Calling all TNs

15105115135155161198

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  • naan1004
    naan1004 Member Posts: 520
    edited June 2012

    Thanks ladies couldn't have made it through this without all of u, my back dancers!

  • Tazzy
    Tazzy Member Posts: 2,546
    edited June 2012

    Dancing with ya Naan... words we all want to hear.  congratulations.

  • mags20487
    mags20487 Member Posts: 1,591
    edited June 2012

    sweet sweet sweet....so happy for you Naan!!!  amazing news for all of us

    Maggie

  • JAN69
    JAN69 Member Posts: 947
    edited June 2012

    Maggie--What's a lymph node transfer?

  • kathyrnn
    kathyrnn Member Posts: 393
    edited June 2012

    Naan - doing the Chicken Dance for you. Yay!!!!!

  • mccrimmon324
    mccrimmon324 Member Posts: 1,076
    edited June 2012

    Naan, definitly doing the happy dance for you!

    CS - lots of water/fluids.

  • Titan
    Titan Member Posts: 2,956
    edited June 2012

    Good to hear from you cocker..I don't like brazil nuts either...yech..don't blame your old fellar for not liking them

     The abbrevations can get confusing...it's kind of like texting...you just get used to them after awhile...

    Have a great weekend everyone...my son is having his friends over so I'm hiding out in the den...these kids don't start partying until 10:00 pm...not much sleep for me and my guy tonight I'm afraid...

  • OBXK
    OBXK Member Posts: 791
    edited June 2012

    Welcome to the new ladies!



    Annie - so glad you checked in. Hope you are feeling better soon.

    My husband ordered some type of prostate vitamin product - he hasn't started taking it, it's been sitting there for weeks. poor old things ;)



    Naan - Woo !



  • Anonymous
    Anonymous Member Posts: 1,376
    edited June 2012

    The port is OUT!! Woohoo! Mags- you were right, it was simple but took longer than expected. The reservoir was kind of stuck. The surgeon and nurse seemed surprised when I asked to keep the port. ( I have a photo project in mind for it.)

    Heather, didn't you keep yours also?

    Kathryn - that would have cracked me up!

    Anyway, I am happy that it's out.

    Phyllis

  • BernieEllen
    BernieEllen Member Posts: 2,445
    edited June 2012
  • linali
    linali Member Posts: 194
    edited June 2012

    Hi Bernie ellen

    loved the pilates must suggest it for our tuesday sessions at the centre, think it will work wonders! 

  • linali
    linali Member Posts: 194
    edited June 2012

    Hi Caroline,

    Just wondering how you are doing. Think you had appt with onc and also 2nd chemo.

    Thinking of you 

  • mccrimmon324
    mccrimmon324 Member Posts: 1,076
    edited June 2012

    work viewphgraham - if you mean me, unfortunately I still have my port in.  Dr said to wait a year to get it out so I have my 3rd 3 month appt coming up then I can ask about getting it out in the following.

    Have a question for you ladies, how do you post pics from facebook?  I can do it from photobucket but can't seem to figure out fb. 

  • DorisMarie
    DorisMarie Member Posts: 129
    edited June 2012

    Thanks for the welcome..this sure is a wild ride..right? glad to have connected with some on the same roller coaster..LOL..

    naan...great on the no cancer report..that is what I'm waiting for..

    phgraham..on the port out..is that another hospitol thing or done in dr. office? 5 more tx and hopefully mine can go bye bye..it sure is irratating...kinda aches all the time..besides being a big "bump" ..I must have the giant industrial size one..LOL..

    hoping the best for all my "sisters"..Doris

  • LuvRVing
    LuvRVing Member Posts: 4,516
    edited June 2012

    Heather - from Facebook I just right click in the picture and select "copy" from the dropdown menu.  Then come here, click in the text box, right click the mouse and select "paste"

    Just did exactly what I described with a picture in my newsfeed from the PhantomGourmet...need to watch this program later this morning!  They are going to talk about where to get the best fried clams...mmm...

  • Hope60
    Hope60 Member Posts: 223
    edited June 2012

    Just dropping in to say a quick hello to everyone.

    Welcome to the new ladies....you've found a great group of women here.

    CS - good to hear from you! I was wondering where you were.

    Naan - Great news! I'm dancing for you too!

  • Tazzy
    Tazzy Member Posts: 2,546
    edited June 2012

    Just wanted to say morning all.

    CS hope you are feeling stronger each day.

    Hope you survived your sons party Titan.

    Well been raining here AGAIN - and we have a friends bbq to go to this afternoon.   gonna do to the sun dance later in the hope we get some.

    Enjoy your days everyone.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited June 2012

    mccrimmon - yes, I thought you had kept your port for an art project.  Sorry, I still can't remember stuff

    DorisMarie - the removal was done in the surgeon's office with a local anesthetic.  I had the choice of doing outpatient surgery at the hospital but I didn't want to go through more anesthetic and spend most of the day getting it done.   At the surgeon's office I was in and out in less than an hour...then drove the 70 miles home..then worked the rest of the afternoon.  Of course when I got home I had a 4 hour nap.  It was good!  :)

  • Cher56
    Cher56 Member Posts: 187
    edited June 2012

    Hi & afternoon tazzy & all. Home from surgery





    Hooray! Did get confirmation that it triple negative. Breasts are gone..the wait for results has begun lol

  • JAN69
    JAN69 Member Posts: 947
    edited June 2012

    Cher  Glad your surgery is over.  There's now place like home!  Especially after a hospital stay.  Take it easy and let everyone pamper you.  Jan

  • mags20487
    mags20487 Member Posts: 1,591
    edited June 2012

    Jan 69-- a lymph node transfer is just like it sounds.  The surgeon "harvests" working lymph nodes and moves them to the auxilla (armpit area) and reconnects them to the lymph system. Sometimes it can be done with the lymph nodes that are in the fat they use for the DIEP reconstruction procedure.  There are only a few docs in the US that do this procedure. You can google it.  The actual term is Vascularized lymph node transfer or VLTx surgery.  Dr Massey is the one I am setting up for consult with and considering travel to New Orleans or South Carolina to have it done.  Sounds like it just might solve my LE issues.

    Maggie

  • JAN69
    JAN69 Member Posts: 947
    edited June 2012

    Maggie,  Thanks for the info.  I've never heard of this!  Wow!!!  I'm going to google it ASAP.  I want to get any further care at UCLA, maybe they have a specialist who does this procedure.   Good wishes with your consult and let us know what you learn.

    Happy Father's Day to all the old fellers!

  • borntosurvive
    borntosurvive Member Posts: 213
    edited June 2012

    Cher - happy you're home and the surgery is over.  One more step closer to the end of the journey.  Rest well and let people help you.

    Naan - AWESOME news.  Congrats 

  • Titan
    Titan Member Posts: 2,956
    edited June 2012

    What are you all doing for Father's Day?  My Dad and Mom are taking us all out to lunch..I'm so excited...we are going to a place that is not "healthy" at all..but I'm seeing roast beef, mashed potatoes and sweet corn in my future..and I'm going to enjoy it...alot.

    My kids took my husband and I to a casino today for Father's day...of course we didn't win..but that is to be expected but we did have fun...my son has been home one week from school and I think we are all driving him crazy already...it takes awhile to get adjusted...even our cats are acting weird....they are very edgy. 

    Hey naan..a little late but so happy for you..good stuff!  I really would like to see a video of Kathrynn doing the chicken dance though...

    update on a friend..actually two...I haven't wanted to say anything but the 26 yr old died one week ago...she said that all she wanted was her hair and boobs back...I seriously hope she does have all of that back and more now....she was a beautiful young girl that had this crap....my daughter said..Mom..you had triple negative too..that's the most aggressive cancer there is..and I tried to explain to her that no..it really isn't..yes it is bad..but there are so many survivors of tn...I explained to her that we can't take the drugs after surgery and chemo and rads but that those 3 give us the biggest bang for our buck...that even taking a 5 year drug is no guarantee...

    My other friend is Stage 2B..she just had her port in yesterday. chemo to follow very soon....I would love for her to come on here..she is not tn but she fits right in with the women on this board...funny, kind and very ready to kick cancer's a**S S ..I try to explain to people that coming on here is a good thing...that they will meet tons of women just like them...and that they don't have to post but just the information is awesome....I know that we can't believe everything we read but I have personally gained so much information from this board and met some great ladies...I've laughed my rear off and cried....

    Oh well..enough of the violin stuff...I'm off to do some "wine" exercises...thanks Bernie!

  • riley702
    riley702 Member Posts: 1,600
    edited June 2012

    I can't remember who asked about her friend's hair not coming back in very thick. Did she have Taxol or Taxotere? I think it's a rare SE of one of them (both of them?) that the hair is permanently thin afterwards. A lady in my church is very thin on top after her chemo 5 years ago. She just laughs it off and doesn't wear anything to cover it. Said she was glad she got the "SE" that it worked and she's alive. She's a very nice lady.

    I lost my Dad (lung cancer) in 2003. Tomorrow is Father's Day, and Monday will be his birthday. :(  Thanks for all the jokes and pictures, Bernie and everyone else. It helps me try to keep my spirits up. Love all you guys! <3

    It's been rough at work, too, lately. I can't say anything further without violating HIPAA, but cancer is an effing monster!

  • Tazzy
    Tazzy Member Posts: 2,546
    edited June 2012

    titan... I am so sorry to hear about your friend.  That is too sad for words and so bloody young to die from this crappy disease.  So unfair.   And your other friend shoud definitely come to this site.   I have learnt so much, and go to my appoints to my Oncs with so much information now... Like you I have cried and hurt with laughter.   

    Cher - welcome back, glad you are at home with your comforts around you. Rest lots.

    Talking of learning... Mags that about the lymph node transfer is great knowledge to have.   My BS told me he will be removing at least 20 nodes so the chances of my getting le were pretty high... as I wont be having recon for about a year this is good knowledge to go with.

    Oh! and Titan hope you over exerted yourself with the wine pilates Wink

    Me and DH do not have kids..but will spend time on skpe talking to our Dads in the UK.  Happy Dads Day to all the old fellers out there.

  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,204
    edited June 2012

    Hi Ladies

    So many new names on here I can't keep up with it all.  Welcome to everyone.

    Not had a great couple of days with SE's.  Arm is a bit swollen, not much but enough to make me worry.  Hands are numb although the BC side is worse than the other and they are all tingly.  Rash on my hands, but no tiredness this time and on the good front my boil is heaps better. 

    Titan - I'm  also having roast beef for dinner.  The old fellar is cooking it now and the smell is wafting my way. I see you are back on the wine and at that casino again, remember that race is coming up.  Gotta be fit and sober for that. 

    So sorry to hear about your friend and that lovely young lady passing.  Makes you wonder just what or who is up in that lovely blue sky.  So very sad and unfair.      

    Heather - the subject seems to have gone past but I just wanted to say I sincerely hope you do get the chance to have at least one baby in your future. This is heartbreaking for you and I really hope it happens.  You never know at the end of treatment you could be taking care of a little one and those other two babies of yours.  I was told I couldn't have children.  So we adopted my eldest girl and when she was nine months I found out I was two months pregnant. I have never regretted adopting though and she is and always will be my girl just as much as my youngest. They are very close and would anything for each other and we love them both dearly.  So just maybe this could be another avenue open to you.

    Lovely - I couldn't be without my grandchildren.  They are just gorgeous and keep me young and laughing.  I don't think anything is going to change that much in the world for people to stop wanting and having children.

    Karen - the brazil nuts are sitting right where your hubbys prostate vitamins are, on the side.  Panic about the prostate seems to be over, for now.  Though I did tell him in the middle of the night last night,  after the third wee, that he might consider taking them again.  He goes to the loo and then said if he walks around the hours for a bit he can go back and do more !!!!!  I said if you stay in there until you have properly been it saves all that trecking and keeping me awake. 

    Nann - my boil prevents me doing the happy dance but I'm thinking it.  Congratulations.

    Maggie - can you tell me how you LE started and the problems  you now have.  I have a feeling I am on the way to having/getting this and it's spacing me out because I type all day.   

    Oh well ladies I am going to go and eat some of that roast beef with crispy, crunchy tatties and heaps of good veges and then all my worries will be over.   

    Have a good day. Keep smiling.  Annie      

      

             

  • BernieEllen
    BernieEllen Member Posts: 2,445
    edited June 2012
    INSTRUCTIONS FOR GIVING YOUR CAT A PILL

    1. Pick cat up and cradle it in the crook of your left arm as if holding a baby. Position right forefinger and thumb on either side of cat's mouth and gently apply pressure to cheeks while holding pill in right hand. As cat opens mouth, pop pill into mouth. Allow cat to close mouth and swallow.

    2. Retrieve pill from floor and cat from behind sofa. Cradle cat in left arm and repeat process.

    3. Retrieve cat from bedroom, and throw soggy pill away. Take new pill from foil wrap, cradle cat in left arm holding rear paws tightly with lef hand. Force jaws open and push pill to back of mouth with right forefinger. Hold mouth shut for a count of 10.

    4. Retrieve pill from goldfish bowl and cat from top of wardrobe. Call spouse from garden.

    5. Kneel on floor with cat wedged firmly between knees, holding front and rear paws. Ignore low growls emitted by cat. Get spouse to hold cat's head firmly with one hand while forcing wooden ruler into mouth. Drop pill down ruler and rub cat's throat vigorously.

    6. Retrieve cat from curtain rail, get another pill from foil wrap. Make note to buy new ruler and repair curtains. Carefully sweep shattered figurines from hearth and set to one side for gluing later.

    7. Wrap cat in large towel and get spouse to lie on cat with its head just visible from below spouse's armpit. Put pill in end of drinking straw, force cat's mouth open with pencil and blow down drinking straw.

    8. Check label to make sure pill not harmful to humans, drink glass of water to take taste away. Apply band-aid to spouse's forearm and remove blood from carpet with cold water and soap.

    9. Retrieve cat from neighbor's shed. Get another pill. Place cat in cupboard and close door onto neck to leave head showing. Force mouth open with dessert spoon. Flick pill down throat with elastic band.

    10. Fetch screwdriver from garage and put door back on hinges. Apply cold compress to cheek and check records for date of last tetanus shot. Throw T-shirt away and fetch new one from bedroom.

    11. Ring fire brigade to retrieve cat from tree across the road. Apologize to neighbor who crashed into fence while swerving to avoid cat. Take last pill from foil wrap.

    12. Tie cat's front paws to rear paws with garden twine and bind tightly to leg of dining table. Find heavy duty pruning gloves from shed. Force cat's mouth open with small spanner. Push pill into mouth followed by large piece of fillet steak. Hold head vertically and pour 1/2 pint of water down throat to wash pill down.

    13. Get spouse to drive you to emergency room; sit quietly while doctor stitches fingers and forearm and removes pill remnants from right eye. Stop by furniture shop on way home to order new table.

    14. Arrange for vet to make a housecall.

  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,204
    edited June 2012

    Can you see that pill!!!!

     

  • naan1004
    naan1004 Member Posts: 520
    edited June 2012

    Thank u to all my fly girls who have danced and thought about dancing for those who r unable to dance yet! Special thanks to Titan for starting this wonderful thread! I too would like to see the chicken dance!!



    Doris, your journey will end as mine did, seems like forever, but you'll be surprised when u finish at how fast time passed by. My journey started Oct 2011, here I am all done, now I will focus more on me and try to live a more healthier lifestyle!



    Bernie, so funny, keep them coming!!

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