Calling all TNs

OMG - This made me laugh so hard.  I loved it, thank you !!!

Rachel, if you're gonna have kids, better get a move on, the longer u wait the harder it'll be on u physically.

Morning Ladies,

Still getting used to working a different schedule.  Its getting hard to stay caught up.  Hope everyone is doing well. 

Rachelvk - I'll be 43 2 years PFC, I've pretty much given up hope of having kids.  I've wanted for so long and I feel like I've missed out on living or something without them.  I'm trying to work thru my feelings and just accept we won't have children, have to admit I've got some heavy anger issues at BC for completely eliminating my last chance for trying. 

Off to work!  Get my first paycheck tomorrow!!!  Finally, can start paying some down some of this debt we accumulated in the move.

Those are beautiful LVRVing. 

I got my port out yesterday and the procedure was so easy.  A little sore today but do not have to go in to work so no worries.  It is something how worked up I was about it coming out and it was a piece of cake. 

My son and his wife are getting a divorce so my sadness is consumed with them.  It is kind of good to get the focus off myself in my thoughts though.  I have been so down about the LE that it has helped me not to think of that. 

Today is my 26th anniversary with my Hubby.  This last year has proven how right we were for each other.  He has been my rock through this whole ordeal and still surprises me with his strength.  He has really stepped up and helped me through all this crap and now he is helping me with my decision for recon options.  Love him so much...sorry will stop gushing now.

Maggie

Bernie..... LOL !   My morning laugh - thank you.

Happy 26th anniversary mags - hope you are going to celebrate by doing something nice.

Luv.. those hydrangeas are beautiful.   For some reason my one in the garden is not doing very well this year

LNBCA - that's great news about your Mum... here's to further shrinking.

Way to go on the first paycheck mccrimmon.  That has to be a good feeling.

Hoping the rest of you lovely ladies are enjoying your days with very little SE's.

Off to see the BS today - chat later.

Peace and hugs xxxxxxx

Tazzy - glad you likes your new doc.



StayShiny - thanks for mentioning "procrit". I've been trying to pick that drug name out of my chemo addled brain for a couple days.



Rachelvk - (and McCrimmon too). Now I understand. For some reason, I thought you were 50. I'm so sorry for another thing that this awful disease has done to you. (((HUG))))



Bernie - I've told men that fact and it's hilarious watching them repeatedly sneaking looks at their thumb and then switching to sneaking looks at the other guys thumbs.



Mags - congrats on the port removal. Sorry for the sadness of your son's divorce. (I'd rather you win the lottery to distract you from the LE!). HAPPY ANNIVERSARY!!!!



LNBCA - that's wonderful. Even if she never posts and just reads the thread, it might help.

Tazzy - forgot to tell you I laughed when I read "And she did mention that the boob being nuked will likely get more 'perkier' than the un-nuked one.". My doc used that "perkier" line also, but I think they just do that to make it sound like a good thing. I assure you that little sister still sings a lovely duet of "Swing Low Sweet Chariot" with her big sister, she's just smaller!



Lovely - the closest word I can find that makes sense is "Oncocyte: an acidophilic " (just means stains with an acid dye) "granular cell especially of the parotid gland". Since your parotids are in the same location as your thyroid, I'm guessing they got a parotid cell in your sample. Please keep calling back till they return your call. I often have to call several times, to hound the staff. ( and if I keep having a problem, I wrote down the BS's cell phone when she called with my surgery results, and I'll use it if I ever have an emergancy they don't respond to!!!)

Kathyrnn - so you are the angel who looked up the word for me.  Thanks so much.  Wow, that makes sense now.  I am sure the transcriptionst made an error spelling it.  Well, I am so scared, see what happens this time.

Ladies, I want to ask everyone - does anyone have pain on their surgery side, so many months afterwards?  Is this normal?  What possibilities are there for pain.  I have always had a hard area around the surgical site, it is somewhat getting softer.  But the pain this time is coming from the surgery site all the way to under my arms, a few very sharp painful areas.  They say cancer does not hurt, but the first time around, both of them were hurting.  This time too, I feel tingling etc. in the other one, and lots of pain on the cancer side.  Oh, my goodness......... this is the third or fourth day with the pain. Does anyone have any idea what could possibly cause pain?  What is the logic behind hurtful breasts?  Is it high estrogen?  Too much acidity?  What the f.......k is it?

Lovelyface - it's interesting because I've had a lumpectomy, then Mammosite radiation, then BMX, then external radiation and I don't feel much of anything on my cancer side.  If you're in pain, something is wrong.  And if your BS is ignoring it, that's BS and you need to find a new surgeon!

Sagina - so sorry you, too, are in pain every day.  This battle is tough enough without having to endure pain.

I now have the email address of my MO.  She doesn't give it out to too many people, which is interesting because many of the Dana Farber docs encourage email.  My RO said he and his folks are anal about responding in a timely manner. 

Lovelyface My incision area (from modified radical mastectomy) still gets pain more than one year after surgery.  RO says it's the nerves healing back together!  I also have hard areas around the incision, even under my arm.  I'm guessing that is lymphedema.  I saw my PCP today and he's ordering more physical therapy for me and a referral to a obgyn for possible hysterectory.  I'm too old to have the BRCA test, but still worry about ovarian cancer.  I have three daughters, ages 46, 44, 40.  They need to know their risk for this shit.  My former co-teacher has been sent home to die of brain cancer.  She won't last 6 months, but is just about past being able to understand her situation.

 So glad I found this site, just wish I had done so when I was in treatment.  You all are such a dear group of women.

Jan69 - So sorry about your co-teacher. I think we all need to take up Lovelyface's chant. This disease in all its forms steals far too many (and I guess a single loss is too much). The standards for allowing brca are so frustrating; I suppose I was 'lucky' for getting BC so 'young' - but even with my diagnosis, my parents' efforts to get tested weren't covered. We'd like to know what side it comes from for sure, and my Dad already has a lump, which has tested negative through a biopsy. It's a shame that your daughters won't have some heads up unless one of them does develop BC.

Heather - Thanks for sharing. I pretty much had seen the door closing earlier; my BF really doesn't want kids, but I was still holding out for a change of heart or, well, an accident at some point. I agree with Naan - it would have to be sooner than later, but I've been told no sooner than 2 years pfc. So I'm trying to come to grips with a closed door (other than adopting older kids or some other way to become a force in a child's life). At least I have a wonderful nephew who just turned 1.

LNBCA - Great news on the ultrasound. It's always great to know that these treatments actually work. I had chemo after surgery, so it was strictly a 'just in case' approach with no way to know if there were any cells floating around, and if so, if it got them all. I hope it continues to shrink to nothing.

Mags - Happy anniversary, and good news about losing the port. How great that your DH has been such a support for you. But I'm sorry to hear about the divorce. I hope it's at least amicable.

Okay, dinner time. One great thing about chemo was that since my doctor asked me to avoid raw vegetables that couldn't be peeled (to avoid any that might be contaminated), I spent 5 months increasingly lusting after salad, and now I really have come to enjoy it so much that before. Score one for eating healthier! 

Maggie - I get my port removed tomorrow in the surgeon's office. Thanks for your post. I'll worry less now. They said the local anesthetic was the most painful part. I figure I can do that. I did ask the nurse if there was ever any screaming, crying or barfing...she said no.

Just learned that Dr. Susan Love has leukemia.  This story is getting old, and sadder each time.

Hi Lovelies,

I haven't read back through what I have missed yet. I just wanted to post something before I forgot I went to the Bonnie Raitt concert last night. First concert sans boobs. When her warm up band, did a drum solo - I thought I'd have a freaking heart attack! Without the cushion on boobs and muscles, that bass drum, nearly did me in. Who knew?

Oh, and I almost hit a big, black bear doing 60, on my way home! I have a new found appreciation, for anti-lock brakes.

I'll catch up tomorow!

OBXK:  I love Bonnie Raitt...hope the concert was good.  About the bass drum....I get it.  I hate that weird feeling.  As if your own heart is going to jump right out of your chest.  Actually nauseates me when music is way to loud or even the bass being turned all the way up on a stereo.

Lovely: I am 3 years out from BMX and right side ALD.  I STILL get sharp pains in my right armpit.  Happens when I least expect it and takes my breath away.  Luckily it is happening less and less and it only lasts for a few minutes each time.  My PS and BS both said that it is just part of the process.....BC, the gift that keeps on giving.