Taxotere is a nightmare

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  • Eileenohio
    Eileenohio Member Posts: 460
    edited July 2012

    I am now 5 weeks PFC and still have excessive tearing of my left eye. My MO said the tearing should have stopped by now so she wants me to see an eye doctor..I have an appointment to see an eye specialist July 5th so hopefully I will know what is going on. Has anyone else had this problem.?  It is not painful just very annoying.   

     Hope everyone has a great 4th of July.  It is HOT in Cleveland,we need RAIN... Regards Eileen

  • lago
    lago Member Posts: 17,186
    edited July 2012

    Might be a blocked tear duct. The can put a stint in there.

  • Alicethecat
    Alicethecat Member Posts: 535
    edited July 2012

    Hi ladies

    I hope my post will encourage some of you taking the Taxotere challenge.

    My oncologist reduced my dose by half, I think, on infusion number two and so far so good. No side-effects, although it is only day 2 after the infusion and I am dreading days 5-7.

    I'll keep you posted in the hope that a reduced dose may work well for you too!

    With encouragement

    Alice

  • jessfitzs
    jessfitzs Member Posts: 1
    edited October 2014

    Search for this topic/side effect .I am on my 5 out of 12 and I agree I prefer the nausea over these chills, bleeds aches , flushes temp that none outside of having BC really understand. I will try advil for sure anything  as I am working full time and need to work. I am upset that they did not go over those specific symptoms with me something I intend to rectify when I go in again. I admire you all out there for what you go through. My positive attitude has got me this far post surgery and chemo I intend to keep it and move on. Thank you all for your posts

  • Moderators
    Moderators Member Posts: 25,912
    edited October 2014

    Jess, Welcome to the BCO community. We are sorry for the side effects that you are going through but glad that you reached out and found the discussion boards to be helpful. This particular topic seems as though it has not been active since 2012. If you want some additional responses you may want to start a new topic in this forum. Keep us posted. The MOds

  • RacheltheMultiTasker
    RacheltheMultiTasker Member Posts: 13
    edited October 2016

    Do you have any of the other CIPN symptoms...like balance problems and peripheral neuropathy symptoms or chronic pain? Truly sorry to hear about your taxotere problems. Yours are new-to-me. Didn't know it affected blood work, except for the red and white blood cells. Neupogen and epogen, daily and weekly, helped to resolve those for me.

    ehugs,

    RacheltheMultiTasker

  • RacheltheMultiTasker
    RacheltheMultiTasker Member Posts: 13
    edited October 2016

    Would really like to know how you're doing now. I had the 4 Large Doses of Taxotere c. 16 years ago. Have CIPN now and am looking for others who might be in the same boat...delighted to be alive...delighted to have had these 16 years...but am still having problems with pain and functionality...especially when I do more than I should...that old bug-a-boo...fatigue! ehugs, RacheltheMultiTasker

  • Jackster51
    Jackster51 Member Posts: 357
    edited October 2016

    Not only did I not get my hair back after Taxotere (46 years old!!) I also have CIPN 5 years and counting..... I can not express my hatred enough for this drug. It was only approved for stage 4 and earlier stage BC only 'after' failure of other chemos. IMO it should never be given first choice for early stage young gals.. There are many other drugs avail that don't cause these permanent, life altering side effects.

  • lago
    lago Member Posts: 17,186
    edited October 2016

    The problem is we were not informed of these permanent issues with Taxotere. Not sure if I knew if I would have still wanted it but I didn't want Adrymicin due to heart issues. If they gave me Taxol I would of probably had permanent neuropathy since I had a little with Taxotere (and it's worse on Taxol).

    My point is all these drugs have big negatives. They need to inform us so WE can make the decision on what we want to risk.

  • tangandchris
    tangandchris Member Posts: 1,855
    edited October 2016

    There has been a commercial running here for a lawsuit against taxotere for perm hair loss.

  • Lita57
    Lita57 Member Posts: 2,437
    edited October 2016

    I'm Stage IV and currently on Xeloda (Capecitabine)....gees, I hope I NEVER have to take Taxotere. It sounds absolutely AWFUL.

    My hands and feet burn, sting, itch, peel, and are totally discolored and wrinkly now. I'm losing toe nails. I have fatigue and diarrhea and occasional nausea, but that's NOTHING compared to the the nightmare of Taxotere.

    My love and prayers are with you brave ladies!

    Hang in there,

    Lita


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