Starting chemo Thursday, May 31 - June Group?
Comments
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Pam- Thanks for sharing. How are your kids handling everything? I have a wig ordered finally...I'll be getting it next Tuesday. My hair is already short (cut at the ear lobes). When I tried wigs on the ones that had a similar style just had so much hair to them, It didn't feel natural. So the one I picked out is longer then my natural hair. I figured it will be nice to wear in the winter as my hair is growing out.
Ellebee- You have such a great outlook on life. Have fun on your vacation!!!(with or without the need of the bikini wax)lol.
Everyone Have a GREAT day!!
(((HUGS)))
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Ellebee- Just read your post on your haircut, I bet it looks awesome!!
Its funny how I'll post something and then I go back to reread everyones post and there will be new post. Does that happen to everyone or am I having brain fatigue?
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TeeBallMom: Good for you girl! I bet you look lovely. I was thinking about a pixie, but went slightly longer. Doesn't it feel so much lighter?
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Cmom, Thank you! I am sorry you clotted. Were you put on Coumadin? I take it. If you have any questions feel free to ask. I developed a DVT while pregnant, and have been on Coumadin ever since. The clot shouldnt be a problem at all with chemo.
Ellebee, your haircut sounds really cute!
Everyone, don't worry like I did about the hair. Once I did it I felt relief! I feel liberated! I was a slave to my hair! Also, usually I shave everyday and today I barely saw an hair to shave my underarms. People are treating me exactly the same. Believe me when I say, I am like a hawk, watching for any subtle difference in their reaction. My friend went shopping while I was in chemo and was showing me her clothes on the way home like I was a regular person. I just texted my sister my wig, Buzz cut, and scarf shot and the wig is the nicest but the buzz cut although not my best look is better than I thought.
I admit it, I sort of like the ease and convenience!!!!
Pam -
Forgot to say I just had my second A/C! Writing now because once Saturday hits I don't know.
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ElleBee: It feels really light and so much better, but it does make me remember why I normally keep long bangs. Boy my eyebrows are UGLY! This is an awful thing to hope for, but I hope those nasty things thin out during chemo. I look like I have two woolly catepillars above my eyes. LOL.
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Cmom- I had no idea about the blood clots. Thanks for the info. How are you feeling today?
ElleBee- I haven't been brave enough to get it cut short yet. I bet it looks cut on you! I had 8 inches cut off right after I was diagnosed and it is now a chin length bob. I am 14 days out from first chemo so I keep expecting it to start falling out. I keep looking for signs or hair on my pillow in the mornings. Does it fall out in clumps or a little at a time?
I just can't believe how good I feel. It is hard to imagine that I am "sick". That is how good I feel. Anyone else experiencing this? It feels surreal. I have a free week, no doctors appointments or testing of any kind! And, let me tell you, I am thoroughly enjoying it! My friends have been great and we have been doing lots of fun things now so I won't be missing things when I don't feel good! Got to LOVE the great support system I have! -
mom24boyzs: I'm so glad you're feeling good! It's hard getting a short cut, but I'm glad I got my pixie yesterday, especially in the 90+ degree weather we're having here. And that's fantastic that you're feeling good and have a great support system with your friends!!!!!
Take care!
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Jennifer - thanks for info on scarves, I will look them up.
Mom24 - I'm around 14 days too, today finding a few more loose strands, but no clumps yet. I felt on & off the week after 1st treatment, but then 2 weeks of feeling completely normal. It really wasn't as bad as I feared.
Pam - Thanks for sharing your hair experience. That is awesome! Gives me a little peace of mind.
ElleBee - The haircut sounds super cute! I have pretty long hair, and at first thought why waste the money on cutting it short, I will have to buzz it anyways, but I like the idea of donating the hair.
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Hi, mom24boyzs. I am feeling ok today, just trying to "take it easy." Tomorrow I have a MUGA scan and then a regular dr appt in the afternoon, all to get ready for my first chemo one week from today. :-/
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Hi again, Pam! They have me on Coumadin tablets and Lovenox that I have to inject every twelve hours. I almost fainted when I saw that 28 prefilled injectables (that's a two week supply!) of Lovenox were $2400.00!!!!!! Thank God that my co-pay is doable. Wow, just unreal to me! How are you feeling, Pam? How did your second infusion go?
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cmomof4, I have my MUGA today also. Port and Chemo will be Thursday. Looks like we're on aout the same schedule. Ieven had my mastectomy the same week as you.
I got my bone and CT scans done this week and just have to wait for the results now. I tried to catch a peek at the screen during the bone scan, but I couldn't see it! While I was there, a patient navigator had me call the Am Cancer Society to get set up with a free wig. That way I'm not out a bunch of money if I hate it. I went and picked that up yesterday. It's not so bad, but I'm still not sure I'll wear it. My kids thought it looked pretty close to my current hair. My son was disappointed....thought I'd have picked something more fun, like blue hair! My hair is already short because I have lupus, but I'm not sure that will make getting it buzzed any easier. Looks like just after the 4th of July is when I'll need to contend with it! At least it will be a long weekend to adjust!
Has anyone gone to the "look good feel better" presentations? I'm signed up for Monday and wondered what others had gone.
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Tammie- my youngest son (9 yrs old) was hoping for a purple wig. I just love how they adjust so well!!
So yesterday I spent the morning in the DMV office to renew my drivers licence. I'm glad they send the renewals out early so we can plan for the hair loss. My last picture was when I was 8 months pregnant. I'll be glad to get rid of that one. At least I didn't have to put down my real weight at the time.lol
cmomof4- sorry to hear about the blood clotting. When I was is the hospital, after my surgery, they gave my injections in the stomach to prevent it.
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Hi, just thought I'd finally join since I've been reading for a while. I started chemo this Monday, 6/11/12 and right now I'm trying to manage this fatigue. Yesterday was the worst. Guess I really can't complain, because I haven't experienced any nausea from the chemo, or bone pain from the Neulasta yet.
Just wanted to thank you all....you've already helped me so much already without even knowing it. Waiting for biopsy results in the mall one night, I almost passed out, but then I thought of all of the brave and strong women on here going through the same things and it really helped. And, I went from being terrified of the chemo experience to being thankful that there are treatments for us. My BS said if there's a good time to have breast cancer, it's now, because they have so many things to help women that they didn't have a few years ago.
Does anyone know if the fatigue gets better after the second week? I'm on a two week regimen -- DD A/C for 4 weeks, then DD Taxol 4 weeks. I hope I'm better when I go for my next infusion. I picture myself in a wheelchair during Taxol. Hope not!
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Hello you gorgeous ladies! I usually hang around the LD flap forum (having been there and done that!) but I have a blog also and got inspired to write today's blog about something we normally don't get told about at the doctor's office: http://marnieclark.com/natural-remedies-that-enhance-chemotherapy-and-reduce-toxicity/ . I used most of these natural remedies myself at one time or another and got through it remarkably well. Just wanted to share - hope it helps someone.
Sending you all lots of love today - go out and KICK CANCER IN THE BUTT!
xoxoxox
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KeepMoving: The fatigue comes and goes. I wrote a blog about helpful remedies for fatigue on May 15th: http://marnieclark.com/cancer-and-fatigue-6-helpful-remedies/ . I hope you find that useful.
You know, what you said about picturing yourself in a wheelchair reminded me of something. My mother said the very same thing. So guess what happened? She ended up in a wheelchair. One thing I learned when going through this with grandmother, mother and myself is that our minds can be used for healing! I highly recommend a book titled "The Creative Power of Imagery" by Dr Ian Gawler (you can get it on my book list: http://marnieclark.com/breast-cancer-books/) .
I would just love for everyone to comprehend that your mental images are sending messages to your body, so you might as well harness that power and use it for healing yourself!
Sending you lots of love and healing today. Gotta turn the computer off now - the sky has turned black and it's thundering!
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That's great, ElleBee!
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I had chemo yesterday and just woke up from a three hour nap. The tiredness is here. I did want to say hello.
Vballmom, Furry eyebrows rock. I hate thin overplucked brows. You can just get them shaped. Look at peoples brows that are thick and shaped and ask for recommendations. I am not sure when they fall out but might as well try to love them first!
Cmom, Lovenox is expensive! Are you okay with doing your own shots. The anticipation is the worst so just do it! How many days do you do shots? You usually just do it till your inr is between 2-3. Then just Coumadin. Lovenox is the bridge.
Minnie, I will check out your fatigue remedies. I sure could use some!
Marcia, How are you? I am on the West Coast of Florida. My dad is a snowbird on the East Coast. I like Boca. I visited Adventura and Mizner Park once.
Keepmoving, You are right. It gives you strength to see people just like you going through the same thing. It makes you feel more connected to humanity.
Having faith, Hope you are okay.
Ellebee, hope you are having fun at the beach house!
Pam -
pamelahope - I have been great and asked the NP if the stuff is working. She assured me that it is. I thought her instructions were to take the steroid daily, but it turns out that that was for the first 3 days only! She said it's okay that I took it longer and could be why I wasn't sleeping. I also checked on the Claritin with her and she said to take it. I didn't take it yesterday because I thought the consensus here was 5 days after the shot. Well, I now have some pain in my butt and my jaw. I'm sure there's a good joke there somewhere! I was also less careful with eating and ate some chips and tomato sauce, both of which I was warned against. Now I have some heartburn. All in all, I still feel better than I expected to. I went to the beach with 4 girlfriends and had an amazing, relaxing day.
I've never heard of Lithia. Is it near Tampa? I love the west coast of FL. It is too manicured here for my taste, but not a bad life. I'm going out to dinner in Mizner Park tonight!
I hope you can sleep tonight after such a long nap. I bet you will. I did the same thing after my first treatment.
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Marcia,
The beach sounds great. Mizner sounds fun too. I hate getting dressed up though. It is more relaxed here. Google Fishhawk Ranch. It is a beautiful community with walking trails, pools and the number one elementary school in Florida. Right outside Tampa. We love it. I love the East Coast too though.
You are doing great on A/C. What day are you on?
Pam -
I have two questions for everyone. Who here needs radiation? Are you as scared of it like I am? Any thoughts? I have a large tumor and one node.
Also, what are everyones plans regarding reconstruction? I just want it over and done with. I don't want to go through any more. Plus, I only want a natural look and with radiation, and needing a mastectomy, doing both, how natural can I get. However, my buzz cut and the thought of no breasts makes me reconsider. It is good I am married. I can picture the comedy act as I say excuse me and I remove my hair. Oh excuse me, there go my prothesis....however, it really shows you who really loves you for you. I have a strange sense of humor and I hope this wasn't in poor taste to post.
Pam -
Your absolutely right Pam, Having bc does show you who loves you for you. A big Hooray!!! out to all those loving and supporting husband who just want us healthy. I'm not going to do reconstruction. Its not a choice that I'm comfortable with, but I'm not saying that it is the right one for everyone. It is a personal choice. I got very annoyed in the beginning when people tried to talk me into it or assumed that I was (I wasn't very big to begin with so there wasn't much to loose).
I'm on day 10 and feel good!!
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I forgot to ask, does anyone elses have an itchy scalp on the top? Mine is so itchy today.
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Havingfaith, I have itcy scalp. I had it for about 5 days now. I am day 15 out from my first chemo. Where are you at? I don't seem to be shedding more hair than normal, but I'm sure it's coming. Does anyone know if it comes out all at once, in big clumps or slowly?
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mom24boyzs- I'm on day 10 since my first treatment. I have no idea if the itchy scalp is part of the hair falling out. And I have no idea if it is slowly or all at once. I have dreams that I wake up and all my hair is laying on my pillow still in its style.lol
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Havingfaith and mom2boys, day 13 I pulled out one clump of hair. It freaked me out bad. The girl who did it said my hair was coming out easily with her fingers. Prior to this, my scalp felt sunburned. The interesting thing is my buzzcut is growing!! I still have my hair and no bald spots. I think the buzz cut slowed down the progression. Today, I wore my wig and walked around normally.
Pam -
Havingfaith- that is too funny about your dream!! I can just picture it!
Pamelahope- that would freak me out too! I am a such a girly girl I am not looking forward to loosing my hair.
I'm trying to stay positive about the whole loosing my hair thing. I'm wondering how strange I will look without eyebrows or eyelashes. I rarely am without some make up and never without mascara. I did say I was a girly girl ;-) So I am wondering how I will look, but maybe I shouldn't be focusing on that and I should be focusing on the fact that the chemo is working and ridding my body of the cancer. -
Oh, ladies. I can feel your pain! Losing your hair is not fun - but way better than the alternative! Once it goes, you will be surprised at how liberated you feel though! Think of all the $$$ you'll save on shampoo, conditioner and hair spray! However, then there are things like scarves, wigs, hats... ha ha. We girls always think of ways to make ourselves look great, don't we?
Don't worry - you will all look just as gorgeous and it WILL come back! Sending lots of love your way today and (((hugs))).
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Pam, I'm fine with giving myself shots. I've had to do it before, so I wasn't nervous about it. I was insulin dependent with my fourth child for the last six months of the pregnancy so I had to do insulin shots every day, I think 2-4 times per day. How are you feeling?
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steelers: we do seem to be almost neck-in-neck with treatment. :-( They also told me to expect baldness around the fourth of July.
havingfaith: I had the belly injections also, after my mastectomy, but this (the Dr. said) was a complication of the cancer itself, not the surgery. I had no idea that clots can be a cancer complication, but they are, especially in the pelvic region, and/or the ovaries in women with hormone positive breast cancer. It's like trading one problem for another. Good grief it seems ridiculous! Other than a heart condition, and gestational diabetes, I've never had any big health issues. Then 2012 rolls around and BAM! Ugh!
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