Hair Hair Hair - Another question

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  • onvacation
    onvacation Member Posts: 1,344
    edited June 2012

    Hikergal - I tried the not shampooing everyday hoping for it to hold on longer, but it didn't work, just looked bad!  I lost mine 2 weeks after first treatment - well it was coming out in clumps so I shaved it on day 15.  It did feel so much better after getting rid of it, though it wasn't easy for sure!  I had my wigs and hats already, so I was ready as one can be!  Hang in there!

  • kjiberty
    kjiberty Member Posts: 1,385
    edited June 2012

    Schatzie:  took care of that too after the leg hair, etc.  LOL.  Boy, it was fuzzie.

  • lago
    lago Member Posts: 17,186
    edited June 2012

    I didn't try to hold on to my hair. I mean if it was gonna go it was going to go. So one day a friend wanted to join me on one of my power walks through the park. For some reason the wind was like 40mph, which for October is pretty brisk. (Can happen in the winter). My friend even asked if I really wanted to do that because of my hair. So off we go for a 50 minute power walk.

    My poor doorman didn't know what was going on at that point. He had complimented me  just the week before on my short cut. (Cutis short the day it started to fall out). Anyway when I came back from my walk my part was about a good 1/2 wide"! He looked mortified when I came in. Too funny. Wish I had taken pictures of that.

  • jpmomof3
    jpmomof3 Member Posts: 643
    edited June 2012

    I agree with everyone. When it is time to come out it will come out no matter what we do. The time to baby it with good shampoos and conditioners is when it is coming back since it is so delicate.



    Lago, That is a very funny story about the door man too!



    Kjiberty I bet you were never so glad to have leg hair again. My leg hair never stopped growing and my pit and nether regions grew back normally pretty early on. Wish the head hair would follow suit. It's coming though. Any hair is good hair for now.

  • Myleftboob
    Myleftboob Member Posts: 1,469
    edited June 2012

    Ditto here on the chin and fluffy face hair.   I noticed today that the blond hair is returning to my arms.  I'm fair but hairy.  I had to start shaving my legs and pits last week too.  While I still don't have full coverage on my head it coming, lots of gray too LOL! I knew it was there but like alot here have been colouring it for many years.  At first I colored for fun, then to hide the gray about 8 years ago.  Mind you the top is being rather stubborn in comparison.  I see a mullet in my future.

  • schatzi14
    schatzi14 Member Posts: 1,647
    edited June 2012

    MLB...welcome to the world of gray mullets!

  • kjiberty
    kjiberty Member Posts: 1,385
    edited June 2012

    MLB and Schatzi:  I see shades of Mullet gray as well!  (or clear or white--who knows--I just know it's standing tall about an inch on top and nothing on the sides!

  • schatzi14
    schatzi14 Member Posts: 1,647
    edited June 2012

    kji...don't panic...it will come...mine is straight as a poker...not what I expected!

  • Ossa
    Ossa Member Posts: 919
    edited June 2012

    Does anyone have curl/wave on one side andd straigt on the other?  Feel like I can join a "feak show" sort of like the man on one side woman on the other.. Yikes sure hope my hair decides to co operate soon.... 8 months PFC 

  • Gemmie
    Gemmie Member Posts: 103
    edited June 2012

    Iago, I also loved the door man story. An inch part, huh? "The answer, my friend, is blowing in the wind . . .  la de la la la"

    I'm maybe within a week of going in for the buzz. My problem is I'm doing too much retail therapy online with ordering everything from scarves to hats to padding for under scarves. 

    Here's the link for anyone who may be interested:

    www.headcovers.com         They do carry a wide variety of stuff for us bald gals.

    Wishing all a good day.

  • Myleftboob
    Myleftboob Member Posts: 1,469
    edited June 2012

    Gemmie

    Don't buy too too much.  I found I never used half of what I bought. My fav's were the buff for sleeping to keep warm and a couple of regular knit hats that looked OK when prior to shaving my head.  Oh and a coupleo of baseball hats I keep handy for yardwork or if someone comes to the door. I donated it all to the chemo centre where people can take them for free.

    Lago

    LOL on the doorman story!

  • lago
    lago Member Posts: 17,186
    edited June 2012

    I was able to wear a wide headband to cover it for a few more days. Then I had to move on to scarves. Never shaved it

  • liefie
    liefie Member Posts: 2,440
    edited June 2012

    Hi everybody,

     I've complained about my lack of hair here before, but I just need some reassurance again. Going to rads every day, I meet quite a few people who finished chemo weeks after me, but whose hair is already growing out nicely. It makes me panic! I have stubble all over which has been there all the time since I shaved my head during cycle 2, but it just stays the same, no growth, no peach fuzz, nothing. I am seven weeks past my last chemo (4 x TC), and this is just killing me. Strangely enough I did not lose my eyebrows or my lashes. It thinned considerably, but it's still there. As for the rest of my body, it's all gone. I'm normally not a whiner at all, but this is really so hard and I am so scared.

    JoanQuilts, how are you doing with the hair growth?

     

  • jpmomof3
    jpmomof3 Member Posts: 643
    edited June 2012

    liefie, mine started growing back about 7-8 weeks after my AC was done.  barely noticeable peach fuzz.  you are getting there.   it is exceedingly rare for people not to get their hair back, even in people that have had more than one round of chemo in their life.  It will come!

  • Jen78
    Jen78 Member Posts: 102
    edited June 2012

    Hi Liefie,

    I was like you - just stubble up until about 8 weeks pfc (4 rounds of TC).  I'm now 4 1/2 months PFC and I've got a full head of hair that is about 1" long all around.  It feels super slow to me, but it's finally coming in.  Yours will, too.

  • Whatashocker3
    Whatashocker3 Member Posts: 209
    edited June 2012

    Jpmomof3 you just finished chemo and your avatar looks like you have more hair than I do. What do you think is making your hair grow so fast? What are your secrets?



    Congrats on finishing chemo!

  • rn4babies
    rn4babies Member Posts: 409
    edited June 2012

    I have been wearing the Chemobeanies.com  ruffled scarves every day. I now have 5 of them. I did notice that after a while, the first 2 I ordered, the ruffle wasn't laying quite right and I was paranoid that you could see through it and my scalp was showing. The 3 new ones lay beautifully, however. I contacted the company today and she explained to me that they are now using a longer ruffle to camoflouge the scalp and she was mailing out 2 new ones to replace the original, free of charge, today. She also is sending me a differant non-ruffled style to try. That is $75 worth of merchandise for free! I get many compliments on the Chemobeanies and 3 women at the treatment center asked me for the web address yesterday. The customer service is awesome! Normally when I place an order, they are in my mailbox within 3 days. From CA to PA!

  • JoanQuilts
    JoanQuilts Member Posts: 633
    edited June 2012

    Liefie - If I look very, very close to my head, it is starting to look a little bit "busy."  There may be some hair coming in, but if I told you it was .0000001 inch, I might even be exaggerating.  I am almost 6 weeks P%&$^ing chemo.

    At my check-up last week, my onc told me that he has administered Taxotere to thousands of women and only ONE did not get her hair back.  I think that is very encouraging.

  • liefie
    liefie Member Posts: 2,440
    edited June 2012

    Jpmomof3 and Jen78, thank you so much for encouraging me. I should really just stop beating myself up over this, because it will just take its own time no matter what I do. Stressing and worrying about it is not going to accelerate it. So I must just get myself together, and stop being so anxious. It's not good for me. I will try to relax, and just let it take its course.

    Normally I am pretty laid back and casual about most things. Part of my angst stems from the fact that I never told my mom about my cancer. She lives far away in another country which makes it easy for me to hide it from her. She is fighting her own battle with a slow growing brain tumour that has already taken her independence and mobility from her. I do not want to deliver another cruel blow to her. She's old, and has been through enough. However, I'm going to visit in December, and it will be hard to hide it from her if I have no hair. She may notice if I wear a wig - she quickly picks up on things like that. I am her child after all. 

    JoanQuilts, I'm so glad that you are seeing some progress. I sincerely wish you lots of hair soon!

  • jpmomof3
    jpmomof3 Member Posts: 643
    edited June 2012

    Whatashocker, I did 4 dose dense rounds of AC and my hair started falling out at 3 weeks after the first treatment.  I buzzed it and lost a huge amount of the stubbles the first week and then stabilized at about 90+ percent bald.  I just finished taxol, but my MO said that a lot of people (but certainly not all) start getting their hair back while on the taxol.  At about my 7-8th taxol week i started noticing the white baby soft fuzzies and it has slowly grown in the last 5 weeks.  it is still baby soft but at least getting some color to it. 

    I honestly didnt do anything during chemo to promote hair growth.  My leg hair kept growing even on chemo, but lost it in the pits and nether regions (cool!)  Last week I started taking the skin hair and nail vitamins from costco. Now that I have a bit of hair I am using some gentle shampoo and conditioner.  I like the Revita my husband was using the best. I also tried Nioxin and liked it too. 

    Different chemo affects the hair differently and everyone recovers at their own pace.  We will all get our hair back.  It just doesnt happen fast enough though.  I was not as disturbed as I thought i would be to have it fall out once I accepted that it had to happen.  but now that I am getting it back, I am getting impatient to have it really come back.  I think I will celebrate more the day I go topless than any other milestone during this BC process.

  • Whatashocker3
    Whatashocker3 Member Posts: 209
    edited June 2012

    Jpmomof3, is the Revita a growth stimulator?

  • JoanQuilts
    JoanQuilts Member Posts: 633
    edited June 2012

    Liefie - you should SURELY have a nice head of hair by the time you see your mom in December!

    This is my second bout with cancer. The first time, I had my final chemo in late June and had chucked my wig by the following February.  HOWEVER, I waited a long time to go wigless and had a full head of hair by then.  I could have gone wigless much sooner.  As I will THIS time!

  • jpmomof3
    jpmomof3 Member Posts: 643
    edited June 2012

    According to the bottle it says it is for regrowth but it doesnt actually have a medication in it like minoxidil.  It says it has some type of cellular ingredient to promote growth.  it is fairly expensive though nothing like Ovation or Thymuskin.  I am rather skeptical of any of these products that cost hundreds of dollars for 200mls.  Some of these companies make big claims but I fear they are taking advantage of people in desperate situations.  I think having a high quality gentle shampoo and conditioner is all we really need, plus vitamins cant hurt when taken in the recommended dosages.  It will grow back.  Minoxidil is the only treatment over the counter that is a real medication to grow hair but I would ask your dermatologist or MO before using that stuff.

  • jpmomof3
    jpmomof3 Member Posts: 643
    edited June 2012

    Otherwise I can say that I like the smell of the Revita and like the way it makes my little bitty baby hairs feel!

  • liefie
    liefie Member Posts: 2,440
    edited June 2012

    Thanks, JoanQuilts! I am going to believe you 100%, and hang onto that.

  • schatzi14
    schatzi14 Member Posts: 1,647
    edited June 2012

    Some of us just used shampoo as before and it came back the same as someone using products. I believe in letting nature take her course (unless there is a medical problem)...I am sick of anything chemical or from a Pharmacy these days!

    Other than hair colour, I never did use any hair products...just too lazy I guess.

  • Eileenohio
    Eileenohio Member Posts: 460
    edited June 2012

    Schatzi, My MO told me to use baby shampoo and then condition my scalp with regular conditioner,she said there is nothing that will help hair grow faster..  I am four weeks PFC and do not see any growth,however I do feel some some stuble when I shampoo.. I think you are right about nature...I am so impatient, just wish that I would begin to see some growth..

  • ksmatthews
    ksmatthews Member Posts: 812
    edited June 2012

    Ossa I have really curly hair in the back and the top and sides are straight.  I could actually pull the sides back today!  I will post a pic later.  I was so happy!!!!

  • schatzi14
    schatzi14 Member Posts: 1,647
    edited June 2012

    Eileen...I am super impatient too but once I saw some growth, I didn't freak as much. I still pet my head like it is a kitten cause I looooove the feel and having hair.

    The first time I went "topless" was one of the happiest days of my life....jeez how I hated that wig!

  • ksmatthews
    ksmatthews Member Posts: 812
    edited June 2012

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