea what is it yet, but I believe her, I decide to listen to her. she order my treatment right away, start this Thursday, OMG! I don't even know how to prepare. I think I might need get wig after my treatment start.

schatzi14 · July 2012

jjl...congrats!! That's great. In my opinion, a wise move...take all that is recommended and you will never have the "what ifs". Don't worry too much about preparing...they will help you. Did you ask about hair loss? Did they say what kind of chemo? Perhaps you will be lucky and not lose any hair. Why not buy just a scarf in case, cheaper and more comfortable than a wig. You can always get a wig later.

Where are you being treated?

rachel5738 · July 2012

Hi jjl--Glad that your CT scan came back with some good news. You should be having a chemo education and then they will explain better what may be in store for you with the type of chemo. Depending on the drug--then you may lose your hair. There is a place in Streetsville that specializes in wigs etc--they also are at Credit Valley. I know for me--I got a wig--but I barely wore the wig--mostly wore head scarves. Hopefully your chemo will be smooth sailing!

I am interested that you had the oncotype done--I thought that was just in US. I didn't have that when I was treated--The doc did use another online resource which determined what my % gain would be from chemo/antihormonals/radiation--but it wasn't the oncotype--cannot remember what it was called!

Keep us posted how you are doing. Drink lots of water and rinse your mouth with club soda (that worked for me to keep sores from my mouth!)

schatzi14 · August 2012

Ditto everything that rachel said Tongue out

jjl · August 2012

Thanks, Rachel and Schatzi. I think my main chemo drug is cytoxan, so could be AC or CMF. On the oncotype DX test, they show the CMF benefit. Anyway, I have per chemo tomorrow morning then chemo at 10:45. MO said 4 times. So the last one will be oct.4th, I'm scared.

jjl · August 2012

MO said around week 3 my hair will loss.

jjl · August 2012

schatzi14 · August 2012

jjl....try not to be scared...it's not that bad! Oncotype trial is too late for me...I am all done chemo and rads. Chemo had it's moments but I survived. So did everyone else. The fear is in the "not knowing". After the first treatment, you will feel much better about it.

I can see you are only a stage 1, therefore chemo was questionable. For me at stage 11, it was a given. I also had one node involvement.

Losing your hair is the worst of chemo but it DOES grow back albeit not as soon as everyone wishes. Let us know how it goes and good luck. Where are you having your chemo?

jjl · August 2012

I'm having my chemo in CVH. I don't really worry about loss my hair . Since I'm noticed I have unclear margin, I already cut my hair to very short. Chemo just happen too fast to me, my MO decided to do chemo at Thursday when we got CT and onco type result at Monday. That make me a bit nervous. I only have 2 days to prepare. Yes, short time to think thru, might be it's better for me, honestly if she let me think about a week, I probably will say no to chemo. MO told me, she leaning towards to chemo, because my age, I'm 42.. I'm going to CVH in hour. God bless!

schatzi14 · August 2012

Good luck...I also had all my chemo and rads at CVH...they are a great team!

Let us know how it went and I wish you the best. Laughing

jjl · August 2012

Finally back home. Just like u said, they are great. I didn't feel anything so far, I think may be start to getting tomorrow or day after. My chemo is TC, 1 round 4 times. Try to get wig inside the hospital, they are so expensive, $600+... My insurance only cover $200. It's suck. Does anybody have any suggestion about the place has reasonable price wigs? Thanks

Sugar77 · August 2012

Jane - I bought a Raquel Welch wig on eBay and loved it! I also had an expensive human hair wig that I only wore a handful of times. I had TC so please let me know if you have any questions. Drink lots of water!!!!

Anyone from Mississauga???

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