Starting chemo Thursday, May 31 - June Group?

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  • pamelahope
    pamelahope Member Posts: 534
    edited June 2012

    Kimmie, I have the same chemo regimen as you. I just had my second A/C. Welcome.

    Steelersluv, Good luck with chemo tomorrow and the port. Pam

  • teeballmom
    teeballmom Member Posts: 322
    edited June 2012

    Steelersluver:  I will have AC fusions x 4 every 2 weeks and Taxol and Herceptin weekly for 12 weeks.  It looks like I will begin on July 11th since my BS rescheduled my port consultation earlier that 7/6 so I can get my port in on time. 

  • cmomof4
    cmomof4 Member Posts: 24
    edited June 2012
    Tomorrow is my 1st chemo day.  :-(
  • Melrosemelrose
    Melrosemelrose Member Posts: 3,018
    edited June 2012

    Best of luck to those in the big girl chair tomorrow!!!  You can do it!!!!

    Hoping for minimal side effects for all!!!! Just have to keep pushing and moving forward through chemoland.

  • Ellendou
    Ellendou Member Posts: 139
    edited June 2012

    Good Luck cmomof4 - will be thinking about you....I get my first one on Friday.  Hugs

  • Marcia1111
    Marcia1111 Member Posts: 368
    edited June 2012

    cmomof4 - My second one is today.  I'll be with you in spirit!  We can do this!  Good luck on Friday, Ellendou and to everyone else going to the BGC!

  • steelersluver
    steelersluver Member Posts: 112
    edited June 2012

    Thanks for the thoughts all!  Heading out now.

  • Marcia1111
    Marcia1111 Member Posts: 368
    edited June 2012

    I have known all along that my hair would fall out.  I have 5 wigs, which I doubt I'll wear and tons of scarves and hats, but as it falls out by the handful today, I guess I am realizing y.yhat you're never fully preparred for it.  I'm sitting here with tears in my eyes.  It could also be due to being awake since 4 a.m. and going for infusion #2 soon and my baby having left for Israel yesterday.

    It's amazing how these boards work.  Just having all of you to say this to is making me feel better.  Thanks, soul sisters.

  • DorisMarie
    DorisMarie Member Posts: 129
    edited June 2012

    joining marcia on the loosing hair..ran my fingers thru this am..got a few strays..not clumps yet..but I see a buzz cut in the near future..guess that is one way to get rid of the grey huh? LOL..this is day 15 from first tx..

  • Ellendou
    Ellendou Member Posts: 139
    edited June 2012

    Thinking of you all as you go through your procedures today -- I will be there tomorrow.

    I also agree how wonderful it is to have sisters here, we all understand what each other is going through and the feelings we have.  Seems I am doing just fine and then all of a sudden the tears start, I hate when that happens but can't seem to help it.  Yesterday when I went to get my hair cut, I was feeling strong and ready for it and then broke down as she started to cut it....now every time I look in the mirror I cry.

    Sending Hugs to you all. 

  • DorisMarie
    DorisMarie Member Posts: 129
    edited June 2012

    hair will grow back..I put in an order for red and curly....

    fyi..for those first timers in the bgc..take your nausea meds on the eve of next day after tx..mine are 6 hrs. apart..so will start on the 28th at 6 pm..set clock for midnight..not gonna miss a dose...

    on friday after tx on wens..had a very hot flush and nausea after being up for about 10 min...body temp was way up there..saw bright light..was slurring words when I yelled for meds..wondering if allergic reaction? got questions for doc written down..

    just wish someone had told me when to start the meds..bottle said as needed..was a big surprize as to when I needed!!

  • Marcia1111
    Marcia1111 Member Posts: 368
    edited June 2012

    Doris - totally agree on the meds.  The NP said it would be clear and not to bother writing down anything she said.  Well, I totally freaked out the night before treatment #1.  Some said bring to chemo, some said take an hour before . . . Thanks to the wonderful ladies here I got under control and now much more calm as I am sitting in the BGC for #2.

  • maa764
    maa764 Member Posts: 55
    edited June 2012

    Hello everyone.  I started treatment on 6/12/2012.  I am really have stomach issues - changed nausea meds but still feel really bad.  I am waiting on a call from the nurse.  I pretty much can not eat more then a few bites at a time.  I really did not think the stomach aches would last this long - the nurse said day 3 -5 would be the worst and then it should improve.  Still waiting for improvement.  I hope they come up with a solution soon.  I am on Carboplatin, taxotere and herceptin - 6 treatments over 18 weeks then herceptin for the year.

  • DorisMarie
    DorisMarie Member Posts: 129
    edited June 2012

    yahoo marcia !!!! soon to be two down...mine is the 27th...

  • Ellendou
    Ellendou Member Posts: 139
    edited June 2012

    Doris and Marcia - understand exactly what you mean, I am so confused, have a call into the Nurse right now, as I am to start tonight......don't understand this one hour before ---- but yet they told me to take the Meds with me to Chemo tomorrow....my appointment is 9:30 AM so as I see it I take them at 8:30 but what if the chemo does not start right at 9:30 ---- will see what they say when they call back.

  • havingfaith
    havingfaith Member Posts: 93
    edited June 2012

    Marcia-Good luck today! I bet your baby leaving for Israel has got to be hard.  I know I can be much braver for myself than I can be for my kids.  I'll be praying for a safe return.  I buzzed my hair yesterday after I came home from my second tx, and it feels so good. Something I was able to take control over.

    I was more tired than the last time after treatment, but I had a good nights sleep.  I took lorazepam(ativan) which is for anxiety/nausea/vomiting.  It does make you drowsy. No vomiting this time around. 

    Doris- I know the meds can be very confusing as to when to take them.  I hope you didn't have a reaction to them.  I was told to take my first at bed time after my firs tx. and I was already throwing up bt 7pm. So this time I was done by 11am and took my first pill at 2pm.  It went much better. I like the prochlorperazine(compazine) the best for the day time.  Zofran gives me a headache.

    Good luck this week for everyone in the BGC!!

  • DorisMarie
    DorisMarie Member Posts: 129
    edited June 2012

    maa..hope it improves soon..I had heartburn a few times..and the feeling of burning in lower gut..i craved yougurt..that seemed to help..had to make me eat a few days..but thankfully no nausea...

  • Melrosemelrose
    Melrosemelrose Member Posts: 3,018
    edited June 2012

    Ellendou - Since you and I are on the same chemo regimen, I thought I'd let you know what chemo meds I take and when.  I don't know if this helps you  since I don't know what prescriptions you have.  I found it a little confusing at first but have the drugs regimen down now.

    • Starting the day before chemo- Decadron(Dexamethasone- steroid)- 1 dose = 8mg.  3 doses-- one dose morning before chemo, 2nd dose the evening before chemo and 3rd dose the morning of chemo.  If you are taking this med, try to take it early in the morning and take it early evening (12 hours apart) so you can sleep.  My onco allows me to take Decadron for 3 days twice a day.
    • Starting the day after chemo- Zofran (Ondansetron) -  One 8mg tab twice a day for 3 days post chemo.

    I also have a prescription for Phenagran (Promethazine) for nausea if I need it after I have taken the other two drugs. 

  • Ellendou
    Ellendou Member Posts: 139
    edited June 2012

    Melrose - thanks so much -- here is mine.

    Starting the night before Chemo - take 8mg Dexamethasone 12 hours before Chemo - then 8 mg 3 hours before chemo, then 8 mg 1 hour before chemo.....8mg every 12 hours for 3 doses.

    Ondansetron 8 mg - take one tablet one or two hours before chemo then every 8 hours for 3 days post-chemo...then every 8 hours as required.

    Aprepitant 125mg take one hour before chemo, take 80 mg day 2 and day 3.

    I also have 10 mg metoclopramide to take one tablet every 4 - 6 hours as needed. 

  • Melrosemelrose
    Melrosemelrose Member Posts: 3,018
    edited June 2012
    Ellendou- I can see why it is confusing to know what to take when.  I use a month to month calendar and write what drugs to take when so I don't get so confused. It helps.  i also made a drug checkoff list to record what time of day I take the drugs so I take the correct ones on the right day.  It helps plus the onco research assistant reviews the log at every treatment since I'm on a Herceptin clinical trial.
  • SpecialK
    SpecialK Member Posts: 16,486
    edited June 2012

    Ladies - these two tools from the American Cancer Society are very useful for keeping track of your medications and your chemo side effects.  I used them during chemo and really found the side effect worksheet beneficial, as SEs can/will change during each tx.

    http://www.cancer.org/acs/groups/cid/@nho/documents/webcontent/medicine-list.pdf

    http://www.cancer.org/acs/groups/content/@nho/documents/document/acsq-009502.pdf

    Also on the icing of nails - it is less about neuropathy and more about lifting/discoloring of nails.  There are supplements that will help with neuropathy as it is a neurological phenomenon, as opposed to a local/regional kind of damage - like fingernails and toenails.

  • Ellendou
    Ellendou Member Posts: 139
    edited June 2012

    Thanks Melrose, think I will do that also.....I also have to take antibiotics (ciproflox 500mg)- day 5 for 7 days.

    Also have zopiclone for sleep if I need it (which I think I will use tonight) and  Ativan for when I need it (which I have not used yet).

    I have not had to take any medication for years - except my Vitamins - so this is really different. 

  • Melrosemelrose
    Melrosemelrose Member Posts: 3,018
    edited June 2012
    SpecialK- Thanks for the links to the ACS with those sheets and the taxotere SE's explanation.  There is so much info about everything that it is hard to keep track of what is what and why do what for what SE.
  • Ellendou
    Ellendou Member Posts: 139
    edited June 2012

    Thanks Special K - going to print these off and use them.

  • SpecialK
    SpecialK Member Posts: 16,486
    edited June 2012

    You are welcome - the deeper you go into chemo the harder it is to remember what happened after what too, lol!  The SE tracking sheets are particularly important because you want to be sure to report this info to your MO at the next appointment.

  • pamelahope
    pamelahope Member Posts: 534
    edited June 2012

    Good luck for all going to chemo tommorow. I will be thinking of you!

    I am overwhelmed right now, I need my port removed a picc line installed and just found out I am BRAAC 2. Now I need eventually my ovaries out. Plus the hormone inhibitors. Wondering, if I will feel like an 80 year old...

    Not to write this but maybe someone has experience with.

    Pam

  • cmomof4
    cmomof4 Member Posts: 24
    edited June 2012
    Pam, why are they taking your port out?  That stinks.
  • pamelahope
    pamelahope Member Posts: 534
    edited June 2012

    I developed a hematoma. I take Coumadin. I was bridging with blood thinners. I think I received bad bridging instructions. Pam It should not happen to anyone else. At my oncologists office, no one has ever seen it.

    Pam

  • havingfaith
    havingfaith Member Posts: 93
    edited June 2012

    Sorry to hear about your port having to be taken out.  I do have a picc line and have no trouble with it. Have the time I forget its there.  Good luck!!!

  • mclark55
    mclark55 Member Posts: 168
    edited June 2012
    KeepMoving:  I never lost my eyebrows but that may depend on the chemo drugs you're on.  They got a bit thin but not terribly so.  You can always use an eyebrow pencil in a colour close to your own eyebrows (or a tad lighter).  I would just add, don't worry about what anyone thinks!  If it's obvious what you're going through, people usually respond with sympathy and nothing negative.  I remember feeling I was wearing my head scarf as a badge of courage.  Wishing you well today and hugs to you and everyone on this thread.

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