are you addicted to bco?
Comments
-
I am trying to move beyond cancer....I really am. These boards are such a great source of information, comfort and kinship. But...some days the posts scare the crap out of me. I have to admit, I'm addicted. I log on to browse, read, post almost every day - is this healthy? Can we move on if we are talking/reading about this every day.
I need to disconnect my internet...
-
Rozem, I face the very same dilemma
-
Hi ladies,
Finishing Herceptin in 2010 I intended to throw away all materials about BC: reports, guidelines, articles, medical books, and forget the story, but now - nearly three years after, I'm pending on BCO every day and I‘m getting information about BC aper e-mail from different medical sites. Information about BC collected from everywhere! YES, I'm addicted!
Best
Usha
-
Yes. But I have an addictive kind of personality.
-
Rozem - you only joined 7 months ago! sheesh - I was dx in 2008, joined BCO in Jan 2009, and am STILL here! I find it relaxing - like a cigarette break (except i don't smoke) - and have a certain thread tht is my fave. when there's nothing happening on it I cruise around, just looking for something interesting, or a place I can post. I might actually be addicted to writing! there are certain people I've grown fond of, too, and I like to read their posts, see how they're doing, and like to see how treatments ahve changed over past 4 years - and they have.
-
Hi I came on board in March of this yr altho I'm finished with all m treatments, but of course still go to Dr.s quite a bit and I've now gotten interested in after the shock and awe of all of this and I find I'm not alone in what I'm still going thru and how I feel phsically. That helps me mentall cuz so man people think o u'r done so u must feel fine now and I don't and of course I say I'm good--who wants to hear it anyway. And like some I like certain topics and I so impressed by the knowledge that so many of u have and of course I ave no idea what half of these thins mean but almost everone on here has really done research and their homework on all types of cancer and zi still don't know exactly what I had. So I guess I'm addicted too, it doesn't mean I can't move beyond it to me, it means I want to better understand m SE from all that has been done and what I'm taking now.
Anyway I feel like I can't move to far from it anyway so I might as well learn something and everyone is so nice on these boards.
-
BCO has saved my sanity. Where else could I find a place to talk about my changed sexuality; support for life changes; reminders to stay well; peeps who TOTALLY understand.... I feel so lucky to have BCO. New posts and new threads come up everyday and I can't believe how much I learn.
HOPELESSLY (hopefully?) addicted. : ) -
I was addicted the first time I had BC and then moved away from it when I thought I was in the clear. Now I am back with a vengeance and totally addicted again.
-
Yes, I guess I am addicted, too, but coming here helps me so much. Like it or not, I inhabit a different world now than I did before I was diagnosed with BC. It is good to read about how others are navigating this strange, new world and to help others along the way.
-
Me too, i have a love hate relationship with it. Hate it today because I just read something that said 1 out of 4 women will get a recurrence. I feel like saying well EFF me, maybe I should just get it over and done with then....
-
Hey....I am over 10 years out from dx and still come here everyday!
I do not think about bc all the time, but like to keep connected to the club nobody wanted to join.Only here does everyone 'get it'.
Unless you have been through it, you really don't understand.Plus it is good to be able to give some help and advice to newbies occasionally.I didn't find this place until 2 years after dx (wasn't computer literate in those days).....my journey would have been so much easier if I had had that support from day one.
-
"I Had Breast Cancer And Therefore, I'm Entitled."
My story and I'm sticking to it.
(This means that I am entitled to any addiction which is legal, and, therefore, I will not berate myself for being addicted to a cancer board.)
-
Good topic!! I did wonder the same about myself. I really wanted to stop thinking about cancer and wondererd if posting and reading on this site was keeping it top of mind. I found I wittled away my evening to much and so my answer to my addiction was simply to cut back on my time . I didnt' want to give it up as I found such support from this site and y-me cancer site when I was first diagnosed, that I wanted to continue to give back in some small way to those who are newly diagnosed.
-
sometimes I stay away for a day or 2, to prove to myself I'm not addicted & can get by without it
I guess that means I'm addicted?
-
Oh let's face it--if we are posting on this thread we're addicted. LOL I've been in the hospital and I am now and I'm posting. I got my computer here today so what if we are---Like Athena said we are entitled
-
I am SO totally addicted...but love it!
-
I find the return here grounding. I am not emotionally done with DCIS. I could easily pretend I am. But my return to bco focuses the things I am processing right now, keeps them here, allows my time away to be bc-free.
Also, I was so grateful to the many women who reassured me about so many different things as I went through dx and mx. I don't just feel like I owe something back. I feel like I must share what I know to give it all meaning.
And, too, there are still things I get reassurance about.
I think the question for me is not whether it is an addiction, but rather whether it adds to my quality and meaning of life. I am glad to say that I think it still does, and probably will for a very long time...
-
Rozem, I suggest that you pick out a couple places that are favorite to you and dont scare you as much. Save them to your favorites and the board will let you know when there is new activity. Only go to those forums then. I know how you feel because I went through the same thing. I did not become frightened until I was finished with tx and I came here crying almost every day. But because of the wonderful ladies here, they talk you down most often.
Another thing that I did was: I selected women that had close to my dx especially those 5+ years and saved them to my favorites also. when I need a pick me up I visit my dashboard and read those biographies. I recently received a calculator that I found very positive. I will try to find it and post it over here.
Good Luck
-
I'm almost 4 years post treatment and I still check in every day, I don't think I'm addicted though. I sometimes think that if I hadn't had a mastectomy I would have moved on but I see my body every day so I can't forget... and this site has helped me so much. It's like every time I log in, I open a door and enter a world where people understand that it's never over, and don't get tired of listening, and have answers to questions that would have to wait until my next appointment otherwise... so I'm really grateful for this site and for all of you.
-
Here is the site for the calculator. www.predict.nhs.uk/predict
I even put in a nasty case and it came up with reasonable results. My onc was very disheartning when I last visited, so coming here I find the much needed understanding and support.
I often refer to my BCO friends and the things I have learned. Its a good thing but addicting. Just be mindful of what you pick to read.
-
I like the expression, "playing it forward" - I'm a master of few things in life, but I've earned a PHD in improving my QOL while taking Arimidex
Very happy to share what I've learned with others on the same journey.
-
thanks ladies for all your comments...
i am posting on a saturday when i should be outside enjoying the nice weather LOL so i guess i still need my bco!
cindi - thx for the suggestion on just reading your favorites...i will try
so hard to be in cancerland everyday, some days its top of mind other days not so much but its still there lurking. What a shitty new way of living
but with this new "normal" no one gets IT like you ladies!
-
count me in. I'm addicted too. I think I should be moving on, but I just can't stay away, so I don't fight it. I think it's all very therapeutic to be in touch with people who have gone through the same thing and it just gives me the energy and desire to keep trudging forward.
-
Yes.
This site is really taking away from my Pinterest time.
But in all fairness, Pinterest didn't keep me sane when I was facing surgery, didn't cheer me on when I came out on the other side, didn't encourage me when I started losing weight, didn't make me laugh when I read something so funny only another BC sister would understand, and didn't make me feel like I was part of a bigger community of women who "got it."
I stay here because I'm not finished yet, and neither are many of the women I've come to know.
I stay here because this is the only BC site my MO lets me visit!
I stay here because I am learning waaaay more about BC than I ever did in a doctor's office.
So addicted? Yeah.....and good for me!!!
-
In one word, yes. But have tapered off Facebook and as well as the trashy TV (housewives) that I got hooked on during chemo. I have gotten so much valuable information ( including choosing my surgery) and support here. I've also learned things that have scared me, that I wish I didn't know. But ultimately, I'm grateful that BCO is here and for now I'm hooked and look at certain threads on a daily basis.
-
You are not alone. I finished treatment in late August 2008, but I still return to see how others are doing and to read reasearch updates. Since then, we've taken two ocean cruises, the first around Italy,plus Monaco and a few other great stops. This past February, we took a three-week cruise around South America. The beauty and variety of the wildlife and places we saw were overwhelming. I know that BC has changed me. I know I will be a better friend to others in my life with BC and other cancers. I now know how scared one is with the initial diagnosis and also the importance of keeping one's life as normal as possible. I also know how infuriating it is to be told to think positive by people who barely know me. I am a cheerful person, but that comment really made me angry as, like any cancer patient, my feelings ere all over the place. And I am so glad to be alive and reasonably healthy for being my mid-60s. God bless all of you on this board, plus extra thanks to the creators of this wonderful Website!
-
You are not alone. I finished treatment in late August 2008, but I still return to see how others are doing and to read reasearch updates. Since then, we've taken two ocean cruises, the first around Italy,plus Monaco and a few other great stops. This past February, we took a three-week cruise around South America. The beauty and variety of the wildlife and places we saw were overwhelming. I know that BC has changed me. I know I will be a better friend to others in my life with BC and other cancers. I now know how scared one is with the initial diagnosis and also the importance of keeping one's life as normal as possible. I also know how infuriating it is to be told to think positive by people who barely know me. I am a cheerful person, but that comment really made me angry as, like any cancer patient, my feelings ere all over the place. And I am so glad to be alive and reasonably healthy for being my mid-60s. God bless all of you on this board, plus extra thanks to the creators of this wonderful Website!
-
Cindi.....that link is not working (for me at any rate)
Categories
- All Categories
- 679 Advocacy and Fund-Raising
- 289 Advocacy
- 68 I've Donated to Breastcancer.org in honor of....
- Test
- 322 Walks, Runs and Fundraising Events for Breastcancer.org
- 5.6K Community Connections
- 282 Middle Age 40-60(ish) Years Old With Breast Cancer
- 53 Australians and New Zealanders Affected by Breast Cancer
- 208 Black Women or Men With Breast Cancer
- 684 Canadians Affected by Breast Cancer
- 1.5K Caring for Someone with Breast cancer
- 455 Caring for Someone with Stage IV or Mets
- 260 High Risk of Recurrence or Second Breast Cancer
- 22 International, Non-English Speakers With Breast Cancer
- 16 Latinas/Hispanics With Breast Cancer
- 189 LGBTQA+ With Breast Cancer
- 152 May Their Memory Live On
- 85 Member Matchup & Virtual Support Meetups
- 375 Members by Location
- 291 Older Than 60 Years Old With Breast Cancer
- 177 Singles With Breast Cancer
- 869 Young With Breast Cancer
- 50.4K Connecting With Others Who Have a Similar Diagnosis
- 204 Breast Cancer with Another Diagnosis or Comorbidity
- 4K DCIS (Ductal Carcinoma In Situ)
- 79 DCIS plus HER2-positive Microinvasion
- 529 Genetic Testing
- 2.2K HER2+ (Positive) Breast Cancer
- 1.5K IBC (Inflammatory Breast Cancer)
- 3.4K IDC (Invasive Ductal Carcinoma)
- 1.5K ILC (Invasive Lobular Carcinoma)
- 999 Just Diagnosed With a Recurrence or Metastasis
- 652 LCIS (Lobular Carcinoma In Situ)
- 193 Less Common Types of Breast Cancer
- 252 Male Breast Cancer
- 86 Mixed Type Breast Cancer
- 3.1K Not Diagnosed With a Recurrence or Metastases but Concerned
- 189 Palliative Therapy/Hospice Care
- 488 Second or Third Breast Cancer
- 1.2K Stage I Breast Cancer
- 313 Stage II Breast Cancer
- 3.8K Stage III Breast Cancer
- 2.5K Triple-Negative Breast Cancer
- 13.1K Day-to-Day Matters
- 132 All things COVID-19 or coronavirus
- 87 BCO Free-Cycle: Give or Trade Items Related to Breast Cancer
- 5.9K Clinical Trials, Research News, Podcasts, and Study Results
- 86 Coping with Holidays, Special Days and Anniversaries
- 828 Employment, Insurance, and Other Financial Issues
- 101 Family and Family Planning Matters
- Family Issues for Those Who Have Breast Cancer
- 26 Furry friends
- 1.8K Humor and Games
- 1.6K Mental Health: Because Cancer Doesn't Just Affect Your Breasts
- 706 Recipe Swap for Healthy Living
- 704 Recommend Your Resources
- 171 Sex & Relationship Matters
- 9 The Political Corner
- 874 Working on Your Fitness
- 4.5K Moving On & Finding Inspiration After Breast Cancer
- 394 Bonded by Breast Cancer
- 3.1K Life After Breast Cancer
- 806 Prayers and Spiritual Support
- 285 Who or What Inspires You?
- 28.7K Not Diagnosed But Concerned
- 1K Benign Breast Conditions
- 2.3K High Risk for Breast Cancer
- 18K Not Diagnosed But Worried
- 7.4K Waiting for Test Results
- 603 Site News and Announcements
- 560 Comments, Suggestions, Feature Requests
- 39 Mod Announcements, Breastcancer.org News, Blog Entries, Podcasts
- 4 Survey, Interview and Participant Requests: Need your Help!
- 61.9K Tests, Treatments & Side Effects
- 586 Alternative Medicine
- 255 Bone Health and Bone Loss
- 11.4K Breast Reconstruction
- 7.9K Chemotherapy - Before, During, and After
- 2.7K Complementary and Holistic Medicine and Treatment
- 775 Diagnosed and Waiting for Test Results
- 7.8K Hormonal Therapy - Before, During, and After
- 50 Immunotherapy - Before, During, and After
- 7.4K Just Diagnosed
- 1.4K Living Without Reconstruction After a Mastectomy
- 5.2K Lymphedema
- 3.6K Managing Side Effects of Breast Cancer and Its Treatment
- 591 Pain
- 3.9K Radiation Therapy - Before, During, and After
- 8.4K Surgery - Before, During, and After
- 109 Welcome to Breastcancer.org
- 98 Acknowledging and honoring our Community
- 11 Info & Resources for New Patients & Members From the Team