are you addicted to bco?

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rozem
rozem Member Posts: 1,375
edited June 2014 in Life After Breast Cancer
are you addicted to bco?

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  • rozem
    rozem Member Posts: 1,375
    edited June 2012

    I am trying to move beyond cancer....I really am.  These boards are such a great source of information, comfort and kinship. But...some days the posts scare the crap out of me.   I have to admit, I'm addicted.  I log on to browse, read, post almost every day - is this healthy?  Can we move on if we are talking/reading about this every day.

    I need to disconnect my internet... 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited June 2012
    Rozem, I face the very same dilemma Frown 
  • slousha
    slousha Member Posts: 312
    edited June 2012

    Hi ladies,  

    Finishing Herceptin in 2010 I intended to throw away all materials about BC: reports, guidelines, articles, medical books, and forget the story,  but now - nearly three years after, I'm pending on BCO every day and I‘m getting information about BC aper e-mail from different medical sites. Information about BC collected from everywhere! YES, I'm addicted!

    Best

    Usha

  • JoanQuilts
    JoanQuilts Member Posts: 633
    edited June 2012
    Yes.  But I have an addictive kind of personality.  Tongue out
  • flannelette
    flannelette Member Posts: 984
    edited June 2012

    Rozem - you only joined 7 months ago! sheesh - I was dx in 2008, joined BCO in Jan 2009, and am STILL here! I find it relaxing - like a cigarette break (except i don't smoke) - and have a certain thread tht is my fave. when there's nothing happening on it I cruise around, just looking for something interesting, or a place I can post. I might actually be addicted to writing! there are certain people I've grown fond of, too, and I like to read their posts, see how they're doing, and like to see how treatments ahve changed over past 4 years - and they have.

  • camillegal
    camillegal Member Posts: 16,882
    edited June 2012

    Hi I came  on board in March of this yr altho I'm finished with all m treatments, but of course still go to Dr.s quite a bit and I've now gotten interested in after the  shock and awe of all of this and I find I'm not alone in what I'm still going thru and how I feel phsically. That helps me mentall cuz so man people think o u'r done so u must feel fine now and I don't and of course I say I'm good--who wants to hear it anyway. And like some I like certain topics and I so impressed by the knowledge that so many of u have and of course I ave no idea what half of these thins mean but almost everone on here has really done research and their homework on all types of cancer and zi still don't know exactly what I had. So I guess I'm addicted too, it doesn't mean I can't move beyond it to me, it means I want to better understand m SE from all that has been done and what I'm taking now.

    Anyway I feel like I can't move to far from it anyway so I might as well learn something and everyone is so nice on these boards.

  • Cyborg
    Cyborg Member Posts: 848
    edited June 2012

    BCO has saved my sanity. Where else could I find a place to talk about my changed sexuality; support for life changes; reminders to stay well; peeps who TOTALLY understand.... I feel so lucky to have BCO. New posts and new threads come up everyday and I can't believe how much I learn.

    HOPELESSLY (hopefully?) addicted. : )

  • wrsmith2x
    wrsmith2x Member Posts: 410
    edited June 2012

    I was addicted the first time I had BC and then moved away from it when I thought I was in the clear.  Now I am back with a vengeance and totally addicted again.

  • Elizabeth1889
    Elizabeth1889 Member Posts: 1,036
    edited June 2012

    Yes, I guess I am addicted, too, but coming here helps me so much. Like it or not, I inhabit a different world now than I did before I was diagnosed with BC. It is good to read about how others are navigating this strange, new world and to help others along the way.

  • Letlet
    Letlet Member Posts: 1,053
    edited June 2012

    Me too, i have a love hate relationship with it. Hate it today because I just read something that said 1 out of 4 women will get a recurrence. I feel like saying well EFF me, maybe I should just get it over and done with then....

  • sam52
    sam52 Member Posts: 950
    edited June 2012

    Hey....I am over 10 years out from dx and still come here everyday!

    I do not think about bc all the time, but like to keep connected to the club nobody wanted to join.Only here does everyone 'get it'.

    Unless you have been through it, you really don't understand.Plus it is good to be able to give some help and advice to newbies occasionally.I didn't find this place until 2 years after dx (wasn't computer literate in those days).....my journey would have been so much easier if I had had that support from day one.

  • 1Athena1
    1Athena1 Member Posts: 6,696
    edited June 2012

    "I Had Breast Cancer And Therefore, I'm Entitled."

    My story and I'm sticking to it. Innocent

    (This means that I am entitled to any addiction which is legal, and, therefore, I will not berate myself for being addicted to a cancer board.)

  • bevin
    bevin Member Posts: 1,902
    edited June 2012

    Good topic!! I did wonder the same about myself. I really wanted to stop thinking about cancer and wondererd if posting and reading on this site  was keeping it top of mind.  I found I wittled away my evening  to much and so my answer to my addiction was simply to cut back on my time . I didnt' want to give it up as I found such support from this site and y-me cancer site when I was first diagnosed, that I wanted to continue to give back in some small way to those who are newly diagnosed.

  • coraleliz
    coraleliz Member Posts: 1,523
    edited June 2012
    sometimes I stay away for a day or 2, to prove to myself I'm not addicted & can get by without itUndecided I guess that means I'm addicted?
  • camillegal
    camillegal Member Posts: 16,882
    edited June 2012

    Oh let's face it--if we are posting on this thread we're addicted. LOL I've been in the hospital and I am now and I'm posting. I got my computer here today so what if we are---Like Athena said we are entitled

  • carolinames
    carolinames Member Posts: 43
    edited June 2012

    I am SO totally addicted...but love it!

  • CLC
    CLC Member Posts: 1,531
    edited June 2012

    I find the return here grounding.  I am not emotionally done with DCIS.  I could easily pretend I am.  But my return to bco focuses the things I am processing right now, keeps them here, allows my time away to be bc-free.

    Also, I was so grateful to the many women who reassured me about so many different things as I went through dx and mx.  I don't just feel like I owe something back.  I feel like I must share what I know to give it all meaning.

    And, too, there are still things I get reassurance about.

    I think the question for me is not whether it is an addiction, but rather whether it adds to my quality and meaning of life.  I am glad to say that I think it still does, and probably will for a very long time... :)

  • Cindi2011
    Cindi2011 Member Posts: 133
    edited June 2012

    Rozem, I suggest that you pick out a couple places that are favorite to you and dont scare you as much.  Save them to your favorites and the board will let you know when there is new activity.  Only go to those forums then.  I know how you feel because I went through the same thing.  I did not become frightened until I was finished with tx and I came here crying almost every day.  But because of the wonderful ladies here, they talk you down most often.

    Another thing that I did was: I selected women that had close to my dx especially those 5+ years and saved them to my favorites also.  when I need a pick me up I visit my dashboard and read those biographies.  I recently received a calculator that I found very positive.  I will try to find it and post it over here.

    Good Luck

  • Renata
    Renata Member Posts: 172
    edited June 2012

    I'm almost 4 years post treatment and I still check in every day, I don't think I'm addicted though. I sometimes think that if I hadn't had a mastectomy I would have moved on but I see my body every day so I can't forget... and this site has helped me so much. It's like every time I  log in, I open a door and enter a world where people understand that it's never over, and don't get tired of listening, and have answers to questions that would have to wait until my next appointment otherwise... so I'm really grateful for this site and for all of you.

  • Cindi2011
    Cindi2011 Member Posts: 133
    edited June 2012

    Here is the site for the calculator.  www.predict.nhs.uk/predict

    I even put in a nasty case and it came up with reasonable results.  My onc was very disheartning when I last visited, so coming here I find the much needed understanding and support. 

    I often refer to my BCO friends and the things I have learned.  Its a good thing but addicting.  Just be mindful of what you pick to read.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2012
    I like the expression, "playing it forward" - I'm a master of few things in life, but I've earned a PHD in improving my QOL while taking ArimidexWink  Very happy to share what I've learned with others on the same journey. 
  • rozem
    rozem Member Posts: 1,375
    edited June 2012

    thanks ladies for all your comments...

    i am posting on a saturday when i should be outside enjoying the nice weather LOL so i guess i still need my bco!

    cindi - thx for the suggestion on just reading your favorites...i will try

    so hard to be in cancerland everyday, some days its top of mind other days not so much but its still there lurking.  What a shitty new way of living

    but with this new "normal" no one gets IT like you ladies!

  • GrandmaV
    GrandmaV Member Posts: 1,267
    edited June 2012

    count me in.  I'm addicted too.  I think I should be moving on, but I just can't stay away, so I don't fight it.  I think it's all very therapeutic to be in touch with people who have gone through the same thing and it just gives me the energy and desire to keep trudging forward.

  • Blessings2011
    Blessings2011 Member Posts: 4,276
    edited June 2012

    Yes.

    This site is really taking away from my Pinterest time. Undecided

    But in all fairness, Pinterest didn't keep me sane when I was facing surgery, didn't cheer me on when I came out on the other side, didn't encourage me when I started losing weight, didn't make me laugh when I read something so funny only another BC sister would understand, and didn't make me feel like I was part of a bigger community of women who "got it."

    I stay here because I'm not finished yet, and neither are many of the women I've come to know.

    I stay here because this is the only BC site my MO lets me visit!

    I stay here because I am learning waaaay more about BC than I ever did in a doctor's office.

    So addicted? Yeah.....and good for me!!! Wink

  • jenlee
    jenlee Member Posts: 504
    edited June 2012

    In one word, yes. But have tapered off Facebook and as well as the trashy TV (housewives) that I got hooked on during chemo. I have gotten so much valuable information ( including choosing my surgery) and support here. I've also learned things that have scared me, that I wish I didn't know. But ultimately, I'm grateful that BCO is here and for now I'm hooked and look at certain threads on a daily basis.

  • LizinKS
    LizinKS Member Posts: 65
    edited June 2012

    You are not alone. I finished treatment in late August 2008, but I still return to see how others are doing and to read reasearch updates. Since then, we've taken two ocean cruises, the first around Italy,plus Monaco and a few other great stops. This past February, we took a three-week cruise around South America. The beauty and variety of the wildlife and places we saw were overwhelming. I know that BC has changed me. I know I will be a better friend to others in my life with BC and other cancers. I now know how scared one is with the initial diagnosis and also the importance of keeping one's life as normal as possible. I also know how infuriating it is to be told to think positive by people who barely know me. I am a cheerful person, but that comment really made me angry as, like any cancer patient, my feelings ere all over the place. And I am so glad to be alive and reasonably healthy for being my mid-60s. God bless all of you on this board, plus extra thanks to the creators of this wonderful Website!

  • LizinKS
    LizinKS Member Posts: 65
    edited June 2012

    You are not alone. I finished treatment in late August 2008, but I still return to see how others are doing and to read reasearch updates. Since then, we've taken two ocean cruises, the first around Italy,plus Monaco and a few other great stops. This past February, we took a three-week cruise around South America. The beauty and variety of the wildlife and places we saw were overwhelming. I know that BC has changed me. I know I will be a better friend to others in my life with BC and other cancers. I now know how scared one is with the initial diagnosis and also the importance of keeping one's life as normal as possible. I also know how infuriating it is to be told to think positive by people who barely know me. I am a cheerful person, but that comment really made me angry as, like any cancer patient, my feelings ere all over the place. And I am so glad to be alive and reasonably healthy for being my mid-60s. God bless all of you on this board, plus extra thanks to the creators of this wonderful Website!

  • sam52
    sam52 Member Posts: 950
    edited June 2012

    Cindi.....that link is not working (for me at any rate)

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