Nobody says anything about your sleeve if you have a.....

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cookiegal
cookiegal Member Posts: 3,296
edited June 2014 in Lymphedema

Cane!

I had a cane today since I had an elective procedure on my foot.

So all day long I got, what happened to you?

Nobody noticed or said anything about my sleeve....and I got a seat on the subway.

That being said the amount of attention was kind of freaky, glad it is a short term thing.

So in "scissors, cane, sleeve"....cane wins.

Comments

  • Binney4
    Binney4 Member Posts: 8,609
    edited June 2012

    Wow, Cookie, even a seat on the subway! You may be on to something here.Cool

    Along that same line I've found that nobody says anything about it when I have my son's service dog in tow either. (We're what's called in service-dog terms a "triad team": I hold the loose leash and he keeps his hand on the harness--it keeps him steady in situations that are difficult for him.) I have no idea what would happen on the subway, but we get to lay claim to the "please-yield-to-disabled" tables at StarbucksLaughing!

    A dog is great company, but a cane sure is a heck of a lot easier!Undecided
    Binney
    Edited to add: so, how's your foot doing? Wishes for quick healing!

  • cookiegal
    cookiegal Member Posts: 3,296
    edited June 2012

    Foot is doing well.

    Yesterday was really tough, actually needed a wheelchair to get out of the office, and my husband used an office chair on wheels to get me down the hall at home.

    Almost don't need the cane tonight.

    I had platelet rich plasma therapy which is non-invasive, but is intended to cause swelling.

    I love getting it because my response to it is the one positive aspect of my talent for inflammation. I get better-than-average results from it.

    (It's the same DO who has been doing the arm injections.)

    I am hoping this will cut my foot pain and I can wear some prettier shoes this summer.

    I will say the cane got me a lot of sad faces when I went for my bone density scan at MSK. I wanted to say to people, it's ok, it's just my foot!

    Also this may seem odd, but I bought a hat at the gift shop, they have a great selection and prices. Felt a little bad because I think the clerk assumed I was getting ready to lose my hair.

    Isn't it funny how all of us make so many assumptions based on appearance!

  • ktym
    ktym Member Posts: 2,637
    edited June 2012

    scissors, cane, sleeve. 

    I needed a little cancer humor tonight cookie.  That was awesome. Yes, the assumptions are funny. I hope you feel better soon

  • Lee7
    Lee7 Member Posts: 657
    edited June 2012

    Cane wins...I love it!

    And so true about people making assumptions. 

    Hope your foot heals up fast.

  • moogie
    moogie Member Posts: 499
    edited June 2012

    Okay. I am going to go pirate and try an eyepatch...

  • cookiegal
    cookiegal Member Posts: 3,296
    edited June 2012

    moogie...I promie you nobody will notice the sleeve with an eyepatch.

    I could wrap and walk around the village in a mummy costume for the two weeks before halloween!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited June 2012

    You guys are funny! Hope your foot feels better soon.

  • carol57
    carol57 Member Posts: 3,567
    edited June 2012

    I once had a grocery store clerk protest that I shouldn't lift any grocery bags from cart to car, because from the looks of my arm I must have done a real job on it.  I was wearing sleeve and gauntlet, but the funny part is that I had just left the gym where I'd been lifting weights for an hour.  I didn't want to launch into any long explanations, so I accepted 'help' to the car with a smile.

  • BeckySharp
    BeckySharp Member Posts: 935
    edited June 2012

    People are always emptying my shopping cart onto cashier stand and offering to take my groceries out for me.  The helpfulness of the south.  I lose a few calories extra when they do not help!

  • sbelizabeth
    sbelizabeth Member Posts: 2,889
    edited June 2012

    I'm getting ready to order TWO of those wild sleeves from Lymphedivas to wear when I'm cycling.  They'll look just like sun-protecting arm warmers, and no one needs to know the one on the left is protecting my arm from more than sunburn.  Whaddya think?

  • Kicks
    Kicks Member Posts: 4,131
    edited June 2012

    Gee - no body ever offers me help when sleeve/glove is on. May be I. Just look like a tough old board? Good I don't want or need it. I do love shopping at the Commissary though as the baggers always push your groceries out and take the cart back in like stores used to do. Of course, tips are their only pay but then you pay no tax and get much better prices that more than cover the tip. Besides, in my po' ole feeble brain, it takes me back to a happier, gentler, kinder time to chat with the bagger walking out, loaded in vehicle and just hop in and drive off.

  • cookiegal
    cookiegal Member Posts: 3,296
    edited June 2012

    Nice to hear some good stories!

  • Marple
    Marple Member Posts: 19,143
    edited June 2012

    This thread is really interesting.  I wrap several times/week during the day.  And what I've noticed now that summer is here and I don't 'hide' the wraps with a long sleeve shirt (quite as much as in winter), that people actually seem quite helpful and less nosey about what the problem is.  I think it's because the wraps look a bit horrific to most.  Maybe they are afraid to ask and I'm quite content with that.  I just may go sleeveless in winter.........LMBO.

  • otter
    otter Member Posts: 6,099
    edited June 2012

    Where are those old threads when you need them...

    cookie, I like the "scissors, cane, sleeve" game. Cane wins, for sure.  I wore my sleeve and glove the last time I flew on a commercial airliner, and people were tripping over each other, offering to help me with my carry-on bag.

    What I vaguely remember from an older thread is things we can say if our sleeve gets too much attention.  Some people might think we've had a bad burn.  (That would be even more likely if we were wrapped instead of wearing a compression sleeve.)  But, if the attention is too personal, somebody recommended that we say, "Yes, well, the doctor said I should keep it covered so it wouldn't be as contagious."  And then smile pitifully.

    otter

  • AnnetteS
    AnnetteS Member Posts: 180
    edited June 2012

    I don't know how people can hide a wrapped arm in a shirt with sleeves.  I had trouble even finding a jacket to wear in the rain.  My arm is so big, I can't even wear most of my clothes that have short sleeves (luckily I live where it is usually around 70 degress).  With that said, you can see from my picture that I don't let that stop me from going out and having funCool

  • Marple
    Marple Member Posts: 19,143
    edited June 2012

    Annette, the shirts I wear when wrapped are men's.  They seem to be a lot roomier in the upper arm compared to women's shirts/blouses.  And not all men's shirts fit so I shop for them while wrapped. 

    Try sleeveless women's shirts rather than short sleeves. 

    Good luck with that drink in your avatar.  Wowzer.Smile

  • Binney4
    Binney4 Member Posts: 8,609
    edited June 2012
    Annette, I looked at your avatar and have to say I'm impressed--if I picked up something like that while wrapped it'd most likely end up in pieces on the floor.Undecided Love it!
    Binney
  • hugz4u
    hugz4u Member Posts: 2,781
    edited June 2012

    I always thought if I wore my wraps in public that people would just think I had a surgery done on my arm/hand and think no big deal. I think I get a lot of comments with my glove/ sleeve because people think that I have had a burn and they are just dying to know what happened.  I would like to say. "Are you really intertested or just nosey." If they are interested then I would educate them. I doubt they would say they are nosey, but get the point made. I'm too chicken to try this method. But... you can go for it!

    Moogie. That eye patch is a winner. Nobody would say, whats wrong with your arm! 

    It is weird how we all have different takes on this. It is all to do with our thinking/feeling patterns. 

  • cookiegal
    cookiegal Member Posts: 3,296
    edited June 2012

    Annette good for you!!!!!

    I had a funny moment today...there was a little girl with a cast on and were were both doing the one handed wash thing....and she kind of looked at the glove and seemed happy she was not alone.

    It's funny at Wal-Mart the workers never say anything. Everywhere else they do. 

  • YYC18tillIdie
    YYC18tillIdie Member Posts: 13
    edited August 2012

    Cane wins! I often use one due to severe arthritis in my hip. People move out of the way, give up their seats or are just polite and smile. With my sleeve on, I often have to skip out of peoples way so they don't slam into me (have had that happen to many times) or they just stare at me like I am infectious?

    I almost wish more people would ask about it, I would rather educate then be stared at like a leper. I always tell my fiance that I would like on that is fluorescent yellow and says "lymphedema" down it in black so people would give me a little clearance. LOL and if they asked I can just point and smile :)

    I am already a big girl and trying to find tops that fit my arms was a challenge (I used to body build), now it is more of a challenge. I find I wear tank tops or sleeveless more often so I try to wear sleeves that are interesting so I don't get the "you look like a weirdo" looks and people will be more likely to approach me for an education. Here's hoping.

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