Anybody have a mastectomy scheduled for LCIS?

shabby6485
shabby6485 Member Posts: 679

Hi to all,

I am scheduled for a pbmx due to LCIS on Aug 13 at NYU.  I was wondering if anyone else is proceeding with the surgery.  Hoping to connect with others... 

«1

Comments

  • Jennifferm
    Jennifferm Member Posts: 33
    edited June 2012

    Hi Shabby, I am almost 4 weeks out from BMX. I am in the TE phase and although I've had some difficulties I still would choose the same thing. I had SNB as well and all nodes were clear. The pathology on the right breast showed LCIS as well (initially only found on

    Left breast) and my BS said he thinks I dodged a bullet by choosing PBMX.

  • JanetM
    JanetM Member Posts: 336
    edited June 2012

    I have a 6 month follow up mammo, ultrasound and appointment with my BS tomorrow.  Depending on what the mammo and ultrasound show I will seriously be considering PBMX. 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited June 2012

    Janet-----praying you get only good clear results tomorrow !

    anne 

  • loriio
    loriio Member Posts: 247
    edited June 2012

    I'm scheduled for a week from today, June 26th. I did find out that based on my MRI I don't have to a SNB which is a huge relief.

  • shabby6485
    shabby6485 Member Posts: 679
    edited June 2012

    Thank you guys and best of luck to those who have surgeries upcoming!!

  • skipper12
    skipper12 Member Posts: 6
    edited June 2012

    I am scheduled to see my BS today to discuss PBM after 3 years of high surveillance.  Each time LCIS has shown up in left breast, in new locations (although all are in the 12 to 3 o'clock quadrant). I have had 2 lumpectomies since 2009 and in March 2012 had 3 biopsies done and all showed LCIS.  Opted not to have another lumpectomy as my breast is getting much smaller in size compared to my right. Am still fearful to make this big decision of surgery but have an inkling something is lurking in the right breast so just may go ahead and do the PBM to get this over with.  Good luck everyone - Skipper

  • BonnieBee
    BonnieBee Member Posts: 26
    edited June 2012

    I had a PMX and when the BS went over the pathogy the LCIS made him say that I had made the right call.

  • shabby6485
    shabby6485 Member Posts: 679
    edited June 2012

    Thinking of you, Loriio!

  • loriio
    loriio Member Posts: 247
    edited July 2012

    Thanks Shabby. Slowly starting to feel human again.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2012

    lorio---hope all went well and you're on the road to recovery now.

    anne 

  • shabby6485
    shabby6485 Member Posts: 679
    edited July 2012

    Hi lorrio.... thinking about you.  When you feel up to it, I'd love to hear how things went as mine is rapidly approaching on aug 14!!! 

  • loriio
    loriio Member Posts: 247
    edited July 2012

    Hi Shabby. Just got my pathology this morning and they found a micro invasion of ILC on my left side. Ill meet with the MO on the 16th but hopefully it's so small I won't need additional treatment.

  • shabby6485
    shabby6485 Member Posts: 679
    edited July 2012

    Loriio, Thank goodness you went the pbmx route!  I will be thinking about you.  By the way, how was your LCIS diagnosed?  Needle or excisional biopsy?

    Hoping this is just a small bleep on the screen... 

  • loriio
    loriio Member Posts: 247
    edited July 2012

    Calcifications were found on a routine mammogram. I had a stereotactic biopsy that diagnosed the LCIS. I had an excisional biopsy that confirmed the LCIS that didn't have clean margins. I had an MRI 2 weeks before the surgery that didn't alert them to anything additional so I didn't have a SNB. The micro invasion is so small, she doesn't think it's spread to the nodes so doesn't want to do more surgery.

  • beacon800
    beacon800 Member Posts: 922
    edited July 2012

    Loriio, wow!  What an outcome.  Did you make a great choice to go ahead with BMX!  So happy they caught that little ILC and nipped it right in the bud! 

    I know it is very scary to find the ILC and must have been quite a blow.  However, it is really great that you got rid of it.  So glad that it is super small and now OUT of your body.

    Will you now be taking any hormonal meds?  That might be something to consider. 

  • loriio
    loriio Member Posts: 247
    edited July 2012

    Beacon-I suspect that tamoxifen might be in my future. The BS felt strongly that the cancer was so small that the nodes wouldn't have been affected yet. And nothing showed up on MRI the week before the surgery. I absolutely love the MO that I am seeing. He helped push me toward the BMX (which I am so happy I did) and he has treated several people I know and everyone absolutely loves him. I will trust his judgement on the next step.

  • beacon800
    beacon800 Member Posts: 922
    edited July 2012

    One of my questions prior to surgery was, "what if we find something small, like 2mm invasive, that the MRI didn't see?"  My surgeon felt that if such were the case he would not go back to do aux node dissection and we would take hormonal treatment and that would be the end of it.

    My friend had a lumpectomy for ADH and they unexpectedly found 2mm invasive ductal.  Clean margins.  They did the sentinel, which was clean, radiation and she takes hormonals.  If she had MX, they would not have done radiation, just hormonals.  So it sounds like you are in the same camp.

  • shabby6485
    shabby6485 Member Posts: 679
    edited July 2012
    Oh, Beacon.  That makes me feel better. My biggest fear with this surgery is that something is lurking in there and then what?? I opted out of the nodes. Actually my surgeon doesn't do nodes for pmx.  I haven't had an MRI in like 3 years.  just constant mammos.  Hoping Lorrio doesn't need further treatment.  I have this scary image of me having to lose my breasts and than having to having chemo, ect after all!!!Frown
  • loriio
    loriio Member Posts: 247
    edited July 2012

    Turns out my micro invasion was only 1mm. My MO believes the risk of the tamoxifen is greater than the benefit. I am in fairly good shape and I will continue with strength training once I am physically able. My MO also is referring me to a nutritionist for estrogen inhibiting foods. My DH and I feel good about it. I was actually relieved that my MO was really opposed to it in my sutuation. However, if the area of ILC had been a higher grade or even 1/2cm bigger, he would have recommended the Tamoxifin.

  • susan201susan
    susan201susan Member Posts: 3
    edited July 2012

    Shabby,

    I am also scheduled Aug 13, 2012 for PBMX at Lankenau near Philadelphia. Wish you well with yours.

    DCIS 1.2MM, Lumpectomy 6/15, LCIS

    Susan

  • susan201susan
    susan201susan Member Posts: 3
    edited July 2012

    Shabby,

    If you have not found it already, check out breast reconstruction (one word).org website. It has some good information for preparing for your mastectomy.
    Susan
  • SimplyAudrey
    SimplyAudrey Member Posts: 242
    edited August 2012

    Shabby,

    I hope when you read this a relative smile is on your face and relief has washed over you.  Thoughts and prayers all day for you today!

    And for you too Susan!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2012

    shabby---hope everything went smoothly today and that your recovery goes well.

    anne 

  • Crescent5
    Crescent5 Member Posts: 442
    edited August 2012

    Thinking of you Sahbby & hoping this ordeal is now behind you.

  • SimplyAudrey
    SimplyAudrey Member Posts: 242
    edited August 2012

    Shabby's been posting in another thread.  Sounds like all went well.  I'm going to PM her so she posts here as well!

  • susan201susan
    susan201susan Member Posts: 3
    edited August 2012

    Thank you, Audrey. All went well with my surgery. Cancer is gone, no remnants. Lymph

    Nodes were clean. They did find LCIS in the other breast. I hope Shabby's surgery went well too. I am home recuperating-4 drains to go.

  • SimplyAudrey
    SimplyAudrey Member Posts: 242
    edited August 2012

    October 1st is my surgery date.  Actually looking forward to it.  I am SO tired of getting up at 4 am regardless of when I go to bed.  I know it's nothing more than anxiety - I did this during the 18 months my Mom was going through her lung cancer experience (trying to avoid the word Journey) and afterwards while dealing with arrangements, estate, and sibling drama.  It's been a bad trip on the zipper ride for the past two years.  Just for RIGHT NOW, I am OK.  That's what matters.

  • shabby6485
    shabby6485 Member Posts: 679
    edited August 2012

    Hi Ladies, I just wrote a super long update and as luck would have it my computer shut down and I lost it. First, let me say good luck to simplyaudrey.  Glad you are moving forward...

    Had a nipple sparing pbmx with tissue expanders done at NYU on aug 14. surgery was 4 hours long. everything went very well.  biopsy behind nipples was clear so i was able to keep my own nipples.  after surgery, i was in recovery for a few hours and felt pretty good.  I was only in the hospital one night which was great because I was able to recover in a NYC hospital for 4 nights which was quiet and nice.  First 3 days are rough. when i say rough, it is sore, tight and swollen.  once i got the meds right, i felt so much better.  for me only the percecet worked.  the valium did not do much. i am day 5, and am feeling tired but alot better.  I am actually getting my drains out on wednesday.  I should get my final pathology this week and I am a bit nervous for that.  

    This is such a personal choice.  LCIS is such an odd condition and it's makes this decision extra complicated. For me, it was a no brainer.  I never ONCE looked back.  I know I am lucky in that respect.  My decision was easy for me but it was long road to get there.  my mother had BC in her 30's. I have had 11 biopsies in 5 years and then LCIS. Once I was diagnosed with LCIS, I knew I was done and I was actually relieved.

    Please do not hesitate to ask questions.  I would love to help if I can.  So, right now, feeling good and no regrets. Best of luck to all of you! 

  • beacon800
    beacon800 Member Posts: 922
    edited August 2012

    So glad you are recovering well Shabby!  You sound so much less anxious.  Good to hear  you are post surgery and feeling better.  Hoping right along with you that your path report is excellent!

  • auntiems3
    auntiems3 Member Posts: 67
    edited August 2012

    Shabby, just wanted you to know I am thinking of you and praying for an extra good path. Glad to hear you say you are doing well!

Categories