anyone starting chemo in Nov 2005
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Hi, my sisters. Yep, I am back. I had a down spell there for a while, but I am resurfacing, I think. Maybe it's reading Mary Lou's crazy tale of actually wanting to go to the dentist. (How dare she?) Maybe it's just missing all my sisters and wanting to reconnect. You guys are so wonderful, I just had to snap out of it.
Strange coincidence: I have a dentist appointment tomorrow.
Another strange coincidence: I too feel like I am blind as a bat. That's pretty tough on me since quilting is my favorite thing, my yoga, my relaxation, my music and poetry, and quilting is no fun if you can't see what you're doing. I can't focus; it's as if I had lots of tears in my eyes or something.
Questions about reconstruction. I had a bilateral DIEP flap reconstruction along with the mastectomy last September. Before the surgery my breasts were a size C, now they're still a C, but a more compact C. I don't wear a bra anymore. I wear little camisoles only, because I can't deal with any binding and because I don't need the support (I guess that's what they call perky). If I want a little compression I wear a Flexee from Kohl's, they come in all colors and are pretty cute.
The reconstruction I had comes with a tummy tuck, because my breasts are actually my tummy. I have a nice little belly button right where it's supposed to be. I don't have nipples yet, those come in July when I get my stage II of the DIEP (outpatient).
I have no feeling in my breasts and hardly any on my tummy. My armpits and underarms are also still numb, but that's likely from the sentinel node biopsy, which you won't be needing, right?
I did the exercises they tell you to do and had full range of motion in my arms by the second month post-surgery. They do cut your abdominal muscle for the DIEP, but they don't take any of it away, so I now do my sit-ups (modified, like before) and have regained the abdominal "strength" I had before.
I miss my old droopy breasts, that's for sure, but then again, I wasn't able to keep them so this was a pretty good option for me.
There is lots and lots of info about all the different types of reconstruction on the Breast Reconstruction thread. If anyone wants to know more about my DIEP, please ask, as you can tell, I'm happy to talk about it.
I have finished the Taxol and now get Herceptin alone every Monday.
Here's the new thing: if I am sitting still, my legs feel like they weigh 100 lbs each and two of my toes hurt a lot when I walk and also even when I am still. I took a look at those toes and it seems to me that there is a red spot in the toenail of each one and around the toenail it is red and puffy. Has anyone heard of such a thing? Am I a weirdo? What's going on here?
Something funny: I woke up in the middle of the night totally disoriented and touched my head and couldn't figure out why I had a crew cut. I guess I expected my old hair. Hey, where have I been these past six months?
No more Decadron, but look at me typing pages in the middle of the night again. Help!
Hugs to all, Anna -
Anna, so happy to see you back here. Lots of hugs for you. Know what you mean about snapping out of it. It is ok to feel like that, we all do, but then you snap out of it and come here. I know if I've been away for a couple of days, you DO feel lost. Congrats on finishing the Taxol. Not sure about the toenails.
MaryLou, wasn't that cute. My best friend sent that to me and I was almost peeing in my pants. I've been to a LGFG program. I loved all the makeup, but to tell you the truth most of the colors I got weren't me. But hey it is free and expensive stuff. The woman who did it was very nice and stupidly I forgot my wig, because I wanted to see what she would do with it. You sound like you had a great bunch of women at your session. Mine were ok.
Deb, still waiting to hear from you. Hoping and praying everything is great results.
Kaye, thinking of you and hoping you check in soon.
As for me, it looks like I have an infection in my breast. Since Sunday it has been redder than usual and looks bigger too. Kind of scared Anthony and me. We called the doctor late Monday and yesterday he prescribed an antiobiotic. He said it sounds like an infection. If it doesn't clear up by Thursday he wants to see me. Kind of nervous about this. Why is there an infection. Oncologist said it has nothing to do with the Xeloda, so that is good news. I just hope it IS an infection and the antiobiotic clears it up.
hugs,
Kim -
Margerie - Good luck with the surgery of Friday. Also, thanks for the info. The prothesis that I have seems to be fairly comfortable. I wonder how it will be in the heat of the summer. I don't feel the need to wear it all of the time - I think other people are more uncomfortable with the "one boob - no hair situation" than I am. Isn't that weird?? We are the ones that are going thru this journey but sometimes will do things just so that others aren't uneasy. Oh well...
Hope everyone is having a good week!
LAT56 -
Hi Ladies! I decided to check in with all of you and let you know that I am now officially signed up and under the care of Hospice. My doctor wanted me under Hospice back in December and I didn't know much about the program so declined.
Well I am glad that I am now in the program. A Nurse comes out twice a week to do my vitals, and a Social Worker every two weeks. At least I think this is how it will work. I just started so will let you know more later on how it works.
They provide all my Medications, and they have me on Hydrocodone for the headaches and it seems to be working pretty good. I have to take 2mg Steroids, and that doesn't seem to agree with me. Wires me up and I get no sleep what so ever, but they said it is reducing the swelling in the brain, so I will continue on with it, better than feeling like I did.
Now I can have some quality life. I have been kicking back, resting and reading books. Can't get much better than that.
Glad to hear so many of you are doing well. And bcMary, really was glad to hear that the tumor was benign. That was the same situation with me, not all my tumors are cancer, so you see, you just never know.
I hope to bounce back and get a few more years, so that I can do my traveling. I got so close, maybe will be able to do it yet.
Kaye -
Hello to my beloved chemo sisters!
I am SO sorry I've not been here for a few days-I actually got my results of the MRI yesterday and just didn't have the energy to tell people....here is the email I sent to family and friends....
Hi everyone,
I received the results of my MRI this afternoon. Basically, there are some spots of abnormalities which total about 7 mm. Originally, the tumor measured approx. 72 mm. So, the tumor has shrunk about 90 percent. My oncologist had originally said that for the best prognosis, we want my tumor to be gone completely before surgery is done. During my conversation with him, he first said, "You can schedule surgery." But I reminded him of his statement about my prognosis, and about the fact that he had me miss weeks of treatment because of low blood counts. He checked further into my chart, and then said, "I wouldn't be against you having 3 more treatments. Is that what you want to do?" I actually said, "YES." Of course, after saying such nonsense, I kicked myself.
I'm disappointed-I can't say I'm not. However, I have said it time and time again, I'd cut off my leg if that meant I had a better prognosis. Therefore, what's a few more weeks of toxic chemicals pumped into my body? Besides, I know the chemo is working, just a bit slowly.
Ugh...3 more weeks of chemo, a month to recover, then surgery. That means I'll be having a major surgery and reconstruction for my 32nd birthday.
Thank you all for the prayers-honestly, they are working, but God just has a few more things he wants me to learn before this portion of my life journey is complete.
______________________________
Anyway, it really sucks. I felt kind of stupid for telling my doc to give me more chemo, but I know in the long run I am doing the right thing. Right?!? I'm feeling better about it today-I ate a Dairy Queen Blizzard so I have drowned my sorrows enough. Heck, I ate all day long! Mostly peanut butter-related items! I love the week after chemo, I have SUCH a good appetite! So, I have three, maybe four treatments to go. Cancer does suck.
Margerie-You CRACK me up! I laughed hysterically at your statement about your vagina not turning to dust!
I have to add something about that....did any of you have sexual side effects other than no sex drive? I have to say I experienced some pain, and don't know if it was due to dryness, or what. Just curious.
LAT56-Good to see you here! We've missed you!
Anna-How are you doing? I have the same toe issue. The same problem with my hands. My thumb, index and middle fingers all look horrible, and the ring finger and pinky finger have a small reddish circle in the center. My big toe and second toe are discolored. All extremities are really sensitive-they hurt, a LOT. If my son steps on my foot (happens all the time!), I wince in pain. If I hit my index finger just right when I am turning the key in my car, it brings tears to my eyes it hurts so much!
Mary Lou-I have a dental question....is it ok to go the dentist while you are having chemo? I think I am having some problems with my gums. They have been sore!
Odalys-I just wanted to add to your port survey. I have one, and was told I should keep the wretched little thing in for a year after chemo! bleech....I want it out ASAP!
There was something else, but I totally forgot. Love that chemo brain!
Love and prayers, Debbie -
Anna, I'm so glad you posted today! I had been missing you. Yes, strange that I like going to the dentist. I think it has to do with the clean feel you have afterwards. I have always loved teeth, in fact it is the first thing I notice about a person.
As far as the Doctor, my Doctor was Dr. McConnell (sp) in Middleburg. When I was very young, he gave me my first shot. He told me to watch, and that a red bird would leave a red feather on my arm. But I would have to be very still. Of coarse it was blood. But, because he told me that story, I remained calm.
That's why I always wanted to get a shot every time I went to him..
He was my doctor till I was grown. Many years and stages. I also remember, that at the time of his death, he was buried in a pine box. He had it built before his death. He was just a simple man. That's what I really admired about him.
Thanks for sharing about the reconstruction Anne. I will soon meet my PS. I know I will love, love , love my new perky boobs! They will be at attention, instead of looking at my feet. LMAO
Never did like the old ones. I've never been able to go with out a bra. And I never get to wear nice bras because I'm so big. No support in them. I will probably have a Bonn fire and burn the old 18 hour, 4 hook , dig into your back fat , turbo bra.
I couldn't burn mine in the 70's. So this is my shot! LOL I must tug at my bra 1000 times a day.
BTW girls, I got my staples out. Now I can call tomorrow about my rads, and get on with the next stage.
Do the first markers stay that long? I may have to go in and get lined up for the second time. I haven't got the tattoos yet. And all the tape and ink has been gone.
Kim, I almost did that too. Hope all is well for you.
Debby, I hope you get to post good news SOOOOOOOOOON. Still praying for us all.
Love
Mary Lou -
That is to funny, seems like everyone posted while I was.
Kaye, it was so nice of you to pop in. We truly miss you. (((HUGS)))
Debby, you can't go till about 2 weeks after chemo is over. I remember when I was having treatment at the end, my teeth hurt to eat. Also my toe nails turned yellow. One fell off.
My doctor told me to put tea tree oil on them. It stinks, but has made them better. The feeling in your hands and feet may be the Neuropathy that I have. Also Nancy has been having it. And I think some others.
Mine still hurts, I have to take 1800 mg of Neurontin per day. Plus the Lortab. And if it gets really bad I take the Oxycodone.
Google Neuropathy, or look here on this site. It will tell you what to look for. I really hope mine goes away. I'm never going to get back to work as long as this keeps up.
I can't stand on my feet very long at a time. And walking is very painful.
Well it is after midnight, so I will get off of here and go to bed.
Again, blessings to you all. Deb, hang in there. We are all here for all the support you need.
ML -
Kaye, how great to hear from you. One of the ladies in my support group has told us about hospice and how wonderful the people are. Just yesterday I was thinking about how much I want to give back once I am through this part of treatment, and I was thinking of talking to the social worker who coordinates all of our support groups and asking her if hospice could use volunteers like me. I'm not sure what I have to offer, but I would like to give some part of myself and could certainly learn new skills. Anyway, I love hearing from you and hope for more.
Debbie, I sure think you have made a good decision because now you will always look back and think, whew, I did everything to overcome this. This way you won't have regrets. Regrets are a waste of time, and you are protecting yourself against that.
Yes to pain during sex. I was planning to ask my new gyn about that. I see her in two weeks. I switched because this one was recommended to me by my oncologist. She has a lot of experience with women who have gone through breast cancer; I like that. Also, my previous gyn didn't handle the diagnosis period well at all, and she gave me no support, incorrect information about DCIS, etc. I need to trust my doctors wholeheartedly. I think the pain comes from vaginal dryness, but the over-the-counter remedies don't seem to help me.
What you describe is exactly what I have on those two toes. Exactly! Man, does it hurt to evern touch them. I can still walk, but can only wear my running shoes at this point. I will try the tea tree oil, Mary Lou, but where do you get that? I will ask at the health food store.
About bras: I used to be so uncomfortable without a bra that I would put one on under my nightie on Saturday or Sunday mornings when we would hang out in our pjs just so I wouldn't be constantly lifting my good old droopers. Even though they were only a C cup I too had to yank at my bra constantly because it dug into my sides. Going without a bra is a wonderful new experience. My daughter, who is a DD, is very jealous. She has wanted a breast reduction since she was a teenager, but is a very squeamish person and can't face the thought of the surgery. I totally understand; I wouldn't ever have elective surgery. Not ever. But her day-to-day discomfort is pretty bad. She' 5'8'' and weighs 135, so those DDs are really noticeable, too.
On Monday I had my second Herceptin alone treatment. With all the port flushing, etc. it takes an hour. That's a nice change from the 3.5 hours the Taxol+Herceptin took. No more pre-meds, which is very very nice.
Hugs to all my sisters getting treatment this week.
Anna -
Kaye - Good to hear from you! Hang tough!!
Debbie - Special prayers for you as you go thru additional chemo treatments. And Yes, cancer sucks!!
LAT56 -
Anna, you can get the tea tree oil at Wal*Mart, about $5.00. Bottom shelf in the vitamin section. They stock alphabetically, so just look in the T's.
I too have the painful sex. I have to see my GYN soon, so this is on my list.
Anna, I have a friend that is a nurse. Her daughter was a DD. She signed for her to have the breast reduction. She had the surgery on Thursday, and was back to school on Monday.
Her daughter was having headaches, and back problems. Insurance will pay for it if it is causing pain. And it does get worse as you age.
I know that I would have loved to have this done years ago. But I really didn't know about the surgery being done that much when I was younger.
Just want to let you all know I start rads Monday. I'm so glad to get this part of treatment started. I feel like life is coming back to normal. If there is such a thing as normal.
I do feel better, my doctor changed my antidepressant to Celexa. It seems to be doing the trick, and it comes in generic. So $5.00 isn't bad. And I feel like the old me again.
I was wallowing in fear, and giving cancer to much power. I still worry, because I was stage III B with 4 nodes involved, Invasive Ductile Carcinoma.
I'm living while I'm still alive. I feel like I have to get in every moment and not waste it on negative thoughts that will only make me sick.
Also , I have to build new memories. Looking forward and not back. I want BC to be a very distant memory.
Love to all my sisters, & good luck to those with treatment this week.
ML -
I love all the different subject line headings we've been using for the past few postings! Those alone put a smile on my face.
First, I have to say Hi to Kaye! I didn't see your posting at first, Kaye, so I apologize for not saying anything to you! So good to hear from you-you sound so peaceful, if that makes sense. You just sound good. I am looking forward to hearing about your travels!
Mary Lou-I had no idea what your dx. was! For lack of a better phrase, YOU GO, GIRL! You are doing SO amazingly well-physically and mentally. You inspire me!
Margerie-I'll be thinking of you and praying for your ooph. tomorrow! Recover well-we love you!
I'll try the tea tree oil for my pain, too. Here's hoping that it works!
Gotta go before Daniel wakes up!
Love and prayers, Debbie -
Hey everyone,
I went to oncologist today to check out this reddness in the breast. Doctor said 2 things that could cause what he was looking at. One would be an infection that could be caused because of fluid build up in the breast. If this is the case the antiobiotic will take care of it. The second thing it could be is malagnant cells that are up against the skin. We would find out this by a biopsy of a piece of the skin. My onc. called the breast surgeon who is out until tuesday. Hopefully I can get in to see him early next week and have this biopsied. If it is malagnant then will will radiate the breast area to zap those cells. So the roller coaster continues with me.
Deb, I am sorry you didn't get the results you were hoping for and hope the next 3 treatments get rid of the mass 100%!! You are right, CANCER SUCKS!!! I am going to start to use that tag line also.
Kaye, good to see you.
Yep to the pain during sex. It hasn't been happening too frequently around here though.
MaryLou, you are such an inspiration, as you all are here. I love your attitude.
Kim -
Oh Kim, man does that suck. I am sorry for you, too! If we lived closer to each other, we could meet at Dairy Queen and eat our sorrows away.
Can you all tell I've been eating a lot these last few days?
Anyway, Kim, I will be praying quite a lot for you, too. We will get through these crappy setbacks!
Lots of love to all! Love and prayers, Debbie -
Can you believe I have never ever had a Dairy Queen anything?!?
I think I need a brand new to-do list and Dairy Queening should be on the top of it. I'm not sure what you get there, but dairy would indicate milk product so I'm thinking ice-cream, since people seem to refer to the Dairy Queen as some sort of a treat place.
Kim I am thinking of you and hope your news is good. I hate that you are having to play the waiting game again.
I was visiting with my parents this afternoon and mentioned Mary Lou's tea tree oil and my father went into his bathroom and came out with a bottle of it (which he has never even tried) and so here I am with one heck of a smelly foot (I kind of like the smell, though, it smells antiseptic in a way) and dreams of that pain just disappearing soon. By the way, the toes are no longer just red and swollen, they're dark dark blue! Help!
Every day I feel a few extra minutes of good, I can't describe it, it's like something nice and hopeful, not my old self per se, something different but familiar. A commitment to being very good to my body, to taking care of myself, to being happy with not-so-perfect anymore, but me all the same. A letting go of the overwhelming fear. A comfort with saying "so be it." I am letting go of control, but not relinquishing anything after all. Can you understand what I can't find the words to say? It's a bittersweet feeling, but there is some sweetness in there.
More bittersweet: I am imagining my daughter, whose husband of just two years this May is visiting her in France where she is doing her sabbatical year, and this is their last night together before he gets on his plane to fly back to Boston. They are in Paris and have had ten magnificent days I hear. Oh how I feel for them, having to tear themselves apart from each other. Here I am watching it all from so far away. They are so young, but doesn't it all go by fast?
Tomorrow I get to go to a quilt exhibit in a little town across the Shenandoah river. I'm psyched.
This week my husband and I talked about one of the elephants in the room and it was a very good experience. Doing difficult things brings us closer, I think. We don't have to solve all these issues, just recognizing them together is good.
Tonight my Reiki instructor told us about the importance of surrounding ourselves with positive messages and thanking everything we put into our bodies. I feel like putting kind little messages all around the house to reinforce the desire to be positive. I will put a "love and appreciate" stickey on my bathroom mirror tonight as a first step.
I do love and appreciate all of you.
Anna -
Oh, I wish for a Dairy Queen Blizzard right now!! LOL!! You have to go Anna. I'll meet you all there.
Thanks for the wishes.
Anna, I know exactly what you mean. Sometimes this "new normal" (is there is such a thing?)is hard to explain and put into words. But all of us going through it know. Your daughter and son-in-law sound like they are having the trip of a lifetime.
Love,
Kim -
Oh Anna! How you are missing out! I just had another blizzard tonight. I love DQ so much I go there twice a week. I've designated Wednesdays and Sundays "Blizzard Night." Wednesday, because that is the day before treatment, and I choose a blizzard as my "last meal" before I feel crappy. Sunday, because that breaks up my week of chemo-induced ick, and I usually get my appetite to come back by Sunday nights.
Weird chemo thing...anyone else have this? My icky fingernails that have been hurting something awful (like we've been discussing), have a new affliction. I've noticed (and this is embarrassing) that my index fingernail SMELLS LIKE ROT!. I even made my husband smell my finger. How embarrassing is that? What a new thing for us to experience together in our mere 3 years of marriage. Poor guy, he has to deal with bc, PLUS a wife who is gassier than he is nowadays, PLUS a wife who approaches him with this demand, "Honey, can you smell my finger?"
I'm gonna start a thread about this, too. I am convinced that my finger is falling off.
A quickie-Hubby told me something that made me freak out, and as I started to, he stared at me and said, "Don't have a cornea, honey!" I cracked up and said, "Don't you mean coronary?" He looked at me for about 2 minutes with a blank stare. I don't think he did.
I love and appreciate you all, too!
Love and prayers, Debbie
PS-Kim and Margerie, Praying for you each night!
PPS-Kaye, how are those travel plans coming along? -
I survived the ooph. The floodgate of tears opened when I had to say goodbye to hubby as they wheeled me off to surgery. "Are you scared?" the nurse asked. "No, but cancer sure sucks." Kinda sore 2 days later, taking Darvocet. The gas they used- mamma mia.
Anyway, so glad to have it done. Now I can go into non-invasive mode, herceptin every 3 weeks notwithstanding, for the first time in a long time.
Good to hear from you Kaye. I hope you can hit the road soon. I am glad to hear you are reading up a storm. If you haven't read The Education Of Little Tree by Forrest Carter, I highly recommend it. It is a simple, but profound with lots of LOL moments. I reread it most years.
Hope everyone here is doing well. I went back and read this whole thread for the first time. The ups and downs and emotions we have all gone thru is just unbelievable. Breaks my heart that you great ladies are dealing with this beast too. No fair!!
Good to see spring- love those warm summer nights. We opened up our pool and spent all day out there. -
Margerie, I'm glad you are doing ok! Thanks for your response to my stinky finger thread!
I go to the doc. today to see what this is all about. Weird thing is that my finger doesn't smell as offensive as it did yesterday?!?! Still stinks, though, and there is a new black spot in the middle of my nasty nail.
Hee Hee!! I just noticed our new title line! Cracking me up!
Love and prayers, Debbie -
Dear Stinky Finger--just when you think that bc can't come up with anything weirder, it gives you the finger. For me it is my big toe. I have about 4 fingers and 5 toes that really hurt, but one is particularly strange. It is black under the nail and starting lifting (according to my manicurist), now it has "goo" under the nail and smells rotten. Is this gross or what? I have been using a lot of hydrogen peroxide and it looks like Mount Vesuvius (sp). I have an appointment with the doc tomorrow and can imagine all sorts of evil things they will do that involve pliers, but am definitly looking forward to less pain.
I am having problems with my login and set up, so unable to respond to the group. Could you pass along that I am sending tons of positive energy to you, Margerie, Mary Lou, and Kim. Glad that Kaye is getting some help so she can spend the spring regaining her strength.
Just finished last Taxol and have my "body art" for rads starting May 23. Herceptin and Arimidex continue. Biggest challenge these days is neuropathy. See a neurologist later this month and have high hopes.
Can you pass along my very best to everyone until I figure out the technical challenges.
Nancy -
Nancy, thanks for the good thoughts. Hope you can figure the technical stuff out. I was pretty disappointed that the boards were down all weekend.
Margerie, glad the surgery went well. Hope you are feeling better soon.
Deb, I have no idea about the stinky finger thingy. Hope the doctor has some answers for you.
I went to the breast surgeon Friday. He basically said it is not an infection, it is the mass growing. He really scared the living daylights out of me. He said we NEED to shrink this thing now. He is suggesting heavy duty chemo cocktail. My onc. originally suggested radiation to shrink the mass. Two different opinions. Arg!! BOth doctors are going to talk tomorrow and then we will speak with the oncologist. We need to do something and NOW!!! Hope you all have a good week.
Kim -
Oh I am so sorry Kim!!
Can't they do both (chemo cocktail and rads) at the same time???????? Surgery out of the question?
God, I would be trying anything. I did rads while on taxol and herceptin and it wasn't that bad. I needed a little neupogen the first few weeks of both.
My thoughts are with you, please take care,
Margerie -
Thanks Margerie. I will know more tomorrow and let you all know. It would be great to do rad and chemo at the same time.
Kim -
Wow...I missed you all this weekend. Great to see the boards are back on. I am having some technical difficulties trying to post a message, keep getting quicked out but I'll try again.
Kim - I feel for you and can't believe what you're going through. This disease does not want to give you a break!!! Not fair. I'm praying for you.
Margerie - I was thinking about you all weekend long. I'm glad the ooph is over and you are healing well. I admire you; always so courageous and upbeat. Well I guess I'll probably be the next one to undergo an ooph; don't have a date yet but shooting for sometime next month.
Kaye and Anna - Glad to hear from you again. Wishing you both better days ahead.
Debbie - Very scary what is happening to your finger. I hope you can get some answers soon. You are right Cancer (and cancer treatments)Sucks !!!!
I still have several posts to catch up on. Talk with you all later.
Love and Hugs... -
Oh Kim, I am praying for you! So much to go through. I hope your doctors agree on a treatment for you that sounds right. I know how hard the uncertainties are.
It's hard to respond to the posts since whatever they did this past weekend. I have to go through all sorts of hooplahs.
I had Herceptin #15 yesterday and they had a tech come and practice on my port!!!!!!!! I wasn't given an option, even when I shared with them how very anxious I always am about the port stick. The tech did it right, but the nurse told me they are training all their techs so they can do the port flushing, etc. There's a tech in there who made a very very very bad error of judgement with me back in the fall (I didn't realize it until just recently, suffice it to say it was a "joke," but the joke was on me) and I simply cannot imagine letting her near my port. Do I have a say in any of this? Yesterday I felt like a piece of meat, not a cancer patient, and I don't even want to go back, ever. I can't change oncologists over this, nor can I talk to my doctor, because she is very thin-skinned these days. One of the doctors left the practice recently and took most of the nurses and all his patients with him and now there are only two or three patients a day. It feels like a sinking ship. Still....
I am so torn.
About the black toe nails (2 right now), the nurse told me they have never seen this (what?!?) and maybe I have a fungus. A fungus that appeared in two days flat? That turned the toe nail blue, then black? Now the nail looks like it is rising. It's like a little dome over the nail bed. A fungus? That sounds like I am at fault in some way. A toe fungus? Jeesh.
Then my onc. nurse told me she is leaving the practice on May 2. She's my third one. The others left too. There are only two left, one is going on maternity leave in June and the other one is 22 years old and just out of school. She joined the practice in March and I have had her twice and each time she could not access my port on the first try and asked me if anyone had noticed something wrong with my port, which nobody else has. I am looking at weekly port accesses through January 2007. I have to get through this somehow.
Sorry to go on and on. It probably sounds like lots of little stuff, and it is. I'll get over it.
I hope everyone is having a good week.
Anna -
Ack! Kim, I tried to post something to you last night, but it seems to have not quite made it-who knows, I probably just typed it up and then signed out. You all know what chemo brain can do to a person....anyway, what I typed up (essentially) was that I am so sorry that you are having to deal with this scare on top of everything else. I am praying for you often. I also said that I really wish that I had some magical thing to say to you to make it all better-all I can really say is that we love you, and we are all here for you, no matter what.
I have to go and try to PM Mary Lou because she can't get into the boards, either! She wanted to see if she could get in if I sent her a message.
Love and prayers, Debbie -
Hi everyone. I e-mailed Melissa because I was having so many problems with the boards. Here is her reply:
"So Sorry Everyone!
Due to technical difficulties this weekend, we still have a few issues to work out. However, the IP addresses are NO LONGER visible. Yikes. Double-sorry from our tech team for that!
As for the Stage III forum, they are working on that (even WE can't get in). Frustrating how technology can get goofy!
Best,
Melissa (and team!)"
Glad to see is not that we have chemo brain, RADS fatigue, or are tech challenged.
Take care, -
I just posted, didn't take, whats up????
-
Girls, that was a test above. I just typed to everyone, and it was lost. To tired to retype tonight. You all know I love you all!!!!!!!
I will try again tomorrow. -
YAY!!!!!!!!!! You got in!!!
Time for ambien-sweet dreams, ladies....
Love and prayers, Debbie -
How is everyone doing this week? I hope tech support was able to resolved the issues with the board so we all can chat again. Take care. Love and hugs to all.
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