Recently diagnosed with DCIS

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  • amazonmich
    amazonmich Member Posts: 10
    edited June 2012

    What a great community and resource Smile So glad I found it.

    Mammogram less than 3 weeks ago, biopsy 2 weeks ago, meetings with radiologists, surgeons, hospital, etc. etc. What a trip, all that with trying to qualify my horse for regional dressage championships (missed the score by 1%)...last show was yesterday and tomorrow....

    Uni Rt. Mx -- June 26...  At 54 I'm happy with my small fairly perky breasts that swing a bit when I walk, sorry to see one go. 

    Keeping my fingers crossed that I will get away with simple mastectomy + SNB.  

    Wow! things can change fast. No surgery today, waiting 3 weeks when I'll have Mx + recontruction at NOLA. Mixed feelings about the wait but feels good to avoid implants. 

    Miche 

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  • Kd6blk
    Kd6blk Member Posts: 114
    edited June 2012

    Hi everyone. Saw my breast surgeon today and got my report. I have DCIS Comedo type with ES and PR sensitivity. We have clear margins. I also have at least 3 locations of Atypia between both breasts. I have very busy tissue and looks like I will be investigating both NOLA and PRMA very quickly. My cousin is stage three...she is my age. Sounds like I am just a few steps behind what she ended up with...I am very lucky to be stage 0.

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  • mssunshine71
    mssunshine71 Member Posts: 162
    edited June 2012

    Unfortunately my news on monday wasn't great.  Over 50% of the tumor was IDC (2.3 cm) and lymphovascular invasion was identified (lymph node was clear though)  So I went from DCIS to IDC stage 2 grade 3 and DCIS grade 3.  Sad thing was I had to read this myself in the pathology report.  The surgeon didn't tell me they identified IDC in the biopsy and all he said on the follow up was "You don't need further surgery.  I will send the referral to the Oncologist and Radiologist.  Do you have any questions for me."  My mother was with me and asked if I needed Chemo and he said, "yes you do. Any other questions?"  So I asked for the pathology report and left.

    I was in shock from the news of chemo and how little info he was wanting to give and should have asked a hundred questions. I felt I would rather ask the Oncologist and Radiologist the questions as this Doctor was a general surgeon and not an expert on cancer.  He was obviously very uncomfortable breaking the news to me.

    Thank you everyone for the support.  It helped me get through the waiting stage before diagnosis.  Now on to wait for the treatment plan. 

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  • agrp1
    agrp1 Member Posts: 37
    edited June 2012
    I'm sorry, mssunshine. That's not the way this is supposed to go. Frown Keeping you in my thoughts and prayers as you get new doctors and a new treatment plan! 
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  • cailindearg
    cailindearg Member Posts: 101
    edited June 2012

    So sorry to hear this mssjushine7, sending hugs and prayer you're way...

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  • cheryl1946
    cheryl1946 Member Posts: 1,308
    edited June 2012

    I'm so sorry.

    If you should need further surgery,please find a good,caring surgeon.

    Will pray for you.

       Cheryl

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  • greenacres
    greenacres Member Posts: 144
    edited June 2012

    I'm sorry you are diagnosed.  No, this is not the way things are supposed to go. I have (had) the same diagnosis as you and my BS sat down with me for almost an hour and explained the type of BC I had, what kind of drugs (and the names) he was going to use to wipe it out, what treatment was like, how I was going to endure it and for how long and then mentally, talked me through how I was going to cope with everything.  This BS is an arse IMO and I would definately seek out a different Dr. to work with.  You need to find someone who cares for you.......a team of Dr.'s, oncology nurses, radiaologist, etc.  Hang in there, keep the faith.  Obviously you are probably Her2+++ (being a Grade 3), you will definately need chemotherapy which will most likely be Carboplatin, Taxol and Herceptin, but each case is different.  If you need more info, please ask.  We are here for you, all of us, together as a team.  Hugs.

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  • akinto
    akinto Member Posts: 97
    edited June 2012

    I think that surgeons who don't explain your pathology to you, who exit the room when you most need them, are really a problem.

    Mine did the same as mssunshine71's.

    After my surgeries, I complained to patient relations about that and a host of other things.

    They were appalled and are following up.

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  • mssunshine71
    mssunshine71 Member Posts: 162
    edited June 2012

    Thank you everyone.  I got the call today.  My appt. with the oncologist is tomorrow already!!  So my questions will be answered.  My radiation onc. appt is this coming tues.  Things are moving faster then expected after all.  I will not be in limbo any longer and will be able to get myself mentally ready for treatments. 

    Now to prepare myself on telling my 4yr old. :S

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  • mssunshine71
    mssunshine71 Member Posts: 162
    edited June 2012

    The news keeps getting worse :(  Looks like I'm ER+ , PR+ and HER+++.  He wants me in treatment for a year!  8 rounds of chemo and I think he said 18 rounds of Herceptin, radiation and Tamoxifen.  There are other things mixed in there too but I don't remember.  I go to have the Port-A-Cath put in on tues already.  I can't wrap my head around how I am going to organize my life in between treatments.  I am single with a four year old.  

    Sorry to be a downer,  Just needed to vent.  I haven't really cried yet I've just been so numb.  Like it's not really happening to me.  My mom cried the whole appt. and my first chemo treatment is on her birthday.  She started chemo exactly 3 years ago at this time. 

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  • gardengumby
    gardengumby Member Posts: 7,305
    edited June 2012

    I don't want to be a Pollyanna here, and you need time to grieve and wrap your head around everything, but the good news is that it hasn't gotten into your lymph, and triple positive is easier to treat that triple negative.  Is your oncologist someone you can get along with?  Or at least better than that other idiot who was so incredibly rude?  You can't screw around very much, but be sure to get hooked up with an oncologist who isn't the absolute pits, because you are going to be dealing with him for quite some time.

    Now with that out of the way - I am so gawd-awful sorry to hear this.  Cancer SUX. 

    Big hugs to you and positive thoughts. 

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  • mssunshine71
    mssunshine71 Member Posts: 162
    edited June 2012

    Thank you gardengumby.  I do like my oncologist.  He seems really great. :)

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