Lumpectomy - what can i expect?

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  • Infobabe
    Infobabe Member Posts: 1,083
    edited June 2012

    Shayne

    You are 60% done. 

  • mirabile
    mirabile Member Posts: 47
    edited June 2012

    Thank you all for your supportive words! I'm pretty calm - wanting to just get through the day on Friday and hopefully nothing new will show up in pathology.

    (I still haven't seen my biopsy report - was just told that it's "got to come out" - fibro epithelial cells - probably just benign but sometimes containing other things in the margins)

    palmettomom3: Good luck to you, too! I think your SNB will cause a longer recovery than I will have with just the lumpectomy, but I have already arranged to have an extra day or so from work if I need it. It's interesting how differently people recover - the experience on these boards differs. I will wait to see how it goes for me and I wish you a smooth procedure and easy recovery, too.

    Is the "3" in your name because you have 3 kids? I have 3 too - ages 14-20. 

    I will post again once I'm all done.

    All the best to you!

  • palmettomom3
    palmettomom3 Member Posts: 41
    edited June 2012

    Mirabile...yes I have three kids...my youngest son is 6, my daughter is 9, and my oldest son is 12. Busy times!

  • Shayne
    Shayne Member Posts: 1,500
    edited June 2012

    Thanks Infobabe!!  Dreading when they pull this thing outta me - with no numbing or local or anything!!  .......but still grateful to have it over soon

  • mirabile
    mirabile Member Posts: 47
    edited June 2012

     Just an update:

    I had my surgery today (Friday). Had just lumpectomy with wire localization. No lymph nodes.I had a fibroethelial lesion which could be benign (like my previous lumps) or could be something called a phyllodes tumor. I am thinking positive until I hear otherwise later this week! My tumor was deep - near chest wall in upper inner right breast.

    In most ways it went better than or about as I expected. Long day - checking in at 9:30, wires at 11:30; surgery at 1ish - home just around 3:45. I wouldn't say the wire localization was a "piece of cake" as some have said, but it's certainly not terrible - just a quick numbing shot and then a lot of manipulation and new mammo films - the mammo squeezing with needle in was the hardest part for me, but we all were trying to laugh - it's such an odd set up!

    Everyone was extremely kind at each step along the way - make sure to get some heated blankets!

    The best part was that they gave me a choice of general anesthesia or IV sedation - I chose IV sedation and am so thrilled. I was completely asleep for the whole thing, but woke up much faster and quicker than if I had had general. They were ready to switch to general if there was any indication the IV wasn't working. They also gave me anti-nausea meds - so I had no nausea at all. 

    The only thing that's been harder is that my incision is much more painful than I expected - and larger. GS said this was due to wider margins needed. I also just had my CNB last week so the area is completely bruised and sore already. I also had an allergic reaction to bandaids so the whole area is just a blistery red mess. This is not typical - I'm not sure we're allowed to post pictures or I would post one so you could see the outcome - it would have helped me to see some incision pics. 

    I'm taking Vicodin but it's still pretty painful. I need to go back in tomorrow for a check if the Vicodin continues not to work, but I expect tomorrow will be much better - as things usually are.

    Even with the incision issues, the whole thing is very managable. I loved having my sister there with me all day - she had a lot of waiting but it was great to have someone with me during the in-between times. We laughed alot.

    I would recommend moving around as little as possible for the first 24 hours when you get home. Movement definitely makes it feel worse in these early hours. Like someone else on this thread, I find the bra (even the soft sports bra) too uncomfortable so am wearing loose t-shirt. I took a slow walk around the yard when I got home just to stretch out my legs (gently) and get some fresh air. Tonight a movie with the family while resting on the couch -- and ice cream. Now, off to bed. No pain typing (but I did not do lymph nodes so I assume that's different).

    It's really do-able.  I wish you smooth surgeries and recoveries. 

    I'll post a quick follow-up when I have my results.

    Many thanks again for the support and advice. I found it very helpful and I thought of you guys when I was at the hospital today!

  • lanalang
    lanalang Member Posts: 60
    edited June 2012

    Hi ladies,

     I had a duct excision last week in which they removed a mass, which is rather like a lumpectomy, so I thought I'd offer you a few pieces of advice. I agree with the other ladies: bring a sports bra with you. Also, try to ice the area after the surgery on and off, 30 min on, 30 off. In addition to that you might want to have an ace bandage to wrap around the sports bra. I got some really bad swelling opposite the site of the incision, because fluid accumulates from inflammation and might have trouble draining. More compression on the breast as provided by the bra + bandage together might help you limit swelling. The pain I felt was a sort of burning pain--they say the burning feeling is because of all the nerves in the area, so if you feel that it's probably normal. Good luck, ladies! I wish you the best and hope everything goes well.

     Sarah

  • Shayne
    Shayne Member Posts: 1,500
    edited June 2012

    they gave me a compression wrap to wear first 48 hrs - could barely stand it, but think it helped.  Then i wore sports bra.  Had swelling and a LOT of fluid - which came out when they put the internal rads out.  

    My surgery was very doable - not so bad at all.  I took a xanax before wire insertion/surgery and did not feel a thing.  Ive had dental appts that were worse.   

  • lanalang
    lanalang Member Posts: 60
    edited June 2012

    Shayne--glad to hear it went well for you! Hope it continues to get better.

    I know what you mean about the compression wrap. They didn't tell me to wear one the first day, but I wish they had. My breast swelled very badly and got all red and I might have to get it drained if it doesn't go down. They didn't tell me to wrap it until AFTER the swelling had gotten bad, which wasn't too much help to me at that point, which is why I wanted the ladies to know that tight compression like that beyond the sports bra will save you a lot of pain in the form of swelling later. I also found the compression wrap to be unbearable, I can barely tolerate wearing a bra day and night.

    Are you continuing to take something for the swelling like advil, or has your swelling pretty much been taken care of at this point?

  • Shayne
    Shayne Member Posts: 1,500
    edited June 2012

    yep - i did not read the post op directions - and took it off after 24hrs bc it was unbearable....then put it back on.  I think thats why i had so much swelling.  My surgeon said it would go down in a few weeks and should be better left alone instead of draining, but they do drain if its unbearable.  I had internal rad catheter put in a week later - so all that fluid came out.....gross, sorry, but it was a big relief!  I think ice.....then my surgeon said warm compresses are better after 48hrs.  fun times in the summer!

  • lanalang
    lanalang Member Posts: 60
    edited June 2012

    That's not gross, don't apologize, I'm just glad it came out for ya! The tender, painful to the touch swelling is no fun. and the redness isn't too pretty either. Glad to hear it's going well for you. I hope you don't have any more trouble wiht it!

  • kcobp
    kcobp Member Posts: 3
    edited June 2012

    After my lumpectomy in March, I heard water sloshing & thought we had a plumbing problem at work....then I realized it was me. It lasted for a while & I was swollen, but it wasn't painful, just uncomfortable. People next to me could hear the slosh too. I swore I was going to start carrying water bottles so wouldn't have to explain this to co-workers who weren't close friends.

  • Shayne
    Shayne Member Posts: 1,500
    edited June 2012

    My surgeon asked me if i could hear it!!  thats funny.  I couldnt - but i did see it on a CT scan for my rads treatment, and it made my cavity look GIGANTIC!  I gasped when i saw it, and my RO told me its like a water balloon, I didnt really have that much breast tissue removed.

  • jpmomof3
    jpmomof3 Member Posts: 643
    edited June 2012

    Mirabile, congrats on getting through surgery and especially for a benign diagnosis. Best wishes on a quick recovery. Great advice on the compression, I haven't had my lumpectomy and node dissection yet but this is helping me prepare. I think I will suffer through some discomfort and use it to h Leo try to prevent the fluid problems. Hope they settle down for you all!

  • jpmomof3
    jpmomof3 Member Posts: 643
    edited June 2012

    Whoops excuse the typos, autocorrect got me again.

  • lanalang
    lanalang Member Posts: 60
    edited June 2012

    Good luck, jpmomof3, if you have any questions you can always send me a message. hope everything goes well!

  • veegray
    veegray Member Posts: 16
    edited June 2012

    Very helpful information ladies. I am having my lumpectomy Monday 6-18 , uncertainty is killing me. After reading these post I feel  a lil better about it. Mine is directly behind my nipple and almost 2 cm. I am glad I found these posts before I go..

  • jenlee
    jenlee Member Posts: 504
    edited June 2012

    Best wishes to those who undergoing lumpectomy. Although tumor was fairly large, though shrunk from chemo, somehow my BS managed to do a nice job of, as she said, of fluffing it up, to be close to the size of the other breast. I was resting for the remainder of the day of surgery and the day after. Next day was back to normal. Stopped pain meds about three or four days after surgery. It turned to be all for nought since I decided to go ahead with the BMX & DIEP that I'd been considering. But I did want to mention how relatively easy it was, for others who are facing lumpectomy.

  • crazyride43
    crazyride43 Member Posts: 154
    edited June 2012

    I just had my lumpectomy and SNB on Friday 6/15, and lass than 2 days later I am feeling great.  I have taken a few extra strength tylenol, but mainly just ice the area which takes away any minor achiness.  No real pain at all - what will I do with all th pain meds I was prescribed??!!  My lump was at 3 o'clock on my left breast, and even though there was no remaining sign of cancer after neoadjuvant chemo, my surgeon said she would be taking tissue about the size of a walnut.  She did a beautiful job putting the incision following the curve of my areola.  I have a feeling once it's healed it will be barely noticeable.  The SNB scar is a little more funky and definitely more "achey" but not painful.  My biggest challeng so far has been sleeping on my back - I am a side sleeper and it's just uncomfortable!  I have dermabond on the incisions, so I can take a shower today.  I also had my port removed during my surgery, and total time under was about 2 hours.  I was a little nauseous after the anesthesia, but that was really my fault because they offered me the anti-nausea patch and I refused - doh!  This was by far the easiest thing I have done so far on this crazy cancer ride.

  • Shayne
    Shayne Member Posts: 1,500
    edited June 2012

    Getting sharp pains in my breast today  . . . . one of the techs at the RO office told me that is nerve endings coming back... 

    owie! 

  • mirabile
    mirabile Member Posts: 47
    edited June 2012

    My lumpectomy was Friday 6/15 -- doing great a couple days later (sore, no real pain) .... but the sloshing is very strange. I literally make a glug-glug sound when I go down stairs or step off a curb. It surprises me how loud it is.

    How long does this take to go away? 

    I expect my results on Wednesday and I'll ask the BS about it then...

  • Shayne
    Shayne Member Posts: 1,500
    edited June 2012

    my bs told me it could take weeks....even a few months!  

  • palmettomom3
    palmettomom3 Member Posts: 41
    edited June 2012

    Wow! So glad to see that those of you that just had lumpectomies are doing so well so quickly! I am nervous today as mine is tomorrow...



    The sloshing is funny! I guess that's the same sound you used to hear when as a kid you drank a lot of water and then went jumping around!



    My advice on the nausea patch is take it! It really helped last year with my gall bladder surgery.

    Veegray...good thoughts are with you tomorrow!
  • mirabile
    mirabile Member Posts: 47
    edited June 2012

    Best of luck to veegray and palmettomom - both scheduled for Monday!

    Sloshily yours,

    Mirabile :-)

  • veegray
    veegray Member Posts: 16
    edited June 2012

    Just hrs away from heading to the hospital and NOW I'm getting super nervous. I feel almost silly for being scared after reading all the stories and how it appears to be a "not so bad" procedure. However, I am scared. I have a great support system, wonderful friends that lift me up and spread their light and love whenever anyone needs it. I know with this team backing me up it'll all be ok. Just needed to vent for a minute, and tell somebody I'm scared.

  • veegray
    veegray Member Posts: 16
    edited June 2012

    And thank you all for the well wishes

  • Shayne
    Shayne Member Posts: 1,500
    edited June 2012

    Veegray - take a xanax or whatever before u go - I sailed right thru it with a big smile on my face!!

  • palmettomom3
    palmettomom3 Member Posts: 41
    edited June 2012

    Veegray ... I am scared as well! 6:30 am is gonna be here quickly...too quickly. I think it is just the fear of a not so good outcome! We can do this as others have and will be better for it. Remember that this is to make us better!

  • veegray
    veegray Member Posts: 16
    edited June 2012

    Palmettomom3... I know it's gonna be here soooo soon.. I pray yours goes well and outcome all good. I know that as for me, I'm gonna go thru this kickin butt and takin names, and you'll do the same. I work with survivors on a daily basis, just different kind, they're survivors of domestic abuse and they have taught me so much over the yrs while I thought I was teaching them. So I figure if these women can go through hell and back and continue to fight to live, then surely I can do whatever is headed my way.. thanks again and I'm sending you light and love ..

  • veegray
    veegray Member Posts: 16
    edited June 2012

    Shayne, thank you, well for everything. This was your post originally and I've learned tons from it.. sending my gratitude to you with lots of light.. good luck

  • Shayne
    Shayne Member Posts: 1,500
    edited June 2012
    this is a text my friend sent me, who had a dx of cervical cancer at 34yrs old weeks before my dx - I was sitting in the waiting room before the biopsies were done, freakin' out.  Here's what she sent

    Knowledge is power, tears are strength.  Feel this day and take solace in the fact that YOU are caring for yourself!!
     
    I read it on surgery day too - and have kept it in my phone.
     
    Believe me, the surgery will be the easy part of this - when you get this sucker outta you - oh, it felt so good!!!  
     
    Ill be thinking of you sending strength your way! 

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