tumor near chest wall - radiation after mastectomy?

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I'm a little slow taking in information. My onc keeps telling me to set up a consult with the RO to see if I need radiation. I decided this week to go ahead and get a mastectomy (already had a lumpectomy but the margins were not clear; then had chemo). I mentioned to the surgeon that I guess that means I don't need to see the RO. He said that my tumor may have been near enough to the chest wall to require radiation. !?! And now I am reading that radiation can make reconstruction tricky. I am really upset by this. How close to the chest wall is close enough to need radiation? I guess I will call Monday and make the consult appointment with the RO but I feel really angry right now. It was hard to make the decision to get a mastectomy (which every doctor I've seen has preferred for me) and a part of what made that decision a little bit easier for me was that I would not have to do radiation. If the tumor is that close to the chest wall, does radiation even make that much of a difference in regard to reoccurance and survival rate?

Comments

  • kestrelgurl
    kestrelgurl Member Posts: 266
    edited June 2012

    I can't answer your technical questions, but did have radiation after BMX. Because my tumor was on the chest wall, I was not offered any options. I did not have to do chemo, though. Will be seeing PS on Tues to learn about recon options.....if any.

  • christina0001
    christina0001 Member Posts: 1,491
    edited June 2012

    Kestrelgurl, I would love to hear what recon options your PS offers...if you are willing to share, please post or send me a PM. I am so stressed over this.

  • sbelizabeth
    sbelizabeth Member Posts: 2,889
    edited June 2012

    Hi, Christina.  My tumor wasn't near the chest wall, but it had acted pretty aggressive, so I had chemo, a mastectomy, and now I'm in the middle of radiation.  I am planning a DIEP reconstruction, along with a prophyllactic mastectomy on the healthy breast, six months after radiation is finished.  If you google "reconstruction after radiation" there are lots of photos of women who have gone this route.  It's perfectly acceptable.  

    Radiation is there for clean-up of whatever cancer cells might have "strayed" from the original tumor and might be lurking somewhere.  For my own decisions, I wanted to do absolutely everything I could to wipe out this nastiness.  A friend said, "The chemo killed all the lice.  Now the radiation will kill all the nits."  

    Go see your RO, and find a plastic surgeon who regularly works with breast cancer patients.  If you want to PM me, please feel free! 

  • ro-berta
    ro-berta Member Posts: 134
    edited June 2012

    Hi girl ,  My tumor is also close to my chest wall. I am schedualed for rads after my next lump. I don,t know how long i have to wait after but my doc said as soon as possible. This i am nervous about. i figure after i meet with onc. i will decide whether i feel comfortable going through with it or not. It was explained or i understood it was better for me to have rads after in case there was still some of those little buggers still floating around ( cells) So much info to absorb and i am usually one step behind hahaha.

  • kestrelgurl
    kestrelgurl Member Posts: 266
    edited June 2012

    Will do, Christina. :-)

  • sjohn724
    sjohn724 Member Posts: 4
    edited June 2012

    Hi Christina,

    I had a bilateral mastectomy, had tissue expanders placed and just finished radiation last month because the cancer was close to my chest wall also.  My plastic surgeon did all my fills before I started radiation.  So far, my skin seems to be healing up pretty well.  My plastic surgeon says I will have to wait for at least 3 months before I can have the tissue expanders out and the implants put in.   

  • kestrelgurl
    kestrelgurl Member Posts: 266
    edited June 2012

    christina,

    I just got home from my PS consult and I am super excited by what I learned! I actually have an option that is palatable to me.

    I have really been having trouble getting my head around the lat flap surgery which a friend's PS told me would be my only option. I just couldn't see cutting into perfectly healthy tissue and nerves to build a boob. However, the PS told me about recent findings on how fat grafting can help improve the condition of irradiated tissue and suggested that my chances of success going with fat injections --> tissue expanders --> implants were 80-90%. Yes, it will be a fairly drawn out process with 2-3 injections over the course of 6-9 months, followed by TE's and then an exchange. But I am happy to put the time in on the front end in order to leave my lat where it belongs and un-concave my chest!

    I am scheduled for the initial fat graft the end of July and am very surprised at how happy I am (not a girly girl or pink ribbon fan).

    Feel free to pm if you want to discuss further. Smile

  • christina0001
    christina0001 Member Posts: 1,491
    edited June 2012

    Thanks for the post, kestrelgurl - and everyone else. It really helps. This is all really overwhelming at times.

  • dlb823
    dlb823 Member Posts: 9,430
    edited June 2012

    christina, if you go to the information side of BCO and click the Diagnosis & Treatment section, there's information about margins. I'll try to give you a link to that page:  http://www.breastcancer.org/symptoms/diagnosis/margins.jsp  Otherwise, just use the search feature in that part of BCO's website.

    I had an unspecified margin for one of my lesions, and that was one of two reasons I had RT after a mx.  In other words, although the lesion was very tiny, it wasn't discovered until pathology in a bit of trimmed tissue that hadn't been inked.  But I had also been told from the get-go that I would probably need RT because of a positive node with extracapsular extension.  So for that reason, I was strongly encouraged to go with DIEP recon, which worked out great for both the RT and as recon I'm totally happy with now.  

    So sorry you're dealing with all this.  I also started out with a lumpectomy, so I know how devastating it can be to have to wrap your head around needing more surgery, especially a mx, and then trying to figure out what kind of recon will be best.  All I can suggest is that -- unless you're already being treated at a major comprehensive cancer center -- that you talk to more than one PS -- preferably one at one of those major centers -- because many others tend to offer you what they know -- not necessarily what's new and/or best for your overall situation.     Deanna 

  • Butterflylady2012
    Butterflylady2012 Member Posts: 187
    edited June 2012

    Christina, I will be starting radiation in about 2 weeks after having a right-sided mastectomy for Invasive Lobular.  The reason?  Well, my RO said it's a combination 3 things.  One being that my tumor was also close to the chest wall, even with clear margins, because it was a very small clear margin.  My surgeon said he prefers about 2mm clear margin and mine was I think 1.3mm.  So, yes, pretty small.  The second being the size of my tumor which was 3 cm.  Finally, my relatively young age...I am 43. The RO said separately these might not be as strong, but together it makes my risk of local recurrence approximately 40%.  After radiation, it should bring it down to about 10%.  That to me said it right there. I have my simulation next week. 

    I'm so sorry you are dealing with all of this and having to make these decisions.  Believe me, I know it's no fun!  Hang in there and you are in the best place, this site is wonderful, the women are wonderful and you will get a lot of support and information here.  Let us know what you decide and we are here for you.  

  • Butterflylady2012
    Butterflylady2012 Member Posts: 187
    edited June 2012

    Just wanted to add another note Christina...I had my last expansion on my right side this week.  My PS added a bit more saliene, because he said that I will have some retraction and maybe some scarring. I'm not sure if this is a general feeling with surgeons, but that is what mine said.  I'm going to deal with that when I come to it...I need the radiation, so I'm just plugging ahead. 

  • christina0001
    christina0001 Member Posts: 1,491
    edited June 2012

    Thanks dlb and butterflylady. Dlb I am pretty sure I will have to go for 2-3 different consults for reconstruction. The information and options seem really overwhelming and women here have had such a variety of results. It's a little scary.

    I looked over my surgical report again today and I can't say for sure I'm understanding it 100% but it seems like the surgeon went down to the muscle when he took the tumor out and got no clear margins. Makes me sick to my stomach.

  • lbarbados
    lbarbados Member Posts: 152
    edited July 2012

    Hi there,

    Sorry you have to deal with this...I know how the worry can tear you up inside, as the same thing happened to me.  I had a small DCIS lesion that was very close to the chest wall and opted for a unilateral MX.  I was told that radiation was a possiblility, but because my margins were clean it wasn't warranted.  From what I understand clean margins are really important, and unfortunately you won't know what your margins are until the final pathology report.

     See what the radiation oncologist says, write down all of your quesions, and don't be afraid to get a second opinion if you are unhappy or unclear.

    Best wishes... 

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