March 2012 chemo

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  • Januaryice
    Januaryice Member Posts: 120
    edited June 2012

    Trail girl and Lanagrave - I feel your pain!!! Hope it's starting to ease! How would you say it compares to your last tx??? I'm in the chair tomorrow for number 3 and hoping that it's not any worst than the last one. That one was not much fun and seemed to last forever.



    Hope everyone else will have a great day. We keep getting closer and closer to the end of this phase. It would be great for everyone to state where they are headed in this journey. We started with a long list of Marchers and I wonder who's left in chemo!!

    Just wondering!!!!

  • MichelleMassey
    MichelleMassey Member Posts: 213
    edited June 2012

    January-I'm still here lol! Headed out this morning for #5 taxol. 7 more to go weekly infusions. It is good to see so many are done with this part of their journey.



    DH kids came in Saturday and it's been pretty good. It's amazing how children are so much more understanding and accepting than most adults. They had a few questions, wanted to rub my bald head, and we're fine.



    Off to get ready for tx. Have a blessed day all!

  • lostinmo
    lostinmo Member Posts: 922
    edited June 2012

    triplem-good luck with tx today. I'm glad the visit is going well for you.

    Januaryice- good kuck tomorrow. I think we both have just the last 2 to go. I will be moving on to surgery in July or August, the date hasn't been set yet.

    galena glad you stopped in and that everything is going well.

    Indigo- I still get iv steriods on Taxol, wonder why the would push them.

     KCB-good luck today. Yay for getting a holiday! 

    Hope everyone feels good today and can enjoy it some. 

  • TrailGirl
    TrailGirl Member Posts: 46
    edited June 2012

    January... I think the pain has been about the same as last tx, pretty darn bad. I have had some numbing in my toes and fingertips on and off for the past couple of days, which is new, so I have a call in to the doc. I also did have more spinning/dizziness on day 5 & 6 but it limited itself to when I turned over in bed.

    My next adventure after chemo is surgery in July/August. I know lostinmo is with me...who else is up for surgery after chemo?

    I have a concert date with Joan Jett on 7/27, so hopefully the doc will let me have some fun and schedule the surgery for early August! 

    I need to head over to the surgery forum...I know I'm not doing reconstruction, but I'm still undecided about the unaffected breast...sigh. 

  • lanagraves
    lanagraves Member Posts: 596
    edited June 2012

    January: The pain is finally letting up a bit today. My Taxol SEs have been very random. The pain was bad with the first one, then with the second I had barely any SEs at all. But this time, after the third, it's been awful. I basically spent Saturday, Sunday and Monday curled up in the fetal position. But it's finally getting better. Only one more to go. Then on to radiation for me. My chemo has been adjuvant, so I had my surgery first, a BMX on February 13. It seems like forever ago in one way but in another, I can't believe it's all happened so fast.

  • TrailGirl
    TrailGirl Member Posts: 46
    edited June 2012

    Oh, I forgot to say that the nausea was WAY WORSE after #3. Usually the meds (zofran, compazine, ativan) will control the nausea if I space them out, but this time I couldn't get it under control. From day 1 to day 5, I had horrible nausea no matter what I took, ate or drank. Awful. I hope #4 is not the same...the pain is bad enough w/o the nausea on top of it. Of course some times I think the pain causes the nausea too.

  • IndigoMont11
    IndigoMont11 Member Posts: 1,095
    edited June 2012

    Lanagraves - know what you mean by "fast"!  My surgery feels like forever ago, too. 

    TrailGirl - don't know what to say except I hope #4 is better than #3 too!  It is really odd that the treatment cycles can be different one from the next.  

  • QuinnCat
    QuinnCat Member Posts: 3,456
    edited June 2012

    Two weeks post last DD Taxol #4.  Not recovering from this one...so fatigued, but worse, the neuropathy that started after Taxol #2 jumped the shark after tx #4.  It occupies 90% of my brain power.  It has destroyed my feet and if it got any worse in my hands I could not type.  I took my MO up on her offer, pre #4, to postpone my next chemo course of Carboplatin one more week.  I just can't take the chance I will pile on to this neuropathy situation.

    Is anyone else having bad neuropathy? 

  • onvacation
    onvacation Member Posts: 1,344
    edited June 2012

    I have one more T/C treatment then on to radiation. I am not exactly sure when that starts because I haven't met with RO yet.  I just booked a trip to Vegas in November, wonder if I will have any hair by then!  It is my little mini vacation before I do the big one in March!  

    Hope everyone is having a lovely Tuesday evening! 

  • lostinmo
    lostinmo Member Posts: 922
    edited June 2012

    Trailgirl- I'm still deciding on one or both also. I haven't been to the surgery thread yet. Seems scary so I try not to think about it. That's why I'm not going to do recon. Hope #4 goes better for you!

    lanagraves- that's how I was after Taxol #1. I told my MO at tmy next appt that I almost didn't come back. When I explained why he ordered some pain pills for me. Luckily I didn't need them as much for #2. We will see what 3 does on Friday. Hope the last one is nicer to you!

    onvacation-I've never been to Vegas you'll have to take pics and share! 

  • kltb04
    kltb04 Member Posts: 1,051
    edited June 2012

    Kim - wahoo Vegas!  Sounds exciting.

    Kam - so sorry about the neuropathy :(  What a dreadful SE.

    Lana - glad you are feeling at least a little better.

    TG - I am another one who has yet to have surgery.  The best I can figure, my last chemo will be mid-August so surgery mid-September-ish?  I met with the PS my BS referred me to yesterday but he didn't tell me anything I didn't already know.  My personal choice is BMX with immediate reconstruction - which for implants means tissue expanders for 6 months - ugh...

    Michelle - glad the visit is going well.  My MIL invited herself to my house this week but with my counts being so low, I asked her to wait til next weekend.

    January - hope #3 went well today.  As far as me - I am on #5 of 8 (4 A/C and 4 Taxotere).  So still a ways to go.

    galena - so good to see you - glad you are doing well.

    Indigo - that is true that the rash right after TX could be the steroids - mine are always in IV form - I never have had any pills.  Hope that your heat wave is over soon...and that your canker sore goes away.  Looking forward tot he new avatar.

    KCB - hope your TX went well today and glad you will get a break after chemo.

    lost - lol on DS "attempting" to do the dishes.  

    Well, I went for Neupogan #2 today - still waiting to see if I am going to have bad SE from these...otherwise, just doing a lot of watching TV and reading.  And some online shopping - since I am banned from the public.

  • lostinmo
    lostinmo Member Posts: 922
    edited June 2012

    Morning everyone!

    kltb-sorry your banned from the public, but they are safer now, you can't lick them. Smile

    Tx number 7 coming up on Friday and I'm really nervous about this one. It doesn't seem like the taxol is doing anything to the tumor. It actually feels bigger but I can seem to move it around more. Maybe it's all my imagination coming to life, but a small fear is sinking taking hold. 

  • lanagraves
    lanagraves Member Posts: 596
    edited June 2012

    Good morning everyone! Well, I feel like I am almost back among the living today.

    Kam: Boo on the neuropathy. I've been having some mild neuropathy after each Taxol that kind of comes and goes. Nothing severe so far.

    Kim: I just booked a trip to Nashville for Thanksgiving week and I'm wondering the same thing. No fuzz growing so far. My big trip is probably going to be May - Disney World to celebrate!!!!

    kltb: Sorry you're in quarantine. I'm thinking we need to meet up in Memphis sometime late August - early September. I should be almost finished with rads and you should be on a few weeks break between chemo and surgery. I'm thinking Texas de Brazil or something really cool like that - steak and drinks to celebrate the both of us surviving chemo!!!

    TG: I did both although the right one was just prophylactic. It was the right decision for me. I would have always worried about the other one, and it makes recon (if you're going to have it) or matching with prosthetic easier too. However, I know ladies who did only one and are very happy with that choice.

  • lanagraves
    lanagraves Member Posts: 596
    edited June 2012

    TG: "Easier" probably wasn't the right word. Easier to match, I guess is what I meant.

  • KCB
    KCB Member Posts: 365
    edited June 2012

    Hey Lost:

    Sorry to hear you're feeling worried... Do they check your lump each time you go? My experience is different because I had a lumpectomy pre chemo.. So just curious. Hang in there.

    Stinking hot record breaking temps here today. So I decided to clean my oven. Can you say Steroids?

    Wishing you all a fine day.

  • Alicethecat
    Alicethecat Member Posts: 535
    edited June 2012

    KCB, KLT, Indigo, Lostinmo, Onvac

    Thank you so much for thinking of me.

    Feeling much better thank you. The trip to Accident & Emergency, being admitted and pumped full of antibiotics has worked!

    Best wishes

    Alice

  • onvacation
    onvacation Member Posts: 1,344
    edited June 2012

    Hey ladies, hoping everyone is doing well today.  My nails are still annoying the heck out of me and I'm afraid to take my toenail polish off to see if the same thing is happening to them.  I like being in denial!  LOL

    kltb - no licking!  Hope you get sprung soon! 

  • kltb04
    kltb04 Member Posts: 1,051
    edited June 2012

    LOL on the licking y'all - I have no idea when I will be streetworthy again - I don't get labs again til I go see MO next week - so I am going to just assume the Nuepagen is working.  Had 3rd of 3 shots today and started feeling the effects last night - not as severe as Nuelasta yet but increasingly uncomfortable.

    The thing is, if I hadn't INSISTED on labs, I would've had no idea this was going on so I guess I would have just continued life as usual until I got an infection.  They weren't going to do Nuelasta OR labs until I asked.

    Kim - ugh on the nails.  

    Alice - glad you are doing well.

    lana - sounds like a plan to me!

    KCB - come clean my oven.  Or anything else you want to clean.

    lost - maybe you are just overthinking it - could it be shrinking on the depth and not necessarily the width/length - if that makes sense?? That would seem to explain it being more mobile.

    Tonight is going to definitely be a pain pill night.

  • TrailGirl
    TrailGirl Member Posts: 46
    edited June 2012

    Kam...So sorry about your neuropathy. I've just had a very mild bout after taxol #3. But nothing like you are going thru. My doc said it's one of those SE's that could go away fast, takes months, years to go away, or stay forever. That kind of stuff scares the sh!t out of me....a medicine that is helping us can cause long lasting effects that can dibilitate us. Not fair!

    lost...I was having the same thoughts about my tumor. Both the BS and MO said the main reason for doing chemo first was to shrink the tumor for surgery...so I've been waiting for this big shrinkage to come. All the ultrasounds since chemo (I have another one tomorrow) show no shrinkage. But it feels like it's given way a bit from the skin. At my last doctors appt I was terrified that she was going to say I had to do more chemo when I brought up the subject. She said the same thing that kltb said...it seems to be shrinking in depth and any shrinkage is very good. She also said, no more chemo no matter what...that made me very happy. So, I wouldn't worry too much, but definitely bring it up to your doc to discuss.  

    Anyone have a good response for me when my 7 year old niece asks me why the medicine that's supposed to make me better actually makes me sick? Her brothers birthday is 2 days after my last tx and when I said I didn't know if I could make it to dinner because I might not feel well, she had a hard time understanding that the medicine is making me well and sick at the same time. She has asked me more than once now, so what I am telling her is obviously is not computing in that smart little brain of hers.

    Thanks for all the comments on the surgery decision. I've got a lot of questions written down for the BS...even more since I've taken a peek at the surgery threads.

    I'm feeling alot better today! Pain is minimal! And it's one day earlier than I usually start feeling well. 

  • kltb04
    kltb04 Member Posts: 1,051
    edited June 2012

    TG - not sure what to tell you on your niece - my youngest DD just turned 9 and she waivers between being curious (why are you going to the dr AGAIN?) and oblivious (now what do you have)?  So I think the answer you have given her is about the best you can do - my SIL is a med tech and loves to get tech-y on folks so I don't know what she has told my nieces (twins also 9) and nephew (8).  She would probably have better explanations.  Glad you are feeling better BTW.

    Well, I have a fever again - it creeped up to 100 on my good old fashioned mercury thermometer so I know it is really accurate.  I went ahead and called my MO because - as I told her - I didn't want to have to call her at midnight.  She told me to start on the antibiotics I have here and just keep an eye on it.  Fun, fun.  At least she didn't say go to the ER! 

  • KCB
    KCB Member Posts: 365
    edited June 2012

    Trailgirl: I have a dear friend who is a PS and when I was first diagnosed and trying to figure out how to tell my kids she offered this: the cancer cells are like kids in school who don't know how to follow the rules, and they behave out of control...and the medicine that makes them go away or behave also makes the good cells feel tired for a while. But then the good cells repair, and the bad cells are gone!

    Don't know if this helps...

  • KCB
    KCB Member Posts: 365
    edited June 2012

    Oh ktlb: I'm so sorry to hear that you have a fever again... Hang in there, and hopefully the antibiotics will take care of anything going on...

  • Dianefightslikeagirl
    Dianefightslikeagirl Member Posts: 51
    edited June 2012

    Rough post chemo week for me! I am so glad only one more left. I am physically and emotionally drained. I know I havent kept good track of everyone on this wonderful board but I am curious.. How many of you ladies are going thru this hellish experience as single women? It sounds like so many are blessed with wonderful husbands or boyfriends. For me, I ended a 5 yr relationship w/ my bf and was diagnosed with breast cancer in the same week. 2012 has been a sucky year! It sounds nuts but once I finish chemo, I'd actually like to start dating again but no clue how to begin. And afraid of more heartbreak.. Any thoughts are appreciated. Thank you all!!

  • IndigoMont11
    IndigoMont11 Member Posts: 1,095
    edited June 2012

    KCB, you are so funny!  I cleaned my oven recently but had a hard time crawling into it far enough to wipe all of the spray cleaner stuff off, or maybe I just used far too much, but whatever, even though I went through close to a whole roll of paper towels wiping, wiping, and wiping, when I used the oven next I could see where the stuff was left and it smoked... I would not pass the Marie Barone housekeeping test.  No younger kids in my house any more, but I like the explanation you gave for them. Kind of reminds me of some of the chemo meditation/visualization/affirmations I've been listening to.

    Alice, sooo glad you are doing better!  I know I sound like a geek (well, I've already admitted to being one) but I love finding out what things are called in other countries, so now I know A&E = ER.  Like, how in the UK you are "in hospital" and here we say "in *the* hospital."   

    kltb04, darn it, fever again??  Here's some purple energy to go with the antibiotics, to knock it out! 

    I so far have been a huge devotee of Purell everywhere I go, but I haven't quite quarantined myself at all, even during the low times. I have a sneaking suspicion that our cluttered, less than sparkling clean house has possibly bumped up my resistance.  Not that I am making excuses or anything.   Hopefully the labs again tomorrow (last A/C, yay!) will still show good counts.  

    Still working on the pics - found out we need to size it way down before BCO will let me upload it.  DS#2 asked could we please finish it tomorrow.  I have GOT to get more "independent" with this stuff.  

  • lostinmo
    lostinmo Member Posts: 922
    edited June 2012

    Dianefightslikeagirl-sorry you've had such a rough week. When do you go for your last one? Hoping that it isn't as bad for you.

    kltb and TrailGirl- thanks for the encouragement, trying not to worry about it too much. My MO measures the thing everytime I go in so we will see what happens tomorrow when I go. 

    kltb- sorry about the fever. You seem to take so many precautions and here I just do whever without thinking about it. Get better quickly.

    Indigo-I have read that houses that aren't air tight and cleaned with antibacterial cleaners have fewer allergies and sickness because you build up immunity or something to that effect. So I should be fine, everytime I turn around I find some mess that my DH or DS has made and decided to ignore. 

    On the bright side, my nails have stopped hurting. 

  • lanagraves
    lanagraves Member Posts: 596
    edited June 2012

    Good morning everyone! I wanted to reply to everyone's posts but it's one of those mornings when I can't seem to focus well enough to remember what everybody said. Anyway, just know that I am thinking of you all and sending healing thoughts your way. It's been a tough post-chemo week for me too. I feel better than I did, but just don't seem to be bouncing back the way I have before. Hopefully, I'll feel better in time for the weekend. It doesn't help that I'm crazy stressed with deadlines right now, and all of them require research and focus, both of which are difficult in my current fog. I'm praying my last Taxol next week will be easier, but I'm not very optimistic after the effects of this one. Hope everyone is having a wonderful, SE free day!

  • MichelleMassey
    MichelleMassey Member Posts: 213
    edited June 2012

    Morning ladies! #5 has really knocked me down. Mostly sleeping and crocheting. going to attempt laundry today. I have decided to do a bmx just so it alleviates some of my fear. I can't remember the name of it right now but I'm having them take the tissue from my stomache instead of implants. So on the bright side I get a tummy tuck out of the deal. I'll find more out on July 10th.



    Kids are still doing good but I can't keep up with the house right now. DH is taking them out hiking today so we will see what I get done. Hope everyone has a blessed day.

  • Westwoodmom
    Westwoodmom Member Posts: 11
    edited June 2012

    Getting my mediport out tomorrow!!! Baby steps but we're getting there!!! Hope everyone's having a great day and staying cool :)

  • onvacation
    onvacation Member Posts: 1,344
    edited June 2012

    woohoo Westwoodmom!

  • TrailGirl
    TrailGirl Member Posts: 46
    edited June 2012

    KCB...thanks for the kid story, that might actually work.



    Good news today! Ultrasound showed shrinkage in affected lymph node and breast tumor! Finally!

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