Compression garments for swelling of side & arm pit?

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KS1
KS1 Member Posts: 632
edited June 2014 in Lymphedema
Hi folks -- I've had LE in my arm (mainly hand) for about 3 years. I don't have breast lymphedema, but periodically, my axilla and side gets puffy and tender, and the skin on my lower back gets droopy on that side. It's been happening more, especially when I exercise.

I have tried shapers (control it, barely there), but they make my upper arm ache. I have also tried various under armour type short sleeve t-shirts, but haven't found anything that is small enough and doesn't cut into the armpit. My LE therapist suggested a compression bra with short sleeves. I found the following 3 online.

http://www.contourmd.com/Compression_Bra_with_Sleeves_by_Contour_p/24-bwsp.htm

http://designveronique.com/cgi-bin/ic/dv2/BV930.html

http://marenagroup.com/garmentstore/product/tabid/199/p-74-female-vest-with-short-sleeves.aspx

I'm a bit concerned that there would be double compression at the upper arm where the compression sleeve & bra sleeve overlap. Has anyone try any of these while wearing a sleeve?

Right now, when I exercise (walking), I've been wearing my axilla to fingertip Tribute, tucking a large sheet of Tribute fabric under my arm. It seems to help, but it is awkward and slips out if I don't keep my arm firmly by my side.

After reading a bunch of threads, I went to the Jovi site, and they make a 1/4 padded vest that seems similar to the thing that I have jury-rigged.

http://www.jovipak.com/vest.html

Has anyone tried this or the 1/2 padded version? They make it in different fabrics, and would love advice on which one is the coolest.

KS1

Comments

  • LindaLou53
    LindaLou53 Member Posts: 929
    edited June 2012

    KS1, if the swelling at the axilla and side is mild and transient, I think you should give some consideration to Kinesio Tape (KT).  If you have never taped before, find a therapist who is experienced in applying it and who will test a small area of your skin first to be sure you have no adverse response to the tape. 

    Early on in my LE treatments my therapist discovered KT and started using it on me.  In addition to my left hand and arm swelling I also had the marshmallow "puff" at the top of my left side just under the axilla area plus additional swelling down my side.  I began wearing KT that went from my fingertips to my wrist, my wrist to my antecubital (inner elbow), my elbow up to my shoulder, my shoulderblade down my side to my groin. I wore the KT underneath my daytime compression glove and sleeve, and also under my regular clothing on my side.  Being a bilateral mastectomy without reconstruction I chose not to wear any bras or prosthesis, but wore instead the slightly compressive Barely There camisole tops.

    I found the KT tape to be immensely helpful for the soft, puffy swelling below my axilla and down my side. It is important that the KT be professionally and correctly applied.  Using anchor points and proper placement of the cut strips is critical.  Also, the tender axilla area must be avoided and never taped, but KT can be applied in a method to avoid that area and still address the puffiness just below the axilla while gently rerouting the LE fluid into proper channels for drainage into the groin area.  After using KT consistently for about 6 months I no longer have issues with the marshmallow puff at the axilla and feel my camisole tops are adequate for mild compression in my truncal area.

  • toomuch
    toomuch Member Posts: 901
    edited June 2012

    KS1 - You may want to try using swell spots under a compression bra in the evening and for sleep. I wore compression cami's 24 -7 for a year and a half but now find that I can get a away with just compressing with a swell spot at night. Ahh, it's so nice to be free during the day! I also used kinesio tape from my axilla down to my groin. Once you learn to apply it with proper tension, it's easy to do yourself. Good luck finding the tricks that work for you!

  • Binney4
    Binney4 Member Posts: 8,609
    edited June 2012

    LindaLou, good thought! I wish I could use it, but I'm adhesive sensitive and it sorta dissolves the top layer of my skin--not real helpful!Frown I'm jealous of all you women who can use it. 

    KS, those sleeves would make me nervous too. If you get one, run it by your therapist to be sure the compression isn't too much in your upper arm.

    I have one of those Jovi vests, though since I'm bilateral it's full coverage. It works very well for reducing the swelling on side and axilla, and since that relieves the discomfort (or outright pain), it's comfortable. That said, I absolutely hate the wide Velcro down the front. It's so stiff it makes me feel like I'm trussed up in one of those old corsets. Maybe have them put a zipper in instead. Or make it a pullover (Solaris made me a couple of pull-over vests several years ago, and they're not as hard to put on as I thought they'd be.) For me, the Velcro is the deal-breaker, but JMHO. 

    Truncal LE does not have a lot of comfortable compression solutions.Tongue out

    Let us know what you discover! Hugs,
    Binney

  • BeckySharp
    BeckySharp Member Posts: 935
    edited June 2012

    KS--My therapist used to kineseo tape my trunk with some good results.  I now wear a breast swell spot under a loose bra at night and it really helps.  The heat right now is not helping me right now unless I stay in the ac.  I sometimes wear the swell spot in the daytime too. 

  • KS1
    KS1 Member Posts: 632
    edited June 2012

    Thanks so much for your responses.  My therapist had me use kinesiotape on my side, arm and my hand.  It worked pretty well on the side (but not on the hand).  Unfortunately, after awhile, the skin on my side and shoulder started looking funky, and the last time my therapist took it off, a big strip of skin came off with it.  My therapist said that she sees this with irradiated skin.  (Consistent with this, my hand and forearm -- which were not irradiated -- never reacted to the tape)  So, KT is out for a while.

    When I walk and when I work on the computer at home, I keep a sheet of swell spot material tucked under my arm, and I do think it helps.  What I need is a way of keeping it in place that allows me to move my arm, and I haven't found a bra or shapewear that doesn't make my arm worse.

    Binney, on the Jovi website, they say they use zippers instead of velcro with some fabrics.  What material is your Jovi vest made of?  How hot is it (say compared to a Tribute garment)?  Can you wear the Jovi vest with your Tribute sleeve?   KS1

  • CuterWCurves
    CuterWCurves Member Posts: 317
    edited June 2012

    Ok... I know... Not the same type of compression but reading this made me think of something a friend had so I phoned her. She had cosmetic surgery under her arm, upper arm etc. It is not as heavy a compression as some LE options but it came to mind.

    http://www.makemeheal.com/mmh/product.do?id=13484 

    Is there anything for LE like this? Just a thought.

    Shell

  • KS1
    KS1 Member Posts: 632
    edited June 2012

    This seems to be a long-sleeved non-breast version of the Design Veronique bra.  KS1

  • CuterWCurves
    CuterWCurves Member Posts: 317
    edited June 2012

    Yes that would be the link I posted. It is just the coverage area you mentioned... Wasn't sure the full compression bra was right as some have different needs re foobs, etc. so I thought it might work.

  • Binney4
    Binney4 Member Posts: 8,609
    edited June 2012

    KS, I have snaps on my sleeve tops that attach to the vest. Jovi and Tribute don't even use the same kind of snaps, much less place them in the same way. My Jovi vests have no padding on the shoulders, and the shoulders are narrower than the Tribute, so the Tribute is far and away a better product for me. I don't recall the names of the fabrics. I tried the Jovi silky fabric for one vest (it has a zipper) and it runs badly. None of them are cool because they're stuffed with foam chips. But putting them into the refrigerator during the day does make donning them on a hot evening easier, and the foam holds the cool for a few hours.

    I like the zippers much better, and they seem to last well despite the strain on them from the stretch and the constant use.

    I also have a Jovi post-mastectomy pad that I wear sometimes with a cami. It's here:
    http://www.jovipak.com/breast.html
    It feels great and works well for the swelling, EXCEPT that it doesn't stay in place, which, since it's under compression, is a major problem. I have to unbutton my shirt every half hour or so and readjust it. I did add a shoulder strap to it, and that helps (I asked if they could do that--two very short straight seams and a couple of inches of fabric--and they said it'd cost me $60. So I cut a wide, adjustable strap from an old bra and did it myself. You can buy a lot of chocolate for $60!) That addition helps, but it's still a battle keeping it in place. They had no suggestions for helping with that, so I assume they've never given it a test run themselves or they'd see how impossible it is.

    I wish I could be more help on this, but my solutions to these problems are piecemeal. I wear a WearEase cami and stuff a Solaris Kimbe Spot in the axilla when it's acting up. It's comfy and it stays in place well, but...I still really HATE this truncal stuff!!Yell

    Anxious to hear what you might discover!
    Binney

  • KS1
    KS1 Member Posts: 632
    edited June 2012
    I see my med onc tomorrow. She is a real doll, and said she would write an RX for whatever I needed. Would that I knew! I think I am going to ask her to write for one of the 3 short sleeved compression bras (I can always cut the sleeve shorter if there is double compression), plus some kind of swell spot to go with it.

    I was thinking about either Solaris's Lateral bra (SP 16-a) or Breast (SP-09) swell spots, but maybe the Kimbe is a better option.

    I'm also considering Jovipack's P-AX-MINI Mini Axilla Pad or P-AX Axilla Pad, for the Bellise bra, but I don't have a Bellise bra (or any bra for that matter).

    Do you have an opinion about the relative effectiveness of the Jovi vs. Solaris swell spots?

    Here is a URL that links to dozens of swell spots:

    http://www.biohorizonmedical.com/jovi-pak-combined-breast-pad-for-belisse

    -- KS1

  • 3Cbrca
    3Cbrca Member Posts: 16
    edited June 2012

    I have a drawer full of compression garments - bras, sleeves , gauntlets and a man's compression tee that I wear on airplanes. The best thing I found about a year ago at Target for the trunk and under the arm during the day, is a body-shaper. It's made by Maidenform-it's called Control it. It's worn over a bra- the from is cut out. It provides medium compression and fits snuggly under the arm. I bought it a size small rethan my clothes size.



    It wasn't expensive, so it may be worth a try. Holds in my tummy as well!



    Good luck!

  • hugz4u
    hugz4u Member Posts: 2,781
    edited June 2012

    Control it, Maidenform is the best for me, It comes high under the armpit and no irritation.  All the others I have sitting in the drawer are useless as tits on a boar. I don't wear the bra as this hinders my lymph flow. Instead I shove in some foamy's over my implants to even out the look! works!  Except it is hot in the summer! Not as expensive as some that claim they are compression bras!

    I think stepup-speakout.org recommends this one.  

  • Anonymous
    Anonymous Member Posts: 1,376
    edited June 2012
    I second the no bra. The band under chest stops the fluid from moving down torso and I swell terribly.




    I used the Maidenform Control It tank in regular compression and inserted round Jovipaks on the side of chest below arm pit. I left a tiny portion of the insert resting just above the underarm band of tank - this stopped the band from cutting in on my bad area. At first I used a single Jovipak on my bad side, but I later got another one to put on good side because uniform pressure felt better. (which is why the Solaris night vest feels so good, uniform pressure everywhere).




    This specific tank recommendation may be worthless, because I believe they now only make the Control It tank in firm control, which is too much compression for me. I have searched everywhere for my old favorite tank - regular stores and internet - and I cannot find. Looks like Maidenform replaced it with a plain new tank with a scoop neck and really nice shape to it. Love the way it looks, but the fit is slightly off enough that I would be flaring after wearing a few hours. If you happen to be a fan of the original firm compression Control It tank, they have changed the fabric to something more shiny. Don't know if this effects the fit or not.




    FYI, I have been doing a lot of research on compression tanks and tees and hope to soon share. For the life of me, I cannot understand who in the heck fits in these shapewear garments! I am small and thin, and sometimes I have a medium or large top on that feels too tight. I know I have a "swimmer's back" and broader shoulders, which made bathing suits and workout tops a difficult fit even before my BC. But I am not freakishly broad for my size, and without breasts or implants you would think it would be a lot easier, but it is not. The truncal LE makes anything that sits on the wrong area make me want to jump out of my skin!! I am away but should return to find a package with a new tank I am trying, and I will let you know how that works out.
  • 3Cbrca
    3Cbrca Member Posts: 16
    edited June 2012

    I'm dying to know how you do this. I hate bras now, but I had to have one of my implants removed due to Rad damage and now have to wear a prothesis on one side while I work on getting it fixed.



    Do you wear the Control It with the front cut out, or is there another one that comes up over the breast? Thanks for your help.

  • Binney4
    Binney4 Member Posts: 8,609
    edited June 2012

    3C, it does come in a style over the breasts:
    http://www.maidenform.com/shapewear/styles/camisoles--tops/control-it-firm-control-tailored-tank-12462

    But it doesn't have prosthesis pockets. If your insurance helps with either compression garments or mastectomy bras, the WearEase is a possibility for compression, and it has pockets too:
    http://www.wearease.com/wear-ease-products/compression/slimmer

    Happy hunting!Undecided
    Binney

  • hugz4u
    hugz4u Member Posts: 2,781
    edited June 2012

    Tina, I bought 2 or 3 control it from winners about 6 months ago.  Mine don't look that shiny. They have a v neck. I looked on the maidenform site and I am wondering if it is the same v neck I have or if that is new stock. Drats, If I was only wearing it, I could see the model number.  It is firm compression. 

    That brings up a question. Is that compression shaper moving the fluid or is it just containing it in the shaper?  Also if I go braless I don't seem to have a fluid accumulation. Can we go shaperless and just bare or do we need the shaper? I just started wearing them in the fall as that is when truncal really showed up for good. But it is sooo... mild, including the breast, mild. I just want to know if I will make it worse if I wear nothing?

  • Binney4
    Binney4 Member Posts: 8,609
    edited June 2012

    Hugz, since you know how to bring any flare back into control, why don't you carefully try it and see what happens? We're all different, so what works for one won't necessarily work for another, which is why there are no hard-and-fast rules. Once we have everything under control we can carefully experiment with options like you're suggesting. Just be sure you're keeping everything else the same--don't add some new activity, a dinner of salty pizza and potato chips, or an afternoon hike in 90 degree heat at the same time. Try it for a few hours or half a day at first, and gradually increase the time if everything's still in control.

    Compression garments like our daytime sleeves and camis don't technically move fluid, just contain it. But sometimes for me they DO reduce swelling. I suspect that's because, as long as I'm moving my muscles, the compression makes the pumping action against the lymph vessels more effective.

    Complicated, isn't it?!Undecided Nothing's simple about LE!

    Hugz back at ya'!
    Binney

  • hugz4u
    hugz4u Member Posts: 2,781
    edited June 2012

    Oh Binney....  I  just hate this experimenting. Today I have tried a gauntlet as I just hate the dreaded glove with a deep passion. I don't see anything drastic happening to my hand but who the heck knows. Maybe I will wake up tomorrow with a Hockey mitt sized hand.

    Oh it's so hard to know what to try: cami, no cami, shaper, no shaper, glove, no glove, sleeve,no sleeve. night, gear, no night gear,etc.etc. etc.  It could drive us nuts just trying to figure it out.

    One thing I have found out for sure. Next to chocolate, I am a chip head. I love potato chips, but last night confirmed it.  I had a whack of them and yep, I could feel it slightly in my pit at the back after a few hours. (is that possible. a few hours?) This morn it was gone.Smile

    Hey, Just because I said I was getting to be a master wrapper doesn't mean I should jump in head first and experiment like crazy! I am  just a very green newbie here.Laughing I don't think I would know how to control any bad flare, I am sure that I would be on these threads lickity split relying on your girls ever-loving help and expertise.Wink 

    Thanks for clearing up the cami compression fluid question, I always wondered about that. You always come thru for us.

  • KS1
    KS1 Member Posts: 632
    edited June 2012

    It's interesting how everyone's LE is different, but how many of us are struggling to find a solution to the side/axillary swelling.  My therapist is ordering the Design Veronique short sleeve top, and 4 different swell spots.   I'll report back when I get them.  KS1 

  • hugz4u
    hugz4u Member Posts: 2,781
    edited June 2012

    KSI, that Veronique looks interesting.

    I wonder if you could alter it to cap sleeves so you don't get double compression. I hate sewing and can't sew worth beans but I can see that I have so many things to alter just so I can keep my look together without my compression strap showing, my foamies floating,etc. Oh and don't start me on how many wasted shapers that cut under my arm are in my drawer taking up room. I can't even begin to alter those. That would be a major undertaking. 

    I have a swell spot that is suppose to fit under the armpit. floats all over the place. grrrr. See ...if I could sew ...I might attach snaps to my shaper so it wouldn't drift around. 

    I just want that underamour product that does it all.  I did email them with my thoughts but never did hear back. 

    Binney. I felt sorry for myself and got some  dark chocolate and organic walnuts and ate them together. Was goooood and was my dinnerLaughing

  • KS1
    KS1 Member Posts: 632
    edited June 2012

    Nerve damage (secondary to cervical herniation and RIBP) means I've lost a lot of upper arm muscle mass.  A very small silver lining of this is that in the Veronique bicep measurement, I aman  extra small and in the Veronique bust/chest measurement, I am a small.  I ordered the small size, and so I am hoping that I won't need to alter the arm.  I hear you about the shapers ... I've got 2 that still have the tags on them.  KS1

  • 3Cbrca
    3Cbrca Member Posts: 16
    edited June 2012

    Thank you Binney-



    I actually found some "pockets" at one of the sites that I had sewn into another "normal" garment.



    I' think i'l give this a try- Control It is the best thing I'v found for under the arm and the trunk!

  • KS1
    KS1 Member Posts: 632
    edited August 2012
    Here's the report I promised ....

    Design Veronique short sleeve bolero

    http://www.lymphedemaproducts.com/products/design-veronique-short-arm-sleeve-bolero.html

    Pros: 1) The bolero comes in a large range of sizes, with 3 rows of eyes/hooks in the front and 3 rows of eyes/hooks in the back, so chest/bust wise, most people would probably be able to find a size that fits. 2) The garment is made of nylon/spandex, but felty cotton material lines the sides of the garment (5" wide panel), the rows of eyes/hooks and the wide elastic band at the bottom. 3) There is space for breasts, and on me, there isn't gapping at the breast bone or flattening.

    Cons: 1) According to the chart, bicep-wise, I should have ordered an extra small, but I ordered a small instead because that is what my chest needed. Nonetheless, the biceps are quite tight on me, and would cause double compression when worn with a sleeve. Strangely, the upper arm isn't that tight, so I plan on cutting the arms to just overlap with my sleeve. 2) There are 16 small hooks/eyes on the front, and 19 hooks/eyes on the back. Anyone with hand issues is likely to have a hard time doing them, as is anyone who is wearing a compression glove. I found it impossible to do the hooks/eyes with my hand wrapped, and my husband had difficulty doing it. 3) Contrary to the description, the axilla isn't lined in cotton, and there are (flat) seams where the arm meets the body of the garment.

    I needed a compression garment that I can don myself, so I resumed my search for a short-sleeve compression shirt. I'm petite (< 5'3", 105 lbs), and I tried on 5 different brands of compression shirts in XS.   All were loose, but the least baggy is the Reebok XS short sleeve compression shirt currently being sold at Dick's Sporting Goods store:

    http://www.dickssportinggoods.com/product/index.jsp?productId=3008188

    I have been wearing the Jovipak Axilla Pad (P-AX) underneath two Rebook shirts. I seem to be getting adequate compression on the side, axilla, and underside of my upper arm for everyday activity, but I am not sure whether it will be enough for flying or heavy activity.

    Jovipak sells two axilla pads, the regular Axilla Pad (P-AX) and the mini axilla pad (P-AX mini). I didn't understand from the pictures/descriptions how different they are. In case anyone else is confused, here's my take on them:

    http://www.jovipak.com/breast.html

    The P-AX "was created in response to a request by Bellisse and a breast surgeon looking for a "tapeless solution" immediately following axillary node dissection. The flat quilted pad is placed against the chest wall and the medial upper arm pad is secured with the elastic strap. The axilla pad is held in place by the Bellisse Compressure Comfort Bra." The chest pad is large (small size is 11" wide x 8" long), but thin (1/2"). Attached to the chest pad is a pad that goes around the underside of the upper arm. The upper arm pad is 10" wide x 4" long x 1/2 " thick, with the two ends of arm pad being joined by a 6" elastic strap. When I wear my arm Tribute, the end jovipak upper arm pad and the arm Tribute meet at the underside of arm/axilla.

    The P-AX mini "was developed for a researcher doing clinical trials for Bellisse on seromas. It is a loose-fill pad that provides compression into the axilla with a small Continuous FlowTM extension secured by a sport or compression bra." On the small-sized P-AX mini, the loose-fill pad that sits in the axilla is 4" wide x 3" wide x 1.5" thick. The "continuous flow extension" is like a very small triangular version of the P-AX chest pad, measuring about 5" x 5" in greatest dimension. My armpit doesn't have much of a "pit" (cording/fibrosis/scar tissue etc), and so the axilla pad is way too big, and the "continous flow extenson" part isn't big enough to cover trunk swelling.

    Whew ... sorry for such a long report 

    KS1

  • brazos58
    brazos58 Member Posts: 261
    edited August 2012

    Morning

    Just want to toss some ideas your way as I have the armpits/ chest wall up front/ and side swelling on both sides of my ribs. I am a bilateral mx.

    Ok this is what is working for me with the help of a great LE/PT

    1. Compression Champion/ or Jockey Sports Bra ( careful not toooo tight as you can get over compressed and OUCH! )

    2. 2 Anterior Serratus Jovi Paks under the compression bra. Think WONDER WOMAN! these jovi paks

          start at the center of your chest/ travel under your armpit/ around to your flank. Stay nice in place

          with the compression bra. Will redirect back swelling down towards groin lymph watersheds.

    3. Under Armour Short Sleeve/ MENS....COMPRESSION Heat Resistant Gear.Wear that over sports bra with jovi paks in place...... Womens gear does not give enuff

         coverage at top of chest or fit as well under the armpits.

    4. Compression Sleeve/ Glove

    Wear it all day.... take it off at night... do a Manual Lymphatic Drainage Session/ Stretchs...... and I have been really good since my Truncal was diagnosed last summer. If I overdo it/ dont do my MLD.... I surely know it the next day. Been watching the heat....and that has been hard as we are baking here in PA.

    And if lucky I have DH, Sister or Friend do a MLD Session on my rib sides... directing the lymph flow towards my spine... it will take care of that pad of fluid that likes to build up. I have been using a small paint roller in the past and that helped as well.

    Feel free to PM me. And hang tight! You will get this figgered out and under control. Takes a spell.

    Chin up!

    xo

    brazos

  • carol57
    carol57 Member Posts: 3,567
    edited August 2012

    I don't have these particular issues (so far!), but this is such stunningly helpful information--all of these posts--that I just have to comment about what a supportive group this forum brings to us. Hugs and back pats all around! The detail here is amazing.

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