Hi I'm New on this forum and high risk .

mesha_38yrs
mesha_38yrs Member Posts: 8
edited June 2014 in High Risk for Breast Cancer

Hello I have just finished my bio all is welcome to read it if you like.

I am currently having my ouwn breat issues and like many other women having trouble with her bs and getting to the bottem of my problems with the breast issue.I'm not saying it's bc.but it needs addressing due to my risk .I've faced death once before

and beat it .I've had a hard life and beat that .you lovely sweet women gave me courage to push on and get things going .If i do so happen to have bc so be it if its b9 so be it .but I wont be pushe away and told it's hormones and caffine .today I chose to post today i got knock down emotionaly by the BS .so i called my insurance company and told them that if the BS charges for a biopsy denie it becouse she did not do what my gp asked and told me to go home and take soe primrose oil ?the radiologest said fibrioid cyst but could"nt see a dang thing my breast are to dence for mam or us.need mri my gp agrees .i'm very hurt and very dissapointed and very angry at this point.but I kinda knew what I was upagainst becouse i did my resurch on here and ysc and bcc web sites

I don't know if this a rant or a cry for help and support?or just a voice a small voice to be hurd i know i'm a whisper omongs a thousands of voices .

thank you

and i'm sorry for bugging anyone.

mesha_38 

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Comments

  • Blessings2011
    Blessings2011 Member Posts: 4,276
    edited June 2012

    mesha_38 - I'm so sorry you are going through this. It's hard enough to have suspicions, and then to not have anyone really listen to you makes you think the absolute worst.

    You definitely need a second opinion, and it sounds like someone (radiologist? GP?) is also recommending an MRI. If a doctor is recommending this, then you need to find someone who can provide you with the services you need.

    I, too, had very dense breasts, and nothing ever showed up on a mammogram. When I started having problems, it took an ultrasound to find it.

    When I was 18 I had a benign fibroadenoma removed that was the size of a walnut. That one didn't hurt a bit.

    But eventually, my breasts got very dense, heavy, and fibrocystic, to the point where self exams were impossible. They hurt all the time, and this was waaaay before I was diagnosed with BC. I did have to watch out for caffeine, because it seemed to make the pain worse.

    In your case, though, it sounds like you just need a different breast surgeon, or someone who can arrange for you to get the tests you need. Even if it's benign (hoping so!), you still need answers.

    Wishing you the best....

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  • oregongal
    oregongal Member Posts: 44
    edited June 2012

    Since you list yourself as being from Vancouver, there are many other options for BS.  I would head up to the Breast Center in Seattle, I have heard very good things about it.  Another option is OHSU in Portland, they are doing a lot of research and studies.   Go back to your GP and tell them what is going on and get another BS.  

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  • mesha_38yrs
    mesha_38yrs Member Posts: 8
    edited June 2012

    This morning i recived a call from my insurance co. they said that the places i went did stadard rutine .then told me about fibriods that i have and cysts .and i told him look its not the prosidure its how i was treated due to my age. somethings just not right .i want them to take it out .due to the pain it's causing me. and biopsy it just on the safe side .the thing feels like it's tring to rip out of my right breast.my insurance covers it so i don't see why they can't get it done.so they said have my dr.refual me to a difrent BS.I will call him today."if they won't help me i';; waight till my boob falls of then toss it on there desk and say now will you test it ? LOL gosh i might as well go to med school and do it my self.or get a tatoo on top of my lump that says lump with a X that marks the spot or go to court and legaly change my age .at least i'll get the help i need and a sr.discount too LOL.

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  • Godisgoodallthetime
    Godisgoodallthetime Member Posts: 3
    edited July 2012

    i was of extremely high risk.  There were a number of women in the family with BC.  The yearly MRI's would show more problems than a math book.  I was diagnosed with Flat Epithelial Atypia.  It was recommended that I have a bilateral mastectomy.  I opted tram flap for my reconstruction.  Yes, it involved a journey and I have had pain like I cannot even express in words.  On the positive tip, I am so relieved that I have reduced my risk factors.  I love my life, and was walking down a path of destruction with the twins that I had.  Should I mention, the new twins are so perky!

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  • nwsuburbs
    nwsuburbs Member Posts: 9
    edited July 2012

    mesha_38,  I feel horrible that you are going through this!  It is scary because some of what you are experiencing, I endured myself.  I am 37 and began having issues 6 yrs ago with strong family history and neg BRCA1/2.  Because of family history, they removed the first lump and I have since gone through many tests and frustrations.  All subsequent cysts have been benign and the three most recent are quite painful.  I have heard the same thing . . . caffine, diet, hormones, etc. even after a complete hysterectomy last fall.  With the current pain, I finally discussed preventative surgeries, I am having my BMX in 4 wks with immediate reconstruction. 

    I am a little confused.  Your general physician and the radiologist recommend an MRI.  Are you needing a referral to a BC to order the tests?  I would definately do whatever it takes to find the team that will care for you the best.  There is no reason that you should be denied a lumpectomy if the cyst is causing continuous, long-term pain; no matter if insurance is covering it or not!  Your age should have nothing to do with the care you receive.  Cancer can strike at ANY age, not just after 40.

     Wishing resolution . . . soon!

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