Upcoming PBM - Getting nervous!

nwsuburbs
nwsuburbs Member Posts: 9

Hi!  I am 36 and having a PBM in 6 weeks.  I am at high risk due to mother and aunt, both at young ages (under 40), early menstruation, no kids.  I began my journey 5 yrs ago and have had 2 lumpectomies and many biopsies since as well as yearly mammos and MRI.  I am also BRCA 1/2 neg. and have had complete hystorectomy last November and am on Estrogen HRT.  Continued pain after my latest and greatest caused me to speak to my oncologist and he agreed that PBM is a viable option and I would be a good candidate.  I saw the general surgeon about either triple lumpectomy or PBM and he agreed through discussion that my choice of PBM is the better route for me.  In addition to fam history, I have dense breasts, PASH, duct ectasia, squamous metaplasia, fibroadenoma, and inflammatory fibrohistoicytic with giant cell reaction.  I know it sounds scary, but they are all benign disorders which cause no added cancer risk; however, squamous metaplasia is quite rare in the breast. 

Well, the count down has begun and my nervous energy has now focused on what it will feel like, what I will look like, etc.  I am quite comfortable with my decision, but want to be as informed as possible.  Anyone recently gone through skin-sparing BMX with immediate recon. that has any advise for pre-op or post-op?

Comments

  • SecretAgentL
    SecretAgentL Member Posts: 86
    edited June 2012

    Hi, nwsuburbs!

    I'm high-risk due to an atypical papilloma found in '06. I'm currently 34 years old with no family history, but I've also got the dense-breast-cystic-calcification-busy-boob stuff. Had an ultrasound needle biopsy on Tuesday for some more suspicious stuff they found on my breast MRI. Am hoping to get the results back tomorrow at the latest. Waiting is dumb! Undecided

    I don't have any experience with BMX, but I just wanted to let you know that I'll be thinking of you and keeping you in prayer. We sisters gotta stick together! And since you and I are both young, it feels like a unique bond, you know? I'm glad you'll be taking care of the ol' boobies, though! Keep us posted, okay?

    Hugs galore,

    Laura xoxo

  • shabby6485
    shabby6485 Member Posts: 679
    edited June 2012

    hi nwsuburbs,

    I am scheduled for a pmx for LCIS on aug 13.  So, we are in the same boat.  I am not really nervous about the actual surgery or recovery, but about what else is lurking in there!  I am also quite comfortable with my decision has I had 11 biopsies in 5 years including two lumpectomies.  After they found LCIS, I was done.  Where and when are you having your surgery?  I am having nipple sparing with expanders.  Keep in touch and we could support one another!!! 

  • Pointvalue
    Pointvalue Member Posts: 146
    edited June 2012

    Hello,



    I know how nervous you are. I am planning on having a pbmx in a few weeks. I was hoping to hear from my bs today to finalize a surgery date.



    I have a significant family history. My mom dx at 48 and died at 53. Her sister dx at 60 and passed away from aml. I have two maternal great aunts dx at 62 and in her late 50's. Neither aunt passed from bc. My paternal grandmother dx at 70 and died at 73. Her sister also dx at 70 and is in her 80's and is doing well.



    I am negative for Brca 1/2. Had a fibrodenoma removed from breast at 18. I have been receiving mammos since I was 28. I am now 46. Since 40 I have had annual mri. This year my breast surgeon said because I have been stable for a long period of time with benign findings I will have my mri every other year.



    At first, I was thrilled not to have an MRI this year. But as the time marches on the anxiety keeps building. As much as I worried about these test they have become a part of my routine. I realized after several years of testing and worrying I want to move ahead.



    I share in your anxiety. It is a lonely place to be.



    Always,



    Elise. Aka pointvalue

  • Lifeafter
    Lifeafter Member Posts: 690
    edited June 2012

    Hi nwsuburbs - I have run the gammet in surgeries and for me the partial mastectomy was a piece of cake.  Recovery was easy.  I was down a couple days from anesthesia but that was it.  I had some soreness but nothing that ibuprofen wouldn't take care of.  This was my experience, everyone is different.  My dr took half of my boob, it looked really good.  It was a great size and perky afterwards!  But alas for me, it wasn't meant to be.  I had a bilateral mastectomy a month after.  But my stuff was extensive.  I did not have nipple sparing with that surgery but I had immediate recon with TEs.  That's another long story.  But that surgery and recovery was tough.  If that's not the route you are going, I won't go into it.  But honestly, the anesthesia was teh worst part of the partial.

    Good luck to you.  I hope it all ends there! :-)

    Michelle

  • nwsuburbs
    nwsuburbs Member Posts: 9
    edited June 2012

    Thank you everyone for your words.  I think I am just over analyzing everything as I usually do, but I have heard horror stories about post-surgical pain.  If it is only as bad as my hysto, it will be a piece of cake!  My PS feels that I can return to work after 2 wks and I think it will be a nice way to keep me busy since I will be grounded from housework.

    As for the expanders, not sure yet.  My last meeting with the PS was direct to implant but I have a better idea now of how big I want to be when I am all done and not sure if we will need to change direction to expanders.  Won't find out until my pre-op the day before surgery.  I have only heard that the expanders are uncomfortable, so I am not looking forward to that, but who knows what will happen at this point.  I will be doing nipple reconstruction and tattooing when I am all healed.

    Shabby6485, I live in MN and will have my surgery at Mercy, how about you? Honestly I think I am more nervous about how long until I feel 100% again and forcing myselt to take it easy as long as all goes smooth!  I will be thinking about you in the days after my BMX.  Hopefully we both have a speedy recovery!

    Laura,  Best wishes for benign biopsy results!!!!

    Again, thank you all!!!!

     Angie

  • LISAMG
    LISAMG Member Posts: 639
    edited June 2012

    nwsuburbs, good luck to you! Just an FYI, returning to work 2 weeks after bilateral mastectomies is an unrealistic statement by the PS, i feel. Unheard of, quite honestly. Sometimes the drains are left in for 2 weeks and the incisions need time to heal as well. I had NSM with expanders and it would have been impossible to work in any job so soon. Four weeks, yes.

  • CMartin
    CMartin Member Posts: 316
    edited June 2012

    Hi.  I had a lumpectomy 4/13, first sugery ever and no children at the age of 44.  Being a first surgery, it was easy.  From that point the pathology report indicated that there were no clear margins (two spots) and a MX was required.  I opted, after much debate, for BMX (right side optional). As my appointment approached for the BMX I, like you, was terribly anxious and had no idea of how to anticipate the outcome since I have never been in pain.  That surgery was 5/21, tomorrow will be five weeks and I'm doing great.  I went back to work after three weeks but honestly was bored at home the week prior and could have returned after two but felt it wise not to push myself to that degree. 

    I approach cautiously because I don't want to heighten your anxiety.  Waking up was tough and I was in a lot of pain but still heavily medicated.  However, they soon whisked me to my room and hooked me up to my morphine pump.  From then on you're good.  My PS said one night was pushing it, most stay two, some even three.  I did so well I came home the day after surgery.

    The drains are aggravating but bearable.  Mine did not come out for 10 days.  By then I was really ready to lose them.  They are hard to sleep with unless you sleep on your back.  I will tell you now that I would have taken pain meds for the appointment to remove them.  However, many people post that the removal of the drains didn't bother them at all.  It was painful but it's over so quickly and once they were out I was a new person! I do have the expander sitting on a nerve I believe, towards my back.  That was excruciating initally but has quickly gotten better and isn't something that most people would experience I believe.  

    I am type one diabetic which added huge challenges.  Controlling blood sugar readings along with a fever I contracted (not incision related and we don't know what from) and an extra antibiotic given for the fever were honestly the worst part.  The antibiotic gave me a rash.  There isn't a lot of pain associated with the surgery itself.  Yes, the expanders are unfortable but I've found that wearing a sports bra helps.  That small amount of compression tricked my mind into not feeling the pressure of the expanders.  They have barely given me any trouble at all.  One more fill and I should be ready to start my waiting period for the exchange.   

    Be encouraged.  The first week and a half is tough but not painful, just frustrating.  I really hope this helps.  The main thing I want you to take from it is that it was frustrating but not painful.  The doctors see to it that we aren't in pain.  If there is anything further I can talk through with you please let me know.  You will be in my prayers. 

    Cindy  

  • nwsuburbs
    nwsuburbs Member Posts: 9
    edited June 2012

    Cindy,

     My job is rather sudentary, I sit at my desk and answer phones so my PS believes I should be able to return after 2 weeks as long as all is going well.  I am sure he will guide me when I go for my 1 week follow-up.  My largest concern is the cummute.  My job is great and they are working with me, even if I only work 1/2 days in the middle of the day to avoid traffic.  I am told at least 1 if not 2 nights in the hospital.  I was discharged the afternoon after my hysto, so I am hoping that my progression to go home after my BMX is as quick.  You said your BMX was 5 weeks ago and you only have one more fill to go.  How long after surgery did you begin your fills?  I will certainly keep the sports bra trick in mind in case we cannot do the direct to implant route.  I have read many comments that they are uncomfortable.  Are you doing nipple recon and tattooing as well?  I am anxious and excited all in the same moment.  I can finally rid myself of these benign cyst-riddled boobs and be able to live life without thinking about which new lump will be cancer.

    I am so happy I found such a great message board to talk about these things with women going through the same thing I am.  My family is great and supportive, especially my Aunt who had a BX a few years ago (she is great to talk to about this), but the support and prayers here is amazing! 

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