Tedmed Talk- Will Make You Mad!

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MaryGLA
MaryGLA Member Posts: 330
edited June 2014 in Genetic Testing

http://theoranskyjournal.wordpress.com/2012/06/12/whats-a-previvor-cancer-advocacy-group-that-coined-term-objects-to-how-i-used-it-at-tedmed/

 As a BRCA 2 carrier, I thought you might be interested in the Tedmed talk available at the link above. in just ten short minutes Dr. Ivan Oransky does a great job of mocking FORCE and women who consider themselves "previvors."  I have already emailed Dr. Oransky and posted on his blog, but maybe some of you will get fired up and give him your two cents. Sue Friedman and the board of directors at FORCE have also responded to him. Like we don't have enough to deal with, right?

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  • MaryGLA
    MaryGLA Member Posts: 330
    edited June 2012

    I am not sure how many of you have watched the Tedmed video and posted on Dr. Oransky's blog, but more and more BRCA women and men are posting to demand an apology. If you need some background info, here goes.



    Dr. Oransky gave a talk at the annual Tedmed conference about over diagnosing and the growing treatment of preconditions like pre acne. He continued by saying there is a group trying to make money off of scaring women with the word previvor. He suggested Mark Burnett start a new reality tv show called Previvor where you have to leave the island when you get diagnosed with cancer. The audience thought this was really funny.



    I found it really hurtful. I did not know I was a BRCA carrier until after my diagnosis for Stage I cancer. I am not a previvor; I've had a Stage IV recurrence and am just trying to survive, period. My siblings, children, nieces and nephews will have to undergo genetic counseling, testing, and have to make the heart wrenching choices all of us in the BRCA community face.



    Ok. That's my rant for the day. If you have the time,please consider posting on the SOB's web blog. He needs to apologize.

  • Stormynyte
    Stormynyte Member Posts: 650
    edited June 2012

    He makes cancer jokes....how classy.

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