March 2012 chemo

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  • onvacation
    onvacation Member Posts: 1,344
    edited June 2012

    woohoo TrailGirl!  Always nice to hear good news!

  • MichelleMassey
    MichelleMassey Member Posts: 213
    edited June 2012

    Trail-awesome news! Makes all this stuff worth it!

  • Januaryice
    Januaryice Member Posts: 120
    edited June 2012

    Lostinmo- good luck today!!!! Number three will be done and only one to go!!!!!



    I had number three on Wednesday and thank goodness no instant reaction. I'm just on my usual routine. Wednesday feel loopy from all the meds and then start the steriods high. Work and talk like a mad woman. Go in for my shot Thursday PM and start to crash. Oh, and lots of chemo brain today.

    I have already lost all my taste buds and that bad indigestion has started. Slight numbness in the toes. If the same routine the real numbness and aches will wait another day and then seem to last forever! What a pain but at least I only have one to go and just need to get though the rest of this phase of the journey. I think this has to be the roughest part.



    I wish all you special ladies the best today and as always thanks for all the support!!!

  • Januaryice
    Januaryice Member Posts: 120
    edited June 2012

    Trailgirl- love hearing that news!!!! I guess this stuff does work. We go in for each treatment, suffer through them and always wonder is it really working.

    You have given us some hope!

  • lostinmo
    lostinmo Member Posts: 922
    edited June 2012

    TrailGirl-great news! So glad you got positive results!

    Januaryice-Thanks. I will on my way soon about 5:30. UUggg on the time, I'm not a morning person. 

  • lanagraves
    lanagraves Member Posts: 596
    edited June 2012

    Good morning everybody! Yay on the good news TG and westwoodmom! My SEs from Taxol #3 seem to have finally gone away. Just in time for the weekend - woohoo! Hope everyone is having a good day.

  • QuinnCat
    QuinnCat Member Posts: 3,456
    edited June 2012

    xxxox to all.  My neuropathy has slightly improved..20%?  Still not a good thing, but it isn't possessing my mind like it did a few days ago.  I hope all are having relief from their last tx, or going into their next tx, will not have it bad. I do read all of the posts, and i keep meaning to set up a spreadsheet of who what, as frankly, I'm not so good at keeping track of this much!!  I think it is important for us to talk about our SEs and see what to expect as that might give someone else hope when they reach that point in their treatment plan.  I do believe I've learned so much more here than I have from my MO, which is a sad commentary on how BC patients can be treated.  Part of this is that doctor's don't necessarily feel like they need to teach you everything they learned in school or while practicing medicine, but some of us are curious and want to know what to expect - I know I do.  We're not trying to be doctors, we're just trying to get through this disease with the best options and in the most positive way. 

  • Sissydi
    Sissydi Member Posts: 516
    edited June 2012

    Just checking in.....Taxol #5 is kicking my butt! Day 3 and I'm so sleepy, I just can't get enough rest. Also pretty weak......yuck! Trying to walk at least daily, just to fight it. Still so thankful its not like A/C was. I am reveling in my five o'clock shadow on my head though! So, so happy to see some hair.....small positives ladies! Still watching for neuropathy ....hoping I will escape that beast, still holding my breath!

  • Sissydi
    Sissydi Member Posts: 516
    edited June 2012

    Kam, agree with you on learning more here than from MO!

  • IndigoMont11
    IndigoMont11 Member Posts: 1,095
    edited June 2012

    Kam, so well said.  My MO has been pretty supportive of anything I wanted to try, like icing my nails, but I'm pretty sure he wouldn't have been able to tell me how to do it. 

    Sissydi, good to hear from you!  Are you at least halfway through the Taxol?  Hope so.

  • Sissydi
    Sissydi Member Posts: 516
    edited June 2012

    Yes! Halfway through next week!

  • lostinmo
    lostinmo Member Posts: 922
    edited June 2012

    Well #7 is out of the way, just have to survive the SE's. My MO mearures the tumor each time I go and it didn't change on the last round, but the lymph node he could feel has gotten smaller. So that't one positive I guess. I will just have to stay positive that 7 will do more good.

    lanagraves-glad you're feeing better for the weekend

    Kam-slow and steady for the neuropathy, it will keep getting better.

    Asked my MO if my port will be taken out when I get surgery, he said probably not. And then said we will talk about it. He is just not cooperating with me! I don't know why they would leave it in and I sould have to have it flushed every 4-5 weeks from what I understand. That will prevent me from traveling! 

  • stephib
    stephib Member Posts: 10
    edited June 2012

    Well, I had my after chemo PET scan and unfortunately I have a new very small spot in the hilar region of my lung.  A contrast CT scan and then maybe biopsy are the next steps.  I had a spot on my lung prior to chemo that we biopsied and it was not cancer, so hoping and praying for the same thing here.  It blows my mind that this could of spread during chemo.  I'm trying to stay positive, but wow is the waiting rough.  Hope everyone else is having great days!

  • IndigoMont11
    IndigoMont11 Member Posts: 1,095
    edited June 2012

    Stephib, hoping and praying for you too, and oh - there is nothing worse than the waiting!  Holding your hand through it!

  • MichelleMassey
    MichelleMassey Member Posts: 213
    edited June 2012

    Sissi-you and I are still on the same schedule. 5 really made me tired this round. I have a peach fuzz that you can only see in the light since its coming in gray.



    My funny for the day. My son walked up to me and said "show me your money makers". I pretended that I was going to lift my shirt and show him my boobs. He says "no mom,those are your money takers now!"

  • shera
    shera Member Posts: 184
    edited June 2012

    Happy Summer to my fellow-Marchers!

    I'm checking in after a few weeks away... I completed the TCx4 regiment on May 2nd so life has gotten busy outside of dealing with "c"... which has been a great relief for me (to think about other things!!)



    My heart goes out to you AC-T gals (and guys if there are any here). TC kicked my ass... but its been 7 weeks and 4 days since my last tx and life is good! Hair is almost covering my skull skin enough to go topless all the time... I go topless a lot but not in public too much. my boyfriend d says in a few more weeks it will look intentional. still looks like a product of "c".



    I believe my hair is growing pretty fast from what I've read. I sit in the sun without hat as much as possible, I'm take yoga -- the exercise could be stimulating growth, I take biotin, vit E, D, and a multi from my naturopath. I wash with Nioxin kit #3, and evenings I alternate applying topical vit E and vinegar rinses.



    My energy level is better than it was in the year leading up to diagnosis! I had suspected something was "wrong" and had been trying to fix my energy levels for the past 2 years but it kept getting worse.. I had a hard time getting out of bed... I now believe its because my body was fighting the tumors because I feel like my old energetic self again!



    I'm also taking 3xs daily a tincture that detoxes at cellular level - given to me from naturopath. don't recall name rights now.. but can post those details if anyones interested.



    AND a friend/energy worker did some energy work on me... and I gotta tell ya... whether its a coincidence or not.. that's when my energy spiked back up to my old self. So I plan to continue seeing her!



    Ive been on Tamoxifen for about 20 days... and haven't felt any obvious symptoms. Im not sleeping as well as usual.... could be the hot flashes. I bought a " chillow" and highly reccomend it! Its a thin "pillow" that somehow stays cooler than your head. its non-toxic and doesn't smell or bother asthma. I love it! not expensive either. google chillow if inerested!



    Other post-chemo things you may or may not share with me.... my nails from the TC have waves in them.. a couple have dark streaks under them... my thumbnails look strange... I'm waiting for the waves and dark areas to grow out.. but so far they are not improved. But no pain... the little nueropathy I had is gone.

    What I call the "chemo-ache" seems to be gone now... that took about 4 weeks.. I think yoga helped (taking 90 min classes of hot yoga 2 times a week and vinyasa yoga 1 time a week....its pretty intense and challenging.but during hot yoga I'm dripping with sweat which is good.... I want to sweat toxins out)



    my eyes! I didn't lose my brows during chemo but

    they've gotton thinner since! Still got em tho. My

    lashes got thinner during chemo... they are still thin

    and seem to be hanging on. my eyes water a lot... not

    sure if its from have so few lashes or what. drives me

    crazy sometimes... but I expect it will go away in time.

    Im deliberating about whether to try that Latisse stuff that is suppose to grow lashes. Any of you using it????



    Im moving this weekend... just dropped in to share what 7weeks out is like for me... and hoping your last txs are easy. 3rd treatment was the worst one for me.... but last/4th was the easiest!



    Sending love out to you all and hope you're soon posting how good you feel post-chemo.

    -shera





  • shera
    shera Member Posts: 184
    edited June 2012

    when I say my hair is almost covering my skull skin... I mean its almost thick and dark enough to look intentional. Its between an 8th and a quarter-inch long right now... if it were thicker I could go without hat all the time... so im waiting for it to either fill-in more or get long enough... whichever happens first.



    will post pict once settled in new apartment!

  • IndigoMont11
    IndigoMont11 Member Posts: 1,095
    edited June 2012

    Hi Shera! So great to hear from you! Glad you are moving on snd doing well. I really am thinking about taking yoga but don't really know what classes to take during chemo. But I feel like I'm turning into a marshmallow and walking at the pace I am probably won't help as much as I'd like.



    I have lost most of my brows and lashes (camouflaging with makeup). I might try latisse or something like it after chemo.



    After 4 A/C treatments I have not needed any neupogen or neulasta. Still glad I am taking the Marrow Plus.



    All the best!

  • KCB
    KCB Member Posts: 365
    edited June 2012

    Shera: so good to hear from you from the other side of chemo. No rads for you?

    I am interested in anything you want to share about stuff from the naturopath, I am hoping to hook up with one when I'm through the chemo (1 more).

    Exciting about the hair! So curious how it's different for all of us: mine had never yet been 100% gone... I do look bald but have the#1 fuzz sparsely planted over top! Very sparsely.

    Also interested in your general energy. My dh seemed to comment alot in the years before BC that I was tired all the time, and I have also now wondered whether that was my body fighting an invader...

    Wishing a good Saturday to all

  • MichelleMassey
    MichelleMassey Member Posts: 213
    edited June 2012

    Sissi-you and I are still on the same schedule. 5 really made me tired this round. I have a peach fuzz that you can only see in the light since its coming in gray.



    My funny for the day. My son walked up to me and said "show me your money makers". I pretended that I was going to lift my shirt and show him my boobs. He says "no mom,those are your money takers now!"

  • IndigoMont11
    IndigoMont11 Member Posts: 1,095
    edited June 2012

    Michelle - so true.  I still can't believe my after-insurance bill for my prosthetics will be around $300.  I think my sons would just about pass out if I pretended to raise my shirt, lol.

  • KCB
    KCB Member Posts: 365
    edited June 2012

    Just thought I'd start the day off here: happy Sunday to all. Quiet here, muggy but not too sunny, so bearable.

    Mouth feeling gross. Bones somewhat achey. Very foggy and tired, but not unmanageable.

    Smoothie: frozen banana, 2tbsp peanut butter, 1tbsp honey, and milk or CHOCOLATE milk. Oh so good. Nice on a mossy mouth, bit of protein, bit of flavour. Oh yes.

  • IndigoMont11
    IndigoMont11 Member Posts: 1,095
    edited June 2012

    Hi KCB! I am crashing today and nothing much sounds good - except chocolate! Just might try that.

  • KCB
    KCB Member Posts: 365
    edited June 2012

    Indigomont: enjoy!! I have crashed as well...I find getting water down to be pretty hard, and thicker things like milk or smoothies are much easier to manage...also i find pudding and yogurt are good and easy as well...hope we feel better soon.

  • TrailGirl
    TrailGirl Member Posts: 46
    edited June 2012

    KCB & Indigo... Hope you feel better soon!



    I had a good day. My niece came from Idaho to visit various family members and stopped by for a 3 hour visit. I had really good energy and talked more than I have in 3 months. As soon as they left I was exhausted!!! But it's a good exhausted.



    We just ordered cupcakes from the best bakery in town to take to the infusion center for my last chemo on Tuesday!

  • lostinmo
    lostinmo Member Posts: 922
    edited June 2012

    Good Monday to everyone!  Hope everyone that was feeling bad is feeling better.

    I for one am wondering if I will ever sleep all night again without wanting to sleep in a walk in cooler. So far the pain has kept at a minimum  Couldn't stand not doing anything fun so went to the creek yesterday. I didn't swim though just sat in the shade. DH got sunburned which did not improve my night sweats. Only stayed a few hours and drank lots of water as it was over 100 degrees out. Came home ate pizza and DH annd I both fell asleep.

    TrailGirl glad you enjoyed your visit with your niece. Congrats on almost being done! Cupcakes sound yummy. I went and looked at your photos and artwork. Beautiful, makes me wish I had some walls to hang pictures on.

  • Januaryice
    Januaryice Member Posts: 120
    edited June 2012

    Trail girl - wow, how exciting to finally get to the end of this phase. The best of luck to you and please keep us up to date as how you are doing. My hope for you is no SEs at all!!

    Lostinmo - sounds like you are doing much better than me. Tx was on Wed and those aches and pains hit on Sat and I still have them. Mine seem to be worst than number two but not as bad as the first ones. Just can't wait to go on the 5th for my last one!!!!!!



    Did anyone else bring anything for their last visit? Open for suggestions....



    Wishing everyone a great day!!!!!!!

  • lanagraves
    lanagraves Member Posts: 596
    edited June 2012

    Good morning everybody! Hope everyone had a good weekend. Finally finished my research proposal this weekend and work has slowed down a little so I can breathe for a bit now. Last chemo this Thursday - WOOHOO!!!! Then I have a break before radiation. I'm ready to start celebrating NOW!

  • kltb04
    kltb04 Member Posts: 1,051
    edited June 2012

    Uggghhhhhh...I was about halfway through typing out responses to everyone and just lost it all when I clicked on the wrong tab.  Suffice it to say, I have been reading/keeping up the last few days but I have been in a funky place mentally and so I haven't been posting.  Let me just quickly say that I hope everyone is feeling ok and steph, I am SO sorry you are having to deal with more worries - please keep us posted.  And Shera it is good to see you :) 

    Trying to make it a better week...

  • TrailGirl
    TrailGirl Member Posts: 46
    edited June 2012

    lost... Thanks for the compliment on my website! I just created a 20% off code for all the Marchers...enter Marchers2012 at checkout!

    I'm so excited to be done with chemo tomorrow that I have to remind myself that I will not "suddenly" feel like normal. I'll still be tired, my knees will still hurt and I'm sure to have the usual SE's. But at least it will be the LAST time! 

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