April/May 2012 Chemo hang out

Options
1…135136138140141…170

Comments

  • vballmom
    vballmom Member Posts: 426
    edited July 2012

    Closed is fine. I have my own closed group for family and friends and it works fine.   Thanks for doing this.

    · Share on FacebookShare on Twitter
  • vickilind61
    vickilind61 Member Posts: 338
    edited July 2012

    Sandik, I am in for the fb group. 

    mary, I am so sorry; it sucks to go through that.  Been there and it hurts.  Go with the anger for a while.

    Going to be honest; there are 4 pages of posts and even though I've read them all, just can't respond to each one, so, let me say this; you ladies are so wonderful and I enjoy reading and catching up with you all. 

    BGC girls, rock the week and kick some cancer butt!!!

    · Share on FacebookShare on Twitter
  • kjiberty
    kjiberty Member Posts: 1,385
    edited July 2012

    Sandi:  Sent you the request.

    · Share on FacebookShare on Twitter
  • sandik
    sandik Member Posts: 482
    edited July 2012

    Karen, got it and added you. 

    Vickie, sent you a PM. 

    · Share on FacebookShare on Twitter
  • lsharvey822
    lsharvey822 Member Posts: 257
    edited July 2012

    I just sent my request to join!  I'm the horse's head!  Hey ...it could be the other end, right!? :)

    · Share on FacebookShare on Twitter
  • sandik
    sandik Member Posts: 482
    edited July 2012

    haha 

    · Share on FacebookShare on Twitter
  • Husker123
    Husker123 Member Posts: 101
    edited July 2012

    Thanks Sandi!

     Hang in there Mary. He's not good enough for you if he's pulling that crap! Bigger & better awaits you.

     Congratulations on the new arrival Positively!

     Stacie, Husker123 done on 7/5.

    Hope all are doing well! There are a lot of pages to catch up on & I know I missed a bunch.

    · Share on FacebookShare on Twitter
  • dancetrancer
    dancetrancer Member Posts: 4,039
    edited July 2012

    Lisa - ba, ha, ha! 

    · Share on FacebookShare on Twitter
  • TriChick
    TriChick Member Posts: 56
    edited July 2012

    sandik - I sent a request also "DeeAnn"  Yay, Facebook!! Undecided

    mcm - I had a similar experience my first Taxol treatment.  Now that I am not taking Neulasta I know for sure that it definately was the Neulasta and not the Taxol.  The Taxol makes super tired but does not cause the muscle and bone pain of that darn shot!  Are you taking claritan?  My nurses told me I could also take Aleve or tylenol or even vicadin if the pain got real bad.  It did! It lasted about 2 days, then subsided gradually.  I hope you are feeling better!

    I know I dont post much, but I am on here 3-4 x a day and read each and every post.  I love this group and all of you.  It has been such a great place to talk (type), listen, learn, share, etc. etc.  Thank you all.   I wish you all a wonderful SE free evening!!

    · Share on FacebookShare on Twitter
  • lsharvey822
    lsharvey822 Member Posts: 257
    edited July 2012

    o geez!  I didn't even think of that!  yes mcm - the Claritin..are you taking that?  that should help a lot for Taxol/Neulasta.

    · Share on FacebookShare on Twitter
  • kjiberty
    kjiberty Member Posts: 1,385
    edited July 2012

    Trichick:  I had my LAST neulasta injection on Friday.  Its kind of funny because when I had my first one (three injections ago), I asked my MO about taking Claritan--which I learned on this thread--and she said I could if I wanted to. I have been taking it beginning the day of the shot and daily for 10 days.  She never mentioned it to me once.  So far, I have no joint or bone pain the entire time. Fingers crossed!  So many things I have learned from you knowledgeable women!

    · Share on FacebookShare on Twitter
  • Stacie
    Stacie Member Posts: 607
    edited July 2012

    I am on the upswing now from #5 of 6 rounds of TAC. Still hurts to stand very long so I mostly stayed in bed again today. I know I will have a harder time if I stay here so tomorrow I will venture back out.

    · Share on FacebookShare on Twitter
  • Stacie
    Stacie Member Posts: 607
    edited July 2012

    Y'all let me know if I make an error in the end dates. For some reason editing the thread post isn't recognizing returns. They are there when I edit but not when I save.

    · Share on FacebookShare on Twitter
  • dancetrancer
    dancetrancer Member Posts: 4,039
    edited July 2012

    Glad to hear you are on the upswing Stacie!

    · Share on FacebookShare on Twitter
  • IndigoMont11
    IndigoMont11 Member Posts: 1,095
    edited July 2012

    PositivityRocks, congrats on the arrival of Ethan! I have been thinking about you a lot! Blessings to you all!



    My chemo end date is September 13. I feel like I'll be last to leave the office, turning the lights off on the way out.



    I confess I have only kept my Facebook page the last while because it makes it easier to vote on Dancing with the Stars. Facebook just kind of overwhelms me; I don't have a smartphone and can't keep up with everyone. But I do want to keep in touch at the point I'm (finally) moving on from all this, so a closed group sounds interesting.



    My energy has been better and I spent the day cleaning, doing a Walmart run, and picking up some free mulch. Except the mulch was a bust- we needed ornamental stuff and this - well, I knew it was ground up tree debris but got bedazzled by the word "free". Now I have truckload of junk that we have to take back tomorrow. This is after I told DH that I needed help getting the propane bottle off the grill because I couldn't do it with the screwdriver (I was thinking pliers). I am trying to gamely forge ahead but this crap makes me feel like I'm going crazy.



    Tonight I am making a Super New York Cheesecake with strawberry and blueberry sauces for drizzling (so it can look red, white and blue) for my son's birthday tomorrow. I have made it before and it is fabulous, but this time I am going to make myself do it slowly and carefully so I don't end up destroying it somehow! :-P

    · Share on FacebookShare on Twitter
  • lsharvey822
    lsharvey822 Member Posts: 257
    edited July 2012

    sounds yummy Indigo!  Glad to hear you're feeling better too!  The energy thing has been the hardest part for me.  I need a pill for "I don't have the energy to lift my own arm" and "spaghetti legs"!  Come join our little group on FB.  It's just us so not hard to keep up with. I want to keep in contact with you and the others after this h#ll is over! :)

    · Share on FacebookShare on Twitter
  • sandik
    sandik Member Posts: 482
    edited July 2012

    Indigo, I will be right with you in Sept. I've got 10 more weeks to go, so we are close! You might be last, but you won't be the only one here! 

    · Share on FacebookShare on Twitter
  • lsharvey822
    lsharvey822 Member Posts: 257
    edited July 2012

    We'll all be here until everyone is done!  Love you ladies!

    · Share on FacebookShare on Twitter
  • vballmom
    vballmom Member Posts: 426
    edited July 2012

    Oh girls, I have a year here because of Herceptin.  I see the light, but the tunnel is long!

    · Share on FacebookShare on Twitter
  • SadeSurvivor25
    SadeSurvivor25 Member Posts: 119
    edited July 2012

    Vballmom, looks like we're on the same schedule. 10 weeks of Taxol/Herceptin left... then a year of Herceptin.

    · Share on FacebookShare on Twitter
  • GracefulDays
    GracefulDays Member Posts: 15
    edited July 2012

    Indigo, your not alone. I am not sure of the exact date, but I will have my last T/C treatment at the end of September, so I will be there with you! :)

    · Share on FacebookShare on Twitter
  • FightingLikeAGirl
    FightingLikeAGirl Member Posts: 69
    edited July 2012
    Dance...glad the herceptin alone went well...I'm starting my herceptin only first week in September...how long did it take?  I can not believe that you still have the thrush...I wonder if mine didn't last as long because I was on Diflucan.

    Sandik...glad you did well in the BGC this week...hope it continues. thanks for making the fb page...I just sent a join request.

    RoulaG...we are basically on the same schedule...I am just a few days behind you and also doing TCH. My next treatment is July 5th and last treatment is Aug 15th.

    Posititivity - Welcome Baby Ethan...Im so happy for you and your family. Congrats...I don't know how you managed to do it.

    Mary...I' so sorry!!! You do not deserve this!!! I agree that you need to take care of yourself right now and not stress about him...but I just want to make sure you check on how long you can have knowledge without taking some kind of action before it is legally considered consent...every state is different, but please be sure to find out if you are in one of the states that's laws look at non-action as condoning.

    Okay...so I started to get neuropathy today...my fingertips and toes are starting to feel numb.  I also noticed that the skin on the bottom of my toes are peeling...I put some coconut oil on them w socks...hope that helps.

    Found out today that the thrush in my nose is really a staph bacteria infection and the Dr. put me on antibiotics...which will now give me thrush.

    Since my next treatment is coming up on Thursday I plan on getting the most out of my July 4th celebration...anyone have anything fun planned?

    · Share on FacebookShare on Twitter
  • sandik
    sandik Member Posts: 482
    edited July 2012

    Fighting, i'll approve it when I get up and get on a computer. I'm typing from bed on my phone. Steroids have me all hopped up. Can't sleep. If I venture out of the bedroom Ill wake up all the dogs and all hell will break loose! Haha

    Anyone else almost not making it to the bathroom to pee? Im good then sll of a sudden i really have to go and am almost going as im pulling my pants down! Ive been like thins since shortly after i started chemo. Ive got panty liners but think i might need to get those poise pads. Also going to start bringing shorts and gotchies in the car or in my bag or something. Of course that would mean explaining more embarassing stuff to my partner at work. Haha. Good thing he doesn't mind!

    A whole year? Is that because you are triple positive? That's chemo right? Not a pill? Wow. Ya know the woman that I said hugged me at the party the other night? She just hit her 5 year mark and she was triple positive. I love hearing stories like that!

    · Share on FacebookShare on Twitter
  • chapter4
    chapter4 Member Posts: 155
    edited July 2012

    Good morning ladies....I get plugged into the big girl chair in a couple of hours for Taxol #3.

    Wishing all of you a powerful fulfilling day with minimal SE.

    Still have a few eyelashes and eyebrows....one more treatment to go!

    · Share on FacebookShare on Twitter
  • Marcia1111
    Marcia1111 Member Posts: 368
    edited July 2012

    IndigoMont1 and GracefulDay - I won't be done with chemo until the end of September.  Then I'll be moving on to radiation.  I haven't looked at the exact date.  I'm afraid that if I do and something happens to prolong it, I'll be too dissappointed. 

    I would love to be in the facebook group.  I sent Sandi a friend request and vballmom a private message.

    FightingLikeaGirl - My next infusion is also on Thursday.  I have no plans for the 4th :(  That's okay, though.  I had 3 nights of fun last week.  I don't want to overwork my liver!

    · Share on FacebookShare on Twitter
  • mcm24
    mcm24 Member Posts: 33
    edited July 2012

    Yes, I did take Clairitin the day before Neulasta, the day of, and the day after. Wonder if I should take it longer? I took a Vicodin before bed last night and slept fairly well. I also put a pillow under my knees, which felt good.

    Sandik: I had the same thing happen to me yesterday at work. I didn't even feel like I had to pee, just was going before I left work  because I had a stop to make, and it came out while I was unbuttoning my pants! What the heck?!

     I am also having a lot of little pains in my lower abdomen, like where my ovaries are. My ovaries had "lit up" on the PET scan but my doctor said it was because I was still menstruating and that she wants to have a sonogram done of them when I am done with chemo. Now of course my overactive worried mind is thinking that there is something going on there. The other thing is that I am on an antibiotic for the UTI but I am wondering if it is strong enough or if it is going into my kidneys.  The nurse says as long as I am on an antibiotic it should be fine.

    Who in this group has tissue expanders? I have them in both sides, as I did the left prophelactically. I won't have my exchange surgery until October. These suckers are hurting again now, too, with this last treatment.

    Speaking or rads, I had 2 nodes involved. My doc said I was in the gray zone. When he found out how long it would be before I could actually get the rads, he said that I would not benefit from it so far from now. My PS prefers to do the exchange surgery before rads and then I would have to wait until I was healed from that to do rads. I never wanted to have rads, so I am happy that he said I wouldn't have to have them. But I hope I do not regret it down the road. Anyone else in my same situation?

    Sorry to ramble on. I appreciate having you all to talk to because you are the only ones who truly understand what I am going through! I hope you all have a great day without SEs!

    · Share on FacebookShare on Twitter
  • Fierro6
    Fierro6 Member Posts: 224
    edited July 2012

    I won't be done until late September, either, and will likely have rads after that, but not sure.  I'm not going to worry about that until I get done with the chemo.  That means there are several of us who will be hanging out around here for a while to come.

    I have a tissue expander on the left (MX) side.  I don't get to have exchange surgery until I've healed from the radiation (if I have it,) so I'll be dealing with them for 6 months extra!  Blech.  I know that it hurts like crazy when I first wake up, since my last fill.  After I get up and moving, it seems to be better. 

    All I can say is, cancer ain't for wussies.

    I hope you all have a great day!  I feel better than yesterday, which is all I can ask.

    · Share on FacebookShare on Twitter
  • lsharvey822
    lsharvey822 Member Posts: 257
    edited July 2012

    mcm - I take the Claritin the day before, day of and 7 days after and still have some pain so I don't want to think what it would be like without it!

    For those continuing with Herceptin - how often will you have to go in for that?  The one person I know that did Herceptin didn't have any side effects from it. Is that typical or is everyone different? 

    Jeez - I thought my bladder was just getting old but now that you mention it this does seem to have started with chemo.  Another wonderful side effect!

    Why does it seem like some docs say no radiation after MX but others are having it?  Is that because of margins?

    I'm just full of questions this morning!

    · Share on FacebookShare on Twitter
  • mistym
    mistym Member Posts: 58
    edited July 2012

    Good morning all,

    @sandik - I just sent friend request on FB but not sure if I was supposed to request you or a group? - Misty Murakami

    Contratulations Positivity on the arrival of your angel.

    I love the big boot and snoopy.

    Mary how are you doing?

    Good luck to you girls in the BGC this week.

    I'm in Canada but watch the American news every evening.  I hope that all is well for those who were affected by the fires in Colorado and also hope that there isn't anyone here suffering from the power outages.

    Hugs to all,

    Misty

    · Share on FacebookShare on Twitter
  • vballmom
    vballmom Member Posts: 426
    edited July 2012

    According to my MO, I will have radiation because of the positive node.  I am also a grade 3 and Her2+++ so I'm sure that is also a consideration.  I will likely start rads in October.

    · Share on FacebookShare on Twitter

Categories