April 2012 Chemo Starters?

JR:  Go to the April/May cheo starts group.  There have been several women that have been in yor situation.  YOu might want to PM them.

I have a call in to on-call onc. See what they say. Dont like this feeling of blah and no energy. Not like me at all!

Will keep you informed...

JRyan:  Let us know what the doc says.

SinginCyndi:  I feel exactly the same way you do.  Excited it's the last round, but dreading the S/E's.  It's a mixed bag of emotions. 

And all I want to do is eat icecream.

I had a reaction twice with Taxol now I'm getting Abraxane. I got neuropathy, in my head, fingers, feet, arms, everywhere!!!!

I just read about the neurontin, very scary......but I hope it helps and the neuropathy those not get any worse...I was fine all day, but now my head and my fingers feel wired.



Did you have any SE from the neurontin?



Hope you feel better!

I had very sharp and short (like a second) headaches. I have no more tingling so far since i take the drug just some shooting pain in my hands. I'm sorry it is so bad for you. I hope the meds help soon!!! I think Taxane is the devil too!!



8 more weekly chmos and then surgery.

kjiberty....that's wonderful news.   I hope the rest of your treatment plan goes well.  I don't feel like anything could be worse than the chemo.

please come back and let us know how you are doing.

I was taking neurontin for the neuropothy but it was making me so weak, short of breath and totally fatigued that when I called and told them how it was affecting me the took me off it.  I don't think I can go take the Neulasta on Friday feeling this weak.

thursday is No. 7 for me and I will only have one more on July 19.......yeah......

Hi Ladies,

Sorry I haven't checked in in so long.  AC #3 about knocked me out.  Amazingly #4 wasn't as bad and I am SO GLAD to be done with AC.  Start the final 4 rounds of Taxoterre next Thursday.  Onc says he doesn't think I will have as much trouble with Taxoterre and I do hope he is right.  School starts Aug. 6 and I really really want to go back to work.  I tried to go back after my first round of AC and just couldn't do it.  Biggest obstacle will be the heat.  I know everyone all over the country is suffering from the high temps, but I think for us it's worse.  The hot flashes continue to be terrible (although I sleep through the night now that I am on better anxiety meds).  Still, I'll be walking around a big school, outside to portables and it's unbearably hot and humid in Louisiana in August clear through early October.  Just will have to stay maximally hydrated and take it slow. Congrats to all of you who are finishing up your chemo.  I am SO SO HAPPY for you and proud of you for hanging in there and being strong.  May we continue to support and inspire one another!

Cyndi:  So sorry to hear that.  I am two weeks PFC as of today and still tired.  Go to my RO today.  I have been taking B6 since I started chemo.  

JRyan:  Congrats.  Wishing you minimal S/E's over the next few days.

Hi Everyone.  Been a little quiet on here lately.  Hoping everyone is doing well, dealing with minimal SE's.

The last tx kicked my butt. Took me almost twice as long to get on my feet. But I am back on my feet!  Now I am ready to start my trip back to normal.  Has anyone seen anything on hair regrowth? I am wondering how long it's going to take to start seeing some hair.

I go next week for just Herceptin. Wondering what kind of SE's I will experience there.

JRyan: I finished chemo a day before kjiberty and my hair is coming back too but it's thin and I measured mine yesterday it's about a quarter of an inch. Arm, face, and leg hairs are back seems I've lost a few more eyebrows but I'm not too worried about that. I too have dark with gray and white but it looks like its changing color to what I have no idea. I'm down to 4 more radiations!

Well, I'm finished with chemo and have seven more radiation treatments. I had some SE during chemo, but it was doable. I had a few days after each treatment where I was hurting and miserable, but even that in retrospect wasn't that awful. I feel very thankful for all the support my family has given me. I haven't posted very often, but I was checking in on my 'sisters' and feel for everyone on this site.

Now, with 7 of 33 radiation treatments left, I am really excited. The 'sunburn' isn't much fun, but ... it's doable.

 Keep the faith, and thank you from the bottom of my heart.

 Diane

Hi Ladies,

I hope this finds you all well and managing the forwards steps with ease and good health.

I wanted to check in to see how everyone was doing and to get updates on where everyone is in their fight.

I am getting ready for my exchange surgery on 10/22.  They are taking my ovaries at the same time. I had a hysterectomy several years ago and they left my ovaries then cuz I was young. I get a little anxious at times thinking they may find something bad on them, but trying to stay positive and relaxed.

Still waiting for my hair to grow. It has grown a little, but SO slow. Thinking maybe the Herceptin is keeping it from growing at full speed.  But everything else seems to be getting along and mending pretty well.

I get really frustrated with well-meaning people who say "So you're all done. You must be all better now."  How do you guys react to that?  I really want to go on a rant about how I may not be done, and I'm not all better, but feeling better today...  The mental part of dealing with this whole thing has really taken hold since the tx ended. I find myself down in the dumps a lot and dealing with a bit of anger too. Hoping time will bring "me" back, although I have a feeling that "me" will never be the same...

Happy to have a venting place