April/May 2012 Chemo hang out

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  • Marcia1111
    Marcia1111 Member Posts: 368
    edited June 2012

    I love the Edith Ann picture!  I took a xanax, but so far, it's doing nothing  :(

  • DorisMarie
    DorisMarie Member Posts: 129
    edited June 2012

    LOL..I feel like that pic of Edith Ann..way outta my comfort zone...and in a chair way to big for me..and that's the truth..LOL

  • DorisMarie
    DorisMarie Member Posts: 129
    edited June 2012

    deep breaths marcia..sending calming thoughts your way..

  • lsharvey822
    lsharvey822 Member Posts: 257
    edited June 2012

    @Rgina - your blood pressure sounds like mine!  It hit 165/110 at one appt.  They have me on something for it now too.

  • vballmom
    vballmom Member Posts: 426
    edited June 2012

    Marcia, #2 was easier for me and hope it is for you, too. 

  • vickilind61
    vickilind61 Member Posts: 338
    edited June 2012

    BGC gals, just rock it today!

    rgina and kjiberty, I did have the echo of my heart before starting the herceptin.  The issue I have with no scans, etc is this; my MO talks about how "interesting" and "difficult" my case is; none of my tumors showed on mammos, some of them are HER2+ some are -, "minor" node involvement BUT the tumor there was +, she mentioned she worries about the atypical lobular hyperplasia in the left breast....she talks about all that yet still did no follow up.  I will DEMAND some follow up when I finish chemo. 

    Having tummy issues, bone pain and the fatigue is the worst today.  First tx was last Friday, so I am a week out.  Not too much to complain about but practically falling assleep typing this.

  • kjiberty
    kjiberty Member Posts: 1,385
    edited June 2012

    Isharvey:  LOVE the pic!  LOL

  • Melrosemelrose
    Melrosemelrose Member Posts: 3,018
    edited June 2012

    rgina, kjliberty, vickilind61- Before I started chemo, I had the EEG, EKG, echocardiogram, chest x-ray plus a nuclear CT/PET scan from my upper thigh to neck.  Originally, my onco wanted to do a dye CT and dye bone scan but when i told her no way because of an unknown reaction to my MRI before my UMX, she changed it to the nuclear CT/PET scan and had to appeal my insurance companies inital denial for the nuclear CT scan.  I know I'm having echocardiograms every 3 months because of the Herceptin I'm taking under the clinical trial.  Not sure what other scan I'll be having as this journey continues.   

    Calming thoughts and energy to everyone today plus minimal side effects!!!Cool  Keep cool!!!

  • Marcia1111
    Marcia1111 Member Posts: 368
    edited June 2012

    I'm writing to you from the BGC.  I have my iphone, laptop, 2 movies, hard candies, lots of drinks and and snacks, Kindle, book, and my love.  The xanax kicked in and I'm feeling fine.  Love to you all!

  • vickilind61
    vickilind61 Member Posts: 338
    edited June 2012

    Marcia, you are so awesome!!!!!   You are plugged in and plugged in.  ;)  But I have to ask; which movies?

  • Melrosemelrose
    Melrosemelrose Member Posts: 3,018
    edited June 2012
    Marcia1111 & IndigoMont -Have a calm and peaceful time today during your treatments today!!! Thinking of both of you and hope for minimal side effects!!!!
  • dancetrancer
    dancetrancer Member Posts: 4,039
    edited June 2012

    sandik - so glad your cardiologist is being so cautious.  Adriamycin definitely can cause heart damage.  Hope all turns out well from the tests!

     marcia - I did one of the meditations in the chair yesterday for Herceptin...nice to have it on my ipod.  Loved how it relaxed me!  Hope it works for you like it did before!

    fierro - awesome you got some sleep!!!!  Now go away headache!!!  

    chapter4 - HUGS.  I can SO relate!!!  It's been almost a year since my initial diagnosis.  The road is longer for some of us, but I feel like the ladies on this thread will be there through the long haul for each and every one of us.   

    Best wishes to all in the BGC today!

    New sx for me...L ring fingernail started aching last night...eeeks!  Taxotere is tough stuff...I iced like the dickens!  No nail changes so far.  Being careful not to type with it...slowing this prolific writer down...maybe you all won't have so many pages to keep up with for a while.  LOL 

  • Marcia1111
    Marcia1111 Member Posts: 368
    edited June 2012

    Vickilind61 - Today I brought The Queen and Kissing Jessica Stein, but not really able to stay focused.  It's very busy here.  I'll probably watch at home this weekend when I'm sure I will be glued to my couch.  I am emailng, facebooking, and of course, checking in with my sisters here!

    dance - Maybe I'll do a meditation later, but right now the xanax is working just fine!

  • nofear2012
    nofear2012 Member Posts: 160
    edited June 2012

    Chapter4 - I hear ya & feel similar to you. This is a lot to handle, manage & function. I am not working but wish I had something to do during the day to stop me from over thinking all this. I wonder/worry will I ever be able to let this all go & get back to life be4 cancer. I had taxol #2 yesterday, no tongue issues but I had the shakes so bad 2 days after. Dr decreased the amt of steroids he gave me & I hope I do not have the shakes again. Dr said it is a side effect of taxol. 2 more to go & were done w this phase. Hang in there.

  • Stacie
    Stacie Member Posts: 607
    edited June 2012

    Good morning all

    SItting in my bs exam room to be aspirated again. Turns out a serome (fluid pocket at surgery site) will delay RADS. I am due to start in 7 weeks. So were going to aspirate 2x week to keep it collapsed to heal. Suddenly aspiration is not so bad...

  • dancetrancer
    dancetrancer Member Posts: 4,039
    edited June 2012

    Uggh Stacie.  Hope the seroma resolves soon!

  • vjm
    vjm Member Posts: 79
    edited June 2012
    Good Morning All! Surfacing finally from my final chemo last Friday. Thanks for the support and encouragement along the way. I wanted to share how amazing my acupuncture was yesterday for my s/e's. I had been struggling with bone pain despite claritin, shortness of breath with anxiety r/t low hemoglobin, nausea ++, back and forth to toilet, shaky with lots of twitching and neuropathy, and a severe case of the blues (not really my nature unless I'm listening to them:). After my treatment - improved breathing, no anxiety, no nausea or stomach issues, decreased twitchy and neuropathy, decreased bone pain, and a real sense of calm. I walked to the beach, picked husband up from work and we went for halibut at Fisherman's wharf, poked around a car lot, and then came home. I slept last night for the first time this week. I was so happy to have celebrated solstice in some manner by the water and it almost felt like date nightWink. Wishing everyone minimum s/e's this week. vjm xo
  • Stacie
    Stacie Member Posts: 607
    edited June 2012

    Good news my bs corrected the info from his nurse and said RADS are rarely delayed for an axilla seroma but yes if its in the breast.

  • dancetrancer
    dancetrancer Member Posts: 4,039
    edited June 2012

    vjm - so happy the acupuncture helped so much!!!  I had several treatments earlier in chemo and really felt they helped my sense of well-being and overall comfort level.  PFC!  

    Stacie - that is indeed good news!  

    Just gave myself a Neupogen injection and hoping it it the last time EVER that I have to do that!  Get retested tomorrow, and even if I need a shot they can give it to me...easier!  Tomorrow is day 9 PFC, so still my nadir but hoping numbers will be high enough to leave well enough alone over the weekend.  

  • IndigoMont11
    IndigoMont11 Member Posts: 1,095
    edited June 2012

    Love the Edith Ann pic! Sitting in the chair myself waiting for my cocktail. Plugged in and plugged in - DS#2 and I are watching Office Space.



    I remembered today to ask if they have have a bell and they said no, but they said they sing Hit the Road Jack for your last tx. I like that but I still want to bring a bell to my last tx - something to look forward to!



    My MO is fine with icing so it's a go for next time. Thanks ladies again for all the info.

  • dancetrancer
    dancetrancer Member Posts: 4,039
    edited June 2012
    Careful indigo - you ring that bell, and you everyone a drink in chemoland.   Too bad it would have to be water.  LOL  Congrats on your last AC!!! 
  • IndigoMont11
    IndigoMont11 Member Posts: 1,095
    edited June 2012

    Vjm - glad you are doing so much better. Yay for end of chemo!

  • Gemmie
    Gemmie Member Posts: 103
    edited June 2012

    Isharvey, I also love the pic. She's in the big girl chair alright, and she doesn't look happy about it.  She forgot to ask for ativan or whatever I guess. . .

    I slept great last night! The Vicodan was my solution . . . I refused to spend aother night up half the night. Feelig good today!Kiss

    Some of you are going in for and talking about #2.  I wish you well, but honestly I don't even want to think about it yet. Right Vickilyn? We have a whole week and half with hopefully normal days ahead, yes?

  • lisa2012
    lisa2012 Member Posts: 652
    edited June 2012

    Fierro, hurray for the sleep!!! It's an issue every night for me, I alternate with nothing, Ambien, Ativan. Sometimes when I go to bed, sometimes at 3:00 am- and when I hit the jackpot and get 6-7 hours I am so happy and refreshed. Told my DH I feel like a girl of 16 again. Um intimacy, chapter four ? Big struggle. My expanders don't trouble me but my body does feel very real yet. plus fatigue. Dancetrancer, I get on top of tongue discomfort. Using Nystatin again, salt water, Biotene. Seems to be holding it down.

    Eyes watering, feet dry and peeling, but overall ok. Stacie, hope you are hanging in there. Wow.



    I get Zofran, no headaches and no nausea. Weight gain seemed level off around 9 lbs, not too horrible, steroid related (and maybe snacking from being home too much, cutting that out .) let go off coffee and alcohol at the beginning, didn't appeal. The acupuncture sound helpful but i am anti anti-needle these days!



    Feel good but confused. What lies ahead. I send honor and support to those ofmyounwho I realize have had many more bumps in the road,both with diagnosis and treatments. Hugs to all.

  • Gemmie
    Gemmie Member Posts: 103
    edited June 2012

    Marcia and IndigoMont-

    Hope you had an easy chair day both and no major SE's to come.

  • lsharvey822
    lsharvey822 Member Posts: 257
    edited June 2012

    Hope everyone's doing well today and staying out of the heat!  I'm halfway done tx#3 so only 1 and a half to go!  

  • Gemmie
    Gemmie Member Posts: 103
    edited June 2012
    Good Job, Isharvey. Hang in and wishing you none or at least minimal SE's from this round.
  • mclark55
    mclark55 Member Posts: 168
    edited June 2012

    dancetrancer: Thanks for that article - someone was asking me just the other day about the problem with food tasting odd while on chemotherapy, good suggestions.

    TriChick: awesome attitude.  I can only imagine how your BC dx changed your entire world, especially being a tri-athlete.  Good for you for having the courage to keep doing what you love best.

    I'll cheer you all on with some words that helped me through it all:

    "If you're going through hell, keep going!"  - Winston Churchill

    Hugs!

  • Fierro6
    Fierro6 Member Posts: 224
    edited June 2012

    The appetite is still good, and the headache continues.  It's still quite mild most of the time.  My mom mentioned that the only time she ever gets a headache is when she has a fever, and it even happens if it's a rather low-grade fever.  That got me thinking.

    My mom and I share a lot when it comes to our vitals.  Our blood pressure is usually quite low, and our normal temp is about 97.8 or so.  I was told to call the MOs office if my temp reached 100.5.  The one day that I felt the crappiest, I was watching my temp and it hit 99.9.  I should have called.  I was going by exactly what she wrote, instead of "call if your temp is 2 degrees above normal."

    I've been checking today, and my temp is hanging out around 98.7-98.9.  Normal for most folks, but a degree elevated for me.  I have a list of possible causes that I'm collecting for my trip to the doc on Tuesday.  In the mean time, I'm not taking anything for the headache during the day.  It really wasn't helping, and if I'm trying to get a fever, I'm afraid the Tylenol would mask it and I'd wind up in trouble.

    All of that being said, I still feel blessed with my SEs.  So many of you with so many major issues during treatment.  I know I've only had one round, but I'm hoping to continue as I've been this time. I think that God just knows how badly this family needs my income.  LOL  If I had the SEs that some of you have, I don't think I could work the hours I'm working now.

    I'm sitting here now, watching the clock.  I am waiting until 7 to take the sleep aid.  Somehow, it feels wrong to go to sleep before 7, but after 7 seems fine to me.  I'm one weird chick, but I'm OK with that.  Embrace your inner weirdo. 

  • vickilind61
    vickilind61 Member Posts: 338
    edited June 2012

    Fierro, I am with you.  This is the worst I've felt and if I had taken my imodium earlier, I could have gone to work.  Bone pain is moderate, tummy issues (until today) have been mild to moderate.  Still no sign of hair loss, and I ran a low grade temp for a day and a half.  When I read some of the SE's for some of these ladies, my heart goes out to them.  Tomorrow I will go back to work.  It's always something, as Gilda used to say. 

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