Summer 2012 RADS HANG OUT

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  • Cavelsalb1
    Cavelsalb1 Member Posts: 5
    edited June 2012

    Thank you so much for your welcome.

  • Melrosemelrose
    Melrosemelrose Member Posts: 3,018
    edited June 2012
    Indigo- I never thought about the copays for the rads.   My bill for chemo is $13K every round.  Fortunately, the hospital and all of my doctors are in my insurance's network so there is discount as to what is actually paid.  I reached my max out of pocket in February so i just pay my portion for doctor visits.  You are so right how it will add up quickly if your rads are $40 evey time.
  • Stacie
    Stacie Member Posts: 607
    edited June 2012

    I already met my max OOP.

  • IndigoMont11
    IndigoMont11 Member Posts: 1,095
    edited June 2012

    Yeah, I have the High Option plan and don't have to meet a deductible except with dental.  It's always been fine before, but hmmm.  I'm looking at $200 a week for 6 weeks.... more expensive out of pocket than even my surgery was (my out of pocket for that was $100).  Liike I said, I'm glad I made a start at saving some money. 

    Although, I can't even imagine what the cost is without insurance!    

  • sandik
    sandik Member Posts: 482
    edited June 2012

    Crap! I never thought about deductibles for rads either. I've got $100 for every chemo session. $50 for the actual chemo and then $50 for the shot the next day. That wasn't too bad on dd, but taxol will be weekly. $400 a month. Ugh. If I can't keep working throughout, Im screwed. Going to call rads today to see if I can find anything out.

  • kjiberty
    kjiberty Member Posts: 1,385
    edited June 2012

    Indigo:  So sorry!  

    Sandi:  Do you have the same type?  Have your met your MOOP (max out of pocket?).  Lots of times rads co-pays are cheaper than chemo, (ie you may just have to pay an office co-pay).   

  • sandik
    sandik Member Posts: 482
    edited June 2012

    Just got off the phone with the insurance company. I DO have to pay a co-pay every time I go for radiation. I think he said Id be 7 weeks of radiation. That's $1750. My husband called back to talk to someone else and got the same answer. Our deductible is $9000, we are at $5000 right now, but co-pays do not count. SOOO glad this came up. I never would have thought about that and I would have been screwed. 

    We are doing a withdrawl from our 401k, but can only do it once, so if I did it before this it would not have been good!  

  • Melrosemelrose
    Melrosemelrose Member Posts: 3,018
    edited June 2012

    Just got a letter from my insurance company about an out of network claim from my March UMX.  Of course, I've never seen the original bill and clueless as to what this is for.  I thought everything was all turned in and paid out by now from that surgery.  So now, I'm looking at a possible $6k invoice for what I don't know and when I'll see it who knows when.  Love this insurance stuff and medical invoices.  I'm sure I'll see that invoice very very soon or something very very soon so I can figure out what to do.  I guess I'll be checking with my insurance about rads soon since I'm sure I'll be talking to them about this $6k mystery medical bill.

  • IndigoMont11
    IndigoMont11 Member Posts: 1,095
    edited June 2012

    They (insurance) certainly do make mistakes! I too got a "mystery bill" a couple of weeks ago - not a $6 K one, but one claiming that I owed quite a bit of money above and beyond my published copays for procedures and my hospital visit, all of which I had paid at the time of service. Luckily, one phone call was all I had to make to clear it up. Turns out they had started using new software and had entered several incorrect codes.



    Melrose, I hope yours turns out as well.

  • Melrosemelrose
    Melrosemelrose Member Posts: 3,018
    edited June 2012

    IndigoMont- I hope this insurance thing gets cleared up.  It's just a little annoying for the most part.

    Everyone have a great weekend and keep cool!!!!! 

  • three17
    three17 Member Posts: 72
    edited June 2012

    Hello everyone. I started rads 3 days ago and should finish by the end of july. I'm not sure if the fatigue is residual from the chemom (finished a month and a half ago) or if rads is really kicking my butt. been taking 5 hour naps each day. Although I enjoy the rest, I'm a single mom with three kids and moving in three days. What can I do for a boost of energy. Luckily I have a lot of support. As far as insurance, I feel for all of you in a financial situation. My ex dropped from insurance and never told me. I found out bevcause my pharmacy wouldn't my script for a breast infection i developed. UGH! It was realy scary to be going through cancer and worrying about money. Good luck to all of you, Hugs and prayers being sent. Thank you Stacie for starting thid thread.

  • kjiberty
    kjiberty Member Posts: 1,385
    edited June 2012

    Welcome, Patty.  One of my friends who had rads said when she was feeling really tired, she drank one of those 5-hour energy mixes. Are you on the 7 week, 34-treatment regime?  I will be finishing chemo on Thursday and really want to get going on the radiation as my son is getting married on 9/15 and don't want to be a total wipeout for the wedding.  I hear the number one complaint with radiation is fatigue.  I haven't gotten that far with my RO, as I am still doing chemo.

  • Dianefightslikeagirl
    Dianefightslikeagirl Member Posts: 51
    edited June 2012

    Hello everyone! I have one "big" chemo left on July 6th and should be starting radiation sometime in August. I look forward to being a part of this group and learning all I can. Been so focused on getting thru chemo I haven't even thought about radiation.



    Have a great Sunday night all!

  • kjiberty
    kjiberty Member Posts: 1,385
    edited June 2012

    Welcome Diane:  I am a week ahead of you! Congrats on almost being done!

  • Dianefightslikeagirl
    Dianefightslikeagirl Member Posts: 51
    edited June 2012

    KJ: thank you so much! Congrats to you as well. What a journey it's been! I'm sure you are as anxious to get done as I am!

  • onvacation
    onvacation Member Posts: 1,344
    edited June 2012

    Diane - I finish one day before you - so pretty much on same schedule!  I should find out more about the next step on my last treatment.  I am like you, I have concentrated on getting through the chemo and just now starting to read up on the radiation!

  • kjiberty
    kjiberty Member Posts: 1,385
    edited June 2012

    If you ladies haven't already done so, make sure ou bookmark and join the 2012 Summer Rads Hangout.  That's our next step in this journey WE WILL GET THROUGH!  Lots of great gals on that one too.

  • ButterflyLady
    ButterflyLady Member Posts: 136
    edited June 2012

    I started radiation on June the 21st.  For right now he thinks 6 weeks will be enough.  Was suppose to go today, but the machines are messed up, so I start back up tomorrow.  This is my 2nd go around with breast cancer.  Both times stage 3 and positive lymph nodes.  Breast cancer sucks!!

    They told me not to put cream on the ink marks, but I am mostly ink.  There is very little skin not covered in ink marks.  I think I am going to put cream on the ink marks anyway.  I burned really bad last time and I want to try and avoid burning this time. 

  • slak
    slak Member Posts: 179
    edited June 2012

    ButterflyLady - So sorry to hear you have to go through this again.  That is really unfair!

    I had my 4th of 30 treatments today.  So far it is a piece of cake compared to chemo.  I am 4 weeks PFC and finally regaining some energy, though I was lucky enough to catch an upper respiratory infection a few days ago.  Try laying absolutely still on the rad bed and not cough when you have a tickle in your throat...it is not easy.  I do get to breath and they let me suck on a hard candy so that helped.  The RO showed me my cat scans and the beams miss my heart by a mile but catch a sliver of lung.  I guess the radiation doesn't worry me as much as the chemo did because I've worked with radiation for many years in a different (research) capacity (though the doses were much, much lower than I'm getting now).  I am medium-skinned so am hoping I don't burn much, but I am using Aloe every day.  As for co-pay, no one has asked me to pay a co-pay where I go for treatment (I have no idea why, because I pay a co-pay everywhere else) and I'm not going to ask about it!  I just pay for parking every day.  

    Hugs to everyone! 

  • Melrosemelrose
    Melrosemelrose Member Posts: 3,018
    edited June 2012
    Hi slak!!!- Yes, I'm hanging around here with some chemo gal pals and waiting to find out if I'm next in line after chemo for rads camp.  Once I know, I will definitely let everyone know if it is go or not go.  However, so glad you found this thread because there are so wonderful gals here who have supported me through chemo that are not on the March April  2012 T/C thread.  Glad you updated with your personal experience so if I have the rads, I'll have an idea of what to expect.  HUGS!!!!
  • onvacation
    onvacation Member Posts: 1,344
    edited June 2012

    Hi ladies - so those who are already into rads - has your hair started to grow back or does radiation slow it down?

  • ButterflyLady
    ButterflyLady Member Posts: 136
    edited June 2012

    I have had no hair under the right arm since 2006, so I don't think I will have any under the left arm after this radiation series.  I have peach fuzz on my head and of course the hair on my legs couldn't wait to grow back. LOL

  • onvacation
    onvacation Member Posts: 1,344
    edited June 2012

    Yea I keep looking at my legs and pits knowing they will be the first to grow!  I haven't missed shaving these last few months!

  • slak
    slak Member Posts: 179
    edited June 2012

    Hi Melmrosemelrose and everyone!  I had my 5th treatment today which also included X-rays.  They told me that they will do that every 5-7 treatments just to make sure the alignment is still good.  It just adds a couple minutes to a treatment, but is done by the same machine.

    Thankfully radiation is only local, so for us it doesn't affect the hair on the head (obviously those who have radiation for brain tumors are affected).  As butterflyLady indicated the radiation does hit the underarm some, so one teeny benefit is the possibility of permanent hair loss there.  

    I had a follow-up with my MO today and she said to watch out for post-chemo depresssion...apparently it is a real thing.  I'm not depressed and try to remain in a good state of mind, but sometimes I'm frustrated that this whole thing isn't over with.  I just want to be beyond treatment, and yet I realize I have it better than some others.  When I get frustrated I try to remind myself 'chemo is done! chemo is done!' which helps.  Rads are a logistic pain, but I find it way easier to handle overall than the chemo.

  • kjiberty
    kjiberty Member Posts: 1,385
    edited June 2012

    Slak:  Thank you for the info.  It is much appreciated.  How soon after your chemo did you start with your radiation?  

  • Stacie
    Stacie Member Posts: 607
    edited June 2012

    My breast surgean said the radiation that hits the underarm also gives some anti-cancer benefit in any remaining nodes.

  • Januaryice
    Januaryice Member Posts: 120
    edited June 2012

    Stacie, thanks for starting this thread! I've been in chemo since March and most of the time was following the March 2012 Chemo thread but also would try to keep up to date with your April/May 2012 thread. Lol I feel I know some of you ladies just by reading the posts. The support and love on these threads have made this journey much more bearable for me. Thank you!! I finish my last Taxol on July 5th and am scheduled to see RO on the 17th. I m sure he will start rads in July! I also believe I will have 33 treatments. Looking forward to helping each other get though this new phase of our journey back to normal life!!!

  • kjiberty
    kjiberty Member Posts: 1,385
    edited June 2012

    Januaryrice:  Welcome!  I was just wondering when people were schedule to start because I would really like to get the show on the road. My son gets married on 9/15 and would like to be done with everything at least a week before the wedding.  However, that would mean I would have to start 3 weeks out of chemo.  Don't know if that's possible.  I will start whining asap (tomorrow!)

  • Stacie
    Stacie Member Posts: 607
    edited June 2012

    Welcome Januaryrice. My last chemo is July 19. I start RADS 3-4 weeks later. I will be right behind you.

    S

  • KCB
    KCB Member Posts: 365
    edited June 2012

    Hi ladies! I have last taxotere on July 10 then rads starting mid august... Trying to get away for a bit in between. Happy to find this thread, (thanks onvacation) for the next step! Courage!

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