Tamoxifen for prevention in women who do not have breast cancer

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painterly
painterly Member Posts: 602
edited June 2014 in Clinical Trials, Research News, Podcasts, and Study Results
Tamoxifen for prevention in women who do not have breast cancer
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  • painterly
    painterly Member Posts: 602
    edited June 2012

    Clinical trials began several months ago in the U.K. for the use of Tamoxifen for women who do not have breast cancer but are at high risk of developing the disease due to family history etc. I thought this article was interesting and comforting for those women who are taking the drug.

    http://www.dailymail.co.uk/health/article-2117360/Why-healthy-women-taking-breast-cancer-drugs.html  

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  • painterly
    painterly Member Posts: 602
    edited June 2012

    You may have already read about the trials. I did a quick search in this forum but didn't see anything reported but then this new website is harder to navigate for me and I may very well have missed this important information.

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  • Infobabe
    Infobabe Member Posts: 1,083
    edited June 2012

    painterly

    Does anyone know the dosage for T in Europe.  Here, it is always 20mg but I have heard it is 10mg in Europe. 

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  • cp418
    cp418 Member Posts: 7,079
    edited June 2012

    I wonder if these women are getting twice yearly vaginal US to monitor uterus and how many will end up with hysterectomy?  Will that information be collected and published as well......

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  • leggo
    leggo Member Posts: 3,293
    edited June 2012

    This sounds so dumb to me. Why would anyone want to reduce their risk of bc to raise their risk of uterine cancer? Maybe I'm missing something.

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  • LtotheK
    LtotheK Member Posts: 2,095
    edited June 2012

    Because the chances of getting uterine cancer are less than 1 in 1,000.  A fraction of the risk for BC.  They are in no way equivalent.

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  • leggo
    leggo Member Posts: 3,293
    edited June 2012

    I guess I feel that way because I think statistics are bullsh*t. My mind dictates that I wouldn't be willing to trade in one type of disease for another, but all the power to those who would consider the trial. To me, it's not unlike that drug Humera. I'd rather seek out other options for arthritis than risk getting lymphoma/skin cancer/tubercolosis.

    I know I shouldn't make light of it because this is a serious issue, but all I could think about was "Happy Fun Ball"

    http://www.youtube.com/watch?v=7gzDC-2ZO8I

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  • LtotheK
    LtotheK Member Posts: 2,095
    edited June 2012

    Gracie, statistics seem like bullsh** when they work against us.  For me, I have a mental necessity to keep the faith.  My oncotype score was a 12.  A minor miracle, since my oncologist told me to expect a sky-high score.  I hope stats aren't all bunk.

    No doubt, we want different solutions.  But I am haunted by the possiblity that Tamoxifen, given my risk factors, might have prevented what I went through.  I would surely have taken that over full-blown cancer and chemo.

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  • leggo
    leggo Member Posts: 3,293
    edited June 2012

    I completely understand LtotheK. In retrospect, yes, it can be haunting to think it would have prevented this nightmare. Maybe that's why deep down I'm bothered by it, who knows. In my case statistics worked "for" me, so I'll never complain. It just made me realize what a crap shoot it all is. I sincerely hope I didn't offend. Just my thoughts.

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  • LtotheK
    LtotheK Member Posts: 2,095
    edited June 2012

    No one ever offends me here, because I know despite the different opinions, we all come at this from having been there.  This is the most extraordinary community of my life, without question.  My treatment has been hugely influenced by what I learn here.  BC.org is now the organization I contribute most to!

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