IBC people, how quickly did breasts change?

My rash popped up over night but it did increase in size before the IBC diagnosis.  That took 2 month to the day it popped up.  It seemed soooo slow, but now in retro speck it was a short amount of time.  Once treatment started it started to fade & texture of breast improved. 

The tricky part about IBC, is that symptoms can appear and present differently in each person.  

I hope you get some answers soon.  Waiting is the hardest part. NJ 

First remember - only between 1% and 5% of all DX'd breast Cancers are Inflammatory Breast Cancer (IBC). 80% of all breast biopsies are not cancer.



For me, it was quite rapid. I found a very enlarged node under arm that had not been 'feelable' the night before. I saw my PA a week later (she was out and I didn't want to see anyone else when talking about only a week). In that week I had gotten some peau d'orange and nipple was inverting a bit. She took one look at it and I was at radiology that afternoon for a new mammo that was followed by a sono and biopsies. Got the path. report the next morning (Fri) at 8 - as expected - IBC. Saw surgeon Mon, Rads Wed, Chemo Thurs. Lots of tests/scans, port in and started neo-adjuvant chemo 17 days post DX.



I never got red/rash, heat or pain in those 17 days. Breast did definately enlarge, peau d'orange spread and nipple totally inverted. We are each so unique. As is IBC - it is not 'Invasive' Breast Cancer (IDC/ILC).



There are so many possibilities for having pink areas on the breast - almost all have nothing to do with IBC.

Mine is pink and it's not ibc, it's ilc.

Hi, ok, so i had a ultersound and mammo done, ultersound came up as a birads4. the surgeon in alberta admited me to hospital with i.v. antibiodits for about a week, breast got more swollen i was in so much pain i was on morphine, also the u.s. and mammo showed no ABCSESS. thickening and nipple inverted , aerola was huge. so after days of antibitics then took me in surgery with a swollen breast, the surgeon said he removed an abscess and sent it to pathology came bck not cancer. more antibiodicts when  i was returned home. the incision isnt healing!!!.its been since march 7, 2012. So i went to the states to get a petscan/ct. it was a year to get one in canada. The petscan injection puts like a glucose in you and i guess cancer loves it!!..so it came up red...and a 8 on the fdg suv. so i went and saw a surgeon. he shook his head....you dont do surgery on i.b.c... thats why it isnt healing, he believes, but my breast isnt swollen anymore, just where he cut me the incision is still purple and nipple flat. but theres like a lump or sumthin where the incision is and under my nipple. so this surgeon has ordered a ultersound i go tuesday. So i had ultersound and mammo before surgery.. petscan/ct after surgery, also this american surgeon says i dnt hv an infection, and also when i was first admited to hospital my g.p and surgeon both said i had no infection, then after they said i got a staph infection....wtf?.....thats why i went to  the states and im still here...my breast was itchy on skin, burning, painfull, swollen ,,,big swollen felt like a rock and heavy.The aerola was like so big it was becoming like it wasnt there anymore..that make sense?...im not sure how to describe the ridges...it doesnt feel the same as my other boob. i have small boobs. i hope i have answered your questions, my rite auxillary lymph node showed enlargement with ultersound and petscan.My boob hasnt swelled up since surgery. please message me back

I am so scared and recently diagnosed with IDC. My breast is red, I haven't been told its ibc since I don't meet with the surgeon till tomorrow. I need all prayers!